Guest guest Posted January 9, 2011 Report Share Posted January 9, 2011 i tried to post another way and i am not seeing it so i will try this way.i also am going through the same.my home is in forclosure after 10 yrs of owning.i am not tolerating antibiotics well at all.i am very interested in knowing why some people cannot handle antibiotics and what herbs or natural meds people are using.it is terrible what happens to families when illness happens.i am devasted over losing my home.one thing is we have a family dog and cat and finding a rental to accept them is probally small.i also am very interested in the manchester nh meetings. could someone let me know how to sign up or find out when and where they are? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 hi, . We seem to be in similar places with our illness. I was just diagnosed one month ago with LD, but the doctor and I are sure I have had it for 12 years. I have never in my life cried over and illness, (and I had a kidney stone for two months, once!), until recently with lyme. The pain and utter fatigue have been overwhelming. Im a single father, and though I am not facing the loss of my home (yet), I have never been so scared that I might. Continuing to work is a huge challenge. trying to find someone to look after me and my son when I can't function, is another challenge I face. What helps me keep going are the people I know who have battled lyme and come out the other side. One man, a longtime outdoorsman, and all around tough guy, told me that his wife spoon fed him for 5 months. But now, a year later, he feels fantastic at age 72. 100% back to his former self. Another friend told me that she struggled for 2 years with it, unable to work. But now also feels amazing. You will too. And me. And I hope you will soon have a new home. Sometimes strangely good things come from the bad. My first symptom of LD that hit me 12 years ago, was a sensation of utter loneliness and detachment, even from my family. I am an artist, and I thought that what was striking me was working alone for so long. So, I formed a co-op of other writers and artists in our town. An office for we solo-workers to be together. It was an amazing thing for all of us. And over the years, as people came and went, over 60 people worked in our office, many of whom created some of their best work there. If I had not gotten lyme, I would never have started that co-op. Im not saying I am glad to have lyme. only that perhaps out of this terrible thing, something good might happen that would not have otherwise. Think what you will be able to do with a fresh, non-lyme brain. As for your guilt about your home; I bet that if your husband was lost to alzheimers or another tragic illness, you would trade your home for his heeling in a second. Nonetheless I am sure it is a very hard loss, and I am so sorry you are going through it. I am REALLY sick with lyme now. I dont get out of bed much. And I do get really down, like you are describing. But I feel like at last I know who this horrible enemy is that has been ambushing me for so many years. So, now the war begins, and that is when we feel the most casualties. Just keep focusing on healing, and knowing that the effects of lyme are most often totally reversible. > > Oh - I am so sorry........we just filed bankruptcy............and hope to > keep our house but not sure why as it is falling apart. > > It is easy for me to say but.......DO NOT FEEL GUILTY!! I did also and its not > fair to do to yourself no matter what anyone says......you have to look at it > like this......would you feel guilty if you had cancer and this was > happening........its not your fault that this happened to you and your family. > You will make it through this and be even stronger because of it - even if you > dont feel that way right now please believe in my words. > I remember my first start of treatment.......my worst was my depression......I > believe the treatment works first in that area of your brain....it was so bad > ....I had to tell myself not to take myself out of this world......I had to > tell myself I cant because I have kids.........then I thought because my kids > are ill with this terrible disease also that I would take them with me....well > then I had to keep telling myself that I cant do that because that would be > murder.....and my belief is that I would go to hell and not be able to be with > them then........it was one of the hardest parts of treatment for me......please > keep telling yourself that this will end and the reason you are feeling such > loss is because of the treatment for your brain infection right now....once this > is done and you can start rebuilding your life you can get those things > back....but this is your time to be in treatment and not carry the world on your > shoulders!! Let go of what you can not change...these things happened to you - > if you had a choice you would of not let this happen......so it is not your > fault!! I am sorry that is is such a controversial disease also and I pray you > have friend and family support behind you......I did and didn't and it is still > that way - makes me ill but believe me girl you are a fighter and you will get > better now that you know what you have to do ........ sometimes the llmd can > back off treatment and not treat as harsh to help with the depression...I have > to be on a antidepressant and thats ok - I will do what ever I have to do to > fight this and get my life back...right now your brain isn't functioning because > of this disease and treatment ...... give it time and it will. You have made it > this long girl - dont give up now!! > > Do you have kids? If you need to email me anytime!! > Life will get better for you my friend......you have to give treatment > time........you are in my prayers and bless your heart for reaching out....I did > also....... > Love - Diane > > > > > ________________________________ > From: notlovinlyme <notlovinlyme@...> > > Sent: Fri, January 7, 2011 3:53:00 AM > Subject: [ ] Emotional breakdown > >  > My name is , I am new to the forum. In November I was finally diagnosed > with Lyme 8 years after my tick bite. I have had all the specialized tests done > and all came back positive for Lyme and co infections. I am seeing a great LLMD > in the Seattle area. > > > I just can't stop crying right now and feeling so defeated by this disease. I am > just so worn down and sad. Tuesday our home goes on the market because we can no > longer pay the mortgage, we will have to do a short sale so we will gain > nothing, only lose our home. I feel so quilty for causing this loss and for the > burden on my family. If you can offer me any words of encouragement, I would > appreciate it greatly. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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