Re: choices--to medicate or not

[Guest guest]

Much better for me with herbal therapy treatment. The Doxy totally failed me.

Maybe it works for others so I am not advising against that. And my doc only had

me on two weeks of it. Not an LLMD! If it weren't for my lyme guru, as I call

her, at a health food store near here I would be a sunken ship.

And, I was told not to mix the two therapies. One will negate the other.

 

From: Debbi M. <musetoo@...>

Subject: [ ] choices--to medicate or not

Date: Monday, January 17, 2011, 1:42 PM

When I'm taking the doxy, I feel like crap!  Night sweats, brain fog, fatigue

through the roof, stomach and intestinal problems like never before.  I know

this is probably herx reaction, but still, it never goes away!

When I went off the doxy for a couple weeks, I still had the brain fog and

memory problems but I could function, I could get done in a day what needed to

be done.  My LLMD started me back on a much smaller dose (25 mg vs. 400 mg a

day), to work up to a higher dose over months, but really, if I'm this sick on

such a tiny dose, I don't know why I'm doing this!  I need to be able to

function during the days and sleep at night.

(One side note: my LLMD has prescribed cholestipol, a cholesterol drug, not a

statin, that is supposed to whisk toxins out of your bile before it processes

into your body, and that seems to help a little, but only for a few hours after

I take it, and I can't take it till lunch time.  But for those of you not on a

slew of other meds who have herx really bad, this is an option.  Bonus for me, I

have high cholesterol, so it should help that too.)

But back to my original issue, I know there are other antibiotics out there that

work, but I've heard doxy is the best.  Has anyone opted to skip antibiotics

completely?  And if so, how did you do?

Debbi

[Guest guest]

I don't think your decision should be either doxycycline OR no antibiotics.

There are many antibiotics used in treating lyme; if you cannot tolerate

one, perhaps another would be a better choice. Drugs like IM penicillin, or

ceftin. However, I would also absolutely not substitute the advice of an

internet stranger for a doctor you trust. Do you think your doctor is smart

and knows his stuff? If yes, stick with him -- ask him your question, not

us.

If you don't think he's smart or knows his stuff, get another doctor!

And while I don't doubt that herbs are helpful, I also would not substitute

the advice of a health food clerk for a doctor. You may of course decide to

do otherwise.

A wonderful book is " The Lyme Disease Solution " by Dr. Singleton. It

discusses other Lyme treatments, including some complementary ones.

[Guest guest]

you were told not to mix what two therapies? antibiotics and herbs? that is

all i have been on and in the insights into lyme disease treatments that

highlights over a dozen llmds, most note that antibiotics + herbs are

needed, as opposed to only antibiotics.

On Mon, Jan 17, 2011 at 9:21 PM, Errol <renaissancelute@...> wrote:

>

>

> Much better for me with herbal therapy treatment. The Doxy totally failed

> me. Maybe it works for others so I am not advising against that. And my doc

> only had me on two weeks of it. Not an LLMD! If it weren't for my lyme guru,

> as I call her, at a health food store near here I would be a sunken ship.

> And, I was told not to mix the two therapies. One will negate the other.

>

>

>

>

> From: Debbi M. <musetoo@... <musetoo%40comcast.net>>

> Subject: [ ] choices--to medicate or not

> < %40 .com>

> Date: Monday, January 17, 2011, 1:42 PM

>

> When I'm taking the doxy, I feel like crap! Night sweats, brain fog,

> fatigue through the roof, stomach and intestinal problems like never

> before. I know this is probably herx reaction, but still, it never goes

> away!

> When I went off the doxy for a couple weeks, I still had the brain fog and

> memory problems but I could function, I could get done in a day what needed

> to be done. My LLMD started me back on a much smaller dose (25 mg vs. 400

> mg a day), to work up to a higher dose over months, but really, if I'm this

> sick on such a tiny dose, I don't know why I'm doing this! I need to be

> able to function during the days and sleep at night.

> (One side note: my LLMD has prescribed cholestipol, a cholesterol drug, not

> a statin, that is supposed to whisk toxins out of your bile before it

> processes into your body, and that seems to help a little, but only for a

> few hours after I take it, and I can't take it till lunch time. But for

> those of you not on a slew of other meds who have herx really bad, this is

> an option. Bonus for me, I have high cholesterol, so it should help that

> too.)

>

> But back to my original issue, I know there are other antibiotics out there

> that work, but I've heard doxy is the best. Has anyone opted to skip

> antibiotics completely? And if so, how did you do?

> Debbi

>

>

[Guest guest]

My LLMD (former president of ILADS) asked me not to take herbs while on

antibiotics, though he had nothing against them. If I had side effects or

change of symptoms, he wouldn't know if it was due to ABX or herbs .MDs are

not necessarily trained herbalists. I went through many combos of ABXs.. If I

wasn't feeling any better after 2 months, we tried different ones.

There's a lot of trial and error involved in treatment--even working with an

experienced LLMD or LLND. There are so many factors: some known, but many not

well understood, in tick-borne infections.

Kim

From: le Handy <kndplus2@...>

< >

Sent: Tue, Jan 18, 2011 1:10 pm

Subject: Re: [ ] choices--to medicate or not

you were told not to mix what two therapies? antibiotics and herbs? that is

all i have been on and in the insights into lyme disease treatments that

highlights over a dozen llmds, most note that antibiotics + herbs are

needed, as opposed to only antibiotics.

On Mon, Jan 17, 2011 at 9:21 PM, Errol <renaissancelute@...> wrote:

>

>

> Much better for me with herbal therapy treatment. The Doxy totally failed

> me. Maybe it works for others so I am not advising against that. And my doc

> only had me on two weeks of it. Not an LLMD! If it weren't for my lyme guru,

> as I call her, at a health food store near here I would be a sunken ship.

> And, I was told not to mix the two therapies. One will negate the other.

>

>

>

>

> From: Debbi M. <musetoo@... <musetoo%40comcast.net>>

> Subject: [ ] choices--to medicate or not

> < %40 .com>

> Date: Monday, January 17, 2011, 1:42 PM

>

> When I'm taking the doxy, I feel like crap! Night sweats, brain fog,

> fatigue through the roof, stomach and intestinal problems like never

> before. I know this is probably herx reaction, but still, it never goes

> away!

> When I went off the doxy for a couple weeks, I still had the brain fog and

> memory problems but I could function, I could get done in a day what needed

> to be done. My LLMD started me back on a much smaller dose (25 mg vs. 400

> mg a day), to work up to a higher dose over months, but really, if I'm this

> sick on such a tiny dose, I don't know why I'm doing this! I need to be

> able to function during the days and sleep at night.

> (One side note: my LLMD has prescribed cholestipol, a cholesterol drug, not

> a statin, that is supposed to whisk toxins out of your bile before it

> processes into your body, and that seems to help a little, but only for a

> few hours after I take it, and I can't take it till lunch time. But for

> those of you not on a slew of other meds who have herx really bad, this is

> an option. Bonus for me, I have high cholesterol, so it should help that

> too.)

>

> But back to my original issue, I know there are other antibiotics out there

> that work, but I've heard doxy is the best. Has anyone opted to skip

> antibiotics completely? And if so, how did you do?

> Debbi

>

>

[Guest guest]

Yes, not to take both herbs and antibiotic therapy at the same time.

 

>

> From: Debbi M. <musetoo@... <musetoo%40comcast.net>>

> Subject: [ ] choices--to medicate or not

> < %40 .com>

> Date: Monday, January 17, 2011, 1:42 PM

>

> When I'm taking the doxy, I feel like crap!  Night sweats, brain fog,

> fatigue through the roof, stomach and intestinal problems like never

> before.  I know this is probably herx reaction, but still, it never goes

> away!

> When I went off the doxy for a couple weeks, I still had the brain fog and

> memory problems but I could function, I could get done in a day what needed

> to be done.  My LLMD started me back on a much smaller dose (25 mg vs. 400

> mg a day), to work up to a higher dose over months, but really, if I'm this

> sick on such a tiny dose, I don't know why I'm doing this!  I need to be

> able to function during the days and sleep at night.

> (One side note: my LLMD has prescribed cholestipol, a cholesterol drug, not

> a statin, that is supposed to whisk toxins out of your bile before it

> processes into your body, and that seems to help a little, but only for a

> few hours after I take it, and I can't take it till lunch time.  But for

> those of you not on a slew of other meds who have herx really bad, this is

> an option.  Bonus for me, I have high cholesterol, so it should help that

> too.)

>

> But back to my original issue, I know there are other antibiotics out there

> that work, but I've heard doxy is the best.  Has anyone opted to skip

> antibiotics completely?  And if so, how did you do?

> Debbi

>

>

[Guest guest]

also, the new book " insights into lyme disease " has a dozen lyme dr.'s and

their protocols

On Tue, Jan 18, 2011 at 6:13 AM, Farhangi

<lesliefarhangi@...>wrote:

>

>

> I don't think your decision should be either doxycycline OR no antibiotics.

> There are many antibiotics used in treating lyme; if you cannot tolerate

> one, perhaps another would be a better choice. Drugs like IM penicillin, or

> ceftin. However, I would also absolutely not substitute the advice of an

> internet stranger for a doctor you trust. Do you think your doctor is smart

> and knows his stuff? If yes, stick with him -- ask him your question, not

> us.

>

> If you don't think he's smart or knows his stuff, get another doctor!

>

> And while I don't doubt that herbs are helpful, I also would not substitute

> the advice of a health food clerk for a doctor. You may of course decide to

> do otherwise.

>

> A wonderful book is " The Lyme Disease Solution " by Dr. Singleton. It

> discusses other Lyme treatments, including some complementary ones.

>

>

>

>

[Guest guest]

The alternative medical practitioners we have heard from at conferences

etc. all combine antibiotics and herbs and say they can't rely on herbs

alone. I'm sure you can find practitioners who don't use antibiotics,

but there are at least some who use both together.

--