Guest guest Posted August 3, 2007 Report Share Posted August 3, 2007 I was scared of the liver biopsy. Personally I have experienced more discomfort both during and prior the procedure from having a tooth pulled at the dentist. darkangel_fromthecrypt <no_reply > wrote: I am new, and I just wanted to say I have Hep c, 10 years, and am getting ready to get a liver biopsy. I am very afraid of this, I hate needles for one thing. This whole thing is beginning to creep me out, I am afraid most of the time. I feel so alone. Thanks for reading. --------------------------------- 7 Mail has just got even bigger and better with unlimited storage on all webmail accounts. Find out more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 > > Hello Everybody, > I am new to this group.My greetings to all. ==>Hi there. Welcome to our group. What is your name please? The best, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 My name is Pushpa. Bee <beeisbuzzing2003@...> wrote: > > Hello Everybody, > I am new to this group.My greetings to all. ==>Hi there. Welcome to our group. What is your name please? The best, Bee --------------------------------- Looking for a deal? Find great prices on flights and hotels with FareChase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2007 Report Share Posted August 16, 2007 Welcome Pushpa! If you feel comfortable talking about it, what is your hypoT story? I'd love to hear about it! ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 Hi, Glad to have you aboard. Roni --- pushpakaran22 <pushpakaran22@...> wrote: > Hello everybody, > I an a new member and i convey my > greetings to all. > > > > > With Regards, > Pushpa. > > > ________________________________________________________________________________\ ____ Be a better Globetrotter. Get better travel answers from someone who knows. Answers - Check it out. http://answers./dir/?link=list & sid=396545469 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 hi Pushpa and welcome. your name makes me think you are Indian and vegetarian--am I right? Are you living in America? Gracia Hello everybody, I an a new member and i convey my greetings to all. With Regards, Pushpa. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2007 Report Share Posted August 28, 2007 > > Hello, I am , 38. I have recently lost 15 pounds due to ? > candida, hypoglycemia, adrenal fatigue? Every time I eat ANY sugar I > get completely exhausted within minutes and it feels like my blood > sugar plummets. I have been eating brown rice and chicken okay > however. Has anyone here had this ultra quick reaction to sugar which > is very scary? > >Hi Kel. Welcome to our group. It is important that you read Candida Basics emailed to you when you join so you understand about candida and how this diet plus supplements cures it. The reason this program works so well is because it eliminates all foods that feed candida like brown rice, as well as high good saturated fats, and moderate protein - there is no other program like it! ==>You would have a very quick reaction to sugar since it feeds candida which produces over 79 different kinds of toxins that are designed to break down the body - most of which are alcohol, so sugars will make you feel very bad all over, causing exhaustion, etc. It is very important to build up your immune system with this program so it will be able to " change " candida back into the friendly organism it is supposed to in the body. Unfortunately there are no quick fixes. It takes time and patience to heal the body naturally. The best to you, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 At 11:30 AM 9/4/07, you wrote: >Hi all >Just a brief note >Have been through hospital hell- 17 days in because of gall bladder >that had complications. Had to beg for pain meds. from some nurses, >they don't understand withdrawals, Glad your back. So sorry to here how your stay was. When I was in the ER they contemplated keeping me for observation. Not having access to my prescribed meds scared me. My Wife said she would make sure she sneak them in. I wasn't sure if they understood the level I take, AS Prescribed, and why. 17 days must have been hell. I take it there were complications or they didn't do it through the laproscope. Both my Wife and daughter had it done through 3 little incisions and were discharged same or next day. I pray you'll get the rest you must need. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 At 11:30 AM 9/4/07, you wrote: >Hi all >Just a brief note >Have been through hospital hell- 17 days in because of gall bladder >that had complications. Had to beg for pain meds. from some nurses, >they don't understand withdrawals, Glad your back. So sorry to here how your stay was. When I was in the ER they contemplated keeping me for observation. Not having access to my prescribed meds scared me. My Wife said she would make sure she sneak them in. I wasn't sure if they understood the level I take, AS Prescribed, and why. 17 days must have been hell. I take it there were complications or they didn't do it through the laproscope. Both my Wife and daughter had it done through 3 little incisions and were discharged same or next day. I pray you'll get the rest you must need. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 jeannieboo1 Hi all~~~~Just a brief note~~~~~~~ Have been through hospital hell. Had to beg for pain meds.~~~~~ It was a nightmare, ~~~~~~~~~~~~~~~~~~~~~~~~~~ Jeannie ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Hi,Jennie,Sorry it took me so long to respond to you.I've been in a lot of pain all week. Sorry to hear about your treatment in the hospital. Glad you are at home now and hopefully will be able to get some much needed rest. Well,I got to go. MAY YOU HAVE A BETTER DAY TODAY THAN YESTERDAY AND NOT AS GOOD A DAY AS TOMORROW. Take as best care as you can and be safe. Larry form Cowtown,That's Ft. Worth,Texas,Where the West Begins REMEMBER ALL OF OUR MEN AND WOMEN IN THE ARMED SERVICE OF OUR NATION PRAY THAT THEY MAY BE SAFE AND SOUND IN BODY AND MIND Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2007 Report Share Posted October 9, 2007 Keep your pets if you possibly can. They are sometimes the only ones who understand your pain. My daughter's dog stays with me the entire time I am home. He " guards " my door when I go to bed too. He is just a mutt, but a lover. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 As an owner of two dogs, I can attest that they are really more than a companion. They are members of the family. They are great stress relievers. My dogs always give me a rousing greeting when I get home from work. They sense when you are hurting and provide you with TLC. > > Keep your pets if you possibly can. They are sometimes the only ones > who understand your pain. My daughter's dog stays with me the entire > time I am home. He " guards " my door when I go to bed too. He is just > a mutt, but a lover. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 >, I'm so sorry to hear about what you are going through! Please get yourself a lawyer asap!!!! There HAS to be one, ask around, open the phone book and start interviewing them over the phone, you need a lawyer to help you navigate! I have been on SSDI for 10 yrs., and had a lawyer help me. You need to save your home, and get medical care for yourself...a good lawyer can help, but you will have to be persistant! I have three dogs, and I wouldn't give them up for anything in the world! I have kept my home, my dogs, I have received assist. with housekeeping, laundry, etc., and have good quality of life. It can be done. I wish you the best. E-mail me privately if you wish. Donna > My name is . I have been a member for a while, but haven't > introduced myself before. I am 31 years old, and I have an > Associates in Applied Science with a major in Respiratory Care. > > About 7 years ago, I found out that I had degenerative disk disease > with multiple bulging & herniated disks plus a compression fracture > in my T6 vertebrae that was too late to be fixed. > > On December 1st, 2006, as I was on my way to work, I had a pretty > bad car accident whereby the airbag deployed and nearly broke my > arm, and the ER doc's at my hospital weren't worried about my back > even though I told them several times about it. When I tried to go > back to work, I was in so much pain that on my last day, I was crying > the full 12 hour shift. Luckily it was night shift and the rooms > were dark, so that my patients couldn't see me. I lost my job later > that day. Every muscle was locked, including my muscles in my face. > I was wondering if the people who used botox felt like this. It took > me over 24 hours to get relief even though both my body and my ego > were badly bruised. > > On April 2nd, 2007, I had a discogram done. It is a test (if you > don't know) where they inject radioactive dye into your disks until > you have pain, and then you get looked at through the CT Scan to see > if you have tears and leaks. They did this on L3 to S1. > > On Easter Sunday, April 8th, 2007, I woke up in horrible paralyzing > pain. I couldn't get out of my bed! I pushed my huge & fluffy > comforter on the floor because I couldn't reach my cell phone from > where I was and dropped on my stomach to the floor and reached up to > call for help. The paramedics had a rough time getting me off the > floor because moving me was painful. They used someo kind of > rubber/plastic sheet to flip me over like a pancake. > > I was in the hospital until that Friday the 13th only given pain meds > and adjustments on the pain meds I was on. I was havning multiple > symptoms of infection but because my fever wasn't high and because my > white blood cells weren't high, they decided to send me home not > being able to walk. > > That weekend is fuzzy to me. I only remember falling in my Mama's > bathroom while using a walker and at some point my sister and 16 year > old nephew picked me off of the floor. Lucky for me, I didn't go > home but stayed with Mama, although Mama didn't know what meds to > give me when I became delirious, so I didn't get any meds yet my > birthmom & sister had thought I overdosed and because I couldn't get > off the floor and was really acting weird, Mama called the paramedics. > > It turns out I had a fever of over 105 degrees Fahrenheit. I only > remember them wanting to put in a central line and me wanting my > birthmom to stay with me because I was scared. > > I was given Levaquin & Gentamycin (sic) and wasn't getting better. I > was in terrible pain and they forced me to try to sit up in a chair > and go to millions of tests including the fearful CLOSED MRI twice. > It wasn't until they put me on Vancomycin that I started to feel > better and was ready for physical therapy. I got sent home with a > PICC line in my arm that is just like a central line, they both go in > your heart but are put in different places to have IV Vancomycin > along with the Levaquin. > > Having both those strong antibiotics was like what I imagined > chemotherapy was like and certain family members couldn't understand > why I wasn't able to do anything during that time. I stayed with > Mama and my family shared the task of taking care of my 2 pugs, my > little Yorktese and my 2 cats. Ever since then, I have been told by > many people that I should get rid of them. Folks, they help keep me > alive, keep me moving, keep me healthy! It would only do me more > damage to not have them! > > In June as soon as the PICC came out, I went home. I was barely able > to lean over to pick up the water dish at all (I had promises from my > sister that she would come and help...never happened). I was unable > to afford PT. I was living off of my car insurance for everything. > > I tried many times to get a lawyer for being fired, for the accident, > everything, but no luck there either. I tried to find work-at-home > jobs, but most are scams. I signed up for a Transcription class, but > the antibiotics damaged my joints & tendons esp. in my fingers, hips > & knees. > > My pain/spine doctor says I have juvenile Scheuremann's disease (sic) > [along with just a horrible amount wrong with my spine, disks, just a > terribly painful back] which is partly the degenerative disk disease > & that I have cracks on the endplates of my vertebrae. The car wreck > took an already bad back and just pushed it up several years and I > have experienced horrible pain, but am getting help with my narcotics > (I HATE BEING ON THEM AND DEPENDING ON THEM!) and trying to > strengthen my body through exercise (some stuff that was easy before > is MEGA hard to do now, but I will percevere (sic)). I feel like I > can't spell today. Woke up hurting bad...ilk. > > You ask " If they are hurting, how can you type now? " Well, I take > Wellese Liquid Glucosamine/Chondroitin/MSM that I found on > drugstore.com and later at Walgreens too as well as Joint Juice. The > Wellesse is 2 ounces a day, and it is my savior! > > I am doing so much better! Yesterday, I took my fattest pug for a > walk at the park, and I did " Anchor Bay's Healing Yoga for Aches & > Pains " yesterday and went to bed ridiculously early. I am on high > levels of narcotics and my pain specialist has me as disabled. My > car insurance is finally paying my medical bills (that have gone into > collections... ( ), so that leaves me with the money I saved which > gives me approx. 3 months as I own my own home, etc. > > I have been ready, mentally, to go back to work for months but not > physically. I believe I can handle it now if I work agency work and > space out the days and work part-time as I am still so weak and > because of the pain as well as looking at jobs where I don't have to > be so physical. > > I have an agency that wants to use me that will send me to hospitals > I am already familiar with because I went to them when I worked > agency before. My problem is I need to have a physical (I have no > insurance since I lost my job at a CATHOLIC Institution which is the > ONLY ONE EXEMPT from giving COBRA & I have too much money to be able > to qualify for Medicaid). > > I know if I tell my primary care physician to say I can work and to > give me my PPD test she will because I don't have any other > opportunities but to go back to work, and it takes forever for > disability. I don't want to lose everything, so I am going back to > work. > > I have to ask for those who are on the narcotics (yes, I know they > only look for illegal narcotics with drug tests, and I have > legitimate perscriptions to be on Morphine & Roxicodone), but will I > be able to pass a drug test? I am fully functional because of the > medicine, and I am dying to go back to work. > > The agency requires a copy of a recent drug screen, so I am a little > bit worried. I cannot live without the pain medicine, and I can't > work without them. I just want some assurance (sic) that I will be > ok getting the job because I need to work for my sanity and so I > won't lose my house and all. Any advice is welcomed. I have been > through a lot in my 31 years, and I am not going to let my pain > define me and let my dreams go by the wayside. > > Please feel free to contact me at mandac76@... if you have a > similar story or advice. I feel in my heart that I will be ok in > getting the job, but it is Columbus Day, so I am not sure if any > place is open to ask. > > I look forward to making friends with others who live with chronic > pain, and I hope that one day I will be able to help all of you some > way too. > > Sincerely, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Hi Olivia, How long have you had neck pain? Have you had any tests, like MRI's? Do you have any nerve compression, symptoms in your arms and/or hands? My neck MRI showed the following: DDD in all 7 discs, facet disease in 5 discs, 3 bulging discs, narrowing in 3 disc spaces, and spondylosis (osteoarthritis). What exactly that all means, I'm not sure I do know it has been quite painful but I don't have any nerve compression symptoms (which is good!). I briefly did some PT and on Friday I will be having facet joint injections to see if that's the major source of pain. If that's the cae, then I will have a radio frequency procedure done, that's where the nerve tips actually get burned off. I work with a pain mgmt dr, do you have one? If not, I would highly suggest seeing one. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Hi Olivia, How long have you had neck pain? Have you had any tests, like MRI's? Do you have any nerve compression, symptoms in your arms and/or hands? My neck MRI showed the following: DDD in all 7 discs, facet disease in 5 discs, 3 bulging discs, narrowing in 3 disc spaces, and spondylosis (osteoarthritis). What exactly that all means, I'm not sure I do know it has been quite painful but I don't have any nerve compression symptoms (which is good!). I briefly did some PT and on Friday I will be having facet joint injections to see if that's the major source of pain. If that's the cae, then I will have a radio frequency procedure done, that's where the nerve tips actually get burned off. I work with a pain mgmt dr, do you have one? If not, I would highly suggest seeing one. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Hi Olivia, How long have you had neck pain? Have you had any tests, like MRI's? Do you have any nerve compression, symptoms in your arms and/or hands? My neck MRI showed the following: DDD in all 7 discs, facet disease in 5 discs, 3 bulging discs, narrowing in 3 disc spaces, and spondylosis (osteoarthritis). What exactly that all means, I'm not sure I do know it has been quite painful but I don't have any nerve compression symptoms (which is good!). I briefly did some PT and on Friday I will be having facet joint injections to see if that's the major source of pain. If that's the cae, then I will have a radio frequency procedure done, that's where the nerve tips actually get burned off. I work with a pain mgmt dr, do you have one? If not, I would highly suggest seeing one. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Hi Olivia, How long have you had neck pain? Have you had any tests, like MRI's? Do you have any nerve compression, symptoms in your arms and/or hands? My neck MRI showed the following: DDD in all 7 discs, facet disease in 5 discs, 3 bulging discs, narrowing in 3 disc spaces, and spondylosis (osteoarthritis). What exactly that all means, I'm not sure I do know it has been quite painful but I don't have any nerve compression symptoms (which is good!). I briefly did some PT and on Friday I will be having facet joint injections to see if that's the major source of pain. If that's the cae, then I will have a radio frequency procedure done, that's where the nerve tips actually get burned off. I work with a pain mgmt dr, do you have one? If not, I would highly suggest seeing one. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Hi , I have 2 bulging discs(c5-6 and c6-7)...they are not affecting my spinal cord..I do have some bone spurs and other " arthritic changes " in my neck as well...they are concerned because of my age(28) and also because of my age do not think surgery is a good option right now...which in talking with other people I now understand why...I've been dealing with this for over a year now...3 bad " episodes " with this one being the worst...they've gotten progressively worse..I did see a neuro Dr.( not a surgeon) this past Mon....he wants me to go back and do some phy. ther. this coming week...he also gave me a script for a neck brace...which I'm having a hard time getting used to(it might be helping though)and also gave me some meds...he's " hoping " that with some therapy(traction mostly is what he mentioned) and the rest in the brace I will improve...he did mention some of the other treatments that you did...the tough thing for me is I didn't have any real injury that brought this on...and it's been bad lately...any info or suggestions would be greatly appreciated...and I'll be happy to share my " experience " as well...please keep in touch, best wishes, Olivia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Hi , I have 2 bulging discs(c5-6 and c6-7)...they are not affecting my spinal cord..I do have some bone spurs and other " arthritic changes " in my neck as well...they are concerned because of my age(28) and also because of my age do not think surgery is a good option right now...which in talking with other people I now understand why...I've been dealing with this for over a year now...3 bad " episodes " with this one being the worst...they've gotten progressively worse..I did see a neuro Dr.( not a surgeon) this past Mon....he wants me to go back and do some phy. ther. this coming week...he also gave me a script for a neck brace...which I'm having a hard time getting used to(it might be helping though)and also gave me some meds...he's " hoping " that with some therapy(traction mostly is what he mentioned) and the rest in the brace I will improve...he did mention some of the other treatments that you did...the tough thing for me is I didn't have any real injury that brought this on...and it's been bad lately...any info or suggestions would be greatly appreciated...and I'll be happy to share my " experience " as well...please keep in touch, best wishes, Olivia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2007 Report Share Posted November 6, 2007 Hi Olivia, Yes you are too young for all this, I am too at 34. We just have to keep a positive attitude that we'll be ok and the med treatments they are working on now will help us in the future. I didn't have any injuries with my back or neck either. I was getting off the floor whem myback " popped " and stretching in bed when my neck " crunched " . I feel like a walking time bomb! I think at our age the PT is important to keep our bodies mobile, even if we don't get great pain relief from it. I know I have days when I think I'll just try the surgery, how much worse could surgery make this, but really we are way too young for fusions. If anyone recommends a discetomy or laminectomy for you, definetly have that done because that is 98% successfull. But a fusion is a different story, although there are people that have good outcomes there are many that don't and the hard part is having it done so young is we'll be right back in the OR for an extension fusion within 5 years because it casuses your other discs to wear out so much faster. That is what I know about lumbar fusions, neck fusions might be different?? Please keep in touch and let us know how you are doing. I'll be hoping PT helps you a lot and your pain improves. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2007 Report Share Posted November 6, 2007 Hi again , I had my first PT appt. yesterday...it went ok...they are only doing traction, a TENS unit, and light massage on me for now (Dr. orders)...they don't want me to move my neck for a while( you probably read in another post they have me wearing a neck brace now)and see if they can get the nerves to calm down and take some pressure off the discs...I kinda think I'm feeling a little better...it was so bad last week...having a tough time getting used to the brace...trying though...LOL!!!...anything to get better at this point...have you had any luck with certain treatments etc., please stay in touch as well...are you scheduled to see a Dr. again soon?...I go back in Dec., hope you are feeling better, take care, Olivia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2007 Report Share Posted November 17, 2007 Tricia, Unfortunately the blood work doesn't' always show it. Continue to peruse, and don't let up. You have found a good resource to voice your concerns. Your daughter is showing systemic symptoms and some people that are on this board with those kids can tell you more. I wish you luck and hope in your search for an answer. and Allie (11 poly) ________________________________ From: [mailto: ] On Behalf Of tricia_sassaman Sent: Friday, November 16, 2007 4:07 PM Subject: Hi Hi my name is Tricia. I have a 2 year old duaghther named Kenna. Sthe \\\he has been getting realy weird rashes since Aug and the high feavers and know swollen and painful joints. We have taken her to a rhum. at dupont hosp and she sent us to an allergist becacuse all of her blood work is fine. The allergist said no this is de.fiently not allergies and now we are going to the diagnostic center at CHOP. I almost feel like I should back off and wait to see if she gets better, at this point she cant even get a hair cut w/o freaking out. Just tired and frustrated.....I was wondering how long did it take to fiqure out a clear diagnoses for any of your children. Thanks and prayers to you and your families Tricia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2007 Report Share Posted November 17, 2007 Hi Tricia, I have a daughter with systemic jra, and she also started out with fevers, rashes and painful joints. She was hospitalized for " fevers of unknown origin " while they poked and prodded and ran any test they could think of. It still took two months to get a diagnosis. I am in PA, but not near CHOP. How lucky you are to be able to go to CHOP! I heard Dr. Sherry speak, and he seems like a wonderful doctor. Don't give up. Sophie 's mom, systemic jra, age 7 > > Hi my name is Tricia. I have a 2 year old duaghther named Kenna. Sthe > \\\he has been getting realy weird rashes since Aug and the high > feavers and know swollen and painful joints. We have taken her to a > rhum. at dupont hosp and she sent us to an allergist becacuse all of > her blood work is fine. The allergist said no this is de.fiently not > allergies and now we are going to the diagnostic center at CHOP. I > almost feel like I should back off and wait to see if she gets better, > at this point she cant even get a hair cut w/o freaking out. Just tired > and frustrated.....I was wondering how long did it take to fiqure out a > clear diagnoses for any of your children. > Thanks and prayers to you and your families > Tricia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Thanks What hosp or doctors did you go to.....How is your daughter now....Was her blood work normal in the begining? sorry just a lot of questions Tricia slevindoski <slevindoski@...> wrote: Hi Tricia, I have a daughter with systemic jra, and she also started out with fevers, rashes and painful joints. She was hospitalized for " fevers of unknown origin " while they poked and prodded and ran any test they could think of. It still took two months to get a diagnosis. I am in PA, but not near CHOP. How lucky you are to be able to go to CHOP! I heard Dr. Sherry speak, and he seems like a wonderful doctor. Don't give up. Sophie 's mom, systemic jra, age 7 > > Hi my name is Tricia. I have a 2 year old duaghther named Kenna. Sthe > \\\he has been getting realy weird rashes since Aug and the high > feavers and know swollen and painful joints. We have taken her to a > rhum. at dupont hosp and she sent us to an allergist becacuse all of > her blood work is fine. The allergist said no this is de.fiently not > allergies and now we are going to the diagnostic center at CHOP. I > almost feel like I should back off and wait to see if she gets better, > at this point she cant even get a hair cut w/o freaking out. Just tired > and frustrated.....I was wondering how long did it take to fiqure out a > clear diagnoses for any of your children. > Thanks and prayers to you and your families > Tricia > --------------------------------- Get easy, one-click access to your favorites. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Hi, My 10 year old son, Cade, started high fevers and rash back in January. He was hospitalized twice before he was diagnosed with a " fever of unknown origin " . He initially had an elevated WBC, CRP and an elevated sed rate. He was finally diagnosed in March with systemic JRA. He has been taking prednisone, methotrexate, tolmetin (anti-inflammatory) and folic acid. He has been weaned off of the prednisone in October. He has not had any fever or pain since the end of June (two months after starting the methotrexate). Methotrexate was a miracle for him. He is in a medicated remission now. Hope this helps. tricia_sassaman <tricia_sassaman@...> wrote: Hi my name is Tricia. I have a 2 year old duaghther named Kenna. Sthe \\\he has been getting realy weird rashes since Aug and the high feavers and know swollen and painful joints. We have taken her to a rhum. at dupont hosp and she sent us to an allergist becacuse all of her blood work is fine. The allergist said no this is de.fiently not allergies and now we are going to the diagnostic center at CHOP. I almost feel like I should back off and wait to see if she gets better, at this point she cant even get a hair cut w/o freaking out. Just tired and frustrated.....I was wondering how long did it take to fiqure out a clear diagnoses for any of your children. Thanks and prayers to you and your families Tricia --------------------------------- Get easy, one-click access to your favorites. Make your homepage. Quote Link to comment Share on other sites More sharing options...
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