My story and a question

[Guest guest]

Hi all,

I’ve been hovering here for a while and realized that I have not shared my

story. Our Lyme journey officially began last year when (after several years of

misdiagnosis and is some cases mistreatment by docs) my husband finally got

diagnosed. Long story short, he’s more neurological with his symptoms and he

was having cognitive problems. For that reason, I went with him to his first 2

hour appt. with an ILADS doc to take notes, etc. I’m 44 and over the course

of my life I’d had little things here and there plus hypothyroidism. I was

maintaining pretty well with my thyroid meds (and a healthy diet, which I think

was my saving grace now that I look back). I would have what I call

‘episodes’ where it felt like I was getting the flu and it always would

happen during stressful times!

Anyway, I’m sitting there in my husband’s Lyme appt listening to them go

thru ‘the checklist of symptoms’ and I’m thinking to myself, “yes, I

have that, yes that one too.†Finally I said something and they said they

thought they should test me! My test was positive and it showed they were

active! Was I ever floored! What is even more unbelievable is that I’ve had

it since I was either very small or I was born with it. Not sure which. My mom

won’t get tested. Anyway, I have a 4 and 7 year old that got it in utero from

me. They have had some problems since infancy and are now getting treatment

from Dr. !

It has been an uphill battle of the blind leading the blind in my house. Being

that I’m a stay at home mom and do most of the care giving…the brunt of dr

appts and medicine doling out falls on me. If I remember to dole out all of the

meds and supplements (which I don’t LOL) I’m usually battling my aching

muscles and joints to do it. Thank God I went to school for health and

nutrition last year as it’s help me help myself a lot…I’m functioning ok.

Which is better than some stories I hear. Don’t get me wrong, my husband is a

great man but a very sick man who goes to work every day (when he shouldn’t

be) just so we can have health insurance and $$ to pay for all of this insanity.

I’m actually looking for either an IT job or a health related job so he and I

can switch. He really needs to be at home healing.

Anyway, that’s my long winded story. My question is this. 3 our of 4 of us

have the emotional (anger/odc, etc) that goes along with Lyme. My daughter and

I have the brunt of that. My 7 year old daughter has what I call meltdowns that

resemble a 2 year old tantrum when something doesn’t go right. She’s a

little on the ocd side, so it could be something as small as something being out

of order (like a sequence of events at bedtime, etc). If I having a bad day, I

respond calmly at first but get angry very quickly when she starts slamming

doors and tearing up her room. Has anyone experienced this? Any advice on what

to do. It seems to get worse with her meds which makes me think it’s a herx

reaction or maybe even yeast. She does crave the sugar! LOL me too for that

matter! LOL But we resist for the most part.

Thanks for listening. I don’t get to go to Lyme support group meetings

because of scheduling and distance so I really don’t have a support chain…

Kathy in VA.