Guest guest Posted April 8, 2011 Report Share Posted April 8, 2011 12 years ago, when I was 22, I came down with Mono. I have been plagued by debilitating fatigue ever since. For the first 5 years or so, I also suffered from constant body aches (on top of the fatigue) and was told I had chronic fatigue and fibromyalgia. The body aches slowly went away (thank God) BUT the fatigue has gotten WORSE. So much worse that I can't even work anymore (I used to be a school teacher). The fatigue is ruining my life! My EBV titers have always been off the charts high and my " chronic fatigue " doctor has always said I have chronic mono. Last fall, I had her test me for Lyme and only band 23 came back positive. She now says I have Lyme based on the single positive band. I questioned this diagnoses and had her run 2 or 3 more tests and this one band, 23, keeps coming back positive, but nothing else. I also have a really low CD57, around 30. Last month, I sent my blood off to Igenix and had them test for Lyme again PLUS all of the co-infections. They ALL came back negative except for THE usual positive band 23 PLUS band 41 was indeterminate. Based on Igenix I am NEGATIVE for Lyme. SOOOOO..... I am confused! Is Lyme causing this debilitating fatigue or something else???? Could it just simple be chronic mono since my titers are always high? Is it even possible for Lyme to cause ONLY fatigue WITHOUT ANY others symptoms? I just want to know whats wrong with me so I can fight whatever it is and get my life back! I want SO tired of being too tired to participate in life and have SO much I want to do bit can't because I am too tired! Can't stand living like this much longer! Thanks for anyone's insight! Quote Link to comment Share on other sites More sharing options...
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