Re: Re: Help Doxy: 2 wk v.s. more

March 10, 2011

I got 2 weeks of Doxycycline for acute Lyme with EM rash. All my symptoms went

away so I thought all was well. A year and a half later I was diagnosed with

hypothyroidism and never felt completely well after that. It took 6 years (as I

began to have mood swings, severe fatigue & cognitive issues) before I was

tested for Lyme. Now its chronic and after a year of aggressive ABX (including

4 months IV) I am better but still sick.

Two weeks for acute Lyme is not always enough. An LLMD would know that and

treat accordingly.

Kim

[ ] Re: Help -

My husband was bit by a tick, found it within a few hours (he had been raking)

and took 100 mg 2x/day for 2 weeks preventatively. Within 2 months, he was very

sick, and tested positive for lyme. Once he saw an LLMD, he was told that 6

weeks of abx after a tick bite is what he recommends.

> > >

> > > My daughter had a tick embedded in her shoulder on Saturday. I suggested

> > she see a doctor and ask for antibiotics as a precautionary measure. She had

> > to wait until today to see a doctor. The doctor prescribed 100 mg of

> > doxicilin twice a day (28 pills total). I don't believe this is a proper

> > dose. Does anyone have any suggestions. Her neck is stiff and her entire

> > shoulder hurts from the bite. The doctor started telling her how to stretch

> > her neck when she sleeps in a bad position.

> > >

> > > What does one do in a situation like this. Please. I don't want her to be

> > another lyme victim.

> > >

> > > [ ] Tooth issues

> > >

> > > Before I went to the DR for pain in joints, I went to the dentist for

> > pain in

> > > one of my teeth. As he proceeded to drill the existing filling the back

> > of my

> > > tooth cracked off, he then informed me I needed a root canal. This has

> > been seen

> > >

> > > December of last year. The following week I was diagnosed with lymes and

> > in

> > > severe pain , the tooth has still not been sealed and I am having severe

> > tooth

> > > pain in that tooth. If I think about it the joint pain really started

> > after the

> > > tooth was worked on. Even being on dyciclymine for 12 days now I still

> > have no

> > > relief in the tooth. Finally the MD gave me Relifin and it stops the

> > joint pain.

> > >

> > > I will be going back to the dentist and addressing this tooth problem

> > next

> > > week. I pray I don;t loose my tooth.

> > >

March 10, 2011

Amen, this is exactly what my LLMD said to me.

[ ] Tooth issues

> > >

> > > Before I went to the DR for pain in joints, I went to the dentist for

> > pain in

> > > one of my teeth. As he proceeded to drill the existing filling the back

> > of my

> > > tooth cracked off, he then informed me I needed a root canal. This has

> > been seen

> > >

> > > December of last year. The following week I was diagnosed with lymes and

> > in

> > > severe pain , the tooth has still not been sealed and I am having severe

> > tooth

> > > pain in that tooth. If I think about it the joint pain really started

> > after the

> > > tooth was worked on. Even being on dyciclymine for 12 days now I still

> > have no

> > > relief in the tooth. Finally the MD gave me Relifin and it stops the

> > joint pain.

> > >

> > > I will be going back to the dentist and addressing this tooth problem

> > next

> > > week. I pray I don;t loose my tooth.

> > >

March 10, 2011

Kelley, Ceftin is fine for spirochetes, but won't touch L-forms or cysts. And

current thinking is that if you don't treat for those, the Lyme will very likely

come back. What did your LLMD give you to treat those?

Sara

On Mar 10, 2011, at 7:48 34AM, Kelley Hornberger wrote:

> After catching most of this thread, I see that there are differing opinions

among the LLMD's. My LLMD says that every tick bite (If caught the same day),

should have 2 days of Doxy and that is all that is needed...unless symptoms then

present soon after. He also likes to see the tick if possible.

>

> I have just finished 7 months of Ceftin 2,ooomg/daily for Lyme. I was

misdiagnosed by 2 family docs and finally got in to the LLYM 3 months after the

bite and I had BOTH types of Lyme rashes and most of the other Lyme symptoms.

Two weeks after starting Ceftin my vitamin D level was found to be 8 (and should

be at least 30). Within two weeks of starting vitamin D, I felt ALOT better!

All of my Lyme symptoms were gone after 5 months on ABX so I did one more month

on ABX, one month on half of the ABX dose, and now I'm off and still feeling

great. Hopefully I will never see another Lyme symptom. (I'll most likely stay

on Vit D for life).

>

> Lyme is a horrific disease. Ugh!

> Kelley

>

>>>>>

>>>>> My daughter had a tick embedded in her shoulder on Saturday. I suggested

>>>> she see a doctor and ask for antibiotics as a precautionary measure. She

had

>>>> to wait until today to see a doctor. The doctor prescribed 100 mg of

>>>> doxicilin twice a day (28 pills total). I don't believe this is a proper

>>>> dose. Does anyone have any suggestions. Her neck is stiff and her entire

>>>> shoulder hurts from the bite. The doctor started telling her how to stretch

>>>> her neck when she sleeps in a bad position.

>>>>>

>>>>> What does one do in a situation like this. Please. I don't want her to be

>>>> another lyme victim.

>>>>>

>>>>> [ ] Tooth issues

>>>>>

>>>>> Before I went to the DR for pain in joints, I went to the dentist for

>>>> pain in

>>>>> one of my teeth. As he proceeded to drill the existing filling the back

>>>> of my

>>>>> tooth cracked off, he then informed me I needed a root canal. This has

>>>> been seen

>>>>>

>>>>> December of last year. The following week I was diagnosed with lymes and

>>>> in

>>>>> severe pain , the tooth has still not been sealed and I am having severe

>>>> tooth

>>>>> pain in that tooth. If I think about it the joint pain really started

>>>> after the

>>>>> tooth was worked on. Even being on dyciclymine for 12 days now I still

>>>> have no

>>>>> relief in the tooth. Finally the MD gave me Relifin and it stops the

>>>> joint pain.

>>>>>

>>>>> I will be going back to the dentist and addressing this tooth problem

>>>> next

>>>>> week. I pray I don;t loose my tooth.

>>>>>

March 11, 2011

I got better on only oral antibiotics.

Carol

________________________________

From: SteveH <steveh_19@...>

Sent: Fri, March 11, 2011 5:29:24 AM

Subject: [ ] Re: Help Doxy: 2 wk v.s. more

An LLMD I like says here (

http://www.lyme-disease-testing.com/lyme_treatment.html 6th paragraph down )

that Chronic Lyme Disease can't be cured by ANY amount of oral antibiotics.

" Peer reviewed medical literature describing late stage Lyme disease

consistently show the involvement of the central nervous system. And the only

antibiotics that cross the blood-brain barrier, and have the hope of eradicating

the Lyme disease bacteria can ONLY be administered intravenously. "

The doctors believe that if you treat immediately upon infection, two weeks of

oral antibiotics will kill ALMOST all Lyme infections. This seems to be true.

But once the disease digs into the tissue, my wife's experience makes me agree

with the doctor above - IV antibiotics become essential.

March 11, 2011

So did I.

Sara

On Mar 11, 2011, at 8:01 29AM, carol F wrote:

> I got better on only oral antibiotics.

>

> Carol

>

> ________________________________

> From: SteveH <steveh_19@...>

>

> Sent: Fri, March 11, 2011 5:29:24 AM

> Subject: [ ] Re: Help Doxy: 2 wk v.s. more

>

> An LLMD I like says here (

> http://www.lyme-disease-testing.com/lyme_treatment.html 6th paragraph down )

> that Chronic Lyme Disease can't be cured by ANY amount of oral antibiotics.

>

> " Peer reviewed medical literature describing late stage Lyme disease

> consistently show the involvement of the central nervous system. And the only

> antibiotics that cross the blood-brain barrier, and have the hope of

eradicating

> the Lyme disease bacteria can ONLY be administered intravenously. "

>

> The doctors believe that if you treat immediately upon infection, two weeks of

> oral antibiotics will kill ALMOST all Lyme infections. This seems to be true.

>

> But once the disease digs into the tissue, my wife's experience makes me agree

> with the doctor above - IV antibiotics become essential.

>

March 11, 2011

Unfortunately even people who do long-term IV antibiotics do not necessarily

recover. I was told from the start by my LLMD (founding member of ILADS) I

would need IV ABXs. But he starts slowly with oral ABXs .He took me off all

ABXs after 4 months on IV Rocephin & Biaxin (total of 12 months of ABXs) because

of weight loss and drowsiness--it wasn't working. I've shown no evidence of

co-infections. I personally know people who relapsed every time they got off

IV ABXs. And most insurance companies won't pay for more than one month of IV

treatment. There are risks involved as well: clots, infection, gall bladder

sludge or stones etc.

Cure Unknown by Pamela Weintraub is essential reading for anyone effected by

tick-borne illness. She was a science NY Times writer. She and her family were

all infected numerous times and spent years trying to get diagnosed. It is so

well written and researched.And a great read--impossible to put down, like a

good mystery. It follows the research, politics and the personal stories of

several families (including her own).

[ ] Re: Help Doxy: 2 wk v.s. more