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Hi Mandy

Many thanks for yoyr reply, that is what I suspected..

Kind regards

Vickyanne

From: Mandy Jennings <amanda.jennings@...>Subject: Re:HYDROCORTISONEthyroid treatment Date: Tuesday, 16 February, 2010, 18:07

HI Vickyann

Taking too much I believe as that is also a symptom of cushings which is also too much cortisol.

Hope this helps

Regars

Mandy

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I got my DHEA from www.pharmwest.com

and it is 25mgs tablets. I took one daily. You are not likely to feel any

effects for up to 3 months though. Many people don't give it a chance to work

because by that time, they feel it is a complete waste of time. It is not, you

must be patient. Other people find it working quicker than that, but you should

heed the warning.

Luv - Sheila

Thank you so much for your information on DHEA and your

advice. She did have a saliva test the year before last and it came

back with with low DHEA indeed as well as low cortisol. When I did

mention it to the Endo Doc he did not seem too bothered by it, but he said

try it if you want although he didn't think it meant much.

However, having read what you have written I will send off

for DHEA supplement. Any ideas where I can get this from and what dose

would be needed?

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Hi Vickyanne,

Your poor daughter - it sounds like she's really going through it.

Dr P is probably best placed to advise on DHEA dosing if the endo won't

recommend a dose.

My doctor started me on 5mg and then after a month or so I went up to 7.5mg and

I'm now on 10mg. I've read about other women taking higher doses like 25mg and

50mg, but we decided to go cautiously as DHEA lowers levels of cortisol.

It might take some tuning to get a good balance. DHEA has an antagonistic

relationship to cortisol so it makes you feel like you are on a lower dose of

cortisol when you take DHEA.

Signs of overtreatment of DHEA include greasy hair and greasy skin, some people

get on with it while others don't like it.

You might be able to get DHEA prescribed by your GP, as your daughter has proven

adrenal problems. Some people on the 's Self-Help group get DHEA

prescribed by their GP/endo.

Also it might be worth pushing your GP/endo for a DHEA-S blood test (they should

be allowed to order the test!!) as it's good to monitor levels - also of other

sex hormones like oestrogen and testosterone - to see how the DHEA is

converting.

If you can't get it on the NHS, you can buy DHEA in the UK from Biovea -

http://www.biovea.net/%28S%281qphvf45kifvdh55jakbox45%29%29/category_dispatch.as\

px?CID=6

or iherb in the states might be cheaper - but if you want to avoid the customs

charge then it's better to keep the total bill below £18.

Take care

Lou

>

> Hi Lou

>  

> Thank you so much for your information on DHEA and your advice.  She did have

a saliva test the year before last and it came back with with low DHEA indeed as

well as low cortisol.  When I did mention it to the Endo Doc he did not seem

too bothered by it, but he said try it if you want although he didn't think it

meant much.

[Edit Abbrev Mod]

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From: Lou <enkai111@...>Subject: Re: HYDROCORTISONEthyroid treatment Date: Tuesday, 16 February, 2010, 23:03

Hi Vickyanne, Your poor daughter - it sounds like she's really going through it.Dr P is probably best placed to advise on DHEA dosing if the endo won't recommend a dose. My doctor started me on 5mg and then after a month or so I went up to 7.5mg and I'm now on 10mg. I've read about other women taking higher doses like 25mg and 50mg, but we decided to go cautiously as DHEA lowers levels of cortisol.It might take some tuning to get a good balance. DHEA has an antagonistic relationship to cortisol so it makes you feel like you are on a lower dose of cortisol when you take DHEA. Signs of overtreatment of DHEA include greasy hair and greasy skin, some people get on with it while others don't like it.You might be able to get DHEA prescribed by your GP, as your daughter has proven adrenal problems. Some people on the 's Self-Help group get DHEA prescribed by their GP/endo.Also it might be

worth pushing your GP/endo for a DHEA-S blood test (they should be allowed to order the test!!) as it's good to monitor levels - also of other sex hormones like oestrogen and testosterone - to see how the DHEA is converting.If you can't get it on the NHS, you can buy DHEA in the UK from Biovea - http://www.biovea. net/%28S% 281qphvf45kifvdh 55jakbox45% 29%29/category_ dispatch. aspx?CID= 6or iherb in the states might be cheaper - but if you want to avoid the customs charge then it's better to keep the total bill below £18.Take careLou>> Hi Lou>

Many thanks for the information and links. I will look into it for her.

Kind regards

Vickyanne

[Edit Abbrev Mod]

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Hi vickyanne, stretchmarks? recent fast weight gain? > thyroid treatment > From: vickyanne58@...> Date: Tue, 16 Feb 2010 12:05:33 +0000> Subject: HYDROCORTISONE> > Hi All> > Has anybody ever had purple striations on their belly and thighs when taking hydrocortison. If you have found this do you know what could be causing it. Is it a side effect of the hydrocortisone or taking too much hydrocortise?> > I would be very grateful for any feedback on this.> > Vickyanne> > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

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Hi

Tes to all those. Many thanks for replying.

Kind regards

Vickyanne

From: jenny stenning <jennystenning@...>Subject: RE: HYDROCORTISONE"sheila turner" <thyroid treatment >Date: Wednesday, 17 February, 2010, 17:33

Hi vickyanne, stretchmarks? recent fast weight gain? > thyroidpatientadvoc acygroups (DOT) com> From: vickyanne58> Date: Tue, 16 Feb 2010 12:05:33 +0000> Subject: [thyroidpatientadvo cacy] HYDROCORTISONE> > Hi All> > Has anybody ever had purple striations on their belly and thighs when taking hydrocortison. If you have found this do you know what could be causing it. Is it a side effect of the hydrocortisone or taking too much hydrocortise?> > I would be very grateful for any feedback on this.> > Vickyanne> > > > > ------------ ---------

--------- ------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

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Hi,

My daughter had purple strechmarks on her belly and thighs from taking

Prednisolone (a type of Cortisone) I am thinking is it a side effect, or maybe

she was taking too much. They were awful; but do seem to have gone now that she

has come off them.

Love Ali xxxxx

> >

> > Hi All

> >

> > Has anybody ever had purple striations on their belly and thighs when taking

hydrocortison. If you have found this do you know what could be causing it. Is

it a side effect of the hydrocortisone or taking too much hydrocortise?

> >

> > I would be very grateful for any feedback on this.

> >

> > Vickyanne

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There may be a great improvement if doses of prednisolone are split into four

per day, remembering too that its strength is rated at at least four times that

of hydrocortisone.

Hans

Hi,

My daughter had purple strechmarks on her belly and thighs from taking

Prednisolone (a type of Cortisone) I am thinking is it a side effect, or maybe

she was taking too much ... Love Ali xxxxx

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Hi Ali

Many thanks for your reply. I am glad that your Daughter's stretch marks have cleared up. I must admit that it was only when my Daughter took the Prednisolone that these marks appeared, and yes I think it was because her body didn't need so much. She is currently taking hydrocortisone at the moment, low dose of 15mg with a view to stopping altogether.

Again thank you for your reply.

Kind regards

Vickyanne

From: alibongo85 <alibongo85@...>Subject: Re: HYDROCORTISONEthyroid treatment Date: Sunday, 21 February, 2010, 13:44

Hi,My daughter had purple strechmarks on her belly and thighs from taking Prednisolone (a type of Cortisone) I am thinking is it a side effect, or maybe she was taking too much. They were awful; but do seem to have gone now that she has come off them.Love Ali xxxxx> > > > Hi All> > > >

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Hi Hans

Thank you for your reply it was good of you to take the time. My Daughter has now changed back to hydrocortisone because it was only when she changed to prednisolone that the marks appeared.

Thanks again.

Kind regards

Vickyanne

From: neeserhans <hneeser@...>Subject: Re: HYDROCORTISONEthyroid treatment Date: Sunday, 21 February, 2010, 17:17

There may be a great improvement if doses of prednisolone are split into four per day, remembering too that its strength is rated at at least four times that of hydrocortisone.HansHi,My daughter had purple strechmarks on her belly and thighs from taking Prednisolone (a type of Cortisone) I am thinking is it a side effect, or maybe she was taking too much ... Love Ali xxxxx

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Hi, On the PIL of prednisone it states that if taken every other ay instead of every day this reduces unwanted side effects and still gives the therapeutic effect.Pdrenisone is much more long lasting in the body that hydrocoortisone hence there is no need for split doses. > thyroid treatment > From: hneeser@...> Date: Sun, 21 Feb 2010 17:17:24 +0000> Subject: Re: HYDROCORTISONE> > There may be a great improvement if doses of prednisolone are split into four per day, remembering too that its strength is rated at at least four times that of hydrocortisone.> > Hans> > > > > Hi,> > My daughter had purple strechmarks on her belly and thighs from taking Prednisolone (a type of Cortisone) I am thinking is it a side effect, or maybe she was taking too much ... Love Ali xxxxx> > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

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Hi

Many thanks for that piece of information. I didn't realise you could do this. The Consultant Endo Doc certainly never told my Daughter. I don't suppose this could be done with hydrocortison could it?

Kind regards

Vickyanne

From: jenny stenning <jennystenning@...>Subject: RE: Re: HYDROCORTISONE"sheila turner" <thyroid treatment >Date: Monday, 22 February, 2010, 14:14

Hi, On the PIL of prednisone it states that if taken every other ay instead of every day this reduces unwanted side effects and still gives the therapeutic effect.Pdrenisone is much more long lasting in the body that hydrocoortisone hence there is no need for split doses. >> > > > ------------ --------- --------- ------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

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Hi vickyanne, hydrocortisone should be taken 3-4 times a day as it is very short lasting- I've never taken it so I can't comment from experience. thyroid treatment From: vickyanne58@...Date: Mon, 22 Feb 2010 17:00:31 +0000Subject: RE: Re: HYDROCORTISONE

Hi

Many thanks for that piece of information. I didn't realise you could do this. The Consultant Endo Doc certainly never told my Daughter. I don't suppose this could be done with hydrocortison could it?

Kind regards

Vickyanne

From: jenny stenning <jennystenning@...>Subject: RE: Re: HYDROCORTISONE"sheila turner" <thyroid treatment >Date: Monday, 22 February, 2010, 14:14

Hi, On the PIL of prednisone it states that if taken every other ay instead of every day this reduces unwanted side effects and still gives the therapeutic effect.Pdrenisone is much more long lasting in the body that hydrocoortisone hence there is no need for split doses. >> > > > ------------ --------- --------- ------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

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  • 1 year later...
Guest guest

Hi all,

Just curious if anyone has been precribed HC and had to go off? What kind of

taper schedule is best?

I have been on 15 mg daily for four months because of low adrenal function due

to lyme and cos.My cortisol is now high and I need to reduce what I supplement.

My plan is to reduce by 2.5 mg a week. If anyone has any input I would greatly

appreciate it.

Thanks

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  • 2 weeks later...
Guest guest

Thank you Sheila, yes my daughter is already on Siberian ginseng,Vit C 5000mg

and tincture of liquorice (and everything else) so it was just the Nutri Adrenal

Extra that I wondered should she cut down a bit whilst on cortisone and if so

how much? Thanks

>

> Quite often Dr Peatfield does recommend that if you have been taking Nutri

> Adrenal Extra, that you continue to take some when starting hydrocortisone.

>

> Trying to find the cheapest, quickest supplier of HC may not necessarily be

> the best way to go, some of the generics of Cortef can be less potent but

> some of the other members here already taking HC will be able to help you

> with the best supplier etc. She needs to take high doses of vitamin C (at

> least to bowel tolerance) e.g. 4/5000mgs daily. Also, she should take 1

> tablet of Siberian Ginseng (Siberian being the best) and possibly tincture

> of liquorice drops (check out our FILES section and scroll down the folders

> to 'Discounts one Tests and Supplements'. Being a member of TPA you can get

> a discount of 33% from Nutri Ltd.

>

> Luv - Sheila

>

>

>

>

>

> Dr. Peatfield has told my daughter to take hydrocortisone for her adrenals

> and has suggested the dosage. She has been on NAX for about 4 months and I

> believe she takes 5 a day. Should she continue to take the NAX whilst on

> cortisone or perhaps cut down or stop whilst on cortisone? Is there anything

> else she should know in general concerning the taking of cortisone apart

> from the obvious care in dosage and timing? Any advice on the

> best/cheapest/quickest supplier of hydrocortisone. Many thanks for any

> help....

>

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