Guest guest Posted January 4, 2011 Report Share Posted January 4, 2011 I took 200 mg doxy for 2 weeks and then was CDC pos at Quest. Good Luck. From: Abbey <aleibensperger@...> Subject: [ ] Need LLMD in PA Date: Tuesday, January 4, 2011, 1:22 PM  I am in need of a list of LLMD's near Schuylkill/Berks County in PA. I can't afford one that doesn't accept insurance (BC/BS) so the one in Hamburg won't work for me. I have an appt already with one in Chadds Ford, PA, but I would need to drive 1 1/2 hrs 3x week for IV treatment which is out of the question as a full time single mother. Any other options would be a great help! I also have another question... My family doctor has been with me through my struggle for a diagnoses for 8 years now and she finally last week put Lyme as an official diagnosis in my chart (by my request) even though I never actually tested positive (only once was borderline). We both know I have chronic Lyme as I display so many symptoms, especially neurological. My question is, will I still have to test positive through Igenex (and pay out of pocket for the test) before an LLMD will treat me? Also, I live in a very Lyme dense area, and both my children have forms of ADD. I've had one tested through our fam dr. but it was negative. I probably already know the answer to this question, but should I have both my kids tested through Igenex? I'm not sure I know how Lyme is displayed in children other than it may cause ADD? I've done so much research yet I still feel so clueless against this disease! =/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2011 Report Share Posted January 4, 2011 (sigh) ANOTHER reason to wish I was young again.... I rant, therefore I am. In a message dated 1/4/2011 11:05:52 A.M. Pacific Standard Time, srobinson@... writes: Fortunately, curing kids is also far easier than curing adults -- it takes fewer drugs and less time, and they make better recoveries than grownups do. Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2011 Report Share Posted January 4, 2011 The odds of finding any LLMD who takes insurance are very slim. Interacting with insurance companies is a good way to get themselves put right out of business. It's a big risk, and most of them won't take it. Let your LLMD arrange for and interpret your Igenex test. They're not easy to interpret -- there's a lot going on, and LLMDs have been trained to decode it all. The CDC is emphatic that Lyme diagnosis does not require a positive test, though; it can be done on the basis of symptoms alone. Because of this, a doctor may treat you even without a test, or with a negative one. You can try to submit the bill to your insurance, but don't hold your breath. I have a dyslexic kid who also tested positive for Lyme, so I'll validate your interest in getting your kids tested. If you want a real answer, they'll need a real test. Lyme hits the nervous system hard in kids, so it's not at all improbable that treating them for Lyme may help their ADD. Fortunately, curing kids is also far easier than curing adults -- it takes fewer drugs and less time, and they make better recoveries than grownups do. Sara On Jan 4, 2011, at 5:22 01AM, Abbey wrote: > I am in need of a list of LLMD's near Schuylkill/Berks County in PA. I can't afford one that doesn't accept insurance (BC/BS) so the one in Hamburg won't work for me. I have an appt already with one in Chadds Ford, PA, but I would need to drive 1 1/2 hrs 3x week for IV treatment which is out of the question as a full time single mother. Any other options would be a great help! > > I also have another question... My family doctor has been with me through my struggle for a diagnoses for 8 years now and she finally last week put Lyme as an official diagnosis in my chart (by my request) even though I never actually tested positive (only once was borderline). We both know I have chronic Lyme as I display so many symptoms, especially neurological. My question is, will I still have to test positive through Igenex (and pay out of pocket for the test) before an LLMD will treat me? > > Also, I live in a very Lyme dense area, and both my children have forms of ADD. I've had one tested through our fam dr. but it was negative. I probably already know the answer to this question, but should I have both my kids tested through Igenex? I'm not sure I know how Lyme is displayed in children other than it may cause ADD? I've done so much research yet I still feel so clueless against this disease! =/ > > > > ------------------------------------ > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2011 Report Share Posted January 5, 2011 There is a Lyme testing program for people who can't afford tests, lyme-tap.org -- Quote Link to comment Share on other sites More sharing options...
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