Treatment halted (Ontario, Canada) - looking for LLMD

[Guest guest]

Hi, Friends,

I know I haven't written much, but have read lots. Thank you to everyone sharing

stories and information.

Could anyone help me out with recommending a LLMD in the USA, please,

say maximum 6 hours travel time from Toronto? If there is one in Buffalo, that

would be even better.  My personal email address is at the bottom, for the

off-list name, since we do not post doctor's names on the open emails. Thank you

in advance.

After 10 - 12 monthes of treatment, I've now been abandoned by Ontario health,

am off all treatment and the three doctors I've tried to get at least Doxy from,

all said their hands are tied.

I do have the info for Dr. M in upstate New York, who was a Lyme patient

herself, but am trying to get one or two more to see which one gets back

quickest, or which one might be the easiest to get to from here. I'm not looking

forward to yet another doctor, another battery of tests and more prodding and

poking. The brain fog has started again and it is getting harder and harder to

read or understand anything, or to make decisions.

When I was diagnosed and started treatment last March, someone on here said,

" your diagnosis is only the start of your battle. " You were right. I was on

double abx for ten months (Flagyl and Zithro) and it went well, symptoms

improved, infections cleared up, brain came back to a large extend. On Nov. 30 I

was given a PICC line and started on that, after three weeks of extra oral abx

to check for allergies. After some weeks on the IV, Zithro was brought back and

I immediately broke out in severe hives, also postulitis and blisters in the

mouth. Told to stop all.

Re-introduced two weeks later and that time it all went up to my face, eyes,

etc. Told to stop again and hold off.

Saw the Lyme doctor on Feb. 2nd, and he pulled the PICC line, saying I need to

get tested for allergies and sensitivity because he didn't know what was causing

the reaction but couldn't continue until we knew. Those tests are only scheduled

for June and July. He said it was the first time in 15 years that any of his

patients had reacted that badly so deep into the treatment. He was going to do

research and let me know what could be done on my next visit, which was

scheduled for March 17.

When I saw him on that day, was when he told me he couldn't continue treating

Lyme for the time being; that I have three options: (1) Trying to get a GP to

prescribe Doxy, (2) Request a Lyme test kit from Stony Brook in NY and hope for

a positive test again, in which case he MIGHT be able to continue prescribing

for me, or (3) Go to the States for treatment.

Option 1 has been exhausted, unless I can go to another GP in the area west of

Toronto who might give a prescription for 2 weeks of Doxy.

Option 2 would be a moot point if I can't get some abx to help the test instead

of throwing a few hundred dollars into the water.

So - trying to investigate option 3.

In the mean time, hoping and praying the issue would be resolved and the doctor

can start treatment again. I've already landed in ER once since then, after a

doctor took one look at the raging eye infection (three in three weeks, always

the left eye, which is also the eye that has been blind several times, for 5 -

20 minutes at a time).

Thank you for reading.

And yes, I'm taking the supplements, have limited sugar for more than a year

now, cut out caffeine, and now gluten too. Trying to build up immune system

through Igenix

Greetings,

Meerkat

snert2001-bog@...