Re: When should we test again???

[Guest guest]

I can't tell you when to retest, but I am sure others on this list can.

However, two things: one, antibiotics do NOT stop you from making

antibodies and two, I support you following through to absolutely make sure

it is Lyme.

We thought my son had it, but after MANY doctors' appointments it seems he

doesn't. He had cognitive symptoms as well as frequent bad headaches and

fatige -- sounds like Lyme, right? It turns out he is deficient in

co-enzyme Q10 and once we supplemented the fatigue and headaches vanished,

almost overnight. And an MRI shows he has a scar in his frontal lobe

causing the cognitive issues that we are treating w/stimulant medication.

As much as Lyme is missed b/c it copies other diseases, it is possible to

misdiagnose it when really something else is going on. My son saw an LLMD,

who thankfully insisted we get an neurologist's opinion and the neurologist

made the diagnosis. He also had two rounds of neuropsych testing, with two

different neuropsychologists. It's a long lonely road -- but there *is* an

end!

One piece of evidence for us was that he was on antibiotics for five months

with no improvement at all (and, no herx reactions). Lyme patients may not

be cured in five months, but there should be some kind of change if they've

been on antibiotics that long!

On Sun, Apr 17, 2011 at 9:21 AM, JoAnn <JoannC@...>wrote:

>

>

> Hello,

>

> Can anyone help me with this question.

>

> If antibiotics stop you from making antibodies to Lyme. At what point is it

> right to test again?

>

> My daughter had a bunch of ear infection over the winter and was treated

> with 4 different antibiotics.

>

> Then in March we found she has heart block but her Lyme test through Quest

> was negative 3 times over a three week period. Now she is on amoxicillin 3

> X

> a day for lyme and is on day 21 of treatment. We saw the LLMD and the plan

> is to continue to treat for 6 to 9 months.

>

> I really want to confirm that this is Lyme because the LLMD said that

> extended antibiotic treatment can affect the growth plates in children

> affecting their height.. So when is the right time to test again. If she is

> still on antibiotics is it more likely that the test will be negative? I

> plan on doing the IGenex test $$$ so I want to make sure I am doing it at

> the optimal time.

>

> Many thanks in advance,

>

> JoAnn

>

>

[Guest guest]

From http://www.theprogressnews.com/default.asp?read=26371

" It takes one's body a while to deliver an antibody response, Vetrano said. It

can take two to four weeks and a peak of three to six weeks for the body's IGM

antibody molecule to reach detectable range. It can take four to eight weeks for

a memory antibody or IGG molecule to reach detectable range. "

However, if the Lyme spirochete has infected the brain, you have a deeper

problem.

From http://www.lyme-disease-testing.com/lyme_treatment.html

" Peer reviewed medical literature describing late stage Lyme disease

consistently show the involvement of the central nervous system. And the only

antibiotics that cross the blood-brain barrier, and have the hope of eradicating

the Lyme disease bacteria can ONLY be administered intravenously. "