IV antibiotics

January 24, 2011

hi, I am to go on rocephine soon for 4 months. I am wondering if anyone

out there has also gone the IV route, what daily living is like while on the IV,

and how effective it was for them.

I have just been diagnosed with Lyme, but the doctor feels that I have had if

for 12 years, and I agree, based upon my symptoms over the years.

Thanks for any insight you can offer.

January 25, 2011

Hi ,

My 11 year old son just had a picc line put in in mid-December. In a lot of

ways, it is no big deal! As I tell his teachers, he can do normal adult

activities, but not normal 11 year old boy activities (i.e. wrestling with

his brothers)! He runs around, goes to school etc and really isn't bothered

by it at all. Hooking up the rocephin seems like a big deal at first and

then it becomes second nature and is REALLY easy. I will say, my son

developed a reaction to the rocephin, so we had to stop it. He's now on IV

zithromax and IM bicillin.

Our doctor has said rocephin is the " gold standard " for lyme. Also, you

probably have heard of herxheimer reactions, where when the antibiotics

start killing off the lyme, you feel worse before you feel better.

If you are interested in Lyme information generally, I really like Dr.

Singleton's book " The Lyme Disease Solution " . In it he talks about all the

different kinds of antibiotic treatments, and when and why they are used.

I know I looked for info before his line went in and had a hard time finding

out what it was like. The best thing was talking to a friend who had IV

rocephin for 7 months, she was able to let me know how easy it was.

Good luck!

January 26, 2011

I've been on 2 courses of IV Rocephin. The whole picc line thing is

really no big deal. The insertion takes about an hour and is totally

painless except for a normal prick like getting a shot or having blood

taken. You'll get instructions on how to administer the daily doses and

they'll give you supplies. Basically it's just snapping a couple little

plastic tubes together and sitting there for 30 or 45 minutes while it

drips. There are no needles or complicated medical procedures.

You can do most anything with the picc line in - except heavy lifting

and swimming. It's gotta be kept dry. They sell waterproof covers for

when you shower, but I found just wrapping a layer of " press and seal "

brand wrap works great (buy it where wax paper and plastic wrap are sold).

I had no side effects whatsoever on the Rocephin, and it did help a

little - but my insurance made me stop it after 30 days. My LLMD then

put me on some strong oral abx and I immediately (after a week long

herx) started improving dramatically.

But don't worry much about getting the picc - I did and it turned out to

be no big deal.

Good luck,

Don

On 1/24/2011 5:56 PM, mac wrote:

> hi, I am to go on rocephine soon for 4 months. I am wondering if anyone

> out there has also gone the IV route, what daily living is like while on the

IV, and how effective it was for them.

>

> I have just been diagnosed with Lyme, but the doctor feels that I have had if

for 12 years, and I agree, based upon my symptoms over the years.

>

> Thanks for any insight you can offer.

>

> ------------------------------------

>

> Lyme Disease News continually updated from thousands of sources around the

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>

January 26, 2011

Fred,

In my opinion, the problem with that Fallon study that you cite is that the

length of the antibiotic therapy is a) too short and does not use

additional antibiotics to kill the lyme in all three of its stages. This is

the kind of research that I read and was so discouraged by, as my son has

cognitive lyme.

However, if you read Weintraub's book I suggested in my other

post, you'll see that the NIH studies are *very* limited -- that Dr. Fallon

could not do a study where they gave IV rocephin for either longer, or a

varying amount of time . . . what this study shows is that IV rocephin does

work, but not if you give it for a " short " amount of time. They didn't give

the subjects drugs to treat the cyst form (flagyl or tindamax), which is

pretty standard treatment among LLMDs. They also didn't give a different

antibiotic to treat the second form (I can't remember which form the

rocephin treats at the moment).

January 26, 2011

,

I got sick with Lymes (Resistant, my opinion) the end of July. Did several weeks

of oral antibiotics and then did 6 weeks of Rocephin IV this Fall and it saved

my sanity. I was so sick at the time that about all I got done was to go to the

hospital. Most days I was out after 1 1/2 hrs but there were days that took

longer, up to 3 hrs and that was due to circumstances at the the hospital. I was

happy to be done but still had symptoms that I thought could be side effects of

the drug, turned out to be the Lymes. I was left to drift by my GP, more ore

less. He did put me back on some Doxy temporarily. I ended up going to a Lyme

doctor 100 miles away and he doubled the doxy and I started seeing improvement.

You will probably be tired of the hospital by the time you are done but I found

that the staff was efficient and did their job well. I am very thankful for the

treatment I got.

> On Mon, Jan 24, 2011 at 4:56 PM, mac <slimpoint@...> wrote:

>

> >

> > hi, I am to go on rocephine soon for 4 months. I am wondering if anyone

> > out there has also gone the IV route, what daily living is like while on

> > the IV, and how effective it was for them.

> >

> > I have just been diagnosed with Lyme, but the doctor feels that I have had

> > if for 12 years, and I agree, based upon my symptoms over the years.

> >

> > Thanks for any insight you can offer.

> >

>

January 26, 2011

rocephin + plaquenil + tindamax ? or zith thrown in for a while

From: Farhangi <lesliefarhangi@...>

Subject: [ ] Re: IV antibiotics

Date: Wednesday, January 26, 2011, 12:44 PM

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