Re: Most Effective Treatment Regimen for LYMES!!!

[Guest guest]

There isn't. You must switch and rotate meds.

[ ] Most Effective Treatment Regimen for LYMES!!!

I have beleive i have had lymes for about a year . Im told 100mg of Doxcycline

a day for 14 days will completely cure the nasty disease..

Im unsure of this claim im assuming this is a false statement as people

wouldnt create a board on if it was that simple.

What medication is found to be the most effective ??

What Dosage ?

Duaration ???

May someone hear me out..

I may be forced to go down the path of self medicating myself to acheive full

recovery of my health status . Im not happy that i have to go down this path im

just sick and tired of being sick.

Symptoms ive come accross

Irritation

Brain Fog

Nerve Pains Travelling Around My Body

Sore/Stiff Joints & Muscles

No interest in life

Feeling Sick

Depressed

Unable to live a normal life

May someone outline a effective regimen in treating the Nasty Disease & may

you please provide the following information

Which Drug?

Dosage?

Duration?

Thanks. If you need to contact me personally feel free to email me .

Regards,

[Guest guest]

Well, that's great news if you've only had lyme for a year!

Even though it isn't nearly as bad as it can be it would be a good idea to

go to an LLMD. You need to be tested for co-infections because if you have

one or more of them, some are treated with different antibiotics.

My LLMD treated my recent lyme infection (i.e. not long term, a recent

infection) with 200 mg. doxycycline twice a day, so 400 mg total.

Doxycycline is one of the most effective drugs against Lyme. However, some

doctors believe the dose has to be higher than what you are taking. My LLMD

also believes in treating for 5 weeks AFTER the symptoms have completely

cleared up.

For my most recent bout of lyme (I've had it 5 times but caught it early

each time) my main symptom was joint pain, and I ended up on the doxy for

four months using the " treat for five weeks after symptoms are gone " regime.

If you've had it for a year, you should start to feel better pretty quickly

on the doxy. But I would seriously look into taking a higher dose, and for

a longer period. And again, getting tested for other tick borne diseases

(bartonella, babesiosis, ehrlichiosis).

On Sat, Mar 5, 2011 at 12:42 AM, Karavelatzis <

michaelkara2000@...> wrote:

>

>

> I have beleive i have had lymes for about a year . Im told 100mg of

> Doxcycline a day for 14 days will completely cure the nasty disease..

>

> Im unsure of this claim im assuming this is a false statement as people

> wouldnt create a board on if it was that simple.

>

> What medication is found to be the most effective ??

> What Dosage ?

> Duaration ???

>

> May someone hear me out..

>

> I may be forced to go down the path of self medicating myself to acheive

> full recovery of my health status . Im not happy that i have to go down this

> path im just sick and tired of being sick.

>

> Symptoms ive come accross

>

> Irritation

> Brain Fog

> Nerve Pains Travelling Around My Body

> Sore/Stiff Joints & Muscles

> No interest in life

> Feeling Sick

> Depressed

> Unable to live a normal life

>

> May someone outline a effective regimen in treating the Nasty Disease & may

> you please provide the following information

>

> Which Drug?

> Dosage?

> Duration?

>

> Thanks. If you need to contact me personally feel free to email me .

>

> Regards,

>

>

>

>

>

[Guest guest]

Dear ,

This is not an easy answer because no one knows really...we all have different

mixes of bacteria/viruses/nematodes/ fungi/other parasites so what may work for

one person may not work for another.  Testing, even though flawed is about all

we have to go by and symptoms.  Start reading and asking lots of questions and

you will figure out the lay of the land, so to speak...Regards, Dolores

813-235-9542 if you want to chat..

From: fsmfarms <fsmfarms@...>

Subject: Re: [ ] Most Effective Treatment Regimen for LYMES!!!

Date: Saturday, March 5, 2011, 11:21 AM

 

There isn't. You must switch and rotate meds.

[ ] Most Effective Treatment Regimen for LYMES!!!

I have beleive i have had lymes for about a year . Im told 100mg of Doxcycline a

day for 14 days will completely cure the nasty disease..

Im unsure of this claim im assuming this is a false statement as people wouldnt

create a board on if it was that simple.

What medication is found to be the most effective ??

What Dosage ?

Duaration ???

May someone hear me out..

I may be forced to go down the path of self medicating myself to acheive full

recovery of my health status . Im not happy that i have to go down this path im

just sick and tired of being sick.

Symptoms ive come accross

Irritation

Brain Fog

Nerve Pains Travelling Around My Body

Sore/Stiff Joints & Muscles

No interest in life

Feeling Sick

Depressed

Unable to live a normal life

May someone outline a effective regimen in treating the Nasty Disease & may you

please provide the following information

Which Drug?

Dosage?

Duration?

Thanks. If you need to contact me personally feel free to email me .

Regards,

[Guest guest]

In my opinion 100 mgs of doxy is nothing. You need help and soon. I would go to

ILADS.org and read everything including Burroscano's treatment protocol. If you

have had this a year you are going to need a good doctor who treats Lyme full

time. You probably have coinfections and those need treating, also.

You could join LymeNet and search and read their postings. You can also ask for

a doctor on that forum.

I feel you need to get educated in order to advocate for your own health.

Kari

---

[Guest guest]

Please go to http://www.lyme-disease-testing.com/lyme_treatment.html and read

the 6th paragraph.

[Guest guest]

Do any guys self medicate as are not happy with the outcome of your physicians

treatment . If i took 400mg per day of doxycycline for 3 months . Does it have

any health hazards ??

[Guest guest]

Um...where to start.

First: If you've been infected for a year, the odds are good that 14 days of

doxy are not going to rid you of Lyme. You should go ahead and try it, to see

what happens. If you do have Lyme, you will probably feel good and sick while on

the drug (a herx reaction -- and then perhaps a bit better when you stop,

because the drug has pushed the Lyme back a bit. But the odds are also very good

that you'll be sick as ever again within a month or three.

These are all important things to know. If the drugs are working, it's a sign

that you do in fact have Lyme; and that drug therapy will probably help. But

it's not likely to be anywhere near enough to get you well.

As for your other questions: asking what drugs you should use is like asking an

e-list for recommendations on what chemotherapy you should self-administer.

Because that's what antibiotic treatment with Lyme amounts to -- a long-term

form of chemotherapy that uses a combination of several antibiotics together

over a period of months or years to kill the disease. Lyme is much harder to get

rid of than even stubborn bacteria like tuberculosis or syphilis (its close

cousin), because it takes on several different forms in the body to hide from

antibiotics. It's definitely not a do-it-yourself effort, though some people

have had good results with an herbal protocol called the Buhner protocol. You

have to stick with it for several years -- I'm using it now to sustain gains

made with antibiotics -- but it's mostly a backup and maintenance plan for

people who seriously have no good medical options.

I strongly recommend that you read this document in its entirety:

The doctors who follow this protocol (or their own versions of it) are known as

Lyme-literate doctors (LLMDs). They are rogue doctors who don't accept the

conventional wisdom, and they are forced to operate underground -- out of reach

of insurance investigators and medical boards -- in order to deliver this

controversial treatment. The cure is not cheap, easy, or fast; but many of us

(including me, who was disabled for 23 years with undiagnosed Lyme, and am now

back to work for the first time in 20 years) have gotten significantly better,

if not well, using this treatment.

The reasons for the controversy are a story unto themselves. Your local library

may have copies of the movie " Under Our Skin, " and the book " Cure Unknown "

(along with several other useful Lyme reference books, such as " Healing Lyme, "

which is the Buhner book). You owe it to yourself to understand your situation

fully, so you can make the best treatment decisions and waste a minimum of time

and money in the process.

If you want to find an LLMD, tell this list what city or state you live in.

Someone will contact you off-list with local recommendations. We don't mention

our doctors' names on-list, for reasons that may be obvious now.

Sara

On Mar 4, 2011, at 9:42 03PM, Karavelatzis wrote:

> I have beleive i have had lymes for about a year . Im told 100mg of Doxcycline

a day for 14 days will completely cure the nasty disease..

>

> Im unsure of this claim im assuming this is a false statement as people

wouldnt create a board on if it was that simple.

>

> What medication is found to be the most effective ??

> What Dosage ?

> Duaration ???

>

> May someone hear me out..

>

> I may be forced to go down the path of self medicating myself to acheive full

recovery of my health status . Im not happy that i have to go down this path im

just sick and tired of being sick.

>

> Symptoms ive come accross

>

> Irritation

> Brain Fog

> Nerve Pains Travelling Around My Body

> Sore/Stiff Joints & Muscles

> No interest in life

> Feeling Sick

> Depressed

> Unable to live a normal life

>

> May someone outline a effective regimen in treating the Nasty Disease & may

you please provide the following information

>

> Which Drug?

> Dosage?

> Duration?

>

> Thanks. If you need to contact me personally feel free to email me .

>

> Regards,

>

>

>

>

>

> ------------------------------------

>

> Lyme Disease News continually updated from thousands of sources around the

> net: http://www.topix.net/health/lyme-disease

>

> MedWorm: The latest items on: Lyme Disease

> http://tinyurl.com/23dgy8

>

[Guest guest]

you must take probiotics when taking antibiotics........only a good llmd would

know what you should take - as it all depends on co-infections also......I think

at that dose for three months.......might be good if you just got the tick

bite?  I do not know - you need to be treated by a llmd........sending prayers

to you and sorry you have to deal with this..........I would rather lose a leg

or arm then deal with my family fighting this disease!!

________________________________

From: Karavelatzis <michaelkara2000@...>

Sent: Mon, March 7, 2011 1:04:42 PM

Subject: [ ] Re: Most Effective Treatment Regimen for LYMES!!!

 

Do any guys self medicate as are not happy with the outcome of your physicians

treatment . If i took 400mg per day of doxycycline for 3 months . Does it have

any health hazards ??

[Guest guest]

By the way, my dog was diagnosed with Lyme by my vet, and is on

doxycycline. He is a 60 lb. dog, and *he's* on 100 mg. twice a day, which

is your dose. I suspect you weigh a bit more than 60 lb.; while not proof,

yet another piece of evidence that your dose probably should be higher.

On Sun, Mar 6, 2011 at 7:33 AM, SteveH <steveh_19@...> wrote:

>

>

> Please go to http://www.lyme-disease-testing.com/lyme_treatment.html and

> read the 6th paragraph.

>

>

>

[Guest guest]

Hello, Lyme is not curable if you have been infected for 3 or 4 months!

I was infected in 1996 and diagnosed in Sept 2001.

Since then I have learned a great deal about Lyme, but not nearly enough

..

Garlic is a help! I have been taking 2800 mg of garlic since 2003, but

one must start with a much smaller dose as a great Herx can occur!!!!!! A

very big Herx can kill a person with Lyme

Cat Claw herb is also helpful, either the tab form or the liquid form free

of toa, both work.

The Rife machine is also good and details can be found about it at

_www.Royal_ (http://www.Royal) Rife.com or at _www.Rife_ (http://www.Rife)

Labs.com. This machine does not cure Lyme as far as I know but it does blow up

Lyme bacteria in one's body.

Another weapon against Lyme is L-Glutamine, a powerful form is usually

available in powder form and a 3 teaspoon helping mixed with orange juice and

water is very powerful and can cause a terrible Herx depending on one's Lyme

bacteria lode.

Knoxx gelatine is very useful to help what seems to be arthritis, but is

Lyme bacteria in one's joints or may be

only for some while others may actually have arthritis and might not work.

In pretty much all cases one should continue to take mainstream medicine as

well as use the above mentioned Lyme weapons.

Unfortunately everything costs money.

Kyolic garlic may be the best available and ordering from a vitamin company

can reduce cost greatly.

Good luck with your on going battles!

Sidney

In a message dated 3/7/2011 3:53:46 P.M. Eastern Standard Time,

srobinson@... writes:

Um...where to start.

First: If you've been infected for a year, the odds are good that 14 days

of doxy are not going to rid you of Lyme. You should go ahead and try it,

to see what happens. If you do have Lyme, you will probably feel good and

sick while on the drug (a herx reaction -- and then perhaps a bit better when

you stop, because the drug has pushed the Lyme back a bit. But the odds

are also very good that you'll be sick as ever again within a month or three.

These are all important things to know. If the drugs are working, it's a

sign that you do in fact have Lyme; and that drug therapy will probably

help. But it's not likely to be anywhere near enough to get you well.

As for your other questions: asking what drugs you should use is like

asking an e-list for recommendations on what chemotherapy you should

self-administer. Because that's what antibiotic treatment with Lyme amounts to

-- a

long-term form of chemotherapy that uses a combination of several

antibiotics together over a period of months or years to kill the disease. Lyme

is

much harder to get rid of than even stubborn bacteria like tuberculosis or

syphilis (its close cousin), because it takes on several different forms in

the body to hide from antibiotics. It's definitely not a do-it-yourself

effort, though some people have had good results with an herbal protocol called

the Buhner protocol. You have to stick with it for several years -- I'm

using it now to sustain gains made with antibiotics -- but it's mostly a

backup and maintenance plan for people who seriously have no good medical

options.

I strongly recommend that you read this document in its entirety:

The doctors who follow this protocol (or their own versions of it) are

known as Lyme-literate doctors (LLMDs). They are rogue doctors who don't

accept the conventional wisdom, and they are forced to operate underground --

out of reach of insurance investigators and medical boards -- in order to

deliver this controversial treatment. The cure is not cheap, easy, or fast;

but many of us (including me, who was disabled for 23 years with undiagnosed

Lyme, and am now back to work for the first time in 20 years) have gotten

significantly better, if not well, using this treatment.

The reasons for the controversy are a story unto themselves. Your local

library may have copies of the movie " Under Our Skin, " and the book " Cure

Unknown " (along with several other useful Lyme reference books, such as

" Healing Lyme, " which is the Buhner book). You owe it to yourself to understand

your situation fully, so you can make the best treatment decisions and waste

a minimum of time and money in the process.

If you want to find an LLMD, tell this list what city or state you live

in. Someone will contact you off-list with local recommendations. We don't

mention our doctors' names on-list, for reasons that may be obvious now.

Sara

On Mar 4, 2011, at 9:42 03PM, Karavelatzis wrote:

> I have beleive i have had lymes for about a year . Im told 100mg of

Doxcycline a day for 14 days will completely cure the nasty disease..

>

> Im unsure of this claim im assuming this is a false statement as people

wouldnt create a board on if it was that simple.

>

> What medication is found to be the most effective ??

> What Dosage ?

> Duaration ???

>

> May someone hear me out..

>

> I may be forced to go down the path of self medicating myself to acheive

full recovery of my health status . Im not happy that i have to go down

this path im just sick and tired of being sick.

>

> Symptoms ive come accross

>

> Irritation

> Brain Fog

> Nerve Pains Travelling Around My Body

> Sore/Stiff Joints & Muscles

> No interest in life

> Feeling Sick

> Depressed

> Unable to live a normal life

>

> May someone outline a effective regimen in treating the Nasty Disease &

may you please provide the following information

>

> Which Drug?

> Dosage?

> Duration?

>

> Thanks. If you need to contact me personally feel free to email me .

>

> Regards,

>

>

>

>

>

> ------------------------------------

>

> Lyme Disease News continually updated from thousands of sources around

the

> net: _http://www.topix.net/health/lyme-disease_

(http://www.topix.net/health/lyme-disease)

>

> MedWorm: The latest items on: Lyme Disease

> _http://tinyurl.com/23dgy8_ (http://tinyurl.com/23dgy8)

> Groups Links

>

>

>