Re: (ruf-caimi@...)

[Guest guest]

Hello Rainy Sue,

First a name, my girls and I talked about this. We thought historic lynn,

but since I love what my little granddaughter calls me, I am going with

that. So I guess it is Me Mom , I don't know were she got Me Mom but

I like it better than grandmom.

Last week was awful, I still feel terrible. They told me, we have to try

to find out why this happened. It can happen again. It started with

pain, horrible sweating, dizziness, and I couldn't breath. Worst I was

alone, I couldn't sit or stand, so I didn't want my kids to find me on the

floor and I called 911. They ran test and it definitely was pancreatitis

buy why. They Metho, clinoril, and remicade were stopped. They don't

believe it was the remicade or metho. Not now but in a few months we will

try remicade again. I have to have more test and something called a

, were they will go in to my stomach. I still can't eat, and when I

do it will not be much. No fatty foods, no problem for me I already eat so

low fat there is no way to change that. No lettuce, broccoli, cauliflower

and a few other. That blows my diet. For now it is just jello and chicken

broth. I am very tired and sore. They have to wait to do the surgical

procedure but they don't want to wait long. I am wondering if they are

looking for an ulcer.

The remicade was doing something, I was able to move around so much

better. I wasn't as still. I will pray I can go back on it. On a lighter

side, WC was sent the bill as per my attorney. Nobody says they have to

pay it, but I do believe we are getting our point across. I have gone into

a flare but so far my home has been the couch. Sorry this is so long, I

feel so out of touch with everybody. I am so happy to read how good you

are feeling. Thanks for another nice candle day.

Me Mom

----------

> From: Rysu19@...

> egroups

> Subject: [ ] (ruf-caimi@...)

> Date: Friday, September 22, 2000 6:56 PM

>

>

> Hi , (We have another who has joined. Do you have a nick to

add to

> your name so we can tell you all apart? Like I did with mine. I don't

know

> your last name so I couldn't add an initial. So I did your email addy.)

>

> I am so sorry to hear this! I really hope you will be able to go back on

the

> Remicade as well. I don't see any reason why not once you're healed and

> healthy again. Please keep us all updated! Can you tell me more about

what

> was said. What do you have to do to get better? If it was the MTX, maybe

you

> can go on Arava with the Remicade once you are better. Those 2 drugs have

> worked miracles for me. Take care of yourself. BTW, we will be having a

> " Candle Day " on Monday or Tuesday, I will keep you in my thoughts for

getting

> better ASAP.

>

> ~Love, Rainy Sue

>

> > Hi Guys,

> > I have to read tons of e-mail, probably not for a couple of days. I

have

> > been in the hospital since Tuesday morning. It seems the MTX did me

in. I

> > have Pancreatitis, and they are pretty sure it was from the drugs. I

have

> > to stop MTX, clinoril, and Remicade for now. Just wanted to let

everybody

> > know.

> >

> >

> > P.S. Rainy Sue,

> > The remicade started to take a lot of the stiffness away in the

morning.

> > Even the pain level was down. I'm hoping I will be able to go back to

it,

> > someday.

>

> Our websites: http://rheumatoid.arthritis.freehosting.net/

> http://www.rasupport.webprovider.com/

> Change subscription options:

[Guest guest]

Glad to have word from you, Me Mom ! Take it easy. Don't worry about

school or WC (glad that they are going to see this bill and the reason for

it), just rest and recover.

Thinking of you,

----- Original Message -----

From: " Valued Compaq Customer " <ruf-caimi@...>

< egroups>

Sent: Wednesday, September 27, 2000 12:40 PM

Subject: Re: [ ] (ruf-caimi@...)

> Hello Rainy Sue,

> First a name, my girls and I talked about this. We thought historic lynn,

> but since I love what my little granddaughter calls me, I am going with

> that. So I guess it is Me Mom , I don't know were she got Me Mom

but

> I like it better than grandmom.

> Last week was awful, I still feel terrible. They told me, we have to try

> to find out why this happened. It can happen again. It started with

> pain, horrible sweating, dizziness, and I couldn't breath. Worst I was

> alone, I couldn't sit or stand, so I didn't want my kids to find me on the

> floor and I called 911. They ran test and it definitely was pancreatitis

> buy why. They Metho, clinoril, and remicade were stopped. They don't

> believe it was the remicade or metho. Not now but in a few months we will

> try remicade again. I have to have more test and something called a

> , were they will go in to my stomach. I still can't eat, and when I

> do it will not be much. No fatty foods, no problem for me I already eat

so

> low fat there is no way to change that. No lettuce, broccoli, cauliflower

> and a few other. That blows my diet. For now it is just jello and

chicken

> broth. I am very tired and sore. They have to wait to do the surgical

> procedure but they don't want to wait long. I am wondering if they are

> looking for an ulcer.

> The remicade was doing something, I was able to move around so much

> better. I wasn't as still. I will pray I can go back on it. On a

lighter

> side, WC was sent the bill as per my attorney. Nobody says they have to

> pay it, but I do believe we are getting our point across. I have gone

into

> a flare but so far my home has been the couch. Sorry this is so long, I

> feel so out of touch with everybody. I am so happy to read how good you

> are feeling. Thanks for another nice candle day.

> Me Mom

[Guest guest]

Hi ,

Thanks for your note. I still don't feel well, every time I try to eat I

don't feel well. Sure hope they find out why this is happening. I am

flaring and the Rheumy wants me to try the Meth again, he doesn't think

that is what caused the problem. I am holding off, till I feel better and

then I will only take half. Hope you and the kids are doing well.

Me Mom

----------

> From: Matsumura <Matsumura_Clan@...>

> egroups

> Subject: Re: [ ] (ruf-caimi@...)

> Date: Wednesday, September 27, 2000 2:18 PM

>

> Glad to have word from you, Me Mom ! Take it easy. Don't worry about

> school or WC (glad that they are going to see this bill and the reason

for

> it), just rest and recover.

>

> Thinking of you,

>

>

>

> ----- Original Message -----

> From: " Valued Compaq Customer " <ruf-caimi@...>

> < egroups>

> Sent: Wednesday, September 27, 2000 12:40 PM

> Subject: Re: [ ] (ruf-caimi@...)

>

>

> > Hello Rainy Sue,

> > First a name, my girls and I talked about this. We thought historic

lynn,

> > but since I love what my little granddaughter calls me, I am going with

> > that. So I guess it is Me Mom , I don't know were she got Me Mom

> but

> > I like it better than grandmom.

> > Last week was awful, I still feel terrible. They told me, we have to

try

> > to find out why this happened. It can happen again. It started with

> > pain, horrible sweating, dizziness, and I couldn't breath. Worst I was

> > alone, I couldn't sit or stand, so I didn't want my kids to find me on

the

> > floor and I called 911. They ran test and it definitely was

pancreatitis

> > buy why. They Metho, clinoril, and remicade were stopped. They don't

> > believe it was the remicade or metho. Not now but in a few months we

will

> > try remicade again. I have to have more test and something called a

> > , were they will go in to my stomach. I still can't eat, and

when I

> > do it will not be much. No fatty foods, no problem for me I already

eat

> so

> > low fat there is no way to change that. No lettuce, broccoli,

cauliflower

> > and a few other. That blows my diet. For now it is just jello and

> chicken

> > broth. I am very tired and sore. They have to wait to do the surgical

> > procedure but they don't want to wait long. I am wondering if they are

> > looking for an ulcer.

> > The remicade was doing something, I was able to move around so much

> > better. I wasn't as still. I will pray I can go back on it. On a

> lighter

> > side, WC was sent the bill as per my attorney. Nobody says they have

to

> > pay it, but I do believe we are getting our point across. I have gone

> into

> > a flare but so far my home has been the couch. Sorry this is so long,

I

> > feel so out of touch with everybody. I am so happy to read how good

you

> > are feeling. Thanks for another nice candle day.

> > Me Mom

>

>

>

>

>

>

> Our websites: http://rheumatoid.arthritis.freehosting.net/

> http://www.rasupport.webprovider.com/

> Change subscription options: