Re: vision loss or problems

[Guest guest]

There was a link to a research paper about Lyme & eye problems from " When to

Suspect Lyme " by D. Bleiweiss MD. (Web-page:

http//www.ariplex.com/lymbleie.htm) I copied the long list of possible problems

caused by Lyme including: optic neuritis , uveitis, iritis, myalgias, transient

or permanent blindness, periorbital edema (swelling) etc. He goes on to state

that optic neuritis has been observed to become recurrent or intractable after

treatment with steroids--the standard treatment--and that in such cases the

physician should suspect LD.

I gave a copy of the abstract to my ophthalmologist. He knows I have Lyme but

is not what I would call " Lyme literate. " I asked him what he would do if I

developed optic neuritis or uveitis and he'd use topical steroids. He was

rather annoyed at my resistance to steroids (due to Lyme).

My question is has anyone been treated with topical steroids for severe vision

problems due to Lyme? If so did it help or make things worse.

For now I only get swelling under my eyes when my neuro symptoms act up and I'm

very fatigued--at least twice a week. Also bright light sensitivity and impaired

night vision.

Kim

Re: [ ] Re: Recovering

I'm not personally blind but I know other people at the doctor's I go to who

have had this problem. We're all on combinations of zithromax and rocephrin by

IV and mepron and flagyl/tinamax orally. They've been there longer than I have

(I've been there a couple months now and they've been there close to a year) and

they've said that treatments been the only thing that's helped while stopping

has made the symptoms come back immediately.

Jen

>

>

> That's great to hear, Don. I need these stories as much as anyone right

> now.

>

>

>

>

> > > For those of you who are discouraged/and or frightened about your LD

> symptoms, I have three acquaintances who were totally paralyzed from the

> neck down (one for over two years) and are doing great now, completely

> recovered. Although Im just beginning my fight with LD, knowing that they

> recovered has helped me a lot.

> > >

> > >

> > >

> >

>

>

>

[Guest guest]

Hi Kim, I tried that link and got a site in German…LOL Is that the correct

link. I’d love to read the article. I too am having vision problems.

Kathy

From: [mailto: ] On Behalf Of

Kim Ovrutsky

Sent: Friday, February 04, 2011 9:28 AM

Subject: Re: [ ] vision loss or problems

There was a link to a research paper about Lyme & eye problems from " When to

Suspect Lyme " by D. Bleiweiss MD. (Web-page:

http//www.ariplex.com/lymbleie.htm) I copied the long list of possible problems

caused by Lyme including: optic neuritis , uveitis, iritis, myalgias, transient

or permanent blindness, periorbital edema (swelling) etc. He goes on to state

that optic neuritis has been observed to become recurrent or intractable after

treatment with steroids--the standard treatment--and that in such cases the

physician should suspect LD.

I gave a copy of the abstract to my ophthalmologist. He knows I have Lyme but is

not what I would call " Lyme literate. " I asked him what he would do if I

developed optic neuritis or uveitis and he'd use topical steroids. He was rather

annoyed at my resistance to steroids (due to Lyme).

My question is has anyone been treated with topical steroids for severe vision

problems due to Lyme? If so did it help or make things worse.

For now I only get swelling under my eyes when my neuro symptoms act up and I'm

very fatigued--at least twice a week. Also bright light sensitivity and impaired

night vision.

Kim

Re: [ ] Re: Recovering

I'm not personally blind but I know other people at the doctor's I go to who

have had this problem. We're all on combinations of zithromax and rocephrin by

IV and mepron and flagyl/tinamax orally. They've been there longer than I have

(I've been there a couple months now and they've been there close to a year) and

they've said that treatments been the only thing that's helped while stopping

has made the symptoms come back immediately.

Jen

>

>

> That's great to hear, Don. I need these stories as much as anyone right

> now.

>

>

>

>

> > > For those of you who are discouraged/and or frightened about your LD

> symptoms, I have three acquaintances who were totally paralyzed from the

> neck down (one for over two years) and are doing great now, completely

> recovered. Although Im just beginning my fight with LD, knowing that they

> recovered has helped me a lot.

> > >

> > >

> > >

> >

>

>

>

[Guest guest]

It wasn't severe, but my son had episcleritis that the opthamologist

believed was caused by lyme. He did use steroid drops, and got better, and

-- so far -- has not had a recurrence. Don't know if that's helpful --

On Fri, Feb 4, 2011 at 9:28 AM, Kim Ovrutsky <KTOvrutsky@...> wrote:

>

>

>

> There was a link to a research paper about Lyme & eye problems from " When

> to Suspect Lyme " by D. Bleiweiss MD. (Web-page: http//

> www.ariplex.com/lymbleie.htm) I copied the long list of possible problems

> caused by Lyme including: optic neuritis , uveitis, iritis, myalgias,

> transient or permanent blindness, periorbital edema (swelling) etc. He goes

> on to state that optic neuritis has been observed to become recurrent or

> intractable after treatment with steroids--the standard treatment--and that

> in such cases the physician should suspect LD.

>

> I gave a copy of the abstract to my ophthalmologist. He knows I have Lyme

> but is not what I would call " Lyme literate. " I asked him what he would do

> if I developed optic neuritis or uveitis and he'd use topical steroids. He

> was rather annoyed at my resistance to steroids (due to Lyme).

>

> My question is has anyone been treated with topical steroids for severe

> vision problems due to Lyme? If so did it help or make things worse.

>

> For now I only get swelling under my eyes when my neuro symptoms act up and

> I'm very fatigued--at least twice a week. Also bright light sensitivity and

> impaired night vision.

>

> Kim

>

> Re: [ ] Re: Recovering

>

> I'm not personally blind but I know other people at the doctor's I go to

> who have had this problem. We're all on combinations of zithromax and

> rocephrin by IV and mepron and flagyl/tinamax orally. They've been there

> longer than I have (I've been there a couple months now and they've been

> there close to a year) and they've said that treatments been the only thing

> that's helped while stopping has made the symptoms come back immediately.

>

> Jen

>

>

> >

>

> >

>

> > That's great to hear, Don. I need these stories as much as anyone right

>

> > now.

>

> >

>

> >

>

> >

>

> >

>

> > > > For those of you who are discouraged/and or frightened about your LD

>

> > symptoms, I have three acquaintances who were totally paralyzed from the

>

> > neck down (one for over two years) and are doing great now, completely

>

> > recovered. Although Im just beginning my fight with LD, knowing that they

>

> > recovered has helped me a lot.

>

> > > >

>

> > > >

>

> > > >

>

> > >

>

> >

>

> >

>

> >

>

>

[Guest guest]

Whan I saw my LLMD for the first time, He gave me orders that I was not to have

any steroids unless it was to save my eyesite.

I do have some problems with my vision due to the Lymes on and off.

>

>

> There was a link to a research paper about Lyme & eye problems from " When to

Suspect Lyme " by D. Bleiweiss MD. (Web-page:

http//www.ariplex.com/lymbleie.htm) I copied the long list of possible problems

caused by Lyme including: optic neuritis , uveitis, iritis, myalgias, transient

or permanent blindness, periorbital edema (swelling) etc. He goes on to state

that optic neuritis has been observed to become recurrent or intractable after

treatment with steroids--the standard treatment--and that in such cases the

physician should suspect LD.

>

> I

[Guest guest]

I used topical steroids to treat my very dry eyes and within 4 days I had flared

into full blown lyme with neurological symptoms, etc. My LLMD said that my

previous auto-immune type symptoms were all probably lyme that had been barely

kept down by a slowly failing immune system. Steroids lower the immune system

and even the small amount in my eyes was enough to allow the lyme to suddenly

explode on me. I would not use topical steroids until you are sure you don't

have lyme.

Maureen