Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 In a message dated 4/18/99 5:55:54 PM Eastern Daylight Time, tyree.pines@... writes: << So, we've made it over another hurdle. >> April, your message was wonderful...brought back so many memories!!! Next time you''ll know to try the Dairy Queen sooner, but next time it may be too soon! Mothers never win with this but they sure know how to get angry in the ERs!! Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 On Sun, 18 Apr 1999 21:17:28 -0800 Marcia Grahn <mgrahn@...> writes: >From: Marcia Grahn <mgrahn@...> > >I am SO relieved to hear of s " miraculous " recovery! >Personally I have NEVER made such a fast change in the course of my >CFS but then I am older and she has youth on her side! Marcia, is still pretty miserable with her throat, stomach and dizziness, but she definitely has made a change for the better. I think when she saw that the ER visit had nothing to benefit her, she simply determined to make things better on her own terms. I just wished it had happened BEFORE we walked into the ER! I guess most everyone on this list also is looking to make things better on his or her own terms. When doctors lack answers (or even an understanding of what the problem is), it is those patients willing to seek out the research and experimental treatments who are most likely to reach out and grab hold of something that will actually help. And Beth, good luck with the kutapressin. At least, through this list, you have an idea of what other options are available. April ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 April L Tyree wrote: > From: April L Tyree <tyree.pines@...> > > Update on : This morning she couldn't tolerate even popsicles and > the throat spray didn't help, so I took her into the ER to to check her > for dehydration and see if there was something we could get her to ease > the pain enough to swallow liquids. I think we had a rent-a-doc because > my husband, who works at the hospital, hadn't heard of the guy we got. > The doc tried, in my opinion, to give us the brush off. He took a look > at her throat, felt her glands, then said he'd prescribe some > antibiotics. That was it! > > When the nurse came in with the prescription, I'm ashamed to admit I took > things out on her. I said that ALWAYS has sore throat and swollen > glands as a symptom of her CFS, that this was likely a flare up of her > condition, and we were there not to get her throat cured (unless it was > strep, which they weren't checking for anyhow), but to seek pain relief > and check for dehydration. Without proof of bacterial infection, I > didn't want to mess with abx. The nurse spoke to the doc, who then > ordered a blood test to check for dehydration. was OK. But he > still offered nothing more for pain relief than the home remedies we've > already tried. And, of course, he gave us a script for abx. Oops. I > lost it. > > After we were done in the ER, the little turkey () developed an > appetite for Dairy Queen, where, I'm happy to report, she ate her entire > lunch and consumed an entire Misty Float! And you PWCs wonder why we > healthies find it so hard to always believe you when you say you're sick > one minute, then act normal the next. > > I'm thinking that I won't call her doctor tomorrow, after all. On the > Prozac, I figured out that if I split up the contents of a 20mg capsule > into 4 equal piles, then poured those piles into empty capsules (which I > got from emptying some supplements), I could custom create 5mg capsules. > If it works, I figure 's doctor can wait until her June > appointment to learn about it. > > So, we've made it over another hurdle. Thanks to all for your prayers and > advice. > > April > April! I am SO relieved to hear of s " miraculous " recovery! Personally I have NEVER made such a fast change in the course of my CFS but then I am older and she has youth on her side! Sounds like you handled the whole ordeal very well, the hospital experience must have been SO frustrating for you! The Prozac adjustment sounds like good way to handle that too, so heres hoping you have SMOOTH SAILING for awhile! I think you have proven that CFS is a frustrating illness for ALL involved, not just the patient!!!! Take care, Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 1999 Report Share Posted April 19, 1999 Poor . My husband and I had nearly the same experience with his gastric pain and the ER. We are actually going to try to sue for malpractice. The ER doc questioned the legitimacy of any CFS dx and flat out stated that he thought my husband was an addict faking to get pain meds. I wonder how he thought he faked the 8 hrs of vomiting bile and the broken blood vessel in the eye? After I opened a new orifice for the doctor, he seemed to see the light. He provided pain med (minimal) and didn't manage to provide rehydration until I pointed out that my husband was still bringing everything up. They released him with a 101 fever. It was torture for my husband, who is a grown up most days. How horrid for a child. Doris --- Marcia Grahn <mgrahn@...> wrote: > From: Marcia Grahn <mgrahn@...> > > > > April L Tyree wrote: > > > From: April L Tyree <tyree.pines@...> > > > > Update on : This morning she couldn't > tolerate even popsicles and > > the throat spray didn't help, so I took her into > the ER to to check her > > for dehydration and see if there was something we > could get her to ease > > the pain enough to swallow liquids. I think we had > a rent-a-doc because > > my husband, who works at the hospital, hadn't > heard of the guy we got. > > The doc tried, in my opinion, to give us the brush > off. He took a look > > at her throat, felt her glands, then said he'd > prescribe some > > antibiotics. That was it! > > > > When the nurse came in with the prescription, I'm > ashamed to admit I took > > things out on her. I said that ALWAYS has > sore throat and swollen > > glands as a symptom of her CFS, that this was > likely a flare up of her > > condition, and we were there not to get her throat > cured (unless it was > > strep, which they weren't checking for anyhow), > but to seek pain relief > > and check for dehydration. Without proof of > bacterial infection, I > > didn't want to mess with abx. The nurse spoke to > the doc, who then > > ordered a blood test to check for dehydration. > was OK. But he > > still offered nothing more for pain relief than > the home remedies we've > > already tried. And, of course, he gave us a script > for abx. Oops. I > > lost it. > > > > After we were done in the ER, the little turkey > () developed an > > appetite for Dairy Queen, where, I'm happy to > report, she ate her entire > > lunch and consumed an entire Misty Float! And you > PWCs wonder why we > > healthies find it so hard to always believe you > when you say you're sick > > one minute, then act normal the next. > > > > I'm thinking that I won't call her doctor > tomorrow, after all. On the > > Prozac, I figured out that if I split up the > contents of a 20mg capsule > > into 4 equal piles, then poured those piles into > empty capsules (which I > > got from emptying some supplements), I could > custom create 5mg capsules. > > If it works, I figure 's doctor can wait > until her June > > appointment to learn about it. > > > > So, we've made it over another hurdle. Thanks to > all for your prayers and > > advice. > > > > April > > > > April! > > I am SO relieved to hear of s " miraculous " > recovery! Personally I have NEVER made such a fast > change in the course of my CFS but then I am older > and she has youth on her side! > > Sounds like you handled the whole ordeal very well, > the hospital experience must have been SO > frustrating for you! The Prozac adjustment sounds > like good way to handle that too, so heres hoping > you have SMOOTH SAILING for awhile! I think you > have proven that CFS is a frustrating illness for > ALL involved, not just the patient!!!! > > Take care, Marcia > > > > ------------------------------------------------------------------------ > Start a new hobby. Meet a new friend. > http://www.ONElist.com > ONElist: The leading provider of free e-mail list > services! > ------------------------------------------------------------------------ > This list is intended for patients to share personal > experiences with each other, not to give medical > advice. If you are interested in any treatment > discussed here, please consult your doctor. > _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2011 Report Share Posted January 30, 2011 For those of you who are discouraged/and or frightened about your LD symptoms, I have three acquaintances who were totally paralyzed from the neck down (one for over two years) and are doing great now, completely recovered. Although Im just beginning my fight with LD, knowing that they recovered has helped me a lot. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2011 Report Share Posted January 30, 2011 Thank you for this info! We don't hear enough about the success stories. I was very sick 2 years ago but am now feeling very, very good. Still on some abx, but gradually dropping them. I also know someone who has been totally med free and 100% well after 3 years on abx. Don On 1/30/2011 12:56 AM, mac wrote: > For those of you who are discouraged/and or frightened about your LD symptoms, I have three acquaintances who were totally paralyzed from the neck down (one for over two years) and are doing great now, completely recovered. Although Im just beginning my fight with LD, knowing that they recovered has helped me a lot. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2011 Report Share Posted January 30, 2011 i have been in treatment for 2 years now after undiagnosed for 6 and i feel 90% better and am working out again and plan on working soon. would you ask those people to write a short note to us here, it definitely would be encouraging On Sat, Jan 29, 2011 at 9:56 PM, mac <slimpoint@...> wrote: > > > For those of you who are discouraged/and or frightened about your LD > symptoms, I have three acquaintances who were totally paralyzed from the > neck down (one for over two years) and are doing great now, completely > recovered. Although Im just beginning my fight with LD, knowing that they > recovered has helped me a lot. > > > > > Quote Link to comment Share on other sites More sharing options...
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