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Elena Pheasant

_________________________________________________________

May 11, 1999

Hey ,

Isnt it the best to vent to people who understand you! The problem Is

that the doctor I saw is supposedly experienced with liver diseases.

Maybe hes so experienced that he pays more attention the the people who

are at a serious stage. He probably sees alot of people who are in a

serious condition, and when a chronic worrier comes in with only mild

symptoms he just wants to shrug me off. Just a guess.

Again, I am very lucky to have caught this early and sympathize with

people who are alot worse off then me.

Whats wrong with your boyfriend?

Hope you are well

Elena

--- " .Hutchinson " <brandy.hutchinson@...> wrote:

> From: " .Hutchinson "

> <brandy.hutchinson@...>

>

> Elena

>

> I toldly understand how you feel, pay no attention

> to your boyfriend,

> and your doctor does not sound all that great!!

>

> It's important that you ask questions, the sad thing

> is your doctors

> reaction was most likely like that because he does

> not have the answers

> to your questions.

>

> Ask for fa second opion!! It took me a long time to

> get two good

> doctors that will answer all questions and if they

> can not then they

> find someone who can.

>

> As for taking my spouse to these appointments, I

> find it less stressful

> going by myself, well at least in the room by

> myself!! I have enough

> problems, then having to deal with his ignorance!!!

>

> I'm a little upset with jeff today!!

>

> Guess i'm venting alittle too!!

>

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Elena Pheasant

_________________________________________________________

May 11, 1999

I think you need to lock him the closet or something, I know how these

guys can get! unfortunatley no I dont have a pager but Please tell!

Elena

--- " .Hutchinson " <brandy.hutchinson@...> wrote:

> From: " .Hutchinson "

> <brandy.hutchinson@...>

>

> Hi Elena

>

> do you have pager?? you must be on at the

> moment??? everything is

> wrong with Jeff lol and I have no time it type out

> whats wrong with him,

> I'd be hear all day!!

>

> lol it's so easy to pick on him when he not here lol

>

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Elena Pheasant

_________________________________________________________

May 11, 1999

Elena

I toldly understand how you feel, pay no attention to your boyfriend,

and your doctor does not sound all that great!!

It's important that you ask questions, the sad thing is your doctors

reaction was most likely like that because he does not have the answers

to your questions.

Ask for fa second opion!! It took me a long time to get two good

doctors that will answer all questions and if they can not then they

find someone who can.

As for taking my spouse to these appointments, I find it less stressful

going by myself, well at least in the room by myself!! I have enough

problems, then having to deal with his ignorance!!!

I'm a little upset with jeff today!!

Guess i'm venting alittle too!!

May 11, 1999

Hi Elena

do you have pager?? you must be on at the moment??? everything is

wrong with Jeff lol and I have no time it type out whats wrong with him,

I'd be hear all day!!

lol it's so easy to pick on him when he not here lol

May 11, 1999

Georgia,

I'm not 100% sure about diagnosis. I do know that my doctor said the

antibodies were a very strong indicator.

>From: rivrfolk@...

>Reply- onelist

> onelist

>Subject: [ ] (no subject)

>Date: 12 May 1999 02:43:33 -0000

>

>From: rivrfolk@...

>

>oops i don't think i was posting right. I think i have it right now. Hi

>Anita. I am also new to the board. Learning about the liver stuff myself.

>I am not diagnosed but I have a degree of mild chronic inflammation

>according to my biopsy, docs just can't figure out why. Does one have to

>have positive smooth muscle abs. before they say you have AIH? i have been

>tested for hep a, b, c all neg. What is primary biliary cirrhosis? i

>tested positive for lyme disease too but no one can say if that is causing

>my liver problems. if anyone could answer my questions i would be most

>grateful. i am currently on no treatment and I feel knowledge is power.

>thanks . wishes of wellness, terry in georgia

>

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May 12, 1999

That sounds great. Im going to do that on my boyfriends computer, as he

has speakers and alot of other stuff on his computer. CONGRATULATIONS

on Jeffs first word of the day. Im so happy for you! (he! he!)Im lucky

to, my boyfriend is going away for the weekend so i have all that " me "

time!

Take care

Elena

--- " .Hutchinson " <brandy.hutchinson@...> wrote:

> From: " .Hutchinson "

> <brandy.hutchinson@...>

>

> Elena

>

> pager is really great. Go to page and

> downloaded it. I

> could tell when our on and chat with u as soon as u

> log on!! and even

> if you have speakers and a mic we can actually chat

> that way!! Dorothy

> and I chat everyday all most that way!! You should

> down load it!! Oh

> Jeff talked to me today!!! I'm soooooooooo Lucky

> lol...

>

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Elena Pheasant

_________________________________________________________

May 12, 1999

Elena

pager is really great. Go to page and downloaded it. I

could tell when our on and chat with u as soon as u log on!! and even

if you have speakers and a mic we can actually chat that way!! Dorothy

and I chat everyday all most that way!! You should down load it!! Oh

Jeff talked to me today!!! I'm soooooooooo Lucky lol...

May 12, 1999

Elena

pager is really great. Go to page and downloaded it. I

could tell when our on and chat with u as soon as u log on!! and even

if you have speakers and a mic we can actually chat that way!! Dorothy

and I chat everyday all most that way!! You should down load it!! Oh

Jeff talked to me today!!! I'm soooooooooo Lucky lol...

May 12, 1999

LOL

That was funny " Jeff's first words " LOl

I have to pick him up soon, can't wait till u get pager then dorothy and

u and I can chat!! lol and pick on men!! LOL just kidding.

May 28, 1999

[ ] (no subject)

Beautiful music. thank you!!!!

Elaine

May 30, 1999

Hi

You must unsubscribe yourself by sending an e-mail to

-unsubscribeonelist

or you can go to the onelist site at

and type in your e-mail address and password, then slick unsubcribe from

the mailing list.

Make sure the address is as above and you type noting in the text box.

Thanks, Linie

On Fri, 28 May 1999 12:41:17 -0400 (EDT) RWill99@... (

) writes:

>unsubscribe me please

>

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May 31, 1999

Oh, Christy, I am so sorry to hear you plight. I too have a lot of things

going on. Tell me about you raw diet. I've heard so much about this one. Have

you found it to be good. Also when did you come down with candidiasis? What

do you experience for us to tell you if you have it. Myra

(no subject)

How do you know you have this Candidiasis problem.. I'm new to the group and

have the symptoms..

I also have CFS and Fibro plus alot of other things..

I have been working on a raw living food diet.. I'm about 60% there..

I have gained about 40-45 pounds in less than two years..

As far as how I have felt I have had CFS and Fibro for 25 years.. Panic

disorder is another with Mitral Valve symptoms and borderline blood pressure..

IBS , Migraines... hehe.. just goes on and on..

I had a test two weeks ago.. I was in so much pain and the doc took a CRP

blood test and normal is suppose to be 0-4 and mine was 141... Duh ?? Now

what..!! I go to a new doc. tomorrow..

Our daughter has had JRA since 4 and she is now 20 and has CFS and Thyroid

problems..

My mom just passed away with Scleraderma..

and my sister, only sibling has Fibro too.. Just recently diagnosed...

Well that's it with my health..

Any advice will be very appreciated...

Blessings

Christy Graf

May 31, 1999

Hello Charlene,

Want to welcome you to the group, my name is Rios from Brooklyn, I've

had aih for about 10years, i'm on the liver transplant list here in NYU for

about a 1year and half, but i feel really great, my blood works are great,

the docs are very happy with the results, the predisone and imuran is

working great. Working great on my weight as well.

Now i'm just helping out other people here, so once again welcome.

rios AIH

Brooklyn

June 1, 1999

Charlene:

I am AIH since Oct 1997 and I still haven't worked full time. My doctor at

home here says no because there is a family to take care and stay away from

stress related places. I hope maybe someday I will be able to go back but I

don't think it will happen soon.

Sue

Wisconsin

June 1, 1999

Hi Charlene:

I was diagnosed with AIH in 1985. I was told to " retire and try to enjoy

the rest of my life stress free " by my doctors after a major esophageal

bleed in 1994. Hmmmmm ... has anyone been able to do that yet?? LOL In

either event, I was able to obtain SSD in 1996 and am presently still on it.

I personally do not have the energy nor the mental capacity to hold down a

full time job any longer. I was a criminal defense law paralegal prior to

my obtaining " retirement " status.

Debbie

AIH

Michigan

[ ] (no subject)

>From: DSTAR87@...

>

>hello everyone, I was wondering how most people with AIH are able to work.

>I find it difficult to hold down a full time job and take care of my

family.

>Sometimes it makes me feel so useless. Any ideas? Charlene

>

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June 1, 1999

[ ] (no subject)

>From: DSTAR87@...

>

>hello everyone, I was wondering how most people with AIH are able to work.

>I find it difficult to hold down a full time job and take care of my

family.

>Sometimes it makes me feel so useless. Any ideas? Charlene

>

Dear Charlene,

When I was diagnosed in 1997, I was working also. They held my job for some

time for me until it became apparent to me that I would not be able to go

back. I thought I was well on the way to recovery after 6 months and asked

my doc. if I could go back for 4 hours a day. He replied " Maybe 2 hours a

day " . I had to leave my job. I could never work. Have never felt that I

could hold down a job since either(office work at that point). I am

permanently retired. I don't think I could mentally or physically handle it

anymore. I am 62 yrs. old and can afford to stay at home so I really don't

care anymore. If I were younger, I think it would be different.

Elaine

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June 1, 1999

Christy, Have you gone to the Doctor to be checked because it could be

something else. If you have it there will be burning and itching in that

femine area. Also a film of yeast that you have to wash or wipe off. I wash a

lot. It is part of life to take care of our selves. I watch my diet and keep

my self as clean as possible. Cheerfully Myra

(no subject)

How do you know you have this Candidiasis problem.. I'm new to the group

and have the symptoms..

I also have CFS and Fibro plus alot of other things..

I have been working on a raw living food diet.. I'm about 60% there..

I have gained about 40-45 pounds in less than two years..

As far as how I have felt I have had CFS and Fibro for 25 years.. Panic

disorder is another with Mitral Valve symptoms and borderline blood pressure..

IBS , Migraines... hehe.. just goes on and on..

I had a test two weeks ago.. I was in so much pain and the doc took a CRP

blood test and normal is suppose to be 0-4 and mine was 141... Duh ?? Now

what..!! I go to a new doc. tomorrow..

Our daughter has had JRA since 4 and she is now 20 and has CFS and Thyroid

problems..

My mom just passed away with Scleraderma..

and my sister, only sibling has Fibro too.. Just recently diagnosed...

Well that's it with my health..

Any advice will be very appreciated...

Blessings

Christy Graf

June 1, 1999

http://www.hacres.com

http://www.drday.com

http://chetday.com

I don't know if I have Candiadiasis, but find that when I eat foods with yeast I

feel bad and , bluntly, have some femine discomfort...

(no subject)

How do you know you have this Candidiasis problem.. I'm new to the group and

have the symptoms..

I also have CFS and Fibro plus alot of other things..

I have been working on a raw living food diet.. I'm about 60% there..

I have gained about 40-45 pounds in less than two years..

As far as how I have felt I have had CFS and Fibro for 25 years.. Panic

disorder is another with Mitral Valve symptoms and borderline blood pressure..

IBS , Migraines... hehe.. just goes on and on..

I had a test two weeks ago.. I was in so much pain and the doc took a CRP

blood test and normal is suppose to be 0-4 and mine was 141... Duh ?? Now

what..!! I go to a new doc. tomorrow..

Our daughter has had JRA since 4 and she is now 20 and has CFS and Thyroid

problems..

My mom just passed away with Scleraderma..

and my sister, only sibling has Fibro too.. Just recently diagnosed...

Well that's it with my health..

Any advice will be very appreciated...

Blessings

Christy Graf

June 1, 1999

I tried working I lasted 9 months had to quite. I felt dizzy and just

plain awful in general. Dr. said it was to much for me to work. Since I

left my job I am doing better. Last month My labs were normal Dr. is

trying to get me off pred. Last week went from 10mg. to 7.5. I felt

okay but today I feel a little dizzy. I guess this sounds crazy but

Sunday we leave on a cruise to Bermuda and for some reason I feel very

nervious about it.Sorry to complain about something so stupid But I

needed to tell someone!

Pa.

June 1, 1999

A small amount of itching.. I just read on one of the sites that this sometimes

goes along with Epstein Barre , which I have..

I'm not sure which food to avoid.. Is there a test for this since I'm going to

the doctor today..???

christy :>)

(no subject)

How do you know you have this Candidiasis problem.. I'm new to the group

and have the symptoms..

I also have CFS and Fibro plus alot of other things..

I have been working on a raw living food diet.. I'm about 60% there..

I have gained about 40-45 pounds in less than two years..

As far as how I have felt I have had CFS and Fibro for 25 years.. Panic

disorder is another with Mitral Valve symptoms and borderline blood pressure..

IBS , Migraines... hehe.. just goes on and on..

I had a test two weeks ago.. I was in so much pain and the doc took a

CRP blood test and normal is suppose to be 0-4 and mine was 141... Duh ?? Now

what..!! I go to a new doc. tomorrow..

Our daughter has had JRA since 4 and she is now 20 and has CFS and

Thyroid problems..

My mom just passed away with Scleraderma..

and my sister, only sibling has Fibro too.. Just recently diagnosed...

Well that's it with my health..

Any advice will be very appreciated...

Blessings

Christy Graf

June 1, 1999

Hi charlene,

I work at the moment as i have just been diagnosed. The only hard part

is working with the fatigue. Im really scared about the future and that

i may not be able to work. Im 27 years old and live bymyself so i have

to pay for the rent etc my self. I dont know what I will do if i cant

work as there is noone to support me apart from myself. I cant see it

now....me, standing on a corner, with a sign saying Feed me!

Take care

Elena

--- DSTAR87@... wrote:

> From: DSTAR87@...

>

> hello everyone, I was wondering how most people

> with AIH are able to work.

> I find it difficult to hold down a full time job and

> take care of my family.

> Sometimes it makes me feel so useless. Any ideas?

> Charlene

>

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> connected.

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