Re: could someone give thoughts on my regimen and apparent relapse?

[Guest guest]

you are still early into treatment so it seems hard to tell. liposomal

glutathoine by researched nutritionals helps with brain fog and fatigue. i

would ask your llmd how the " L " form is being addressed. i think alinia and

tindamax, and planquinel attack the L form. also, have you had your vit. d

levels, iron checked? as those are affected and attribute to feeling bad.

also, take lots of probiotics!!!! and detox too!

danielle:)

On Fri, Mar 25, 2011 at 9:28 AM, U <dancingclyde109@...> wrote:

>

>

> I know if I could get my brain to work I could research this more fully on

> my own, but oh my goodness the brain fog has me down.

>

> I feel like I am not improving very much so I wanted to run my meds by some

> of you who are more experienced to see if I may need to ask my LLMD about

> adding something else.

>

> I have a follow up with him in a couple of weeks and never feel like I am

> very prepared to ask good questions.

>

> I am doing IV Rocephin 4 days on 3 days off (I am on my 7th week)

> Previously had been on Doxy or Mino at various doses.

>

> Flagyl on the 3 days off of Rocephin

>

> Rifampin twice a day 7 days a week

>

> I have a positive Lyme test through Igenex and a clinical dx of bartonella.

> Diagnosed officially in 9/10, but symptoms for at least 3 years.

>

> It seems as though I may not be attacking the " L " form? But I am not sure

> what the Rifampin does outside of possibly treating Bart?

>

> I realize Flagyl is supposed to be a cyst buster and Rocephin just kills

> the spirochetes so that is why I wonder is something is missing. Not sure

> which abx would be a good addition?

>

> Of course I am also on a number of supplemental type things like probiotic,

> magnesium, ALA, B12, Fish Oil, LDN. That's all I can remember but I know

> there are many more bottles in that cabinet.

>

> One thing I wanted to mention is that I had been noticing some improvement

> in my energy levels and pain levels but I had to miss last week of my IV

> meds due to a port malfunction while out of town.

>

> I didn't feel bad while off the meds that week, but when I restarted this

> week I have felt miserable. I didn't think it was a herx b/c I never had a

> herx when I first started on the IV.

>

> I did get a note from my doc that my WBC is low, but I guess not quite low

> enough to stop the meds yet? Maybe that is why I feel so poorly this week?

>

> I know there are a lot of question in this one post, but if anyone has any

> suggestions on any piece of it I would be so grateful.

>

> Thank you all...

>

>

>