Jump to content
RemedySpot.com

Hi Group

Rate this topic


Guest guest

Recommended Posts

Guest guest

Hi, Tami, and welcome to the list. Have a question... what is ARVD?

My husband has some serious heart probs,, too, and a recent ICD

inplant. I am always wanting to learn more. Glad to meet you!

Sue

--

" She was not quite what you would call refined.

She was not quite what you would call unrefined.

She was the kind of person that keeps a parrot. "

-- Mark Twain

Rich and Sue Owens

http://www.geocities.com/Yosemite/Meadows/7457/index3.html

Link to comment
Share on other sites

  • 1 year later...
Guest guest

EXPLORING46: SO HOW DO YOU FEEL WITH THE TREATMENTS? I AM CONSIDERING IT AND

WOULD LIKE TO KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE WITH YOU IN YOUR

TRIALS.

LOVE IN HIS LIGHT

SANDY

---------------------------------

Link to comment
Share on other sites

Guest guest

EXPLORING46: SO HOW DO YOU FEEL WITH THE TREATMENTS? I AM CONSIDERING IT AND

WOULD LIKE TO KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE WITH YOU IN YOUR

TRIALS.

LOVE IN HIS LIGHT

SANDY

---------------------------------

Link to comment
Share on other sites

Guest guest

Well considering the other treatments I had PegIntron is definitively better.

No vomiting, little nausea, less pain in the body. only one shot a week. Hey

and the best part the probabilities went up to 85%. Thinks are getting better

do it with faith and hope. I know it will be OK

Sandy Booton <ibsandy77@...> wrote:

EXPLORING46: SO HOW DO YOU FEEL WITH THE TREATMENTS? I AM CONSIDERING IT AND

WOULD LIKE TO KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE WITH YOU IN YOUR

TRIALS.

LOVE IN HIS LIGHT

SANDY

---------------------------------

Link to comment
Share on other sites

Guest guest

Well considering the other treatments I had PegIntron is definitively better.

No vomiting, little nausea, less pain in the body. only one shot a week. Hey

and the best part the probabilities went up to 85%. Thinks are getting better

do it with faith and hope. I know it will be OK

Sandy Booton <ibsandy77@...> wrote:

EXPLORING46: SO HOW DO YOU FEEL WITH THE TREATMENTS? I AM CONSIDERING IT AND

WOULD LIKE TO KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE WITH YOU IN YOUR

TRIALS.

LOVE IN HIS LIGHT

SANDY

---------------------------------

Link to comment
Share on other sites

Guest guest

Lizi,

I have a question for you. Did you try other

treatments before Peg? I know the combo is similar to

the Peg. That is why it frightens me. Just wondering

if you tried that first?

Thanks, Dana

--- LIZI SANTIAGO <bloomingeagle@...> wrote:

>

> Well considering the other treatments I had

> PegIntron is definitively better. No vomiting,

> little nausea, less pain in the body. only one shot

> a week. Hey and the best part the probabilities

> went up to 85%. Thinks are getting better do it

> with faith and hope. I know it will be OK

> Sandy Booton <ibsandy77@...> wrote:

> EXPLORING46: SO HOW DO YOU FEEL WITH THE

> TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO

> KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE

> WITH YOU IN YOUR TRIALS.

>

> LOVE IN HIS LIGHT

>

> SANDY

>

>

>

> ---------------------------------

>

Link to comment
Share on other sites

Guest guest

Lizi,

I have a question for you. Did you try other

treatments before Peg? I know the combo is similar to

the Peg. That is why it frightens me. Just wondering

if you tried that first?

Thanks, Dana

--- LIZI SANTIAGO <bloomingeagle@...> wrote:

>

> Well considering the other treatments I had

> PegIntron is definitively better. No vomiting,

> little nausea, less pain in the body. only one shot

> a week. Hey and the best part the probabilities

> went up to 85%. Thinks are getting better do it

> with faith and hope. I know it will be OK

> Sandy Booton <ibsandy77@...> wrote:

> EXPLORING46: SO HOW DO YOU FEEL WITH THE

> TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO

> KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE

> WITH YOU IN YOUR TRIALS.

>

> LOVE IN HIS LIGHT

>

> SANDY

>

>

>

> ---------------------------------

>

Link to comment
Share on other sites

  • 4 weeks later...
Guest guest

Dana, I started just with interferon 3 shots a week. then moved to Rebetron (

combination) pills twice a day and then 3 shots a week. Those two were murder.

The peg is only 1 weekly shots and the pills(rebetol) according to the weight.

The side effects are mild comparing to the others. One thing in common is the

ups and downs. not 2 days are the same and this time I am hit more often with

deppression. But all in all we can handle it. I tried to forget all the other

bad things, but my family also agree that this time is better. Always remember

that the first shot is the worst. Get a lot of support and will to get through

that one and the rest is smooth sailing( a feww hard waves, but overall iOK)

lizi

xxx ooo <spiria_spirit@...> wrote: Lizi,

I have a question for you. Did you try other

treatments before Peg? I know the combo is similar to

the Peg. That is why it frightens me. Just wondering

if you tried that first?

Thanks, Dana

--- LIZI SANTIAGO <bloomingeagle@...> wrote:

>

> Well considering the other treatments I had

> PegIntron is definitively better. No vomiting,

> little nausea, less pain in the body. only one shot

> a week. Hey and the best part the probabilities

> went up to 85%. Thinks are getting better do it

> with faith and hope. I know it will be OK

> Sandy Booton <ibsandy77@...> wrote:

> EXPLORING46: SO HOW DO YOU FEEL WITH THE

> TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO

> KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE

> WITH YOU IN YOUR TRIALS.

>

> LOVE IN HIS LIGHT

>

> SANDY

>

>

>

> ---------------------------------

>

Link to comment
Share on other sites

Guest guest

Dana, I started just with interferon 3 shots a week. then moved to Rebetron (

combination) pills twice a day and then 3 shots a week. Those two were murder.

The peg is only 1 weekly shots and the pills(rebetol) according to the weight.

The side effects are mild comparing to the others. One thing in common is the

ups and downs. not 2 days are the same and this time I am hit more often with

deppression. But all in all we can handle it. I tried to forget all the other

bad things, but my family also agree that this time is better. Always remember

that the first shot is the worst. Get a lot of support and will to get through

that one and the rest is smooth sailing( a feww hard waves, but overall iOK)

lizi

xxx ooo <spiria_spirit@...> wrote: Lizi,

I have a question for you. Did you try other

treatments before Peg? I know the combo is similar to

the Peg. That is why it frightens me. Just wondering

if you tried that first?

Thanks, Dana

--- LIZI SANTIAGO <bloomingeagle@...> wrote:

>

> Well considering the other treatments I had

> PegIntron is definitively better. No vomiting,

> little nausea, less pain in the body. only one shot

> a week. Hey and the best part the probabilities

> went up to 85%. Thinks are getting better do it

> with faith and hope. I know it will be OK

> Sandy Booton <ibsandy77@...> wrote:

> EXPLORING46: SO HOW DO YOU FEEL WITH THE

> TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO

> KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE

> WITH YOU IN YOUR TRIALS.

>

> LOVE IN HIS LIGHT

>

> SANDY

>

>

>

> ---------------------------------

>

Link to comment
Share on other sites

Guest guest

my first shot was not the worst they have all been, WORSE! the thing is I take

them on Friday night and I don't feel bad till Monday. then thursday I start

feeling a little better!

CAROL

Dear Lord, Either Quiet The Waves

Or Lift Me Above Them;

It's Too Late To Learn To Swim.

Crowley

Link to comment
Share on other sites

Guest guest

my first shot was not the worst they have all been, WORSE! the thing is I take

them on Friday night and I don't feel bad till Monday. then thursday I start

feeling a little better!

CAROL

Dear Lord, Either Quiet The Waves

Or Lift Me Above Them;

It's Too Late To Learn To Swim.

Crowley

Link to comment
Share on other sites

Guest guest

Lizi,

Thank you for responding. I keep getting from the

doctors that since I could not handle the combo and

had hard time with just Interferon, that Peg would be

the same. One doctor told me that too many tials with

Interferon could make me Immune to it. Have you or

anyone else heard of that?? I go to the GI in July

for second opinion. Have been throught the ringer

with different Specialist. Just getting so tired of

the whole mess!!! Requested 3 times for a referal to

go to an Acupunture Doctor. Can you believe I still

have not heard from my MD? I guess I am going to half

to go there in person and raise H... Again just to get

a responce!! Thank you Dana

--- LIZI SANTIAGO <bloomingeagle@...> wrote:

>

> Dana, I started just with interferon 3 shots a

> week. then moved to Rebetron ( combination) pills

> twice a day and then 3 shots a week. Those two were

> murder. The peg is only 1 weekly shots and the

> pills(rebetol) according to the weight. The side

> effects are mild comparing to the others. One thing

> in common is the ups and downs. not 2 days are the

> same and this time I am hit more often with

> deppression. But all in all we can handle it. I

> tried to forget all the other bad things, but my

> family also agree that this time is better. Always

> remember that the first shot is the worst. Get a

> lot of support and will to get through that one and

> the rest is smooth sailing( a feww hard waves, but

> overall iOK)

> lizi

> xxx ooo <spiria_spirit@...> wrote: Lizi,

>

> I have a question for you. Did you try other

> treatments before Peg? I know the combo is similar

> to

> the Peg. That is why it frightens me. Just

> wondering

> if you tried that first?

> Thanks, Dana

> --- LIZI SANTIAGO <bloomingeagle@...> wrote:

> >

> > Well considering the other treatments I had

> > PegIntron is definitively better. No vomiting,

> > little nausea, less pain in the body. only one

> shot

> > a week. Hey and the best part the probabilities

> > went up to 85%. Thinks are getting better do it

> > with faith and hope. I know it will be OK

> > Sandy Booton <ibsandy77@...> wrote:

> > EXPLORING46: SO HOW DO YOU FEEL WITH THE

> > TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO

> > KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE

> > WITH YOU IN YOUR TRIALS.

> >

> > LOVE IN HIS LIGHT

> >

> > SANDY

> >

> >

> >

> > ---------------------------------

> >

Link to comment
Share on other sites

Guest guest

Lizi,

Thank you for responding. I keep getting from the

doctors that since I could not handle the combo and

had hard time with just Interferon, that Peg would be

the same. One doctor told me that too many tials with

Interferon could make me Immune to it. Have you or

anyone else heard of that?? I go to the GI in July

for second opinion. Have been throught the ringer

with different Specialist. Just getting so tired of

the whole mess!!! Requested 3 times for a referal to

go to an Acupunture Doctor. Can you believe I still

have not heard from my MD? I guess I am going to half

to go there in person and raise H... Again just to get

a responce!! Thank you Dana

--- LIZI SANTIAGO <bloomingeagle@...> wrote:

>

> Dana, I started just with interferon 3 shots a

> week. then moved to Rebetron ( combination) pills

> twice a day and then 3 shots a week. Those two were

> murder. The peg is only 1 weekly shots and the

> pills(rebetol) according to the weight. The side

> effects are mild comparing to the others. One thing

> in common is the ups and downs. not 2 days are the

> same and this time I am hit more often with

> deppression. But all in all we can handle it. I

> tried to forget all the other bad things, but my

> family also agree that this time is better. Always

> remember that the first shot is the worst. Get a

> lot of support and will to get through that one and

> the rest is smooth sailing( a feww hard waves, but

> overall iOK)

> lizi

> xxx ooo <spiria_spirit@...> wrote: Lizi,

>

> I have a question for you. Did you try other

> treatments before Peg? I know the combo is similar

> to

> the Peg. That is why it frightens me. Just

> wondering

> if you tried that first?

> Thanks, Dana

> --- LIZI SANTIAGO <bloomingeagle@...> wrote:

> >

> > Well considering the other treatments I had

> > PegIntron is definitively better. No vomiting,

> > little nausea, less pain in the body. only one

> shot

> > a week. Hey and the best part the probabilities

> > went up to 85%. Thinks are getting better do it

> > with faith and hope. I know it will be OK

> > Sandy Booton <ibsandy77@...> wrote:

> > EXPLORING46: SO HOW DO YOU FEEL WITH THE

> > TREATMENTS? I AM CONSIDERING IT AND WOULD LIKE TO

> > KNOW ALL I CAN. THANKS FOR YOUR TIME AND GOD BE

> > WITH YOU IN YOUR TRIALS.

> >

> > LOVE IN HIS LIGHT

> >

> > SANDY

> >

> >

> >

> > ---------------------------------

> >

Link to comment
Share on other sites

  • 4 months later...

You mean to tell me that I am supposed to remember your old ID when I cant even

remember my last name sometimes...LOL...I dont know why but I want to say

eploring46....dont tell me I am wrong or I might forget that too...LOL....or

Dove something even...man you are making this hard.....ok...I give up..what was

it?

Love and Hugs

Sandy

xploring47 <xploring47@...> wrote:not really a new member, just a new

i.d. can anyone guess what i

used before?

Link to comment
Share on other sites

  • 3 years later...

Documents. Lots of solid facts. Someone capable to review the documents

along side of the laws that govern the area in which the doctors practice.

Everything legal and above reproach, this is critical and must be done.

Jim

How would I go about linking two foreign medical dox

for conspiricy of mal practice ?

Ideas ???

Link to comment
Share on other sites

No forget that, the documents have already been modified.

The second doc was in cahoots with the first doc , three pharm co salesmen,

and what looked to be a rookie fed , or one of their rejects?.

I called back, and the woman who took care of the records had resigned.

I got out of the conspiracy , before any more damage was done.

I guess its good enough to survive it, if there isnt any documentation.

Thanks ,

Jim <mofunnow@...> wrote:

Documents. Lots of solid facts. Someone capable to review the documents

along side of the laws that govern the area in which the doctors practice.

Everything legal and above reproach, this is critical and must be done.

Jim

How would I go about linking two foreign medical dox

for conspiricy of mal practice ?

Ideas ???

Link to comment
Share on other sites

Walking away with your skin is a beautiful thing!!

No forget that, the documents have already been modified.

The second doc was in cahoots with the first doc , three pharm co

salesmen,

and what looked to be a rookie fed , or one of their rejects?.

I called back, and the woman who took care of the records had resigned.

I got out of the conspiracy , before any more damage was done.

I guess its good enough to survive it, if there isnt any documentation.

Thanks ,

Jim <mofunnow@...> wrote:

Documents. Lots of solid facts. Someone capable to review the documents

along side of the laws that govern the area in which the doctors practice.

Everything legal and above reproach, this is critical and must be done.

Jim

How would I go about linking two foreign medical dox

for conspiricy of mal practice ?

Ideas ???

Link to comment
Share on other sites

  • 4 months later...
Guest guest

Wow! Vonnie, it is great to hear that already you are experiencing a better quality of life, and it is not all that long after your surgeries. So happy to hear it!

Kim

In a message dated 5/27/06 9:27:52 AM, vonniec20032000@... writes:

HI GROUP, I HAVEN'T BEEN ON TOO MUCH LATELY POSTING CAUSE I WAS OUT

LOOKING FOR A CAR THAT I CAN SIT IN AND BE COMFORTABLE AND I THINK I

BOUGHT THE RIGHT ONE.I BOUGHT A 2004 CHRYLSER PACIFICA AND THE SEATS

ARE SO GOOD AND IT JUST HUGS MY BACK AND I LOVE IT.I PICK IT UP NEXT

WEEK,THEY ARE PUTTING IN A MOON ROOF AND AUTOMATIC STARTER, NEED THOSE

2 THINGS..ESPECIALLY THE STARTER FOR THE WINTER WEATHER HERE..

MARY PA,HOW ARE YOU DOING? I AM DOING BETTER NOW THAT I GOT MY BOWELS

TO MOVE REGULAR I WAS REALLY HURTING FOR A FEW DAYS BUT HILARY PULLED

ME THROUGH IT AND WE CHANGED MEDS AND I AM DOING ALOT BETTER NOW.I HAVE

BEEN WALKING ABOUT 20-30 MINUTES A DAY.I AM GOING TO ATTEMPT GROCERY

SHOPPING TODAY OF COURSE WITH HUBBY CAUSE I CAN'T DRIVE STILL..OTHER

THAN THAT I STILL FEEL VERY STIFF ESPECIALLY IN THE MORNING BUT IT GETS

BETTER DAILY.YOU SOUND LIKE YOUR DOING GREAT BACK TO WORK FULL TIME AND

ALL.I WAS 4 WEEKS POST-OP YESTERDAY SO I FEEL LIKE I HAVE COME A LONG

WAY SO FAR..BUT I HAVE A WAYS TO GO YET BUT THE LEG PAIN IS GONE AND

THATS THE BEST PART..BEFORE I COULDN'T WALK TO THE CAR WITHOUT THE PAIN

GOING DOWN THE LEG KILLING ME BUT NOT NO MORE I FEEL GREAT AND I NEVER

THOUGHT I COULD WALK 30 MINUTES WITHOUT PAIN..I AM SO GLAD I HAD THESE

SURGERY'S AND FOUND DR.RAND..HE HAS GIVEN ME A BETTER QUALITY OF LIFE

THAT I NEVER THOUGHT I WOULD HAVE HAD BEFORE THE SURGERY'S.SO ALL YOU

GALS WAITING TO GO FOR YOUR STAGE 1 KEEP YOUR HEADS UP CAUSE IT DOES

GET BETTER..GOOD LUCK TO ALL OF YOU..VONNIE

Link to comment
Share on other sites

Guest guest

--Vonnie,

Glad to hear your good news. Yes, as you can see it gets better and

better all the time. As I said in my ealrier post today...I felt

frozen, thawing more and more each day...I also do alot of " kicking

the ham into the middle of the room.. " , I just don;t want to waste a

good bend on picking up things that are just not worth the extreme

effort it takes to do that move....now if it was a ten dollar

bill...I might make the bend to the floor but not for a pound of

ham...I guess you could say " I pick and choose my bends " ...kind of

like battles....Glad you found a car that works..I know how

frustrating that is..when I drive my son's car, 1989 Volvo wagon, I

can;t just jump in it.I must bend down and put my head in first and

glide in..I look so stupid.....I try never to drive his car..but

sometimes I am too lazy to jockey cars around if I want to run to the

store......

Cam, I might call Priscilla to see if I can get permission to do PT

or at least those things you described, I remember doing them after

was born. I am eager to be more flexable..if I could say one

thing that has frustrated me about this surgery it is the restriction

on being flexable..I find it very frustrating.....sometime I find

myself thinkning about the days I could touch my toes, grab soemthing

off the floor without a blink of an eye....but then I remember the

awful scaitic pain and I say " I don't care if I can't pick that

up " ..there are always trade offs, so I guess this is it...., PA

- In , " Vonnie " <vonniec20032000@...>

wrote:

>

> HI GROUP, I HAVEN'T BEEN ON TOO MUCH LATELY POSTING CAUSE I WAS OUT

> LOOKING FOR A CAR THAT I CAN SIT IN AND BE COMFORTABLE AND I THINK

I

> BOUGHT THE RIGHT ONE.I BOUGHT A 2004 CHRYLSER PACIFICA AND THE

SEATS

> ARE SO GOOD AND IT JUST HUGS MY BACK AND I LOVE IT.I PICK IT UP

NEXT

> WEEK,THEY ARE PUTTING IN A MOON ROOF AND AUTOMATIC STARTER, NEED

THOSE

> 2 THINGS..ESPECIALLY THE STARTER FOR THE WINTER WEATHER HERE..

>

> MARY PA,HOW ARE YOU DOING? I AM DOING BETTER NOW THAT I GOT MY

BOWELS

> TO MOVE REGULAR I WAS REALLY HURTING FOR A FEW DAYS BUT HILARY

PULLED

> ME THROUGH IT AND WE CHANGED MEDS AND I AM DOING ALOT BETTER NOW.I

HAVE

> BEEN WALKING ABOUT 20-30 MINUTES A DAY.I AM GOING TO ATTEMPT

GROCERY

> SHOPPING TODAY OF COURSE WITH HUBBY CAUSE I CAN'T DRIVE

STILL..OTHER

> THAN THAT I STILL FEEL VERY STIFF ESPECIALLY IN THE MORNING BUT IT

GETS

> BETTER DAILY.YOU SOUND LIKE YOUR DOING GREAT BACK TO WORK FULL TIME

AND

> ALL.I WAS 4 WEEKS POST-OP YESTERDAY SO I FEEL LIKE I HAVE COME A

LONG

> WAY SO FAR..BUT I HAVE A WAYS TO GO YET BUT THE LEG PAIN IS GONE

AND

> THATS THE BEST PART..BEFORE I COULDN'T WALK TO THE CAR WITHOUT THE

PAIN

> GOING DOWN THE LEG KILLING ME BUT NOT NO MORE I FEEL GREAT AND I

NEVER

> THOUGHT I COULD WALK 30 MINUTES WITHOUT PAIN..I AM SO GLAD I HAD

THESE

> SURGERY'S AND FOUND DR.RAND..HE HAS GIVEN ME A BETTER QUALITY OF

LIFE

> THAT I NEVER THOUGHT I WOULD HAVE HAD BEFORE THE SURGERY'S.SO ALL

YOU

> GALS WAITING TO GO FOR YOUR STAGE 1 KEEP YOUR HEADS UP CAUSE IT

DOES

> GET BETTER..GOOD LUCK TO ALL OF YOU..VONNIE

>

Link to comment
Share on other sites

Guest guest

Thanks for the encouragement, Vonnie. You had a long wait between stages,

but look how well you are recovering. I think I might ask for more than the

10 days Dr. Rand says I need.

Congrats on the new car. Doesn't it feel good!

Sharon

[ ] HI GROUP

HI GROUP, I HAVEN'T BEEN ON TOO MUCH LATELY POSTING CAUSE I WAS OUT

LOOKING FOR A CAR THAT I CAN SIT IN AND BE COMFORTABLE AND I THINK I

BOUGHT THE RIGHT ONE.I BOUGHT A 2004 CHRYLSER PACIFICA AND THE SEATS

ARE SO GOOD AND IT JUST HUGS MY BACK AND I LOVE IT.I PICK IT UP NEXT

WEEK,THEY ARE PUTTING IN A MOON ROOF AND AUTOMATIC STARTER, NEED THOSE

2 THINGS..ESPECIALLY THE STARTER FOR THE WINTER WEATHER HERE..

MARY PA,HOW ARE YOU DOING? I AM DOING BETTER NOW THAT I GOT MY BOWELS

TO MOVE REGULAR I WAS REALLY HURTING FOR A FEW DAYS BUT HILARY PULLED

ME THROUGH IT AND WE CHANGED MEDS AND I AM DOING ALOT BETTER NOW.I HAVE

BEEN WALKING ABOUT 20-30 MINUTES A DAY.I AM GOING TO ATTEMPT GROCERY

SHOPPING TODAY OF COURSE WITH HUBBY CAUSE I CAN'T DRIVE STILL..OTHER

THAN THAT I STILL FEEL VERY STIFF ESPECIALLY IN THE MORNING BUT IT GETS

BETTER DAILY.YOU SOUND LIKE YOUR DOING GREAT BACK TO WORK FULL TIME AND

ALL.I WAS 4 WEEKS POST-OP YESTERDAY SO I FEEL LIKE I HAVE COME A LONG

WAY SO FAR..BUT I HAVE A WAYS TO GO YET BUT THE LEG PAIN IS GONE AND

THATS THE BEST PART..BEFORE I COULDN'T WALK TO THE CAR WITHOUT THE PAIN

GOING DOWN THE LEG KILLING ME BUT NOT NO MORE I FEEL GREAT AND I NEVER

THOUGHT I COULD WALK 30 MINUTES WITHOUT PAIN..I AM SO GLAD I HAD THESE

SURGERY'S AND FOUND DR.RAND..HE HAS GIVEN ME A BETTER QUALITY OF LIFE

THAT I NEVER THOUGHT I WOULD HAVE HAD BEFORE THE SURGERY'S.SO ALL YOU

GALS WAITING TO GO FOR YOUR STAGE 1 KEEP YOUR HEADS UP CAUSE IT DOES

GET BETTER..GOOD LUCK TO ALL OF YOU..VONNIE

scoliosis veterans * flatback sufferers * revision candidates

Link to comment
Share on other sites

  • 2 years later...
Guest guest

Hi, Andy, see our Menu/files section results. Glad you will be running

experiments on Lyme's, seems we are a bit behind on working with it.

bG

>

> Hello group. My name is Andy and I am interested in running my own

experiments with the godzilla. I have chronic lyme disease and it is making

old injuries that I have more painfull than they should be. I am planning on

building the 6V unit. I'll be using the pictues to build the godzilla it self.

How exactly do you reverse the poles while using the unit?? I welcome any

pointers the vetrens among you might have. Thanks.

>

Link to comment
Share on other sites

Guest guest

Reversing poles just switch the pad positions. With Lyme's there's a story in

our files I think about someone who uses it on sides of body and just moves them

slowly up and down, waiting a few minutes each stop. He swiches positions every

few minutes putting pads in reverse of where they were.

a switch can be used see the group 2, there should be

a switch in one of those photos showing how to wire it. But seems unecessary to

me..test it first see if it even has any effects before investing time in it.

bG

>

> Hello group. My name is Andy and I am interested in running my own

experiments with the godzilla. I have chronic lyme disease and it is making

old injuries that I have more painfull than they should be. I am planning on

building the 6V unit. I'll be using the pictues to build the godzilla it self.

How exactly do you reverse the poles while using the unit?? I welcome any

pointers the vetrens among you might have. Thanks.

>

Link to comment
Share on other sites

  • 1 year later...
Guest guest

Hi, Crystal. I appreciate your detailed and informative post. I am sorry

for all that you have been through.

Have you thought of locating one of the revision-surgery " names " -- the

doctors we know are not " butchers " -- and going in for a second opinion?

It may, in fact -- as you have been told -- be more problematic to

remove or shorten the rib than to leave it as it is, but at some point

you might want to confirm this with another doctor (other than the

osteopath, who I take it mainly does hands-on physical treatments with

you). As you may know, it is fairly routine to remove a rib or part of

a rib these days when doing flatback revision surgery. Often the rib is

useful as graft tissue for the spinal re-fusion or extended fusion.

Thankfully internal fixation is almost invariably internal in today's

surgeries -- no more cumbersome braces or plaster casts like the ones so

many of us confronted in our youth.

Best,

>

> I am 53 years old...Harrington Rod in 1976...Pain and more pain my

entire life...

> During my last session with injections my Doc found that my bottom rib

is 3 times longer than it ought be..He has nevr seen such a thing..This

after 40 years of x-rays and surgeries! The rib of course is exactly

where my brace and body cast were cinched in. The pain that this has

casued for 40 years has been unreal. Removing it is not an option

as� it seems it may create more propblems..

> I found a new Doctor..who is an Osteopath. He believes he can help me

and after an� ahour and a half of his very gentle treatment

I�am much better! I have been to evry sort of Doctor there is..No

relief.. " It's in your head " �I could SCREAM..My head is attached to

my body!!!!!

> I regret ever having had this damn surgery in the first place and wish

with all my heart�I had not done so,�I wonder if they know

anymore about this now then they did back then. My son works in the

Operating Room (First Assist) he has shown me the new segmented

hardware... He also has miuch to say about surgeons and their skills.

Doctors are not created equally...They are like mechanics some wonderful

and talented and others butchers..We as consumers have no way of knowing

what kind of surgeon we are getting

> until it is too late.

> �My heart breaks each time I read here of some young person

facing this horrible path..A lifetime of Doctors and� pain... I

wish I had not had spinal fusion..the complications and pain have made

my life very difficult..

> Sorry for the rant..Love & respect you all so much.

> Crystal

>

Link to comment
Share on other sites

  • 4 months later...

,Welcome! You've landed in the right spot, just set back and breathe regularly...This is a great group, with folks from just diagnosed to SVR, in treatment, waiting better stuff from Big Pharma or alternative sources, the whole gamut.I was diagnosed with genotype 2b in '08 and treated for 26 weeks. I'm now SVR, and love to stay active with this group as there's lots of folks like you out there just diagnosed and having somewhere between half a dozen to a ton of questions.There's usually someone around, or if you're more comfortable with your own research, Don's built an incredible links library second to none.Again, welcome, don't hesitate to ask that question or just vent, we're all here for you.SteveCLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett [ ] Hi group

Just want to say hello. New to the group and hep c. Haven't started treatment yet but that should come soon. Hope you can help me with info on symtoms and reactions to treatments. Thanks and appreciate the help.

Ray

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...