Help interpreting IGenex WB

[Guest guest]

Hi everyone,

My son and I have an appt with a LLMD next week, but we just got our IGenex

tests back. I'm wondering what to make of them, so I can go into my appt more

informed. Can anyone help make sense of these results?

_MY SON (age 7):_

IgG

41--3+

39--1+

30--1+

31--Indeterm.

IgM

41--Indeterm.

39--Indeterm.

_ME:_

IgG

41--3+

39--Indeterm.

IgM

34--1+

31--2+

58--1+

41--3+

18--1+

83-93--Indeterm.

39--Indeterm.

The bands not listed were all negative. It's interesting that 2 years ago I had

a WB done by Quest, and on the IgM I was positive for 41 and 23. Now the 23 is

negative. Is that typical?

Thanks for any help or insights you can give.

I have a lot of the Lyme symtpoms, and my son is on the autism spectrum.

[Guest guest]

I am not a doctor but have seen the IGeneX lab results on 4 family members. My

ILADS doctor would say your son's is postive for Lyme. Your son is more positive

than one of my son's in treatment. Lab work is just one part of a clinical

diagnosis. Yes, the bands can change as the bacteria changes forms, hides out,

attacks and on and on. It is not uncommon for some bands to change.

I gave my boys Lyme in utero unknowingly. How long do you think you have had

Lyme. For me it has been 30 years and just in July I found out my lupus was

Lyme.

There is some great info about Lyme and autism out there. I even watched 4

youtube videos of a CA doc doing work with autism and antibiotics. I think there

is a site called lymeandautism. Have you joined lymenet? Many times mothers talk

there and you can search old posts for Lyme autism to read the success stories.

I wish you guys the best now that you know what it is.

My son just went back to school last week after 9 months homebound. We had a

great IEP meeting yesterday with the hope by this time next year he won't need

and IEP.

Kari

[Guest guest]

Hi Kari,

Thanks for your reply. I wonder what my LLMD would say, too. It seems odd that

my son would have anything at all show up on the test if he didn't have

Lyme--he's on the autism spectrum, also, and most of the treatments we've done

(that usually help autistic kids) haven't worked for him. That makes me think

it's something else.

I think I've had Lyme for about 13 years. Back then doctors thought I had MS

b/c of my neuro symptoms, but I didn't have any insurance to do an MRI. The

symptoms got a bit better for awhile, then much worse after having my son.

I'm really glad to finally know what it is. It's been so hard to be chronically

ill for at least 7 years without a clear reason why. Much of my family just

thinks I'm crazy or a hypochondriac. That hasn't exactly been helpful!

I'm glad to hear your son is improving.

Thanks again for your insight,

>

> I am not a doctor but have seen the IGeneX lab results on 4 family members. My

ILADS doctor would say your son's is postive for Lyme. Your son is more positive

than one of my son's in treatment. Lab work is just one part of a clinical

diagnosis. Yes, the bands can change as the bacteria changes forms, hides out,

attacks and on and on. It is not uncommon for some bands to change.

> I gave my boys Lyme in utero unknowingly. How long do you think you have had

Lyme. For me it has been 30 years and just in July I found out my lupus was

Lyme.

> There is some great info about Lyme and autism out there. I even watched 4

youtube videos of a CA doc doing work with autism and antibiotics. I think there

is a site called lymeandautism. Have you joined lymenet? Many times mothers talk

there and you can search old posts for Lyme autism to read the success stories.

> I wish you guys the best now that you know what it is.

> My son just went back to school last week after 9 months homebound. We had a

great IEP meeting yesterday with the hope by this time next year he won't need

and IEP.

> Kari

>