Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 After catching most of this thread, I see that there are differing opinions among the LLMD's. My LLMD says that every tick bite (If caught the same day), should have 2 days of Doxy and that is all that is needed...unless symptoms then present soon after. He also likes to see the tick if possible. I have just finished 7 months of Ceftin 2,ooomg/daily for Lyme. I was misdiagnosed by 2 family docs and finally got in to the LLYM 3 months after the bite and I had BOTH types of Lyme rashes and most of the other Lyme symptoms. Two weeks after starting Ceftin my vitamin D level was found to be 8 (and should be at least 30). Within two weeks of starting vitamin D, I felt ALOT better! All of my Lyme symptoms were gone after 5 months on ABX so I did one more month on ABX, one month on half of the ABX dose, and now I'm off and still feeling great. Hopefully I will never see another Lyme symptom. (I'll most likely stay on Vit D for life). Lyme is a horrific disease. Ugh! Kelley > > > > > > > > My daughter had a tick embedded in her shoulder on Saturday. I suggested > > > she see a doctor and ask for antibiotics as a precautionary measure. She had > > > to wait until today to see a doctor. The doctor prescribed 100 mg of > > > doxicilin twice a day (28 pills total). I don't believe this is a proper > > > dose. Does anyone have any suggestions. Her neck is stiff and her entire > > > shoulder hurts from the bite. The doctor started telling her how to stretch > > > her neck when she sleeps in a bad position. > > > > > > > > What does one do in a situation like this. Please. I don't want her to be > > > another lyme victim. > > > > > > > > > > > > > > > > > > > > [ ] Tooth issues > > > > > > > > > > > > Before I went to the DR for pain in joints, I went to the dentist for > > > pain in > > > > one of my teeth. As he proceeded to drill the existing filling the back > > > of my > > > > tooth cracked off, he then informed me I needed a root canal. This has > > > been seen > > > > > > > > December of last year. The following week I was diagnosed with lymes and > > > in > > > > severe pain , the tooth has still not been sealed and I am having severe > > > tooth > > > > pain in that tooth. If I think about it the joint pain really started > > > after the > > > > tooth was worked on. Even being on dyciclymine for 12 days now I still > > > have no > > > > relief in the tooth. Finally the MD gave me Relifin and it stops the > > > joint pain. > > > > > > > > I will be going back to the dentist and addressing this tooth problem > > > next > > > > week. I pray I don;t loose my tooth. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 An LLMD I like says here ( http://www.lyme-disease-testing.com/lyme_treatment.html 6th paragraph down ) that Chronic Lyme Disease can't be cured by ANY amount of oral antibiotics. " Peer reviewed medical literature describing late stage Lyme disease consistently show the involvement of the central nervous system. And the only antibiotics that cross the blood-brain barrier, and have the hope of eradicating the Lyme disease bacteria can ONLY be administered intravenously. " The doctors believe that if you treat immediately upon infection, two weeks of oral antibiotics will kill ALMOST all Lyme infections. This seems to be true. But once the disease digs into the tissue, my wife's experience makes me agree with the doctor above - IV antibiotics become essential. > > I got 2 weeks of Doxycycline for acute Lyme with EM rash. All my symptoms went away so I thought all was well. A year and a half later I was diagnosed with hypothyroidism and never felt completely well after that. It took 6 years (as I began to have mood swings, severe fatigue & cognitive issues) before I was tested for Lyme. Now its chronic and after a year of aggressive ABX (including 4 months IV) I am better but still sick. > > Two weeks for acute Lyme is not always enough. An LLMD would know that and treat accordingly. > > Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Hi Sara Thanks for the info! Unfortunately, I am allergic to all antibiotics except for Ceftin. So I am unable to take any other drug for Lyme. I am in a pretty serious situation because if I ever deveop an infection that is resistant to Ceftin, I am in deep, deep trouble. My LLMD was encouraged that I have been symptom free for the last 2 months and therefore discontinued the ABX. We will see what happens in the coming weeks/months. But at this point, I'm symptom free so it's worth taking a break to see what happens. Life with Lyme is never easy! :0S Blessings! Kelley > > Kelley, Ceftin is fine for spirochetes, but won't touch L-forms or cysts. And current thinking is that if you don't treat for those, the Lyme will very likely come back. What did your LLMD give you to treat those? > > Sara > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2011 Report Share Posted March 13, 2011 thanks Kelley! You are an encouragement. The other day I read a very discouraging post. I wanted to cry. > > After catching most of this thread, I see that there are differing opinions among the LLMD's. My LLMD says that every tick bite (If caught the same day), should have 2 days of Doxy and that is all that is needed...unless symptoms then present soon after. He also likes to see the tick if possible. > > I have just finished 7 months of Ceftin 2,ooomg/daily for Lyme. I was misdiagnosed by 2 family docs and finally got in to the LLYM 3 months after the bite and I had BOTH types of Lyme rashes and most of the other Lyme symptoms. Two weeks after starting Ceftin my vitamin D level was found to be 8 (and should be at least 30). Within two weeks of starting vitamin D, I felt ALOT better! All of my Lyme symptoms were gone after 5 months on ABX so I did one more month on ABX, one month on half of the ABX dose, and now I'm off and still feeling great. Hopefully I will never see another Lyme symptom. (I'll most likely stay on Vit D for life). > > Lyme is a horrific disease. Ugh! > Kelley > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.