Hi

[Guest guest]

Yeah I know what you mean. I am at the last of the second line drugs that I

can take now. But there are always new one's coming out. It's not a fun

thing to leave through as we all know. I don't know why you were never put

on the strong drugs. I have been throughout my years with jra. There was a

time that I was in remisson for five years but that did leave and the

arthritis came back to visit me.

JRA World

http://www.jraworld.com

Re: hi

> From: " Hendricks " <brandy_erin@...>

>

> i am also an adult with child onset ra, since i was 5. i am glad you had

> good rheumys, but i never even had one, they were all secretive and always

> left me worse than when they found me. plus, the only drugs that could've

> even been strong enough to work, they wouldn't give me. they said i was

too

> young. now that i'm 23, all the docs ask me why i was never on those same

> meds and its very frustrating. i am doing well but i wonder a lot about

the

> meds i see these parents putting their kids on, NOT A CRITICISM, just

> concern. their bodies will adapt these meds eventually and then they

won't

> work, what will happen when the day comes and they have to deal with this

> disease with nothing more than courage and determination. that's what i

do,

> i'm afraid to find a med that works, get used to feeling wonderful all the

> time and then have to hit rock bottom when it stops working. do you know

> what i mean? looking for your input, brandy

> ______________________________________________________

> Get Your Private, Free Email at http://www.hotmail.com

>

>

> ------------------------------------------------------------------------

> Good friends, school spirit, hair-dos you'd like to forget.

> Classmates.com has them all. And with 4.4 million alumni already

> registered, there's a good chance you'll find your friends here:

> 1/2623/1/_/524922/_/953930441/

> ------------------------------------------------------------------------

>

> For links to websites with JRA info visit:

> http://www.geocities.com/Heartland/Village/8414/Links.html

>

>

[Guest guest]

Please take my name off of your list temporarily

Thanks

[Guest guest]

I have a 9 yr. old daughter that suffers from JRA. We just found out in

August of '99 and it has progressed real fast. She has the hands, ankles,feet

and jaw swelling too. She only started out with her hands swelling and the dr

always said it was her allergeries. Well she does have asthma too, but the

swelling would come and go so the dr never would do anything else about it.

So i decided to switch her Pediatritian and when she saw her hands she told

me that it was JRA right off the back, so she sent use to the rheumy ped.

specialists immediately. We had been with the first ped. for all my

daughter's lil life and she began to act like she didn't care and so i knew

that it was time for me to move on to someone else. And I thank GOD that I

did move when I did. The hand swelling has been going on for about 5/6 years.

She still can move and walk by herself but she limps too.I am trying to

teacher pain tolerates too and she's doing a good job of it for now, but she

have her up/down days too. can i ask a question to jra suffers? when you are

in pain does it make your attitude change? well when Drese is in pain she's

very bitter and mean toward whomever is present.

sweetpea200001

[Guest guest]

Hi

I'm sorry to hear that you have never had a good rheumatologist. My

daughter has been very blessed---her rheumy here in Virginia is

wonderful! She also had an outstanding rheumy in Houston. The care and

concern from these men has been all I could wish for.

As for meds--- Putting our kids on meds is a difficult choice. But it

boils down to quality of life. You seem very positive, which I'm sure is

why you are doing so well. But for most of us, our hope is to be able to

prevent the type of joint destruction in our kids that you have

experienced at such a young age. You mentioned in an earlier post that

you can't have kids if you take the meds. Which meds are you referring

to? I know that it is extremely dangerous to get pregnant on some of

them (I'm thinking of mtx), but after a few months off it is safe to

have a baby. And I'm told that many women experience a temporary

remission while pregnant.

It is nice to hear from young adults who can share their experiences

with JRA with those of us who are now trying to help our kids cope. You

have insight that we parents can certainly use!!

Liz

Hendricks wrote:

>

> From: " Hendricks " <brandy_erin@...>

>

> i am also an adult with child onset ra, since i was 5. i am glad you had

> good rheumys, but i never even had one, they were all secretive and always

> left me worse than when they found me. plus, the only drugs that could've

> even been strong enough to work, they wouldn't give me. they said i was too

> young. now that i'm 23, all the docs ask me why i was never on those same

> meds and its very frustrating. i am doing well but i wonder a lot about the

> meds i see these parents putting their kids on, NOT A CRITICISM, just

> concern. their bodies will adapt these meds eventually and then they won't

> work, what will happen when the day comes and they have to deal with this

> disease with nothing more than courage and determination. that's what i do,

> i'm afraid to find a med that works, get used to feeling wonderful all the

> time and then have to hit rock bottom when it stops working. do you know

> what i mean? looking for your input, brandy

> ______________________________________________________

> Get Your Private, Free Email at http://www.hotmail.com

>

> ------------------------------------------------------------------------

> Good friends, school spirit, hair-dos you'd like to forget.

> Classmates.com has them all. And with 4.4 million alumni already

> registered, there's a good chance you'll find your friends here:

> 1/2623/1/_/524922/_/953930441/

> ------------------------------------------------------------------------

>

> For links to websites with JRA info visit:

> http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

Hi,

It sounds like you have a really good attitude about all the trials

you've been through. I know it's disappointing sometimes, when you have

high hopes about a particular drug and then after trying it, find that

you don't have the hoped for improvement. Or even worse ... that you

have bad side effects from it and have to discontinue it.

There have been suggestions that after taking some time to think about

the pros and cons, I've made the decision not to put Josh on. Cytoxin is

the one that comes to mind right away. I didn't feel that his arthritis

was bad enough to have to go to that stage. And the flare did eventually

quiet down and we moved on. None the worse. Who knows. If he had stayed

real sick, and continued going downhill, maybe I would have changed my

mind. When we're grasping for straws, it's easier to be willing to take

some risky chances. And hope for the best outcome. I'm just glad that

the current meds my son takes seem to be working well enough. I think

we've finally found the right combination and doses. At least for now.

I will be much happier if we are, one day, able to wean Josh off the

daily steroids. That's the only problem I have at this point, as far as

his treatment plan. Both of his rheumatologists are aware of my feelings

on the subject. And we're always working on it. In fact, this last

exam/visit on Thursday was somewhat positive. Josh has been taking

17.5mgs prednisone for the past 2 days, with no increased symptoms so

far. Looks good! His SED rate was still high last month, but he had that

stomache virus thing, so maybe it'll be lower now. He had more range of

motion in his wrists than the last visit. 60 degrees in one, 65 in the

other. His other joints were all doing good. Not many complaints.

Take care,

Georgina

jraworld wrote:

> Hello

>

> for those you that don't know me. My name is . I have had Systemic

> onset JRA since I was 8 I am now 25. right hip replaced 13 and both knee's

> replaced at 16. With many smallier surgeries also. I currently live

> somewhere in MT, I can't remember where.

>

> Yes growing up I was a gina pig also. But I was willing to try these meds

> hopping that it would make me feel better. Some did some didn't. Those are

> the chances you take. Not all rheumys are bad. I have had some great

> Rheumys in my life time. I have had very caring rheumys in my life time.

> If I hadn't been on some of the meds that I have been on over there years I

> would probably still be in a wheel chair to this day. I have had a very

> server case also. You do need to have the finnaly decision to what meds

> your kids go on. I had to make some tough decisions just a couple of weeks

> ago, but I deicied if it will make me feel better I will give it a chance.

> I have been off mtx for 12 years due to I was having problems with my liver

> and it really wasn't working anymore. But since the enbrel isant' working

> for it's self I was willing to give the mtx another chance. Plus now

> instead of takeing it pill form I will be injecting it instead, that way it

> only goes through the liver once. Medications have changed alot over the

> last 17 years. There is alot more meds out there now to treat J.A. then

> there was when I was first dxed. I wouldn't take back any of the med trials

> I went on over the years. I look at it like this. when I was in a trial

> for a different medications. I wasn't just helping myself but I was helping

> other kids as well. If it works good on the kids in the trail then it has a

> good chance of working on other kids. If there was never in trials for new

> meds there wouldn't be any new meds. But that is how I feel. I will go for

> now. Talk to you all Later.

>

> JRA World

> http://www.jraworld.com

> Re: hi

>

> > From: chaospearl@...

> >

> > In a message dated 3/23/00 7:41:06 PM Pacific Standard Time,

> > brandy_erin@... writes:

> >

> > << when i asked the doc why

> > she would even think about doing something like that, she said she just

> > wanted to see what it would do. i was furuous and have only seen 2

> rheumys

> > since, i have never seen one that did not experiment on me or try to do

> some

> > excrutiating thing to me. please be careful, they do not always treat

> the

> > child as well as the disease. >>

> >

> > I felt like adding my two cents to this one. This has been my experience

> as

> > well. I'm never sure if it's my doctor specifically, as I've heard other

> > people have had similar problems with him, or if it's a general

> > rheumatologist thing. The vast majority of nasty drugs I've taken over

> the

> > past ten years I have felt pushed into, experimented on, and pretty much

> used

> > as a guinea pig " to see what would happen " . I'd just like to remind

> everyone

> > that you can always say no. The doctor isn't always right about the

> latest

> > new treatments or even some of the tried and true ones. When it's your

> > child's health on the line (or your own) it's important to keep in mind

> that

> > YOU are the one in charge and letting yourself be bossed around by someone

> in

> > a white lab coat isn't going to be the miracle cure.

> >

> > cheers

> > Jenni

[Guest guest]

Hi ,

I think I can understand how you feel, about being poked and prodded and

experimented on. That's gotta be hard, for anybody. Never mind a young

child. One who's not feeling well. I just wanted to add though that some

of the severe onset systemic JRA cases cannot be reliably controlled, at

this time, with anything but steroids. I've read that there is a slight

morbidity associated with systemic JRA. About 2-3%. And I'm convinced

that steroids saved my son's life. He was very sick. Uncontrollable

fevers twice a day, morning and evening, as high as 106.3, enlarged

spleen and liver, anemia, rapid weight loss, WBC was 78,000, SED rate

was 130. It was really bad. He couldn't lift his arm, or walk ~ had pain

all over, as lots of his joints were affected. Couldn't even hardly

swallow. Needed to be fed intravenously.

As much as I dislike some of the possible side effects of the steroids,

I am very thankful that they were available to us. None of the other

milder meds made enough of a difference and the DMARDs couldn't act

quickly enough. I was basically losing my child to the illness. It was

taking control, swiftly and severely. And prednisone brought him back

Take care,

Georgina

Hendricks wrote:

> hi, i did try prednisone once. a rheumatologist named joanne jordan put me

> on a 10 day trial of it. i will never try it again. when i was on it, i

> didn't notice any difference except for having a little more energy. but,

> when the 10 days was over, i was crippled for 3. when i asked the doc why

> she would even think about doing something like that, she said she just

> wanted to see what it would do. i was furuous and have only seen 2 rheumys

> since, i have never seen one that did not experiment on me or try to do some

> excrutiating thing to me. please be careful, they do not always treat the

> child as well as the disease. goodluck, brandy

[Guest guest]

Hi Ruth,

We were glad to hear that your trip to Dr. Kimura went well- we are very

happy. As Charlie mentioned Elliot got shingles. I went to the pediatrician

who spoke with Dr. Kimura on the phone as to how to manage it. The next day,

Laurie (R.N.) called to find out how he was doing. I really feel that that

reflects the nature of how the office is run- they genuinely care for the

patient. I'm sure you'll be satisfied as well.

I know that it is quite a trip to her office but if you can't get anyone to

give her injection I am sure that Laurie or someone would do it. I

believe that once she gets past the initial injections your daughter will

allow you to administer ( or at least the pediatrician will at that point)

Good Luck!

Rena

[Guest guest]

Hi Georgina,

This past week was really stressful. Last saturday or sunday Elliot showed me

a red mark by the waistband of his pants. It looked almost like an irritation

or a hive, but it didnt concern me. Tuesday night as he was undressing we saw

little crops along the buttock and with vessicles- it looked like chicken

pox( I started to get nervous) I spoke with the pediatrician who said it

could possibly be impetigo and as long as he wasn't running fever or that it

would be spreading rapidly we could wait till morning.

Elliot had chicken pox when he was a year. The next day the pediatrician took

a look and diagnosed shingles. The varicella virus stays dormant in the

spinal cord and it can come out through a nerve and you will see the virus

rash along the dermatones- the area of skin that the nerve supplies.

Typically it will stay to one side of midline. Elliots case spread over a few

dermatomes so it was on his right hip/buttock and came around to his lower

abdomen( still on the right side) He began with oral acyclovir and bactriban

ointment-and I was told that if it would spread all over he would need to

take it intravenously- fortunately we didn't need that. Elliot stopped taking

his cyclosporin and skipped the mtx this week. What was also interesting was

that the pediatrician and the rheumatologist said that it is only contageous

by touching the lesion (which was covered by his pants anyway) . I took

Elliot to a pediatric dermatologist who agreed with the diagnosis but she

said it is contageous as it is virulent. I kept Elliot home from school

anyway as he was uncomfortable from being itchy. in adults shingles is

painful but they usually treat the pain with steroids which Elliot is taking

anyway. Fortunately this seems to be behind us and we are seeing the

rheumatologist on Tuesday. It is just upsetting when these things happen-as

if we don't have enough to deal with. Now I will wait and see if my 2 yr old

will get the chicken pox from this.

Hoping things are on the upswing.

Rena

[Guest guest]

Hi Syd,

Good luck with your treatment. I'm a 1b too. I'm a non-responder, and

am always glad to see another 1b responding. Hopefully you will maintain

that. Staying on the treatment for a longer period of time may help to

sustain your response, especially if it took 6 months to become

undectectable.

I don't remember any post on something to clear up a fingernail fungus

but I could use that remedy myself. I don't want to take the prescription

medicines since I've heard they are very rough on the liver. So I hope

someone posts with an answer.

Again, good luck!

Claudine

>From: syd_monk@...

>My name is Syd. I have been lurking for sometime now and thought I

>should introduce myself.

>I was first diagnosed with non A non B hep 30 years ago. Recently

>the

>illness has progressed to the point where further tests were called

>for. I am 1b with a viral load of 20,000. My doctor decided that

>since most of my tests were normal, although ALT's were a little

>high,

>to skip a biopsy and get me going on combo right away. I am 9 months

>along now and at 6 months I was undetectable, so that's pretty good

>for a 1b. We will see if I relapse or not.

>By the way there was a post some weeks ago on a good cure for

>fingernail fungus. I am not sure if it was this group or not. Does

>anyone recall that post? I could use it right now I think.

>

>Syd

>

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Hi Syd,

Good luck with your treatment. I'm a 1b too. I'm a non-responder, and

am always glad to see another 1b responding. Hopefully you will maintain

that. Staying on the treatment for a longer period of time may help to

sustain your response, especially if it took 6 months to become

undectectable.

I don't remember any post on something to clear up a fingernail fungus

but I could use that remedy myself. I don't want to take the prescription

medicines since I've heard they are very rough on the liver. So I hope

someone posts with an answer.

Again, good luck!

Claudine

>From: syd_monk@...

>My name is Syd. I have been lurking for sometime now and thought I

>should introduce myself.

>I was first diagnosed with non A non B hep 30 years ago. Recently

>the

>illness has progressed to the point where further tests were called

>for. I am 1b with a viral load of 20,000. My doctor decided that

>since most of my tests were normal, although ALT's were a little

>high,

>to skip a biopsy and get me going on combo right away. I am 9 months

>along now and at 6 months I was undetectable, so that's pretty good

>for a 1b. We will see if I relapse or not.

>By the way there was a post some weeks ago on a good cure for

>fingernail fungus. I am not sure if it was this group or not. Does

>anyone recall that post? I could use it right now I think.

>

>Syd

>

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

HI.Galbladder removed and the nxt day behind the computer,you will survive

anything!!!Goodluck.Have a nice galbladderless day or evening..

Re: Hi

Connie...

So sorry to hear about your gallbladder...but since the gallbaldder,

pancreas and liver all seem to work together, I guess it's not unusual.

Surprised you are up and at the computer so soon....I'd be lying around

in bed popping pain meds if it were me.

Hope you are feeling better....keep us posted.

Tatezi

Constance Dickson wrote:

> Hi all,

> My Gall Bladder was removed at 10am Saturday

> (15th). The Dr told me it was diseased. I will snd

> more about it later, I did not sleep any Friday night.

> Take Care, Connie

>

> __________________________________________________

>

[Guest guest]

hi jenni, i am glad you are doing okay. i remember doing my hips well and

and hope things go smoothly for you. i also remember feeling very yucky as

i couldn't take a bath until my staples came out and those stupid steri

strips fell off. well, i wish you the best and a speedy recovery. as bad

as the surgery is, it feels pretty cool to know you are walking around on

solid steel joints huh? makes me feel strong somehow. goodluck jenni.

love brandy, 5 joints replaced, 5 more to go.

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Hi Jenni,

Glad to hear that you're back at home again. With no major

complications. I hope you have a lot of support available, to help out

during this transition. I'm sure that first shower is going to be very

welcome ... and feel so good. Know that you are in our thoughts.

Sending healing energies...

and Lots of Aloha,

Georgina

chaospearl@... wrote:

>

> Hey everyone,

>

> Just a short note to thank everyone who's written and offered hope and cheer

> while I'm having my second hip replacement. I appreciate it.

>

> I got home from the hospital today; they finally sprang me after having been

> trapped in there since o' dark hundred hours Wednesday morning, and with only

> minor complications. After two surgeries I've come to the conclusion that

> there are ALWAYS minor complications and it's pretty safe to tack two extra

> days onto however long you're supposed to be down. I wound up severely

> anemic (isn't there some kind of anemia discussion going on the list right

> now? I'm sorry, I've been out of things for awhile) ... and had to have a

> blood transfusion, but that's fairly routine and all is well. It wasn't as

> bad as the antibiotic thing last time where I spent a week puking my guts out.

>

> I've just popped some painkillers so I'm within half an hour of being

> completely stoned. They won't let me take a shower for another few days.

> I can't walk, I can't stand up by myself, I can't even use the bathroom

> without assistance. It's hot in here and I'm sweaty and I feel like the

> world's ickiest human being. Welcome to the world of post-op. But it'll be

> a little better tomorrow.

>

> cheers

> Jenni

> (on her way to being a complete bionic woman)

[Guest guest]

hi georgina, thats not a silly question, i do not technically know. they

are a little bigger than the real ones because i am very petite. the doc

thought a custom made shoulder would have to be done but luckily the premade

one just did fit. i do think they weigh a little more, but it doesn't feel

like i am lifting iron bars or anything, lol, their weight might actually

help in getting muscular strength back after surgery, aid in rehabilitation.

i will ask my surgeon, cuz now i am wondering too. love, brandy

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Hi ,

This may sound like a silly question but I was wondering how heavy the

new joints are and if they add on to your normal body weight? Do your

limbs feel somehow heavier after you get new joints?

Aloha,

Georgina

Hendricks wrote:

>

> hi jenni, i am glad you are doing okay. i remember doing my hips well and

> and hope things go smoothly for you. i also remember feeling very yucky as

> i couldn't take a bath until my staples came out and those stupid steri

> strips fell off. well, i wish you the best and a speedy recovery. as bad

> as the surgery is, it feels pretty cool to know you are walking around on

> solid steel joints huh? makes me feel strong somehow. goodluck jenni.

> love brandy, 5 joints replaced, 5 more to go.

[Guest guest]

Hi everyone,

I haven't logged on recently as it has been very busy for me these past

number of weeks. First of all thanks to everyone for Elliot's birthday

wishes. Elliot has been doing well- summer months have usually been good

months for him. We presently are down to 7.5 mg prednisone on alternate days

and if his next labs remain stable or better we'll go down to 5.

The article about Epstein Barr was quite interestin as Charlie mentioned as

four months before Elliot was diagnosed with JRA, he had high fever with

liver and spleen enlargement for three weeks. Based on lab results Elliot had

titers to EBV but it didnt prove that that was what it was at that time. The

Dr. from infectious disease thought so but several months later when the

diagnosis of JRA came up, he said that it was probably JRA all along and the

lab tests showed " nonspecific b-cell stimulation " whatever that means. In

truth we never repeated his labs after the fever subsided so we don't know if

they ever returned to normal. It's all academic anyway.

It's good to be back.

Rena

[Guest guest]

sylv nice to meet you I'm 45 married wife mom grandmother in the Dallas

area of Texas, USA. Ive known about my hep since 89 and just now doing

treatment, on second month and feel great!

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

[Guest guest]

sylv nice to meet you I'm 45 married wife mom grandmother in the Dallas

area of Texas, USA. Ive known about my hep since 89 and just now doing

treatment, on second month and feel great!

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

[Guest guest]

Hi Sylv,

Welcome to our group! I am 43, married, have 5

children (yes, 5!, although 1 is my stepson), and I

live in Texas. I was surrounded by family when I found

out I had HCV, and during the year I was on treatment,

but guess what - I was completely isolated too! They

simply didn't understand what I was going through,

especially since there was no visable evidence that I

was sick! My husband's way of coping with his fears

for me was to pretend that there was no problem!

Since he couldn't fix it for me, like he would fix my

truck if it 'got sick', he simply ignored the issue,

and wouldn't talk to me about it! That was almost 3

years ago, and now he has finally learned to accept it

and is better about it, but still he will often forget

how easily or fast that I get tired. As for my

children, I could probably be half-dead collapsed on

the floor and they MIGHT notice, if they were needing

me to do something for them!! (Thankfully, I only

have one left at home - for now.) The first time I

ever 'talked' with anyone who really understood what

it's like going through all this was when I got on

this e-mail list! I have to say, some of my best

friends are right here in this group, and yet I've

never met them!

Fighting to be treated by a competent specialist

will be worth whatever time was spent. I don't know

about in the UK, but here there are still lots of

doctors who aren't up-to-date on HCV. Make sure you

get genotyped before treatment starts! And of course

a viral load test too. Let us all know how your

biopsy results turn out.

Take care,

=====

Claudine

claudinecrews@...

__________________________________________________

[Guest guest]

Hi Sylv,

Welcome to our group! I am 43, married, have 5

children (yes, 5!, although 1 is my stepson), and I

live in Texas. I was surrounded by family when I found

out I had HCV, and during the year I was on treatment,

but guess what - I was completely isolated too! They

simply didn't understand what I was going through,

especially since there was no visable evidence that I

was sick! My husband's way of coping with his fears

for me was to pretend that there was no problem!

Since he couldn't fix it for me, like he would fix my

truck if it 'got sick', he simply ignored the issue,

and wouldn't talk to me about it! That was almost 3

years ago, and now he has finally learned to accept it

and is better about it, but still he will often forget

how easily or fast that I get tired. As for my

children, I could probably be half-dead collapsed on

the floor and they MIGHT notice, if they were needing

me to do something for them!! (Thankfully, I only

have one left at home - for now.) The first time I

ever 'talked' with anyone who really understood what

it's like going through all this was when I got on

this e-mail list! I have to say, some of my best

friends are right here in this group, and yet I've

never met them!

Fighting to be treated by a competent specialist

will be worth whatever time was spent. I don't know

about in the UK, but here there are still lots of

doctors who aren't up-to-date on HCV. Make sure you

get genotyped before treatment starts! And of course

a viral load test too. Let us all know how your

biopsy results turn out.

Take care,

=====

Claudine

claudinecrews@...

__________________________________________________

[Guest guest]

Sylv

Welcome to the group - sorry to hear about your friends deserting you so hang

in here with us and you will feel alot better - there is a great bunch here

and very helpful to. When do you find out the results from your biopsy? Are

there any local support groups in your area - we have found a great one here

where we live and that helps us out alot. Its nice to help others and know

they are there if you need them - we all have to hang in there together. My

husband has HCV and is on the Rebetron Combo kit and doing well but the side

effects are hard on him. He is 41 and we are hoping to put the dragon to

sleep and keep it that way. He started the treatment last September and has

a ways to go still - he is on the 48 week thing. We do not know his geotype

either and we are not to worried about it unless he relapses then we will

check it out then. We know his viral load because it is non-detectable and

has been since the 6 month mark of his treatment.

We are here for you - keep us posted and good luck with the specialist - we

will keep you in our prayers. Stay positive!!!

Winne

[Guest guest]

Hi Chestnut

It is so wonderful hearing from you again. I actually went off to Netanya,

just down the Mediterranean Coast and came back with such a lovely tan. The

good news is that I have already found a job and start on Sunday. My

personal e-mail address is krein@...

I will write more in the next personal e-mail to you.

write soon sweetie!

love

[Guest guest]

When Chyanne gets sick her JRA symptoms seem to get worse also. I dont know

what the true connection to that is though.

Charlene(chychsymom)

[Guest guest]

Kelsey's doctor has told us to be prepared for flares when she gets a virus

or an infection, etc. She had a real bad UTI that ended up a kidney

infection, and her jra flared pretty bad right along with it. Something to

do with the immune system, my guess.

[Guest guest]

due to the JRA is a immunaty disease this also means they are easy to catch a

cold and its worser

JRA breaks down the bodys immunity to fight simply things like a cold

also if your child has asthma the same results

Robbin