Hi

[Guest guest]

Hi All,

I haven't been on line in a while. Just wanted to say hey and hope that

everyone is doing good. Alecia has been doing good thank god no major flares

or anything. She seems to do better when the warmer wheather comes. She

learned how to ride a bike with no training wheels today. I was very happy to

see her doing that,she has been wanting to learn for the longest. I have been

afraid for her to try it because she has lost almost all of the motion in her

wrists,so i figured how would she break her fall if she fell. All went well

though i have to let go some time right. The doc said to take 2 teaspoons of

the folic acid for the sores on her head due to the methotrexate along with a

lower dose, it seems to be doing the trick. Thank my higher power for that

one i was afriad that we would have to go on something different and

experiment again with meds.ugh not fun..... Well like i said earlier hope

everyone and all the children are doing well your all in my prayers. The

warmer wheather is coming here in NJ. looking forward to lots of fun in the

sun....

Bye and Alecia

[Guest guest]

Hi ,

Great to hear from you! And so happy about Alecia's bike riding. I bet that made

her day and brought you both a lot of smiles! Sometimes Josh isn't well enough

joint wise to ride his bike these days. He does have a full set of riding gear,

though, with wrist pads, helmet, the works. I'm really happy when he does decide

to get more active and do the fun kids stuff.

Good to know that the folic acid seems to be helping with the head sores. That's

great. Hopefully it won't happen again. And hooray!!!! about the Spring weather!

It's been nice and warm and sunny here, as usual, but it has been very windy

this

weekend. So, no beach :-( At times like this, the sand can really hurt, as it

swirls around the sun seekers. You really have to stay in the water the entire

time. So, we're thinking maybe next week instead :-)

Take Care,

Georgina

[Guest guest]

HI All,

Welcome Tracey!! I live in Lakewood NJ I am not sure where Millville is.

Hi Georgina it is nice to talk to you again.

bye bye

[Guest guest]

hi Georgina, my daughter is three she has been ill for a year now .

she has been on the metho for 7 months and the pedie pred for 7 monnths as

well i would like to see her off the pedie pred,I hope that will start

again this month. How is your son now? well have a great night see you

martino

>From: Georgina <gmckin@...>

>Reply- onelist

> onelist

>Subject: [ ] Hi

>Date: Mon, 28 Jun 1999 18:56:26 -1000

>MIME-Version: 1.0

>From errors-80038-729-shancna Mon Jun 28 21:58:37 1999

>Received: from [209.207.164.159] by hotmail.com (1.5) with SMTP id

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>Received: (qmail 261 invoked by alias); 29 Jun 1999 04:58:19 -0000

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>

>From: Georgina <gmckin@...>

>

>Hi ,

>

>So glad to hear about your daughter. It's always nice to hear about cases

>that

>are able to be controlled well, early on. How long has she had JRA? How

>long has

>she been taking methotrexate? Oh, and how old is she? When my son was

>little, he

>used to walk around on his tippy toes a lot, too :-)

>

>Take Care,

>Georgina

>

>SHANNON MARTINO wrote:

>

> > From: SHANNON MARTINO <shancna@...>

> >

> > hello skisarsha@... my daughter was in the hospital for three days

>she

> > had a pred pulse after that time it only took her about a month of

>10mgx2

> > daily of pedipred and a lot of rehab but she walked for thr first time

>in

> > three months now she is running around like a normal little girl she has

>a

> > small limp and she tends to walk on her toes but she is down to

>5mgpediepred

> > x2 ddaily and 15mg of metho and her pain and temps are in control good

> > luck!!! shancna@...

>

>

>---------------------------

[Guest guest]

Welcome , I had a horse one time that died of liver disease, it was too

far to do anything when we found out what it was. He had everyone

scrambling trying to figure it out. Hope your dog is feeling okay. Did

they have to do a biopsy? What kind of dog is it and what are his meds? I

know a lot of the times they prescribe the same for dogs as people. Lynn

Aih

Hunter wrote:

> From: " Hunter " <wyatt9@...>

>

> Hi list,

>

> I hope it doesn't offend anyone that I am on the list because my dog has

> chronic active portal hepatitis. He is as dear to me as a family member

> could be, and I haven't found any resources through veterinary lists

> that are as full of info as this list. So, I just wanted to say thank

> you to all of you, I read all of your posts with great empathy and

> interest and always look for new ideas to help my kid too. You really

> seem like a great group of people and I learn so much from you that

> helps me to help my family member who just happens to have this thing

> too.

>

> Thank you so much!

>

> & Wyatt

>

> ---------------------------

[Guest guest]

I loved to hear that you have a love for your dog that it is like a child to

you. I hope you learn things from us and hope your dog gets well soon.

Myself I have a dog named Halo Anne

.. I got her the week before Easter and I have gotten so attached to her.

She was an orphan, someone let her off on the side of the road. When I got

her she was a sad site. She needed all her shots and she had to be spaded

and a good hair cut. She was about 10 pounds and really was in made shape.

When she was done with all the doctor appointments she because the best thing

in my life since I got AIH. My daugther has a part black lab and who knows

dog. Her name is Libby Jane, Liberty Jane when she is bad, which is alot.

Sue AIH

Wisconsin

[Guest guest]

Send a picture. I still am trying to figure out my scanner so I can send

pictures of the dogs in my life and pictures of fluffy (fat) me and my

sisters.

Sue AIH

Wisconsin

[Guest guest]

We were extremely lucky to discover my dog's problem very early on - he

was and always has been asymptomatic. One day he seemed a little " off "

and because I'm a vet tech I took him to work with me and did a blood

panel which revealed really really elevated liver enzymes...we assumed

that he had gotten into something and treated it as toxicity, monitoring

his blood closely, but when almost a month went by with no change in his

numbers we went ahead and biopsied and found out that he has chronic

disease But, as I said we caught it early so he's in great shape.

He is on the same drugs as a human: pred, imuran and actigall and

vitamin E. I feel bad that he can't tell me how all those drugs make

him feel, because from what I read on this list they make you feel

really nasty. He did gain a lot of weight from the pred, and he had to

pee at least every four hours but now that his dose is down he's more

back to normal. He gets monthly blood tests and we are really happy

with how he's doing, he's responding well to the meds, but still his

internist (who is also one of my best friends - again, lucky us) wants

another biopsy six months into treatment (August) for a definitive look

at the level of fibrosis. Hopefully low. As I'm sure all of you know,

the pred can cause the liver enzymes to be falsely high or low (I forget

exactly how that works but I can look it up if anyone's really

interested) so even though the blood tests look great he wants to be

really certain of the situation, which I agree with. I hate to put him

through another biopsy, but at least I get to be with him the whole

time.

He's a greyhound/bull terrier mix. If anyone's interested in seeing

him, I'd be happy to post a picture! (He's VERY handsome).

Thanks for the welcome!

& Wyatt

----------

>From: Lynn <CEN32195@...>

> onelist

>Subject: Re: [ ] Hi

>Date: Sun, Jul 25, 1999, 12:47 AM

>

>From: Lynn <CEN32195@...>

>

>Welcome , I had a horse one time that died of liver disease, it was too

>far to do anything when we found out what it was. He had everyone

>scrambling trying to figure it out. Hope your dog is feeling okay. Did

>they have to do a biopsy? What kind of dog is it and what are his meds? I

>know a lot of the times they prescribe the same for dogs as people. Lynn

>Aih

>

> Hunter wrote:

>

>> From: " Hunter " <wyatt9@...>

>>

>> Hi list,

>>

>> I hope it doesn't offend anyone that I am on the list because my dog has

>> chronic active portal hepatitis. He is as dear to me as a family member

>> could be, and I haven't found any resources through veterinary lists

>> that are as full of info as this list. So, I just wanted to say thank

>> you to all of you, I read all of your posts with great empathy and

>> interest and always look for new ideas to help my kid too. You really

>> seem like a great group of people and I learn so much from you that

>> helps me to help my family member who just happens to have this thing

>> too.

>>

>> Thank you so much!

>>

>> & Wyatt

>>

>> ---------------------------

[Guest guest]

I would love to see a picture of your dog. Lynn

Hunter wrote:

> From: " Hunter " <wyatt9@...>

>

> We were extremely lucky to discover my dog's problem very early on - he

> was and always has been asymptomatic. One day he seemed a little " off "

> and because I'm a vet tech I took him to work with me and did a blood

> panel which revealed really really elevated liver enzymes...we assumed

> that he had gotten into something and treated it as toxicity, monitoring

> his blood closely, but when almost a month went by with no change in his

> numbers we went ahead and biopsied and found out that he has chronic

> disease But, as I said we caught it early so he's in great shape.

> He is on the same drugs as a human: pred, imuran and actigall and

> vitamin E. I feel bad that he can't tell me how all those drugs make

> him feel, because from what I read on this list they make you feel

> really nasty. He did gain a lot of weight from the pred, and he had to

> pee at least every four hours but now that his dose is down he's more

> back to normal. He gets monthly blood tests and we are really happy

> with how he's doing, he's responding well to the meds, but still his

> internist (who is also one of my best friends - again, lucky us) wants

> another biopsy six months into treatment (August) for a definitive look

> at the level of fibrosis. Hopefully low. As I'm sure all of you know,

> the pred can cause the liver enzymes to be falsely high or low (I forget

> exactly how that works but I can look it up if anyone's really

> interested) so even though the blood tests look great he wants to be

> really certain of the situation, which I agree with. I hate to put him

> through another biopsy, but at least I get to be with him the whole

> time.

>

> He's a greyhound/bull terrier mix. If anyone's interested in seeing

> him, I'd be happy to post a picture! (He's VERY handsome).

>

> Thanks for the welcome!

>

> & Wyatt

> ----------

> >From: Lynn <CEN32195@...>

> > onelist

> >Subject: Re: [ ] Hi

> >Date: Sun, Jul 25, 1999, 12:47 AM

> >

>

> >From: Lynn <CEN32195@...>

> >

> >Welcome , I had a horse one time that died of liver disease, it was too

> >far to do anything when we found out what it was. He had everyone

> >scrambling trying to figure it out. Hope your dog is feeling okay. Did

> >they have to do a biopsy? What kind of dog is it and what are his meds? I

> >know a lot of the times they prescribe the same for dogs as people. Lynn

> >Aih

> >

> > Hunter wrote:

> >

> >> From: " Hunter " <wyatt9@...>

> >>

> >> Hi list,

> >>

> >> I hope it doesn't offend anyone that I am on the list because my dog has

> >> chronic active portal hepatitis. He is as dear to me as a family member

> >> could be, and I haven't found any resources through veterinary lists

> >> that are as full of info as this list. So, I just wanted to say thank

> >> you to all of you, I read all of your posts with great empathy and

> >> interest and always look for new ideas to help my kid too. You really

> >> seem like a great group of people and I learn so much from you that

> >> helps me to help my family member who just happens to have this thing

> >> too.

> >>

> >> Thank you so much!

> >>

> >> & Wyatt

> >>

> >> ---------------------------

[Guest guest]

I was born with it 57 years ago! And am just now getting it under control!

It has really been a struggle, I' became aware of the meaning of Candida

when i was 40 yrs old & was so glad there was a name to what i had & that

someone else knew about it! In May of 1998 i finally found someone who knew

how to get rid of it & have been following his advice & getting rid of it!

It is very smart! It knows your routine of meds you are taking & can form a

resistance to it. I saw 10 different Drs. in & out of Hosp, saw every known

specialist, so i am extremely pleased with my routine now, i am feeling

great! i do not follow the diet strict, i can't! i have tried for 17 yrs,

but i do my best, exercise is very important also. If i can be of any help

please ask, i'll do what i can. Good Luck! Mogdrmom@...

[Guest guest]

Hi Christie,

My mom thinks I was born with the Candida. If not, I suspect it came from

the antibiotics I took when I was 2 for Scarlet Fever. I've felt tired all

my life that I can remember.

Hi

> From: christie29@... (c s)

>

> Hi, im Christie.. I was wondering how you all think you got Candida?

>

> hugz...Christie

> " Owner of Frames by Christie "

>

>

> ---------------------------

[Guest guest]

Hello to " MogdrMom! "

Found your post very interesting, and would love to hear lots more

details about exactly what you are doing to get rid of the candida.

I just can't seem to shake this stuff, and the diet is too restrictive to

live with forever. For a short time, yes, maybe, but not long term. The

restriction does not agree with my body. Would sure love to hear your

experience with it all!!

Take good care--

Lucy

[Guest guest]

, i also had Scarlet Fever as a child, maybe there is a connection,

i've had candida when i was born or maybe after i had the scarlet fever?

Don't know, i'll have to do some checking, Thanks! mogdrmom

[Guest guest]

Rick,

I would be happy to include a copy of Connections in my next newsletter,

or take one to our monthly meetings. We have a large group of singles

that really could benefit and I'm sure we could get you some more

subscriptions.

Quick, Pres.

Dal-Worth Ch.

4240 Oak Grove

Carrollton 75010

On Wed, 4 Aug 1999 20:10:23 EDT REanes7777@... writes:

>From: REanes7777@...

>

>Dear ,

>

>I noticed this generous message you emailed to and I was

>wondering if

>you would let me send you some copies of Connections, to place in the

>LPA

>Introductory Packets? The newsletter would be a great, free item for

>new

>members and it's inclusion would help broaden prospective prospects

>for

>Connection's subscribers. And as you know, at $4 a year, a

>Connections

>subscription is the least-expensive, dwarf-related product available

>to LPA

>members.

>

>Just let me know how many issues you would need and they will be

>there!

>

>Thank you for your consideration,

>Rick

>

>

> -

>

>Would you like a free LPA Introductory Packet

>sent to you? By joining LPA you can contact your

>local LPA representative who can tell you about all

>kinds of resources and opportunities for the short

>statured.

>

>We only have 2 listed on our database who have

>Hurlers syndrome.

>

>If you would like an Intro. Packet, please let me

>know your mailing address and I will get that out

>to you.

>

>Yours in service,

> Pratt

>LPA Database Administrator

> & Help Line Operator

>1-888-LPA-2001>>

>

>

>---------------------------

[Guest guest]

Hi Chuck, Glad to have you with us. My husband

has Hep-C. The folks her are great. I've found out

alot of information which has made it easier to

understand what my husband is going through and feeling.

Tell your wife and kids too to click in once in

awhile. Caregivers need support too. Check out some of

the links they're great.

[Guest guest]

Dear ,

Your doctors have won for saying the stupidest things I've ever heard! First

off, your symtoms seem to me to be classic AIH. Second of all, who is that

doctor to ORDER you to take tranquilizers when he doesn't even know what

Autoimmune Hepatitis is?! I don't see how he could have you committed when

it can be proven that you know what you're talking about. You are SO not

crazy, and I am so sorry you had to endure that. I know a normal doctor's

appointment can be upsetting to me. Something like what you had to endure

(even a fraction) would put me over the edge I think! Please just know

they're both severely ignorant and unprofessional. Take care, and find an

outlet to vent all that out!

>From: La7de@...

>Reply- onelist

> onelist

>Subject: Re: [ ] Hi

>Date: Fri, 3 Sep 1999 07:26:18 EDT

>

>From: La7de@...

>

>Hi all,

>

>Boy do I need a dose of your sanity and support today! I had the most

>horrible doctors visits yesterday, I'm still in shock.

>

>My first visit was for a second opinion, mainly because my first GI didn't

>seem concerned and getting answers/information from him was like pulling

>teeth. So this time I tried a woman GI. She was very thourough in her

>exam

>and with asking me questions. I had also brought her a list of my

>symptoms,

>like fatigue, muscle/joint pain/constant low grade fever/depression/nausea/

>dry & sore eyes/ URQ pain etc.... She said they were not symptoms of AIH,

>and that my numbers AST-147,ALKP-358, ANA-1:80 were not suggestive of AIH.

>Even with the Mayo clinic biopsy, which said " Chronic active hepatitis

>(grade

>2 of 4), with periportal fibrosis (stage 2 of 4) " Also, portal/periportal

>inflammation with piecemeal necrosis.

>

>She ordered a few more blood tests, but figured they wouldn't convince her

>any differently. Bottom line, she said all I needed was to " get off my

>butt

>and start exercising and quit smoking " . She didn't seem to care that I

>didn't have the energy to do that after putting all the energy I do have

>into

>working all day. I left there stunned. Then, because she had been running

>45 min late, I had to rush to my new psychiatrists appointment and got

>there

>late, but they said it was ok.

>

>The psych's nurse took down some facts, then I finally got to see the

>doctor.

> OH MY GOD, I have never run into a man like this before holding a

>professional degree. The reason I went to him was because my first GI

>wanted

>to make sure my depression was stable before they put me on prednisone,

>since

>it can also cause depression. So like a fool, I showed him my list of

>symptoms from AIH. He was furious that I had been in counseling for 18

>months (I had been ok before this run around with trying to get my

>diagnosis

>and I simply couldn't afford it). He said that just because I had a " bad

>life " didn't mean that there was anything he could do for me. I tried to

>tell him about the AIH diagnosis from Mayo, and he said is it Hep A, B or

>C?

>I said neither, it was autoimmune hep, and he hollered that there were only

>three choices A, B or C! I guess I made the mistake of trying to explain

>that autoimmune hep is none of those, because he got real mad and said he

>was

> " this close to Baker acting me " !!!!!!!! But that if I did what he said he

>would give me a chance!!!! So I had to make an appt with his psychologist

>for later today. Can you believe it??? He also gave me a RX for

>tranquilizers that I MUST take!

>

>He scared the H*** out of me, I could just picture the cops coming and

>dragging me off to the mental institution! I'm not crazy, really I'm not!

>Yes, I was still reeling from the GI's visit, and down over that but come

>on!

>

>

>I don't know what to do next!?!! I don't know what he can do to me, can I

>fire him without being Baker acted? (Baker acted is being committed

>against

>my will). I went for the new lab tests, so I'll see what they say, and I'm

>too scared not to see his psychologist today, but now I'm not only lost,

>I'm

>terrified!

>

>Anyone have any ideas???

>

> (AIH)

>Florida

>

>---------------------------

[Guest guest]

Hi all,

Boy do I need a dose of your sanity and support today! I had the most

horrible doctors visits yesterday, I'm still in shock.

My first visit was for a second opinion, mainly because my first GI didn't

seem concerned and getting answers/information from him was like pulling

teeth. So this time I tried a woman GI. She was very thourough in her exam

and with asking me questions. I had also brought her a list of my symptoms,

like fatigue, muscle/joint pain/constant low grade fever/depression/nausea/

dry & sore eyes/ URQ pain etc.... She said they were not symptoms of AIH,

and that my numbers AST-147,ALKP-358, ANA-1:80 were not suggestive of AIH.

Even with the Mayo clinic biopsy, which said " Chronic active hepatitis (grade

2 of 4), with periportal fibrosis (stage 2 of 4) " Also, portal/periportal

inflammation with piecemeal necrosis.

She ordered a few more blood tests, but figured they wouldn't convince her

any differently. Bottom line, she said all I needed was to " get off my butt

and start exercising and quit smoking " . She didn't seem to care that I

didn't have the energy to do that after putting all the energy I do have into

working all day. I left there stunned. Then, because she had been running

45 min late, I had to rush to my new psychiatrists appointment and got there

late, but they said it was ok.

The psych's nurse took down some facts, then I finally got to see the doctor.

OH MY GOD, I have never run into a man like this before holding a

professional degree. The reason I went to him was because my first GI wanted

to make sure my depression was stable before they put me on prednisone, since

it can also cause depression. So like a fool, I showed him my list of

symptoms from AIH. He was furious that I had been in counseling for 18

months (I had been ok before this run around with trying to get my diagnosis

and I simply couldn't afford it). He said that just because I had a " bad

life " didn't mean that there was anything he could do for me. I tried to

tell him about the AIH diagnosis from Mayo, and he said is it Hep A, B or C?

I said neither, it was autoimmune hep, and he hollered that there were only

three choices A, B or C! I guess I made the mistake of trying to explain

that autoimmune hep is none of those, because he got real mad and said he was

" this close to Baker acting me " !!!!!!!! But that if I did what he said he

would give me a chance!!!! So I had to make an appt with his psychologist

for later today. Can you believe it??? He also gave me a RX for

tranquilizers that I MUST take!

He scared the H*** out of me, I could just picture the cops coming and

dragging me off to the mental institution! I'm not crazy, really I'm not!

Yes, I was still reeling from the GI's visit, and down over that but come on!

I don't know what to do next!?!! I don't know what he can do to me, can I

fire him without being Baker acted? (Baker acted is being committed against

my will). I went for the new lab tests, so I'll see what they say, and I'm

too scared not to see his psychologist today, but now I'm not only lost, I'm

terrified!

Anyone have any ideas???

(AIH)

Florida

[Guest guest]

Tell you dr to go " get screwed " and maybe some of his hostility will be

released. You don't have to put up with that in any shape, form, or fashion!

Anita Gorman

Texas

[Guest guest]

,

Thank you so much for the words of support! I'm trying to get in to see my

old shrink now, he was very expensive, but at least he knows I'm not crazy!!!

I just want to go on record as being someone else's patient so that creep

can have no power over me!

(AIH)

Florida

[Guest guest]

, I suggest you get kinder physicians. Shrink has no right to speak

to you that way!

J

>From: La7de@...

>Reply- onelist

> onelist

>Subject: Re: [ ] Hi

>Date: Fri, 3 Sep 1999 07:26:18 EDT

>MIME-Version: 1.0

>From errors-165537-5885-shireen42=hotmail.comonelist Fri Sep 3

>04:26:29 1999

>Received: (qmail 32557 invoked by alias); 3 Sep 1999 11:26:12 -0000

>Received: (qmail 32528 invoked from network); 3 Sep 1999 11:26:10 -0000

>Received: from unknown (HELO imo14.mx.aol.com) (198.81.17.4) by

>pop.onelist.com with SMTP; 3 Sep 1999 11:26:10 -0000

>Received: from La7de@... by imo14.mx.aol.com (mail_out_v22.4.) id

>hJGTa23997 (4235) for < onelist>; Fri, 3 Sep 1999

>07:26:19 -0400 (EDT)

>Message-ID: <5c129724.25010a5a@...>

>X-Mailer: AOL 4.0 for Windows 95 sub 22

>Mailing-List: list onelist; contact

> -owneronelist

>Delivered-mailing list onelist

>Precedence: bulk

>List-Unsubscribe: <mailto: -unsubscribeONElist>

>

>From: La7de@...

>

>Hi all,

>

>Boy do I need a dose of your sanity and support today! I had the most

>horrible doctors visits yesterday, I'm still in shock.

>

>My first visit was for a second opinion, mainly because my first GI didn't

>seem concerned and getting answers/information from him was like pulling

>teeth. So this time I tried a woman GI. She was very thourough in her

>exam

>and with asking me questions. I had also brought her a list of my

>symptoms,

>like fatigue, muscle/joint pain/constant low grade fever/depression/nausea/

>dry & sore eyes/ URQ pain etc.... She said they were not symptoms of AIH,

>and that my numbers AST-147,ALKP-358, ANA-1:80 were not suggestive of AIH.

>Even with the Mayo clinic biopsy, which said " Chronic active hepatitis

>(grade

>2 of 4), with periportal fibrosis (stage 2 of 4) " Also, portal/periportal

>inflammation with piecemeal necrosis.

>

>She ordered a few more blood tests, but figured they wouldn't convince her

>any differently. Bottom line, she said all I needed was to " get off my

>butt

>and start exercising and quit smoking " . She didn't seem to care that I

>didn't have the energy to do that after putting all the energy I do have

>into

>working all day. I left there stunned. Then, because she had been running

>45 min late, I had to rush to my new psychiatrists appointment and got

>there

>late, but they said it was ok.

>

>The psych's nurse took down some facts, then I finally got to see the

>doctor.

> OH MY GOD, I have never run into a man like this before holding a

>professional degree. The reason I went to him was because my first GI

>wanted

>to make sure my depression was stable before they put me on prednisone,

>since

>it can also cause depression. So like a fool, I showed him my list of

>symptoms from AIH. He was furious that I had been in counseling for 18

>months (I had been ok before this run around with trying to get my

>diagnosis

>and I simply couldn't afford it). He said that just because I had a " bad

>life " didn't mean that there was anything he could do for me. I tried to

>tell him about the AIH diagnosis from Mayo, and he said is it Hep A, B or

>C?

>I said neither, it was autoimmune hep, and he hollered that there were only

>three choices A, B or C! I guess I made the mistake of trying to explain

>that autoimmune hep is none of those, because he got real mad and said he

>was

> " this close to Baker acting me " !!!!!!!! But that if I did what he said he

>would give me a chance!!!! So I had to make an appt with his psychologist

>for later today. Can you believe it??? He also gave me a RX for

>tranquilizers that I MUST take!

>

>He scared the H*** out of me, I could just picture the cops coming and

>dragging me off to the mental institution! I'm not crazy, really I'm not!

>Yes, I was still reeling from the GI's visit, and down over that but come

>on!

>

>

>I don't know what to do next!?!! I don't know what he can do to me, can I

>fire him without being Baker acted? (Baker acted is being committed

>against

>my will). I went for the new lab tests, so I'll see what they say, and I'm

>too scared not to see his psychologist today, but now I'm not only lost,

>I'm

>terrified!

>

>Anyone have any ideas???

>

> (AIH)

>Florida

>

>---------------------------

[Guest guest]

Hey :

Sorry you had such a crappy day. My thoughts are with you.

Jackie

PS. Kenny had his biopsy today, everything went smooth. Thank goodness.

[Guest guest]

At the risk of sounding weird, I would say, " Run like Hell " . Lynn

La7de@... wrote:

> From: La7de@...

>

> Hi all,

>

> Boy do I need a dose of your sanity and support today! I had the most

> horrible doctors visits yesterday, I'm still in shock.

>

> My first visit was for a second opinion, mainly because my first GI didn't

> seem concerned and getting answers/information from him was like pulling

> teeth. So this time I tried a woman GI. She was very thourough in her exam

> and with asking me questions. I had also brought her a list of my symptoms,

> like fatigue, muscle/joint pain/constant low grade fever/depression/nausea/

> dry & sore eyes/ URQ pain etc.... She said they were not symptoms of AIH,

> and that my numbers AST-147,ALKP-358, ANA-1:80 were not suggestive of AIH.

> Even with the Mayo clinic biopsy, which said " Chronic active hepatitis (grade

> 2 of 4), with periportal fibrosis (stage 2 of 4) " Also, portal/periportal

> inflammation with piecemeal necrosis.

>

> She ordered a few more blood tests, but figured they wouldn't convince her

> any differently. Bottom line, she said all I needed was to " get off my butt

> and start exercising and quit smoking " . She didn't seem to care that I

> didn't have the energy to do that after putting all the energy I do have into

> working all day. I left there stunned. Then, because she had been running

> 45 min late, I had to rush to my new psychiatrists appointment and got there

> late, but they said it was ok.

>

> The psych's nurse took down some facts, then I finally got to see the doctor.

> OH MY GOD, I have never run into a man like this before holding a

> professional degree. The reason I went to him was because my first GI wanted

> to make sure my depression was stable before they put me on prednisone, since

> it can also cause depression. So like a fool, I showed him my list of

> symptoms from AIH. He was furious that I had been in counseling for 18

> months (I had been ok before this run around with trying to get my diagnosis

> and I simply couldn't afford it). He said that just because I had a " bad

> life " didn't mean that there was anything he could do for me. I tried to

> tell him about the AIH diagnosis from Mayo, and he said is it Hep A, B or C?

> I said neither, it was autoimmune hep, and he hollered that there were only

> three choices A, B or C! I guess I made the mistake of trying to explain

> that autoimmune hep is none of those, because he got real mad and said he was

> " this close to Baker acting me " !!!!!!!! But that if I did what he said he

> would give me a chance!!!! So I had to make an appt with his psychologist

> for later today. Can you believe it??? He also gave me a RX for

> tranquilizers that I MUST take!

>

> He scared the H*** out of me, I could just picture the cops coming and

> dragging me off to the mental institution! I'm not crazy, really I'm not!

> Yes, I was still reeling from the GI's visit, and down over that but come on!

>

>

> I don't know what to do next!?!! I don't know what he can do to me, can I

> fire him without being Baker acted? (Baker acted is being committed against

> my will). I went for the new lab tests, so I'll see what they say, and I'm

> too scared not to see his psychologist today, but now I'm not only lost, I'm

> terrified!

>

> Anyone have any ideas???

>

> (AIH)

> Florida

>

> ---------------------------

[Guest guest]

I second that, and also turn him in to whoever it is that oversees these things,

and then see how bossy and mean he is. Lynn

AGo2864215@... wrote:

> From: AGo2864215@...

>

> Tell you dr to go " get screwed " and maybe some of his hostility will be

> released. You don't have to put up with that in any shape, form, or fashion!

>

> Anita Gorman

> Texas

>

> ---------------------------

[Guest guest]

My daughter is going to name her baby if it is a girl of course, and Luke

if it is a boy. We will know in October. Just thought i would share this with

you. Lynn aih

emily simpson wrote:

> From: " emily simpson " <esimpson7@...>

>

> Dear ,

>

> Your doctors have won for saying the stupidest things I've ever heard! First

> off, your symtoms seem to me to be classic AIH. Second of all, who is that

> doctor to ORDER you to take tranquilizers when he doesn't even know what

> Autoimmune Hepatitis is?! I don't see how he could have you committed when

> it can be proven that you know what you're talking about. You are SO not

> crazy, and I am so sorry you had to endure that. I know a normal doctor's

> appointment can be upsetting to me. Something like what you had to endure

> (even a fraction) would put me over the edge I think! Please just know

> they're both severely ignorant and unprofessional. Take care, and find an

> outlet to vent all that out!

>

>

>

> >From: La7de@...

> >Reply- onelist

> > onelist

> >Subject: Re: [ ] Hi

> >Date: Fri, 3 Sep 1999 07:26:18 EDT

> >

> >From: La7de@...

> >

> >Hi all,

> >

> >Boy do I need a dose of your sanity and support today! I had the most

> >horrible doctors visits yesterday, I'm still in shock.

> >

> >My first visit was for a second opinion, mainly because my first GI didn't

> >seem concerned and getting answers/information from him was like pulling

> >teeth. So this time I tried a woman GI. She was very thourough in her

> >exam

> >and with asking me questions. I had also brought her a list of my

> >symptoms,

> >like fatigue, muscle/joint pain/constant low grade fever/depression/nausea/

> >dry & sore eyes/ URQ pain etc.... She said they were not symptoms of AIH,

> >and that my numbers AST-147,ALKP-358, ANA-1:80 were not suggestive of AIH.

> >Even with the Mayo clinic biopsy, which said " Chronic active hepatitis

> >(grade

> >2 of 4), with periportal fibrosis (stage 2 of 4) " Also, portal/periportal

> >inflammation with piecemeal necrosis.

> >

> >She ordered a few more blood tests, but figured they wouldn't convince her

> >any differently. Bottom line, she said all I needed was to " get off my

> >butt

> >and start exercising and quit smoking " . She didn't seem to care that I

> >didn't have the energy to do that after putting all the energy I do have

> >into

> >working all day. I left there stunned. Then, because she had been running

> >45 min late, I had to rush to my new psychiatrists appointment and got

> >there

> >late, but they said it was ok.

> >

> >The psych's nurse took down some facts, then I finally got to see the

> >doctor.

> > OH MY GOD, I have never run into a man like this before holding a

> >professional degree. The reason I went to him was because my first GI

> >wanted

> >to make sure my depression was stable before they put me on prednisone,

> >since

> >it can also cause depression. So like a fool, I showed him my list of

> >symptoms from AIH. He was furious that I had been in counseling for 18

> >months (I had been ok before this run around with trying to get my

> >diagnosis

> >and I simply couldn't afford it). He said that just because I had a " bad

> >life " didn't mean that there was anything he could do for me. I tried to

> >tell him about the AIH diagnosis from Mayo, and he said is it Hep A, B or

> >C?

> >I said neither, it was autoimmune hep, and he hollered that there were only

> >three choices A, B or C! I guess I made the mistake of trying to explain

> >that autoimmune hep is none of those, because he got real mad and said he

> >was

> > " this close to Baker acting me " !!!!!!!! But that if I did what he said he

> >would give me a chance!!!! So I had to make an appt with his psychologist

> >for later today. Can you believe it??? He also gave me a RX for

> >tranquilizers that I MUST take!

> >

> >He scared the H*** out of me, I could just picture the cops coming and

> >dragging me off to the mental institution! I'm not crazy, really I'm not!

> >Yes, I was still reeling from the GI's visit, and down over that but come

> >on!

> >

> >

> >I don't know what to do next!?!! I don't know what he can do to me, can I

> >fire him without being Baker acted? (Baker acted is being committed

> >against

> >my will). I went for the new lab tests, so I'll see what they say, and I'm

> >too scared not to see his psychologist today, but now I'm not only lost,

> >I'm

> >terrified!

> >

> >Anyone have any ideas???

> >

> > (AIH)

> >Florida

> >

> >---------------------------

[Guest guest]

Jackie,

I meant to ask you yesterday how his biopsy went. Sounds like he did ok with

it, and I've forgotten how long it takes for the results. I forget alot

lately!!! LOL. Please let me know when the results are in... You take care

of yourself honey, I'm thinking about you all.

Love ya,

(AIH)

Florida