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- you're right, six weeks may not " cure " it.

But I think this is the recommended course to start

with to see if symptoms improve.

I'll let the group know how it goes. Best, Jennie

--- paleotechnics@... wrote:

> I didn't mean to imply that I think 6 weeks of

> doxicycline will kill

> lyme disease. That's what I was told, but from all

> the chronic lyme

> cases out there, I think this can't always be true.

snip

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  • 10 years later...
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Steve,

Don't you dare give up.  I also started treatment in October of 2009 I was

beyond a mess.  My initial worst symptoms were bilateral ear pressure, extreme

digestive issues; with bloating and pain. cognitive issues, extreme joint pain,

low grade fevers just to name a few.  I did have a PICC line for 7 months

inwhich I received antibioitcs for 4 of those months and then other things to

boost my immune system.  I am now 90% better, I think.  Still doing antibioitcs

orally.  I have had terrible Candida and this was even prior to antibioitc

treatment and still deal with it.  If you have gut issues it's very likely you

may have Bartonella.  I had Bartonella, Babesia, Erilichiosis, and Lyme.  I took

16 weeks of Rifampin then 50 days of Levoquin daily at higher doses and now just

completeing Bactrim DS two daily for 2 months.  I have not had any Bartonella

symptoms since Early December.  We worked at reducing the Lyme first and

Erilichiosis, then evaluated other symptoms and moved on from there.  It seems

to me (and I am not a doctor, but a nurse and my whold family has been infected)

that your dosages are not high enough and long enough.  Potential coinfections

that yuou may have treated with some Levoquin, hasn't even scratched the

surface.  I hope that your new LLMD will step it up.  It does take a while and

can be rather frustrating, but I am living proof that treatment can work.  Make

sure you are taking probioitcs at least 2-3 per day 3-4 hours away from you

antibiotics.  If you have serious food allergies/sensitivities, it may be worth

considering a PICC line to give your gut a rest.

Thinking about you and please continue to post your questions or concerns and

feel free to privately email me off the board as well.  Best of luck with your

new LLMD.

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Thank you ! you are an encouragement! I come here to be encouraged.

Yes, I too have seen improvement with all my treatments but I get discouraged

too because I don't know when I can get a job, if I will be able to garden and

do my volunteer work.

I got a resistant/persistant form of Lyme in July 2010, went directly to my

brain, tick bite on the head, one reason I didn't see the rash. I don't know if

I am 70% recovered but I am better.

>

> Steve,

>

> Don't you dare give up.  I also started treatment in October of 2009 I was

> beyond a mess.  My initial worst symptoms were bilateral ear pressure, extreme

> digestive issues; with bloating and pain. cognitive issues, extreme joint

pain,

> low grade fevers just to name a few.  I did have a PICC line for 7 months

> inwhich I received antibioitcs for 4 of those months and then other things to

> boost my immune system.  I am now 90% better, I think.  Still doing

antibioitcs

> orally.  I have had terrible Candida and this was even prior to antibioitc

> treatment and still deal with it.  If you have gut issues it's very likely you

> may have Bartonella.  I had Bartonella, Babesia, Erilichiosis, and Lyme.  I

took

> 16 weeks of Rifampin then 50 days of Levoquin daily at higher doses and now

just

> completeing Bactrim DS two daily for 2 months.  I have not had any Bartonella

> symptoms since Early December.  We worked at reducing the Lyme first and

> Erilichiosis, then evaluated other symptoms and moved on from there.  It seems

> to me (and I am not a doctor, but a nurse and my whold family has been

infected)

> that your dosages are not high enough and long enough.  Potential coinfections

> that yuou may have treated with some Levoquin, hasn't even scratched the

> surface.  I hope that your new LLMD will step it up.  It does take a while and

> can be rather frustrating, but I am living proof that treatment can work. 

Make

> sure you are taking probioitcs at least 2-3 per day 3-4 hours away from you

> antibiotics.  If you have serious food allergies/sensitivities, it may be

worth

> considering a PICC line to give your gut a rest.

>

> Thinking about you and please continue to post your questions or concerns and

> feel free to privately email me off the board as well.  Best of luck with your

> new LLMD.

>

>

>

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