Guest guest Posted April 27, 2011 Report Share Posted April 27, 2011 I had sciatic nerve pain and went to the chiropractor and was very happy with the treatment and it hasn't come back. It did take a couple of appointments and I had to do exercises but I was very happy with it. I have two co-workers who've had the same problem and they've gone to the doctor and taken Rxs and it always comes back. gin PS - If you are looking for a LLMD try going to www.mdjunction.com and sign up and join the Lyme group. They have a place you can ask for LLMD in your area and someone will message you. Because of the controversialness of Lyme they don't allow drs names on the forum to protect them. I am currently on the Cowden Condensed Protocol and am feeling much better! PSS - That they stopped making the vaccine infuriates me. On 4/27/2011 8:21 AM, turner146 wrote: > > Hi everyone, > > I have been having sciatic nerve pain so I finally went to my new > doctor (non LLMD). The ortho doc said I really think you should see a > rheumatologist after I told him that I am still dealing with Lyme. I > about jumped off the exam table and yelled at him for being ignorant. > (I would never do it but...) I even told him that I had seen a > rheumatologist starting when I was 3yrs old and stopped as an adult. > AND never tested positive on any arthritis blood test. Told him it > turned out to be Lyme this whole time 45 years later. They even had a > sign on the exam wall that said doctors don't give out antibiotics > when it's not needed. whatever... I wish some day the medical world > would realize that there are people who have late Stage Chronic Lyme. > I hate going to the doctors and wait until something is really bad. > The Lyme controversy is unreal and not easy to unravel. What is the > benefit for them not to recognize Lyme? There are more cases of Lyme > than AIDS. It's actually an epide mic but no one wants to finally do > something. One town the other night on the news thought it would be a > good idea to shoot the excess deer to lessen the Lyme exposure. How > about creating something that will kill off the ticks instead. hmmm > > sorry for ranting... I'm at my wits end.. 45 years of Lyme has done me > in.. The daily pain and other stuff is too much > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2011 Report Share Posted April 27, 2011 I feel your pain but now have to ask you " What are you doing to help yourself? " Have you heard of the salt/c protocol? It has helped many people get their health back. It's cheap, easy and has an excellent track record of success. There are also many other self treatments people are doing that are working and they aren't taking antibiotics to do it! Be proactive! If the doctors are listening then help yourself! Many have! For free information on what people have done and are doing see my website. www.lyme-resource.com You can lead a person to a fact, but you can't make them think! - > [ ] latest doctor appt > > Hi everyone, > > I have been having sciatic nerve pain so I finally went to my > new doctor (non LLMD). The ortho doc said I really think you > should see a rheumatologist after I told him that I am still > dealing with Lyme. I about jumped off the exam table and > yelled at him for being ignorant. (I would never do it > but...) I even told him that I had seen a rheumatologist > starting when I was 3yrs old and stopped as an adult. AND > never tested positive on any arthritis blood test. Told him > it turned out to be Lyme this whole time 45 years later. They > even had a sign on the exam wall that said doctors don't give > out antibiotics when it's not needed. whatever... I wish some > day the medical world would realize that there are people who > have late Stage Chronic Lyme. I hate going to the doctors and > wait until something is really bad. The Lyme controversy is > unreal and not easy to unravel. What is the benefit for them > not to recognize Lyme? There are more cases of Lyme than > AIDS. It's actually an epidemic but no one wants to finally > do something. One town the other night on the news thought it > would be a good idea to shoot the excess deer to lessen the > Lyme exposure. How about creating something that will kill > off the ticks instead. hmmm > > sorry for ranting... I'm at my wits end.. 45 years of Lyme > has done me in.. The daily pain and other stuff is too much > > > > ------------------------------------ > > Lyme Disease News continually updated from thousands of > sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2011 Report Share Posted April 27, 2011 I am so sorry - your story sounds like mine a bit.......I always wonder if they want to keep it undercover because someone is working on a cure.....so they want to patient the cure and then it will all come out.......comes down to greed......doesn't matter who or how many people are suffering........and the pain.....yes, the pain sucks..........especially in my children.....breaks my heart to the core!! Prayers for you and hope your pain goes away soon........just feel so bad for all of us........none of this is fair!! Diane ________________________________ From: turner146 <turner146@...> Sent: Wed, April 27, 2011 11:21:30 AM Subject: [ ] latest doctor appt  Hi everyone, I have been having sciatic nerve pain so I finally went to my new doctor (non LLMD). The ortho doc said I really think you should see a rheumatologist after I told him that I am still dealing with Lyme. I about jumped off the exam table and yelled at him for being ignorant. (I would never do it but...) I even told him that I had seen a rheumatologist starting when I was 3yrs old and stopped as an adult. AND never tested positive on any arthritis blood test. Told him it turned out to be Lyme this whole time 45 years later. They even had a sign on the exam wall that said doctors don't give out antibiotics when it's not needed. whatever... I wish some day the medical world would realize that there are people who have late Stage Chronic Lyme. I hate going to the doctors and wait until something is really bad. The Lyme controversy is unreal and not easy to unravel. What is the benefit for them not to recognize Lyme? There are more cases of Lyme than AIDS. It's actually an epidemic but no one wants to finally do something. One town the other night on the news thought it would be a good idea to shoot the excess deer to lessen the Lyme exposure. How about creating something that will kill off the ticks instead. hmmm sorry for ranting... I'm at my wits end.. 45 years of Lyme has done me in.. The daily pain and other stuff is too much Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2011 Report Share Posted April 27, 2011 Really really important small detail here. Please don't tell anybody you have " late stage chronic Lyme. " They are two different things. " Late stage (or late-stage disseminated) Lyme " is Lyme that goes undiagnosed and untreated for years. " Chronic Lyme " is Lyme that persists even after it's been " treated " according to the standard IDSA guidelines. This distinction is important when dealing with non-LLMDs. Your average conventional doc is far more inclined to be sympathetic if your Lyme has not been treated. Once you've been treated and it's failed, only then do you fall into the controversial " chronic " category, and that's when they start thinking you're a nutcase. The upshot is that nobody should use the word " chronic " in talking to outside doctors if they can possibly avoid it. It's a trigger word for them, and you reduce the odds of getting sympathetic care. In actual doctor-speak, at the very least, don't use it unless you have actually been treated with antibiotics for a month or two per the IDSA protocol, and that treatment has failed. If that's not you, there's no sense in putting yourself into a controversial category you don't even belong in. Sara On Apr 27, 2011, at 9:21 30AM, turner146 wrote: > Hi everyone, > > I have been having sciatic nerve pain so I finally went to my new doctor (non LLMD). The ortho doc said I really think you should see a rheumatologist after I told him that I am still dealing with Lyme. I about jumped off the exam table and yelled at him for being ignorant. (I would never do it but...) I even told him that I had seen a rheumatologist starting when I was 3yrs old and stopped as an adult. AND never tested positive on any arthritis blood test. Told him it turned out to be Lyme this whole time 45 years later. They even had a sign on the exam wall that said doctors don't give out antibiotics when it's not needed. whatever... I wish some day the medical world would realize that there are people who have late Stage Chronic Lyme. I hate going to the doctors and wait until something is really bad. The Lyme controversy is unreal and not easy to unravel. What is the benefit for them not to recognize Lyme? There are more cases of Lyme than AIDS. It's actually an epidemic but no one wants to finally do something. One town the other night on the news thought it would be a good idea to shoot the excess deer to lessen the Lyme exposure. How about creating something that will kill off the ticks instead. hmmm > > sorry for ranting... I'm at my wits end.. 45 years of Lyme has done me in.. The daily pain and other stuff is too much > > > > ------------------------------------ > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2011 Report Share Posted April 28, 2011 What is the correct way to connect your symptoms to Lyme when you visit a doctor, or need to tell someone? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2011 Report Share Posted April 28, 2011 Hi - Very interesting. I think you should find a LLMD (Lyme Literate Medical Doctor.) Go to ILADS (International Lyme and Associated Diseases Society) or LDA (Lyme Disease Association) for help finding a doctor. You have every right to feel aggravated. Lyme sucks and the medical staff are so untrained and they act idiotic. The medical doctor that I went to was so untrained when my symptoms were right in his face along with the bite. Now this doctor has trained for Lyme Disease and never stops ranting and raging over it! Maybe you will get this non LLMD on board by startling him. I don't believe they should kill deer either. Did you know that some people claim if you eat deer meat (venison) you won't get Lyme D? Deer are immune to Lyme Disease. Very interesting. Researchers should find out why. So many small wild animals are getting Lyme Disease. Do you ever see many adult wild rabbits around? Rabbits are loaded with tiny ticks. Those poor things. They get Lyme Disease. ________________________________ From: turner146 <turner146@...> Sent: Wed, April 27, 2011 12:21:30 PM Subject: [ ] latest doctor appt Hi everyone, I have been having sciatic nerve pain so I finally went to my new doctor (non LLMD). The ortho doc said I really think you should see a rheumatologist after I told him that I am still dealing with Lyme. I about jumped off the exam table and yelled at him for being ignorant. (I would never do it but...) I even told him that I had seen a rheumatologist starting when I was 3yrs old and stopped as an adult. AND never tested positive on any arthritis blood test. Told him it turned out to be Lyme this whole time 45 years later. They even had a sign on the exam wall that said doctors don't give out antibiotics when it's not needed. whatever... I wish some day the medical world would realize that there are people who have late Stage Chronic Lyme. I hate going to the doctors and wait until something is really bad. The Lyme controversy is unreal and not easy to unravel. What is the benefit for them not to recognize Lyme? There are more cases of Lyme than AIDS. It's actually an epidemic but no one wants to finally do something. One town the other night on the news thought it would be a good idea to shoot the excess deer to lessen the Lyme exposure. How about creating something that will kill off the ticks instead. hmmm sorry for ranting... I'm at my wits end.. 45 years of Lyme has done me in.. The daily pain and other stuff is too much Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2011 Report Share Posted April 28, 2011 Thanks Sara for the information... I was infected with Lyme at the age of 3, was not diagnosed until I was 45 years old. Went through treatment for 2 1/2 years with no success. I actually had to stop the treatment. I couldn't handle it any more. I had no choice, I had to keep working full time. So what would you categorize this as? I've been through the mill with doctors before I knew it was Lyme like the rest of us. Telling a non LLMD that you even have Lyme is like telling them you believe in aliens and have several of them living at your house. seriously, they look at you like you are insane. I just look back at them as though they are extremely ignorate and should turn in their medical liscence. > > > Hi everyone, > > > > I have been having sciatic nerve pain so I finally went to my new doctor (non LLMD). The ortho doc said I really think you should see a rheumatologist after I told him that I am still dealing with Lyme. I about jumped off the exam table and yelled at him for being ignorant. (I would never do it but...) I even told him that I had seen a rheumatologist starting when I was 3yrs old and stopped as an adult. AND never tested positive on any arthritis blood test. Told him it turned out to be Lyme this whole time 45 years later. They even had a sign on the exam wall that said doctors don't give out antibiotics when it's not needed. whatever... I wish some day the medical world would realize that there are people who have late Stage Chronic Lyme. I hate going to the doctors and wait until something is really bad. The Lyme controversy is unreal and not easy to unravel. What is the benefit for them not to recognize Lyme? There are more cases of Lyme than AIDS. It's actually an epidemic but no one wants to finally do something. One town the other night on the news thought it would be a good idea to shoot the excess deer to lessen the Lyme exposure. How about creating something that will kill off the ticks instead. hmmm > > > > sorry for ranting... I'm at my wits end.. 45 years of Lyme has done me in.. The daily pain and other stuff is too much > > > > > > > > ------------------------------------ > > > > Lyme Disease News continually updated from thousands of sources around the > > net: http://www.topix.net/health/lyme-disease > > > > MedWorm: The latest items on: Lyme Disease > > http://tinyurl.com/23dgy8 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2011 Report Share Posted April 28, 2011 good point. Think only going to a LLMD is the way. My old LLMD was right on the money every time. Next time I need to go to a non LLMD, I won't mention Lyme. Too ridiculous sealing with bozos... :-) > > What is the correct way to connect your symptoms to Lyme when you visit a > doctor, or need to tell someone? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2011 Report Share Posted April 29, 2011 I have seen extremely inconsistent info on this doctor that you are talking about in Alabama. Some people rave about him and a few hate him. So what the heck do I do? > > > > What is the correct way to connect your symptoms to Lyme when you visit a > > doctor, or need to tell someone? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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