Guest guest Posted November 29, 2003 Report Share Posted November 29, 2003 Hi Dave,I found your comments very interesting as I took levaquin for a strep throat that 3 other courses of antibiotics did nothing for.I then developed chronic fatigue ,and oral thrush.I was off work for 6 months and now have severe chemical sensivities.I found out that I had a lot of candida in my blood and now I feel that I have a leaky gut.Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2011 Report Share Posted March 18, 2011 Hi All - I have been sick for 4 years and on ABX to treat my Lyme for about 2-1/2 years, doing a rotation of various ABX over the years. Last August I switched to a Naturopathic doctor who clinically diagnosed me with Bartonella as well. She switched up my ABX and added supplements, following Dr. Burrascano's protocol, and after the most horrific herx things improved greatly. In the past month or so my Lyme specific symptoms have been coming back rather significantly. My ND has now switched up my ABX to treat just the Bart. We discussed Levaquin which she had been rather nervous about utilizing. Many other LLMDs have told her they've had great success with it and she's been reading more about it and thinks maybe we should try it. Can anyone tell me about their experience with Levaquin? I've read about some rather significant potential side effects and I am a little nervous about taking it. Any input would be greatly appreciated. Thanks! Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2011 Report Share Posted March 19, 2011 Many lyme docs are using it for Bartonella. Magnesium supplements seem to help with tendon issues and it may increase Q-T interval. I opted not to use it. Regards, Dolores > Hi All - > > I have been sick for 4 years and on ABX to treat my Lyme for about 2-1/2 years, doing a rotation of various ABX over the years. > > Last August I switched to a Naturopathic doctor who clinically diagnosed me with Bartonella as well. She switched up my ABX and added supplements, following Dr. Burrascano's protocol, and after the most horrific herx things improved greatly. > > In the past month or so my Lyme specific symptoms have been coming back rather significantly. My ND has now switched up my ABX to treat just the Bart. We discussed Levaquin which she had been rather nervous about utilizing. Many other LLMDs have told her they've had great success with it and she's been reading more about it and thinks maybe we should try it. > > Can anyone tell me about their experience with Levaquin? I've read about some rather significant potential side effects and I am a little nervous about taking it. > > Any input would be greatly appreciated. > > Thanks! > > Anne > > > > ------------------------------------ > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2011 Report Share Posted March 20, 2011 Oops--that should say magnesium sulfate, not potassium sulfate. Sorry for the mistake. I made the corrections below. Kathleen > > I had bartonella for about 15 years when my LLMD put me on levaquin. I was amazed at the results: > > 1. chronic stomach ulcer disappeared [had for 5 years] > 2. chronic gall bladder infection [not stones] disappered [had for 10 years] > 3. pain in my shoulder almost disappered; I can sleep on right side now > 4. swelling in my neck decreased > 5. less pain & numbness in my feet and lower legs. > > I took levaquin for about three months when I began to have pain in my achilles tendon so my LLMD took me off. The time that I took it was worth it. Unfortunately, my system of keeping my levels of magnesium up [daily baths in epsom salt/magnesium sulfate] failed because I took a few days of vacation in my " shower only " RV. I was literally unable to take enough oral magnesium to make up for the amount lost from not taking the epsom salt baths. > > Kathleen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2011 Report Share Posted March 21, 2011 Not sure why, but when I took Levaquin, I almost immediately got extremely sick. I was dizzy, my heart rate soared, my blood pressure went up, and I felt faint and weak. My son-in-law was around that day and he drove me to the ER. I actually couldn't drive my car. That rarely, if ever, happens. In the ER, they treated me like I was a hypochondriac (of course knew very little about Lyme), hooked me up to some monitoring machines, and left me alone in a room for a long time. I basically had to tough it out until I felt better enough to go home. When they saw the elevated blood pressure, they said, " Well, your blood pressure can go up because you're in the ER. " When I kept asking for a nurse to come in (because being left alone in that state for an extended period is extremely disturbing and I wanted to know what was going on), they labeled me a " difficult patient, " and therefore ignored me even more. I've never in my life had an experience like that! I told my doctor and she said, " You were having a herx. " But I asked not to keep taking the med, because I didn't want to be completely debilitated and lie in bed alone all day while my husband was at work. I wouldn't have even been able to get my own food or tea. It gave me an appreciation of what people feel who are truly that debilitated by Lyme. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 I'd never take Leagquin or similar AB that use flouride to penatrate tissues. That stuff causes nerve damage and other nasty side effects. I'm not surprised of our ER visit. Mike > > Not sure why, but when I took Levaquin, I almost immediately got extremely > sick. I was dizzy, my heart rate soared, my blood pressure went up, and I > felt faint and weak. My son-in-law was around that day and he drove me to > the ER. I actually couldn't drive my car. That rarely, if ever, happens. > > > > In the ER, they treated me like I was a hypochondriac (of course knew very > little about Lyme), hooked me up to some monitoring machines, and left me > alone in a room for a long time. I basically had to tough it out until I > felt better enough to go home. When they saw the elevated blood pressure, > they said, " Well, your blood pressure can go up because you're in the ER. " > When I kept asking for a nurse to come in (because being left alone in that > state for an extended period is extremely disturbing and I wanted to know > what was going on), they labeled me a " difficult patient, " and therefore > ignored me even more. I've never in my life had an experience like that! > > > > I told my doctor and she said, " You were having a herx. " But I asked not to > keep taking the med, because I didn't want to be completely debilitated and > lie in bed alone all day while my husband was at work. I wouldn't have even > been able to get my own food or tea. It gave me an appreciation of what > people feel who are truly that debilitated by Lyme. > > Janet > > > > Quote Link to comment Share on other sites More sharing options...
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