Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Hi, Tami, and welcome to the list. Have a question... what is ARVD? My husband has some serious heart probs,, too, and a recent ICD inplant. I am always wanting to learn more. Glad to meet you! Sue -- " She was not quite what you would call refined. She was not quite what you would call unrefined. She was the kind of person that keeps a parrot. " -- Mark Twain Rich and Sue Owens http://www.geocities.com/Yosemite/Meadows/7457/index3.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2002 Report Share Posted May 26, 2002 EXPLORING46: SO HOW DO YOU FEEL WITH THE TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE WITH YOU IN YOUR TRIALS. LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2002 Report Share Posted May 26, 2002 EXPLORING46: SO HOW DO YOU FEEL WITH THE TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE WITH YOU IN YOUR TRIALS. LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2002 Report Share Posted June 1, 2002 Well considering the other treatments I had PegIntron is definitively better. No vomiting, little nausea, less pain in the body. only one shot a week. Hey and the best part the probabilities went up to 85%. Thinks are getting better do it with faith and hope. I know it will be OK Sandy Booton <ibsandy77@...> wrote: EXPLORING46: SO HOW DO YOU FEEL WITH THE TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE WITH YOU IN YOUR TRIALS. LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2002 Report Share Posted June 1, 2002 Well considering the other treatments I had PegIntron is definitively better. No vomiting, little nausea, less pain in the body. only one shot a week. Hey and the best part the probabilities went up to 85%. Thinks are getting better do it with faith and hope. I know it will be OK Sandy Booton <ibsandy77@...> wrote: EXPLORING46: SO HOW DO YOU FEEL WITH THE TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE WITH YOU IN YOUR TRIALS. LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 Lizi, I have a question for you. Did you try other treatments before Peg? I know the combo is similar to the Peg. That is why it frightens me. Just wondering if you tried that first? Thanks, Dana --- LIZI SANTIAGO <bloomingeagle@...> wrote: > > Well considering the other treatments I had > PegIntron is definitively better. No vomiting, > little nausea, less pain in the body. only one shot > a week. Hey and the best part the probabilities > went up to 85%. Thinks are getting better do it > with faith and hope. I know it will be OK > Sandy Booton <ibsandy77@...> wrote: > EXPLORING46: SO HOW DO YOU FEEL WITH THE > TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO > KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE > WITH YOU IN YOUR TRIALS. > > LOVE IN HIS LIGHT > > SANDY > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 Lizi, I have a question for you. Did you try other treatments before Peg? I know the combo is similar to the Peg. That is why it frightens me. Just wondering if you tried that first? Thanks, Dana --- LIZI SANTIAGO <bloomingeagle@...> wrote: > > Well considering the other treatments I had > PegIntron is definitively better. No vomiting, > little nausea, less pain in the body. only one shot > a week. Hey and the best part the probabilities > went up to 85%. Thinks are getting better do it > with faith and hope. I know it will be OK > Sandy Booton <ibsandy77@...> wrote: > EXPLORING46: SO HOW DO YOU FEEL WITH THE > TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO > KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE > WITH YOU IN YOUR TRIALS. > > LOVE IN HIS LIGHT > > SANDY > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 Dana, I started just with interferon 3 shots a week. then moved to Rebetron ( combination) pills twice a day and then 3 shots a week. Those two were murder. The peg is only 1 weekly shots and the pills(rebetol) according to the weight. The side effects are mild comparing to the others. One thing in common is the ups and downs. not 2 days are the same and this time I am hit more often with deppression. But all in all we can handle it. I tried to forget all the other bad things, but my family also agree that this time is better. Always remember that the first shot is the worst. Get a lot of support and will to get through that one and the rest is smooth sailing( a feww hard waves, but overall iOK) lizi xxx ooo <spiria_spirit@...> wrote: Lizi, I have a question for you. Did you try other treatments before Peg? I know the combo is similar to the Peg. That is why it frightens me. Just wondering if you tried that first? Thanks, Dana --- LIZI SANTIAGO <bloomingeagle@...> wrote: > > Well considering the other treatments I had > PegIntron is definitively better. No vomiting, > little nausea, less pain in the body. only one shot > a week. Hey and the best part the probabilities > went up to 85%. Thinks are getting better do it > with faith and hope. I know it will be OK > Sandy Booton <ibsandy77@...> wrote: > EXPLORING46: SO HOW DO YOU FEEL WITH THE > TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO > KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE > WITH YOU IN YOUR TRIALS. > > LOVE IN HIS LIGHT > > SANDY > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 Dana, I started just with interferon 3 shots a week. then moved to Rebetron ( combination) pills twice a day and then 3 shots a week. Those two were murder. The peg is only 1 weekly shots and the pills(rebetol) according to the weight. The side effects are mild comparing to the others. One thing in common is the ups and downs. not 2 days are the same and this time I am hit more often with deppression. But all in all we can handle it. I tried to forget all the other bad things, but my family also agree that this time is better. Always remember that the first shot is the worst. Get a lot of support and will to get through that one and the rest is smooth sailing( a feww hard waves, but overall iOK) lizi xxx ooo <spiria_spirit@...> wrote: Lizi, I have a question for you. Did you try other treatments before Peg? I know the combo is similar to the Peg. That is why it frightens me. Just wondering if you tried that first? Thanks, Dana --- LIZI SANTIAGO <bloomingeagle@...> wrote: > > Well considering the other treatments I had > PegIntron is definitively better. No vomiting, > little nausea, less pain in the body. only one shot > a week. Hey and the best part the probabilities > went up to 85%. Thinks are getting better do it > with faith and hope. I know it will be OK > Sandy Booton <ibsandy77@...> wrote: > EXPLORING46: SO HOW DO YOU FEEL WITH THE > TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO > KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE > WITH YOU IN YOUR TRIALS. > > LOVE IN HIS LIGHT > > SANDY > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 my first shot was not the worst they have all been, WORSE! the thing is I take them on Friday night and I don't feel bad till Monday. then thursday I start feeling a little better! CAROL Dear Lord, Either Quiet The Waves Or Lift Me Above Them; It's Too Late To Learn To Swim. Crowley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 my first shot was not the worst they have all been, WORSE! the thing is I take them on Friday night and I don't feel bad till Monday. then thursday I start feeling a little better! CAROL Dear Lord, Either Quiet The Waves Or Lift Me Above Them; It's Too Late To Learn To Swim. Crowley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 Lizi, Thank you for responding. I keep getting from the doctors that since I could not handle the combo and had hard time with just Interferon, that Peg would be the same. One doctor told me that too many tials with Interferon could make me Immune to it. Have you or anyone else heard of that?? I go to the GI in July for second opinion. Have been throught the ringer with different Specialist. Just getting so tired of the whole mess!!! Requested 3 times for a referal to go to an Acupunture Doctor. Can you believe I still have not heard from my MD? I guess I am going to half to go there in person and raise H... Again just to get a responce!! Thank you Dana --- LIZI SANTIAGO <bloomingeagle@...> wrote: > > Dana, I started just with interferon 3 shots a > week. then moved to Rebetron ( combination) pills > twice a day and then 3 shots a week. Those two were > murder. The peg is only 1 weekly shots and the > pills(rebetol) according to the weight. The side > effects are mild comparing to the others. One thing > in common is the ups and downs. not 2 days are the > same and this time I am hit more often with > deppression. But all in all we can handle it. I > tried to forget all the other bad things, but my > family also agree that this time is better. Always > remember that the first shot is the worst. Get a > lot of support and will to get through that one and > the rest is smooth sailing( a feww hard waves, but > overall iOK) > lizi > xxx ooo <spiria_spirit@...> wrote: Lizi, > > I have a question for you. Did you try other > treatments before Peg? I know the combo is similar > to > the Peg. That is why it frightens me. Just > wondering > if you tried that first? > Thanks, Dana > --- LIZI SANTIAGO <bloomingeagle@...> wrote: > > > > Well considering the other treatments I had > > PegIntron is definitively better. No vomiting, > > little nausea, less pain in the body. only one > shot > > a week. Hey and the best part the probabilities > > went up to 85%. Thinks are getting better do it > > with faith and hope. I know it will be OK > > Sandy Booton <ibsandy77@...> wrote: > > EXPLORING46: SO HOW DO YOU FEEL WITH THE > > TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO > > KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE > > WITH YOU IN YOUR TRIALS. > > > > LOVE IN HIS LIGHT > > > > SANDY > > > > > > > > --------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 Lizi, Thank you for responding. I keep getting from the doctors that since I could not handle the combo and had hard time with just Interferon, that Peg would be the same. One doctor told me that too many tials with Interferon could make me Immune to it. Have you or anyone else heard of that?? I go to the GI in July for second opinion. Have been throught the ringer with different Specialist. Just getting so tired of the whole mess!!! Requested 3 times for a referal to go to an Acupunture Doctor. Can you believe I still have not heard from my MD? I guess I am going to half to go there in person and raise H... Again just to get a responce!! Thank you Dana --- LIZI SANTIAGO <bloomingeagle@...> wrote: > > Dana, I started just with interferon 3 shots a > week. then moved to Rebetron ( combination) pills > twice a day and then 3 shots a week. Those two were > murder. The peg is only 1 weekly shots and the > pills(rebetol) according to the weight. The side > effects are mild comparing to the others. One thing > in common is the ups and downs. not 2 days are the > same and this time I am hit more often with > deppression. But all in all we can handle it. I > tried to forget all the other bad things, but my > family also agree that this time is better. Always > remember that the first shot is the worst. Get a > lot of support and will to get through that one and > the rest is smooth sailing( a feww hard waves, but > overall iOK) > lizi > xxx ooo <spiria_spirit@...> wrote: Lizi, > > I have a question for you. Did you try other > treatments before Peg? I know the combo is similar > to > the Peg. That is why it frightens me. Just > wondering > if you tried that first? > Thanks, Dana > --- LIZI SANTIAGO <bloomingeagle@...> wrote: > > > > Well considering the other treatments I had > > PegIntron is definitively better. No vomiting, > > little nausea, less pain in the body. only one > shot > > a week. Hey and the best part the probabilities > > went up to 85%. Thinks are getting better do it > > with faith and hope. I know it will be OK > > Sandy Booton <ibsandy77@...> wrote: > > EXPLORING46: SO HOW DO YOU FEEL WITH THE > > TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO > > KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE > > WITH YOU IN YOUR TRIALS. > > > > LOVE IN HIS LIGHT > > > > SANDY > > > > > > > > --------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2002 Report Share Posted November 17, 2002 " xploring46 " ? > not really a new member, just a new i.d. can anyone guess what i > used before? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2002 Report Share Posted November 18, 2002 You mean to tell me that I am supposed to remember your old ID when I cant even remember my last name sometimes...LOL...I dont know why but I want to say eploring46....dont tell me I am wrong or I might forget that too...LOL....or Dove something even...man you are making this hard.....ok...I give up..what was it? Love and Hugs Sandy xploring47 <xploring47@...> wrote:not really a new member, just a new i.d. can anyone guess what i used before? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Documents. Lots of solid facts. Someone capable to review the documents along side of the laws that govern the area in which the doctors practice. Everything legal and above reproach, this is critical and must be done. Jim How would I go about linking two foreign medical dox for conspiricy of mal practice ? Ideas ??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 No forget that, the documents have already been modified. The second doc was in cahoots with the first doc , three pharm co salesmen, and what looked to be a rookie fed , or one of their rejects?. I called back, and the woman who took care of the records had resigned. I got out of the conspiracy , before any more damage was done. I guess its good enough to survive it, if there isnt any documentation. Thanks , Jim <mofunnow@...> wrote: Documents. Lots of solid facts. Someone capable to review the documents along side of the laws that govern the area in which the doctors practice. Everything legal and above reproach, this is critical and must be done. Jim How would I go about linking two foreign medical dox for conspiricy of mal practice ? Ideas ??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Walking away with your skin is a beautiful thing!! No forget that, the documents have already been modified. The second doc was in cahoots with the first doc , three pharm co salesmen, and what looked to be a rookie fed , or one of their rejects?. I called back, and the woman who took care of the records had resigned. I got out of the conspiracy , before any more damage was done. I guess its good enough to survive it, if there isnt any documentation. Thanks , Jim <mofunnow@...> wrote: Documents. Lots of solid facts. Someone capable to review the documents along side of the laws that govern the area in which the doctors practice. Everything legal and above reproach, this is critical and must be done. Jim How would I go about linking two foreign medical dox for conspiricy of mal practice ? Ideas ??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 Wow! Vonnie, it is great to hear that already you are experiencing a better quality of life, and it is not all that long after your surgeries. So happy to hear it! Kim In a message dated 5/27/06 9:27:52 AM, vonniec20032000@... writes: HI GROUP, I HAVEN'T BEEN ON TOO MUCH LATELY POSTING CAUSE I WAS OUT LOOKING FOR A CAR THAT I CAN SIT IN AND BE COMFORTABLE AND I THINK I BOUGHT THE RIGHT ONE.I BOUGHT A 2004 CHRYLSER PACIFICA AND THE SEATS ARE SO GOOD AND IT JUST HUGS MY BACK AND I LOVE IT.I PICK IT UP NEXT WEEK,THEY ARE PUTTING IN A MOON ROOF AND AUTOMATIC STARTER, NEED THOSE 2 THINGS..ESPECIALLY THE STARTER FOR THE WINTER WEATHER HERE.. MARY PA,HOW ARE YOU DOING? I AM DOING BETTER NOW THAT I GOT MY BOWELS TO MOVE REGULAR I WAS REALLY HURTING FOR A FEW DAYS BUT HILARY PULLED ME THROUGH IT AND WE CHANGED MEDS AND I AM DOING ALOT BETTER NOW.I HAVE BEEN WALKING ABOUT 20-30 MINUTES A DAY.I AM GOING TO ATTEMPT GROCERY SHOPPING TODAY OF COURSE WITH HUBBY CAUSE I CAN'T DRIVE STILL..OTHER THAN THAT I STILL FEEL VERY STIFF ESPECIALLY IN THE MORNING BUT IT GETS BETTER DAILY.YOU SOUND LIKE YOUR DOING GREAT BACK TO WORK FULL TIME AND ALL.I WAS 4 WEEKS POST-OP YESTERDAY SO I FEEL LIKE I HAVE COME A LONG WAY SO FAR..BUT I HAVE A WAYS TO GO YET BUT THE LEG PAIN IS GONE AND THATS THE BEST PART..BEFORE I COULDN'T WALK TO THE CAR WITHOUT THE PAIN GOING DOWN THE LEG KILLING ME BUT NOT NO MORE I FEEL GREAT AND I NEVER THOUGHT I COULD WALK 30 MINUTES WITHOUT PAIN..I AM SO GLAD I HAD THESE SURGERY'S AND FOUND DR.RAND..HE HAS GIVEN ME A BETTER QUALITY OF LIFE THAT I NEVER THOUGHT I WOULD HAVE HAD BEFORE THE SURGERY'S.SO ALL YOU GALS WAITING TO GO FOR YOUR STAGE 1 KEEP YOUR HEADS UP CAUSE IT DOES GET BETTER..GOOD LUCK TO ALL OF YOU..VONNIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 --Vonnie, Glad to hear your good news. Yes, as you can see it gets better and better all the time. As I said in my ealrier post today...I felt frozen, thawing more and more each day...I also do alot of " kicking the ham into the middle of the room.. " , I just don;t want to waste a good bend on picking up things that are just not worth the extreme effort it takes to do that move....now if it was a ten dollar bill...I might make the bend to the floor but not for a pound of ham...I guess you could say " I pick and choose my bends " ...kind of like battles....Glad you found a car that works..I know how frustrating that is..when I drive my son's car, 1989 Volvo wagon, I can;t just jump in it.I must bend down and put my head in first and glide in..I look so stupid.....I try never to drive his car..but sometimes I am too lazy to jockey cars around if I want to run to the store...... Cam, I might call Priscilla to see if I can get permission to do PT or at least those things you described, I remember doing them after was born. I am eager to be more flexable..if I could say one thing that has frustrated me about this surgery it is the restriction on being flexable..I find it very frustrating.....sometime I find myself thinkning about the days I could touch my toes, grab soemthing off the floor without a blink of an eye....but then I remember the awful scaitic pain and I say " I don't care if I can't pick that up " ..there are always trade offs, so I guess this is it...., PA - In , " Vonnie " <vonniec20032000@...> wrote: > > HI GROUP, I HAVEN'T BEEN ON TOO MUCH LATELY POSTING CAUSE I WAS OUT > LOOKING FOR A CAR THAT I CAN SIT IN AND BE COMFORTABLE AND I THINK I > BOUGHT THE RIGHT ONE.I BOUGHT A 2004 CHRYLSER PACIFICA AND THE SEATS > ARE SO GOOD AND IT JUST HUGS MY BACK AND I LOVE IT.I PICK IT UP NEXT > WEEK,THEY ARE PUTTING IN A MOON ROOF AND AUTOMATIC STARTER, NEED THOSE > 2 THINGS..ESPECIALLY THE STARTER FOR THE WINTER WEATHER HERE.. > > MARY PA,HOW ARE YOU DOING? I AM DOING BETTER NOW THAT I GOT MY BOWELS > TO MOVE REGULAR I WAS REALLY HURTING FOR A FEW DAYS BUT HILARY PULLED > ME THROUGH IT AND WE CHANGED MEDS AND I AM DOING ALOT BETTER NOW.I HAVE > BEEN WALKING ABOUT 20-30 MINUTES A DAY.I AM GOING TO ATTEMPT GROCERY > SHOPPING TODAY OF COURSE WITH HUBBY CAUSE I CAN'T DRIVE STILL..OTHER > THAN THAT I STILL FEEL VERY STIFF ESPECIALLY IN THE MORNING BUT IT GETS > BETTER DAILY.YOU SOUND LIKE YOUR DOING GREAT BACK TO WORK FULL TIME AND > ALL.I WAS 4 WEEKS POST-OP YESTERDAY SO I FEEL LIKE I HAVE COME A LONG > WAY SO FAR..BUT I HAVE A WAYS TO GO YET BUT THE LEG PAIN IS GONE AND > THATS THE BEST PART..BEFORE I COULDN'T WALK TO THE CAR WITHOUT THE PAIN > GOING DOWN THE LEG KILLING ME BUT NOT NO MORE I FEEL GREAT AND I NEVER > THOUGHT I COULD WALK 30 MINUTES WITHOUT PAIN..I AM SO GLAD I HAD THESE > SURGERY'S AND FOUND DR.RAND..HE HAS GIVEN ME A BETTER QUALITY OF LIFE > THAT I NEVER THOUGHT I WOULD HAVE HAD BEFORE THE SURGERY'S.SO ALL YOU > GALS WAITING TO GO FOR YOUR STAGE 1 KEEP YOUR HEADS UP CAUSE IT DOES > GET BETTER..GOOD LUCK TO ALL OF YOU..VONNIE > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 Thanks for the encouragement, Vonnie. You had a long wait between stages, but look how well you are recovering. I think I might ask for more than the 10 days Dr. Rand says I need. Congrats on the new car. Doesn't it feel good! Sharon [ ] HI GROUP HI GROUP, I HAVEN'T BEEN ON TOO MUCH LATELY POSTING CAUSE I WAS OUT LOOKING FOR A CAR THAT I CAN SIT IN AND BE COMFORTABLE AND I THINK I BOUGHT THE RIGHT ONE.I BOUGHT A 2004 CHRYLSER PACIFICA AND THE SEATS ARE SO GOOD AND IT JUST HUGS MY BACK AND I LOVE IT.I PICK IT UP NEXT WEEK,THEY ARE PUTTING IN A MOON ROOF AND AUTOMATIC STARTER, NEED THOSE 2 THINGS..ESPECIALLY THE STARTER FOR THE WINTER WEATHER HERE.. MARY PA,HOW ARE YOU DOING? I AM DOING BETTER NOW THAT I GOT MY BOWELS TO MOVE REGULAR I WAS REALLY HURTING FOR A FEW DAYS BUT HILARY PULLED ME THROUGH IT AND WE CHANGED MEDS AND I AM DOING ALOT BETTER NOW.I HAVE BEEN WALKING ABOUT 20-30 MINUTES A DAY.I AM GOING TO ATTEMPT GROCERY SHOPPING TODAY OF COURSE WITH HUBBY CAUSE I CAN'T DRIVE STILL..OTHER THAN THAT I STILL FEEL VERY STIFF ESPECIALLY IN THE MORNING BUT IT GETS BETTER DAILY.YOU SOUND LIKE YOUR DOING GREAT BACK TO WORK FULL TIME AND ALL.I WAS 4 WEEKS POST-OP YESTERDAY SO I FEEL LIKE I HAVE COME A LONG WAY SO FAR..BUT I HAVE A WAYS TO GO YET BUT THE LEG PAIN IS GONE AND THATS THE BEST PART..BEFORE I COULDN'T WALK TO THE CAR WITHOUT THE PAIN GOING DOWN THE LEG KILLING ME BUT NOT NO MORE I FEEL GREAT AND I NEVER THOUGHT I COULD WALK 30 MINUTES WITHOUT PAIN..I AM SO GLAD I HAD THESE SURGERY'S AND FOUND DR.RAND..HE HAS GIVEN ME A BETTER QUALITY OF LIFE THAT I NEVER THOUGHT I WOULD HAVE HAD BEFORE THE SURGERY'S.SO ALL YOU GALS WAITING TO GO FOR YOUR STAGE 1 KEEP YOUR HEADS UP CAUSE IT DOES GET BETTER..GOOD LUCK TO ALL OF YOU..VONNIE scoliosis veterans * flatback sufferers * revision candidates Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 Hi, Andy, see our Menu/files section results. Glad you will be running experiments on Lyme's, seems we are a bit behind on working with it. bG > > Hello group. My name is Andy and I am interested in running my own experiments with the godzilla. I have chronic lyme disease and it is making old injuries that I have more painfull than they should be. I am planning on building the 6V unit. I'll be using the pictues to build the godzilla it self. How exactly do you reverse the poles while using the unit?? I welcome any pointers the vetrens among you might have. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 Reversing poles just switch the pad positions. With Lyme's there's a story in our files I think about someone who uses it on sides of body and just moves them slowly up and down, waiting a few minutes each stop. He swiches positions every few minutes putting pads in reverse of where they were. a switch can be used see the group 2, there should be a switch in one of those photos showing how to wire it. But seems unecessary to me..test it first see if it even has any effects before investing time in it. bG > > Hello group. My name is Andy and I am interested in running my own experiments with the godzilla. I have chronic lyme disease and it is making old injuries that I have more painfull than they should be. I am planning on building the 6V unit. I'll be using the pictues to build the godzilla it self. How exactly do you reverse the poles while using the unit?? I welcome any pointers the vetrens among you might have. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Hi, Crystal. I appreciate your detailed and informative post. I am sorry for all that you have been through. Have you thought of locating one of the revision-surgery " names " -- the doctors we know are not " butchers " -- and going in for a second opinion? It may, in fact -- as you have been told -- be more problematic to remove or shorten the rib than to leave it as it is, but at some point you might want to confirm this with another doctor (other than the osteopath, who I take it mainly does hands-on physical treatments with you). As you may know, it is fairly routine to remove a rib or part of a rib these days when doing flatback revision surgery. Often the rib is useful as graft tissue for the spinal re-fusion or extended fusion. Thankfully internal fixation is almost invariably internal in today's surgeries -- no more cumbersome braces or plaster casts like the ones so many of us confronted in our youth. Best, > > I am 53 years old...Harrington Rod in 1976...Pain and more pain my entire life... > During my last session with injections my Doc found that my bottom rib is 3 times longer than it ought be..He has nevr seen such a thing..This after 40 years of x-rays and surgeries! The rib of course is exactly where my brace and body cast were cinched in. The pain that this has casued for 40 years has been unreal. Removing it is not an option as� it seems it may create more propblems.. > I found a new Doctor..who is an Osteopath. He believes he can help me and after an� ahour and a half of his very gentle treatment I�am much better! I have been to evry sort of Doctor there is..No relief.. " It's in your head " �I could SCREAM..My head is attached to my body!!!!! > I regret ever having had this damn surgery in the first place and wish with all my heart�I had not done so,�I wonder if they know anymore about this now then they did back then. My son works in the Operating Room (First Assist) he has shown me the new segmented hardware... He also has miuch to say about surgeons and their skills. Doctors are not created equally...They are like mechanics some wonderful and talented and others butchers..We as consumers have no way of knowing what kind of surgeon we are getting > until it is too late. > �My heart breaks each time I read here of some young person facing this horrible path..A lifetime of Doctors and� pain... I wish I had not had spinal fusion..the complications and pain have made my life very difficult.. > Sorry for the rant..Love & respect you all so much. > Crystal > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 ,Welcome! You've landed in the right spot, just set back and breathe regularly...This is a great group, with folks from just diagnosed to SVR, in treatment, waiting better stuff from Big Pharma or alternative sources, the whole gamut.I was diagnosed with genotype 2b in '08 and treated for 26 weeks. I'm now SVR, and love to stay active with this group as there's lots of folks like you out there just diagnosed and having somewhere between half a dozen to a ton of questions.There's usually someone around, or if you're more comfortable with your own research, Don's built an incredible links library second to none.Again, welcome, don't hesitate to ask that question or just vent, we're all here for you.SteveCLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett [ ] Hi group Just want to say hello. New to the group and hep c. Haven't started treatment yet but that should come soon. Hope you can help me with info on symtoms and reactions to treatments. Thanks and appreciate the help. Ray Quote Link to comment Share on other sites More sharing options...
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