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Sharon,

I hear that synovial fluid (from the knee) is one of the most accurate PCR

tests. I don't know anyone who has had it, but I know they insert a needle

and draw out fluid. Of course he is afraid, but tell him if it hurts, its

only for a moment, and tell him to lie down and not look or think about it.

Let us know how it goes. Poor guy. No fair teenagers and children have to be

bothered by this disease too.

Vicki

[Lyme-aid] spine

>From: " melillo " <mellillo1@...>

>

>Add me to the messed up spine but I had no thought it was lyme. I have

>spondolotisis of C4,5. I just thought it was an injury or congenital. So

>now I will ask the orthopedist if he thinks it is lyme.

>On that avenue, Dan, my 15 year old, is going in next week to get the fluid

>in his knees checked for Lyme. Has anyone had that procedure done? He is

>scared. But Dr. thinks that will show definatively if there is lyme

causing

>all his pain, not the football injury.

>Sharon

>

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  • 3 months later...

Hi Jayne,

My husband has had 2 discs removed from his lower back. The surgery was

done by a neurologist rather than an orthopedic doctor. This may be

what is referring to when mentioning a " spinal specialist. "

Whatever kind of doctor that you see, you should try and find someone

who has seen this specialist or had successful surgeries from them. My

husband's doctor does a Mylogram as the final test before doing

surgery. I think that he said that a Mylogram will sometimes show more

than an MRI does. My husband now " jumps for joy. " He can ski, lift

heavy things, etc. If you are in a lot of pain, maybe you should see

another specialist.

Vicki

sherman.fam@... wrote:

> From: " sherman.fam@... " <sherman.fam@...>

>

> Hi , no I have never been examined by a spinal

> specialist..however it was never recommended..maybe I should look into

>

> this one. My mris of two years ago were basically normal..some

> abnormal signals in the lumbar region (if you understand that talk).

> I

> am due to have them repeated this month. I have been examined my an

> orthopedic specialist, is this the same? I would love to jump for

> joy...it's been a long time for jumping for me!!!! I told you guys,

> I

> am not the " classic case " on here. Most of you have your small joints

>

> involved, not me! That makes me an odd ball!

> Jayne

>

> -----------------------------------------------------------------------

>

> [

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My wife went to see a spinal surgeon.

He did a MRI scan and said straight away

what the prob was, rubbing discs (3rd lumbar, lower back)

He had completed 1800 successful ops

for fusion.

The insertion of bone into the disc and screws

hold them together, till they fuse 6-12 months.

The surgeon has had 2 problems, one due to a patient

with a defect heart and one who developed pneumonia.

was operated friday, last july ,she is 46, and was in lesss pain

after the op than before the 2 hr op.

She was showering in 24hrs.

we drove 300 miles home the following wednesday a.m.

It does take 4 months before you can do ' normal

housework or lifting' but waited 12 yrs in pain before

plucking up courage to have it done.

hope that helps.

michael

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  • 7 months later...

We're doing it again. Snap, Crackle and Pop goes the neck. Mine

does that too, especially when I turn to the right, then back to the

front position. My spine is a total mess. That's another story...

Regards,

Sylvia

> Seems my Rhumy said the first two vertibrea in the spine can be

> affected by RA. At least in my case they are and sometimes they

have

> to do surgery to fuse them together. They pop when I turn my head

> and

> it really bugs me. The other pain in my back is the FM but the

rest

> of my spine is OK.

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  • 4 years later...
Guest guest

,

The lower back pain took my breath away from day one. Right now it's in my

shoulders and lower neck, so much pain and brain acting up. I happened to be

reading stuff on the internet and somehow ended up following a path and

ended up talking to a guy named Randy Sykes telephone number is think you

should probably give Randy Sykes a call. His number is 1-860-658-9938

I'm not sure how many recordings they are making or if they are making them

as they get the orders. Randy will take care of ya. :=)

I'd call him, tell him you're newly diagnosed with Lyme, told you had CFIDS

for years and are curious if any one else has back problems as you describe

and if so, why does he think? He told me you do I didn't ask why we covered

so much ground. He said he doesn't like to tell newbies " you don't get

totally well " because he doesn't believe in destroying hope, but he can tell I

know

things and have been sick awhile. He does believe in antibiotics it's just

in Conn. he sees people pretty ill improve but not 100% maybe it flares back

up. I wonder what makes it so hard to kill. Maybe don't get all the

critters from what I read they go through diff. cycles and of course co

infections.

I read someone say one lady only had one band positive and she was one of

the sickest ever. What a strange disease.

Glad to hear from you-I should get that done, too (MRI). I'd love a spect

scan of the brain done by Dr. Fallon. He was at the conference on Lyme.

So was Burrascano. I'd like to have been there or at the on in New York

coming up.

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