Re: Possible new diagnosis, what do I ask?

[Guest guest]

Yes, there is hope! Your next step would be to find an LLMD (Lyme literate

medical doctor) to work with.

Good luck!

On Fri, Feb 25, 2011 at 12:41 AM, eriklesley@... <

eriklesley@...> wrote:

>

>

> I am expecting to get final blood work back in about 4 weeks and fully

> expect that my 15 year old daughter has lyme disease. If so she has had it

> for 3 years, just developing symptoms slowly and of course doctors have

> misdiagnosed her multiple times.

> She began by having syncope episodes three years ago, next came knee pain,

> slowly fatigue sat in, and now she has back pain and muscle cramping during

> soccer games or running.

> I know you probably get sick of the newbies asking for info, but I have

> found so much of the info out there confusing, and nothing about treatment

> after such a long period of time.

> My question is for you the experts.

> Is there any hope for treatment after three years? If so, where do I go to

> find more info.

> Thank you for giving me direction on where to look.

>

>

>

--

L. Richey, MD, ND, BCIM

The Healthy Path, LLC

http://www.the-healthy-path.org

http://www.autism-in-the-christian-home.com

GOT HEALTH?

Sweet Creations Alpaca Farm, LLC

http://www.sweet-creations-alpaca-farm.org

GOT ALPACAS?

[Guest guest]

The news is better than you might think.

One: I had Lyme for 23 years before being diagnosed. Following two years of

treatment, I'm now in a very solid remission, and on my way to 100%. If I got

better after all that time, it's possible for anyone.

Two: My son was diagnosed with Lyme at 15. He may have gotten it from me in

utero, or as a small child (we lived in an endemic area). Our LLMD treated it

far less aggressively than he treated mine: his experience is that teenagers

have far more robust immune systems, and make much better recoveries than adults

-- even if they've had it all their lives. My son isn't crippled by it by any

means -- he's a lively kid -- but we are watching to make sure that further

symptoms don't present as he gets older.

If you don't have an LLMD, your first order of business is to find one. You

certainly don't want to waste time doing half-measures or wrangling with doctors

who don't really understand what they're up against.

Sara

On Feb 24, 2011, at 7:41 05PM, eriklesley@... wrote:

> I am expecting to get final blood work back in about 4 weeks and fully expect

that my 15 year old daughter has lyme disease. If so she has had it for 3

years, just developing symptoms slowly and of course doctors have misdiagnosed

her multiple times.

> She began by having syncope episodes three years ago, next came knee pain,

slowly fatigue sat in, and now she has back pain and muscle cramping during

soccer games or running.

> I know you probably get sick of the newbies asking for info, but I have found

so much of the info out there confusing, and nothing about treatment after such

a long period of time.

> My question is for you the experts.

> Is there any hope for treatment after three years? If so, where do I go to

find more info.

> Thank you for giving me direction on where to look.

>

>

>

>

> ------------------------------------

>

> Lyme Disease News continually updated from thousands of sources around the

> net: http://www.topix.net/health/lyme-disease

>

> MedWorm: The latest items on: Lyme Disease

> http://tinyurl.com/23dgy8

>

[Guest guest]

sara..how did yuo treat to regain health..with who, how long? did you have

kidney probs?? please enlighten me..thanks..leanne

From: srobinson@...

Date: Fri, 25 Feb 2011 17:14:44 -1000

Subject: Re: [ ] Possible new diagnosis, what do I ask?

The news is better than you might think.

One: I had Lyme for 23 years before being diagnosed. Following two years of

treatment, I'm now in a very solid remission, and on my way to 100%. If I got

better after all that time, it's possible for anyone.

Two: My son was diagnosed with Lyme at 15. He may have gotten it from me in

utero, or as a small child (we lived in an endemic area). Our LLMD treated it

far less aggressively than he treated mine: his experience is that teenagers

have far more robust immune systems, and make much better recoveries than adults

-- even if they've had it all their lives. My son isn't crippled by it by any

means -- he's a lively kid -- but we are watching to make sure that further

symptoms don't present as he gets older.

If you don't have an LLMD, your first order of business is to find one. You

certainly don't want to waste time doing half-measures or wrangling with doctors

who don't really understand what they're up against.

Sara

On Feb 24, 2011, at 7:41 05PM, eriklesley@... wrote:

> I am expecting to get final blood work back in about 4 weeks and fully expect

that my 15 year old daughter has lyme disease. If so she has had it for 3 years,

just developing symptoms slowly and of course doctors have misdiagnosed her

multiple times.

> She began by having syncope episodes three years ago, next came knee pain,

slowly fatigue sat in, and now she has back pain and muscle cramping during

soccer games or running.

> I know you probably get sick of the newbies asking for info, but I have found

so much of the info out there confusing, and nothing about treatment after such

a long period of time.

> My question is for you the experts.

> Is there any hope for treatment after three years? If so, where do I go to

find more info.

> Thank you for giving me direction on where to look.

>

>

>

>

> ------------------------------------

>

> Lyme Disease News continually updated from thousands of sources around the

> net: http://www.topix.net/health/lyme-disease

>

> MedWorm: The latest items on: Lyme Disease

> http://tinyurl.com/23dgy8

>

[Guest guest]

Thanks ! I always know are the best route for info!

>

> >

> >

> > I am expecting to get final blood work back in about 4 weeks and fully

> > expect that my 15 year old daughter has lyme disease. If so she has had it

> > for 3 years, just developing symptoms slowly and of course doctors have

> > misdiagnosed her multiple times.

> > She began by having syncope episodes three years ago, next came knee pain,

> > slowly fatigue sat in, and now she has back pain and muscle cramping during

> > soccer games or running.

> > I know you probably get sick of the newbies asking for info, but I have

> > found so much of the info out there confusing, and nothing about treatment

> > after such a long period of time.

> > My question is for you the experts.

> > Is there any hope for treatment after three years? If so, where do I go to

> > find more info.

> > Thank you for giving me direction on where to look.

> >

> >

> >

>

>

>

> --

> L. Richey, MD, ND, BCIM

>

> The Healthy Path, LLC

> http://www.the-healthy-path.org

> http://www.autism-in-the-christian-home.com

> GOT HEALTH?

>

> Sweet Creations Alpaca Farm, LLC

> http://www.sweet-creations-alpaca-farm.org

> GOT ALPACAS?

>

>

>

[Guest guest]

Thank you Sara, I feel so encouraged by your email!  Looking now for a LLMD

now....didn't know they existed

Wishing continued healing for you both!

Lesley

________________________________

From: Sara <srobinson@...>

Sent: Fri, February 25, 2011 9:14:44 PM

Subject: Re: [ ] Possible new diagnosis, what do I ask?

 

The news is better than you might think.

One: I had Lyme for 23 years before being diagnosed. Following two years of

treatment, I'm now in a very solid remission, and on my way to 100%. If I got

better after all that time, it's possible for anyone.

Two: My son was diagnosed with Lyme at 15. He may have gotten it from me in

utero, or as a small child (we lived in an endemic area). Our LLMD treated it

far less aggressively than he treated mine: his experience is that teenagers

have far more robust immune systems, and make much better recoveries than adults

-- even if they've had it all their lives. My son isn't crippled by it by any

means -- he's a lively kid -- but we are watching to make sure that further

symptoms don't present as he gets older.

If you don't have an LLMD, your first order of business is to find one. You

certainly don't want to waste time doing half-measures or wrangling with doctors

who don't really understand what they're up against.

Sara

On Feb 24, 2011, at 7:41 05PM, eriklesley@... wrote:

> I am expecting to get final blood work back in about 4 weeks and fully expect

>that my 15 year old daughter has lyme disease. If so she has had it for 3

years,

>just developing symptoms slowly and of course doctors have misdiagnosed her

>multiple times.

>

> She began by having syncope episodes three years ago, next came knee pain,

>slowly fatigue sat in, and now she has back pain and muscle cramping during

>soccer games or running.

> I know you probably get sick of the newbies asking for info, but I have found

>so much of the info out there confusing, and nothing about treatment after such

>a long period of time.

> My question is for you the experts.

> Is there any hope for treatment after three years? If so, where do I go to

find

>more info.

> Thank you for giving me direction on where to look.

>

>

>

>

> ------------------------------------

>

> Lyme Disease News continually updated from thousands of sources around the

> net: http://www.topix.net/health/lyme-disease

>

> MedWorm: The latest items on: Lyme Disease

> http://tinyurl.com/23dgy8

>

[Guest guest]

I answered this in another post. My LLMD is in Seattle (no, not the one

everybody knows about, the other one). I had no kidney problems; but, as I said

in the other post, I did lose my gall bladder.

Sara

On Feb 25, 2011, at 7:38 02PM, K M wrote:

>

> sara..how did yuo treat to regain health..with who, how long? did you have

kidney probs?? please enlighten me..thanks..leanne

>

>

>

>

> From: srobinson@...

> Date: Fri, 25 Feb 2011 17:14:44 -1000

> Subject: Re: [ ] Possible new diagnosis, what do I ask?

>

>

>

>

>

>

> The news is better than you might think.

>

> One: I had Lyme for 23 years before being diagnosed. Following two years of

treatment, I'm now in a very solid remission, and on my way to 100%. If I got

better after all that time, it's possible for anyone.

>

> Two: My son was diagnosed with Lyme at 15. He may have gotten it from me in

utero, or as a small child (we lived in an endemic area). Our LLMD treated it

far less aggressively than he treated mine: his experience is that teenagers

have far more robust immune systems, and make much better recoveries than adults

-- even if they've had it all their lives. My son isn't crippled by it by any

means -- he's a lively kid -- but we are watching to make sure that further

symptoms don't present as he gets older.

>

> If you don't have an LLMD, your first order of business is to find one. You

certainly don't want to waste time doing half-measures or wrangling with doctors

who don't really understand what they're up against.

>

> Sara

>

> On Feb 24, 2011, at 7:41 05PM, eriklesley@... wrote:

>

>> I am expecting to get final blood work back in about 4 weeks and fully expect

that my 15 year old daughter has lyme disease. If so she has had it for 3 years,

just developing symptoms slowly and of course doctors have misdiagnosed her

multiple times.

>> She began by having syncope episodes three years ago, next came knee pain,

slowly fatigue sat in, and now she has back pain and muscle cramping during

soccer games or running.

>> I know you probably get sick of the newbies asking for info, but I have found

so much of the info out there confusing, and nothing about treatment after such

a long period of time.

>> My question is for you the experts.

>> Is there any hope for treatment after three years? If so, where do I go to

find more info.

>> Thank you for giving me direction on where to look.

>>

>>

>>

>>

>> ------------------------------------

>>

>> Lyme Disease News continually updated from thousands of sources around the

>> net: http://www.topix.net/health/lyme-disease

>>

>> MedWorm: The latest items on: Lyme Disease

>> http://tinyurl.com/23dgy8

>>