RE: Treatment halted (Ontario, Canada) - looking for LLMD

[Guest guest]

Another option is to self treat yourself with alternative (non-prescription)

methods. Many of them much much cheaper and apparently effective.

My wife got her Chronic lyme and co-infections into apparent remission this

way.

The easiest protocol that comes to mind is salt/c but there are many others.

You can read about what folks are doing and how it works for them on my free

lyme resource cd.

www.lyme-resource.com

You can lead a person to a fact, but you can't make them think! -

> [ ] Treatment halted (Ontario, Canada) -

> looking for LLMD

>

> Hi, Friends,

> I know I haven't written much, but have read lots. Thank you

> to everyone sharing stories and information.

>

>

> Could anyone help me out with recommending a LLMD in the USA,

> please, say maximum 6 hours travel time from Toronto? If

> there is one in Buffalo, that would be even better.  My

> personal email address is at the bottom, for the off-list

> name, since we do not post doctor's names on the open emails.

> Thank you in advance.

>

> After 10 - 12 monthes of treatment, I've now been abandoned

> by Ontario health, am off all treatment and the three doctors

> I've tried to get at least Doxy from, all said their hands are tied.

>

>

> I do have the info for Dr. M in upstate New York, who was a

> Lyme patient herself, but am trying to get one or two more to

> see which one gets back quickest, or which one might be the

> easiest to get to from here. I'm not looking forward to yet

> another doctor, another battery of tests and more prodding

> and poking. The brain fog has started again and it is getting

> harder and harder to read or understand anything, or to make

> decisions.

>

>

> When I was diagnosed and started treatment last March,

> someone on here said, " your diagnosis is only the start of

> your battle. " You were right. I was on double abx for ten

> months (Flagyl and Zithro) and it went well, symptoms

> improved, infections cleared up, brain came back to a large

> extend. On Nov. 30 I was given a PICC line and started on

> that, after three weeks of extra oral abx to check for

> allergies. After some weeks on the IV, Zithro was brought

> back and I immediately broke out in severe hives, also

> postulitis and blisters in the mouth. Told to stop all.

>

> Re-introduced two weeks later and that time it all went up to

> my face, eyes, etc. Told to stop again and hold off.

>

>

> Saw the Lyme doctor on Feb. 2nd, and he pulled the PICC line,

> saying I need to

> get tested for allergies and sensitivity because he didn't

> know what was causing

> the reaction but couldn't continue until we knew. Those tests

> are only scheduled

> for June and July. He said it was the first time in 15 years

> that any of his

> patients had reacted that badly so deep into the treatment.

> He was going to do

> research and let me know what could be done on my next visit,

> which was

> scheduled for March 17.

>

>

> When I saw him on that day, was when he told me he couldn't

> continue treating

> Lyme for the time being; that I have three options: (1)

> Trying to get a GP to

> prescribe Doxy, (2) Request a Lyme test kit from Stony Brook

> in NY and hope for

> a positive test again, in which case he MIGHT be able to

> continue prescribing

> for me, or (3) Go to the States for treatment.

>

>

> Option 1 has been exhausted, unless I can go to another GP in

> the area west of

> Toronto who might give a prescription for 2 weeks of Doxy.

>

> Option 2 would be a moot point if I can't get some abx to

> help the test instead

> of throwing a few hundred dollars into the water.

>

> So - trying to investigate option 3.

>

> In the mean time, hoping and praying the issue would be

> resolved and the doctor

> can start treatment again. I've already landed in ER once

> since then, after a

> doctor took one look at the raging eye infection (three in

> three weeks, always

> the left eye, which is also the eye that has been blind

> several times, for 5 -

> 20 minutes at a time).

>

>

> Thank you for reading.

> And yes, I'm taking the supplements, have limited sugar for

> more than a year

> now, cut out caffeine, and now gluten too. Trying to build up

> immune system

> through Igenix

>

> Greetings,

> Meerkat

> snert2001-bog@...

>

>

[Guest guest]

The best I know to find a LLMD is to go to www.mdjunction.com and

register and join the Lyme group. Go to the group and click forums.

There is one there called finding a LLMD and post your question. Be

careful when you post and read the rules. They don't want last names or

any mention of the doctors name. Someone will private message you the

name of a doctor.

When you first join you'll get an info message with a lot of good info

in it.

My doctor gave me a choice, six months progressive antibiotics or a

natural treatment the Cowden Protocol. http://www.nutramedix.com/ is

where I order it from, if you want to see what it looks

likehttp://www.nutramedix.com/downloads/Customers/

CCSPSchedule02032011.pdf

<http://www.nutramedix.com/downloads/Customers/CCSPSchedule02032011.pdf>

I chose this protocol because I am allergic to most antibiotics, I was

concerned about the long term damage of being on them for that long and

the low success rate of them. The Cowden Protocol claims to have a

70-90% success rate. So far the only time I've had any issues on the

program was a day of high stress (teenage daughter). As an added bonus

Cowden is on facebook and interacts with people on his protocol.

I've had Lyme for at least 10 years and was just diagnosed recently, I

am incredibly thankful that it was a LLMD that diagnosed me.

gin