Guest guest Posted August 22, 1999 Report Share Posted August 22, 1999 Hi Sue B, thanks for the note. I have got my hubby home now. He has fatty liver tissue, and has to call the Dr. for the test results and more tests. He went in because he had theought he was having a heart attack, which after a day in the hospital, they decided he had not had one (this is good). But they found this liver thing. What started all this, he had been taking some quinine for cramps, and it was labeled wrong so he actually got too much of it, which put him in a really bad situation. He was so ill and then got dehydrated and was in the hospital for that, and took another week for it to get out of his system, then he had the pains in his chest and the rest happened. At least now we know his heart is in great shape. I still have another 90 emails to go through, I had planned to delete all, but don't want to miss what is going on, so I am still at it. Today we took my daughter who is due in October into the hosp. for a stress test on the baby, because it had been still for quite a while, which is unusual for him (we think), but turns out the baby is doing fine and her shower is tomorrow, I am exhausted, but happy things are working out okay. I have been too tired to look up the fatty liver issue, and I need to get the tests from the Dr. to see if it is something else or what. Thanks a bunch and will report back later. Lynn AIH milko wrote: > From: " milko " <milko@...> > > Lynn, > Hard when you miss a couple of days isn't it, posts really mount up. > What are your hubbies symptoms. Which of his liver tests were elevated? I > hope he is feeling better. What other tests will they do? Please let me > know, I'll be thinking about you. > SueB. > > ---------- > > From: Lynn <CEN32195@...> > > onelist > > Subject: Re: [ ]pregnancy > > Date: Friday, 20 August 1999 16:58 > > > > From: Lynn <CEN32195@...> > > > > Sue, I forgot to tell you, my 16 year old daughter is on her way!! I've > been > > gone a few days and am reading the back email. My husband has been in > and out > > of the hospital for the last week and they can't figure out what is going > on. > > He had elevated liver tests, then he had a ultra sound today and they > couldn't > > see anything so they say, so he is having more tests tomorrow. We really > wish > > that they would find or not something and get this all over with! Bye > for now, > > am on the way to read more email. Lynn in Wa. aih > > > > milko wrote: > > > > > From: " milko " <milko@...> > > > > > > Lyn, > > > Send her over, the more the merrier. > > > SueB. > > > > > > ---------- > > > > From: Lynn <CEN32195@...> > > > > onelist > > > > Subject: Re: [ ]pregnancy > > > > Date: Friday, 13 August 1999 6:49 > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > She is 16 and come to think of it, I would pay someone to take her!!! > > > Lynn > > > > > > > > milko wrote: > > > > > > > > > From: " milko " <milko@...> > > > > > > > > > > Lynn, > > > > > How old? I have one also, 17. Does she come with a dowry? Ha Ha!! > > > > > SueB. > > > > > > > > > > ---------- > > > > > > From: Lynn <CEN32195@...> > > > > > > onelist > > > > > > Subject: Re: [ ]pregnancy > > > > > > Date: Thursday, 12 August 1999 16:34 > > > > > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > > > > > Hi, I just must stick this in right here. For years i had been > > > telling > > > > > everyone > > > > > > that would listen to me that the only time in my life that I > could > > > say > > > > > that I felt > > > > > > well, just felt good and all, was when I was pregnant 3 times. I > am > > > > > thinking that > > > > > > if I had had this AIH for so many years, maybe that is why. > Wouldn't > > > > > that be > > > > > > amazing? You can ask anyone that knows me, and they had heard it > > > many > > > > > many > > > > > > times. I thought that maybe my hormones were good at that time > or > > > > > something. I > > > > > > also had no desire to overeat or anything, I felt good. So for > about > > > 27 > > > > > months of > > > > > > my life that I can remember, I have felt good. And that is not > a > > > lie > > > > > either! My > > > > > > husband and I had been talking about this only yesterday! The > Dr.s I > > > had > > > > > told in > > > > > > the past would just look at me and shrug a shoulder, it took all > > > these > > > > > years for > > > > > > someone to listen enough to take tests--what can I say, I don't > feel > > > too > > > > > well > > > > > > about Drs anymore either! But apparently pregnancy is possible, > and > > > all > > > > > my babies > > > > > > were healthy, but I have a teenage girl I want to loan someone > for a > > > > > couple of > > > > > > years, any takers????? Lynn aih > > > > > > > > > > > > Albert J. Bentley wrote: > > > > > > > > > > > > > From: " Albert J. Bentley " <jordent@...> > > > > > > > > > > > > > > Dear & Bob, > > > > > > > Along these lines , I did read- but I can't recall the > source-that > > > > > during > > > > > > > pregnancy the body activates a natural immunosupressive process > to > > > > > protect > > > > > > > the fetus from it's own immune system. I don't recall details > for I > > > am > > > > > not > > > > > > > likely to become " big with child " . During that time drugs may > not > > > be > > > > > required. > > > > > > > Pardon the expression but your " doctor " sounds like the perfect > > > > > asshole. > > > > > > > You should > > > > > > > tell him so. It is only your life that he is fiddling with. For > > > > > heaven's sake > > > > > > > find yourself a hepatology expert. > > > > > > > Regards, Albert > > > > > > > > > > > > > > >From: & Hain <romi@...> > > > > > > > > > > > > > > > >ADilli5783@... wrote: > > > > > > > >> > > > > > > > >> From: ADilli5783@... > > > > > > > >> > > > > > > > >> I am 26 years old and just got married and was planning on > > > starting > > > > > a > > > > > > > family > > > > > > > >> when just one month ago I was diagnosed with autoimmune > > > hepatitis. > > > > > My > > > > > > > biopsy > > > > > > > >> came back very good the doctor said and started me on > Predisone > > > and > > > > > Imuran. > > > > > > > >> > > > > > > > >> I wanted to know if there is anyone out there who has been > able > > > to > > > > > have a > > > > > > > >> child with this disease. I asked the doctor and he said it > > > wouldn't > > > > > be a > > > > > > > >> problem, but when looking up Imuran it indicates that you > should > > > not > > > > > take > > > > > > > >> this medication while being pregnant. I was wondering if > you > > > could > > > > > be on > > > > > > > >> Predisone alone while being pregnant and still control the > > > disease. > > > > > > > >> > > > > > > > >> This is all so new to me and frightening. There are so many > > > > > unanswered > > > > > > > >> questions that I have. If anybody has any information to > offer, > > > I > > > > > would > > > > > > > >> greatly appreciate it. > > > > > > > >> > > > > > > > >> Audra Dillingham > > > > > > > >> adilli5783@... > > > > > > > >> > > > > > > > >> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 1999 Report Share Posted August 22, 1999 Hi Lynn Glad your hubby's heart is ok. I have fatty tissue also, please let me know what you find out about it. Quinine for cramps? Never heard of it. Thought it was only for malaria. What kind of cramps? J >From: Lynn <CEN32195@...> >Reply- onelist > onelist >Subject: Re: [ ]my hubby >Date: Sun, 22 Aug 1999 00:17:26 -0700 >MIME-Version: 1.0 >From errors-165537-5529-shireen42 Sun Aug 22 00:27:51 1999 >Received: from [209.207.164.235] by hotmail.com (2.1) with ESMTP id >MHotMailB988F1770197D82197D9D1CFA4EB117B0; Sun Aug 22 00:27:51 1999 >Received: (qmail 1219 invoked by alias); 22 Aug 1999 07:27:26 -0000 >Received: (qmail 1172 invoked from network); 22 Aug 1999 07:27:24 -0000 >Received: from unknown (HELO mail.ptinet.net) (208.157.241.5) by >pop1.onelist.com with SMTP; 22 Aug 1999 07:27:24 -0000 >Received: from ptinet.net (ppp059.mon.centuryinter.net [209.206.163.90]) by >mail.ptinet.net (8.8.8/8.8.8) with ESMTP id AAA00959 for >< onelist>; Sun, 22 Aug 1999 00:27:18 -0700 (PDT) >Message-ID: <37BFA406.4A8A9D0E@...> >X-Mailer: Mozilla 4.05 [en] (Win95; I) >References: <199908201125.VAA10511@...> >Mailing-List: list onelist; contact > -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: Lynn <CEN32195@...> > >Hi Sue B, thanks for the note. I have got my hubby home now. He has fatty >liver tissue, and has to call the Dr. for the test results and more tests. >He >went in because he had theought he was having a heart attack, which after a >day >in the hospital, they decided he had not had one (this is good). But they >found this liver thing. What started all this, he had been taking some >quinine >for cramps, and it was labeled wrong so he actually got too much of it, >which >put him in a really bad situation. He was so ill and then got dehydrated >and >was in the hospital for that, and took another week for it to get out of >his >system, then he had the pains in his chest and the rest happened. At least >now >we know his heart is in great shape. I still have another 90 emails to go >through, I had planned to delete all, but don't want to miss what is going >on, >so I am still at it. Today we took my daughter who is due in October into >the >hosp. for a stress test on the baby, because it had been still for quite a >while, which is unusual for him (we think), but turns out the baby is doing >fine and her shower is tomorrow, I am exhausted, but happy things are >working >out okay. I have been too tired to look up the fatty liver issue, and I >need >to get the tests from the Dr. to see if it is something else or what. >Thanks a >bunch and will report back later. Lynn AIH > >milko wrote: > > > From: " milko " <milko@...> > > > > Lynn, > > Hard when you miss a couple of days isn't it, posts really mount up. > > What are your hubbies symptoms. Which of his liver tests were elevated? >I > > hope he is feeling better. What other tests will they do? Please let me > > know, I'll be thinking about you. > > SueB. > > > > ---------- > > > From: Lynn <CEN32195@...> > > > onelist > > > Subject: Re: [ ]pregnancy > > > Date: Friday, 20 August 1999 16:58 > > > > > > From: Lynn <CEN32195@...> > > > > > > Sue, I forgot to tell you, my 16 year old daughter is on her way!! >I've > > been > > > gone a few days and am reading the back email. My husband has been in > > and out > > > of the hospital for the last week and they can't figure out what is >going > > on. > > > He had elevated liver tests, then he had a ultra sound today and they > > couldn't > > > see anything so they say, so he is having more tests tomorrow. We >really > > wish > > > that they would find or not something and get this all over with! Bye > > for now, > > > am on the way to read more email. Lynn in Wa. aih > > > > > > milko wrote: > > > > > > > From: " milko " <milko@...> > > > > > > > > Lyn, > > > > Send her over, the more the merrier. > > > > SueB. > > > > > > > > ---------- > > > > > From: Lynn <CEN32195@...> > > > > > onelist > > > > > Subject: Re: [ ]pregnancy > > > > > Date: Friday, 13 August 1999 6:49 > > > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > > > She is 16 and come to think of it, I would pay someone to take >her!!! > > > > Lynn > > > > > > > > > > milko wrote: > > > > > > > > > > > From: " milko " <milko@...> > > > > > > > > > > > > Lynn, > > > > > > How old? I have one also, 17. Does she come with a dowry? Ha >Ha!! > > > > > > SueB. > > > > > > > > > > > > ---------- > > > > > > > From: Lynn <CEN32195@...> > > > > > > > onelist > > > > > > > Subject: Re: [ ]pregnancy > > > > > > > Date: Thursday, 12 August 1999 16:34 > > > > > > > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > > > > > > > Hi, I just must stick this in right here. For years i had >been > > > > telling > > > > > > everyone > > > > > > > that would listen to me that the only time in my life that I > > could > > > > say > > > > > > that I felt > > > > > > > well, just felt good and all, was when I was pregnant 3 times. > I > > am > > > > > > thinking that > > > > > > > if I had had this AIH for so many years, maybe that is why. > > Wouldn't > > > > > > that be > > > > > > > amazing? You can ask anyone that knows me, and they had heard >it > > > > many > > > > > > many > > > > > > > times. I thought that maybe my hormones were good at that >time > > or > > > > > > something. I > > > > > > > also had no desire to overeat or anything, I felt good. So >for > > about > > > > 27 > > > > > > months of > > > > > > > my life that I can remember, I have felt good. And that is >not > > a > > > > lie > > > > > > either! My > > > > > > > husband and I had been talking about this only yesterday! The > > Dr.s I > > > > had > > > > > > told in > > > > > > > the past would just look at me and shrug a shoulder, it took >all > > > > these > > > > > > years for > > > > > > > someone to listen enough to take tests--what can I say, I >don't > > feel > > > > too > > > > > > well > > > > > > > about Drs anymore either! But apparently pregnancy is >possible, > > and > > > > all > > > > > > my babies > > > > > > > were healthy, but I have a teenage girl I want to loan someone > > for a > > > > > > couple of > > > > > > > years, any takers????? Lynn aih > > > > > > > > > > > > > > Albert J. Bentley wrote: > > > > > > > > > > > > > > > From: " Albert J. Bentley " <jordent@...> > > > > > > > > > > > > > > > > Dear & Bob, > > > > > > > > Along these lines , I did read- but I can't recall the > > source-that > > > > > > during > > > > > > > > pregnancy the body activates a natural immunosupressive >process > > to > > > > > > protect > > > > > > > > the fetus from it's own immune system. I don't recall >details > > for I > > > > am > > > > > > not > > > > > > > > likely to become " big with child " . During that time drugs >may > > not > > > > be > > > > > > required. > > > > > > > > Pardon the expression but your " doctor " sounds like the >perfect > > > > > > asshole. > > > > > > > > You should > > > > > > > > tell him so. It is only your life that he is fiddling with. >For > > > > > > heaven's sake > > > > > > > > find yourself a hepatology expert. > > > > > > > > Regards, Albert > > > > > > > > > > > > > > > > >From: & Hain <romi@...> > > > > > > > > > > > > > > > > > >ADilli5783@... wrote: > > > > > > > > >> > > > > > > > > >> From: ADilli5783@... > > > > > > > > >> > > > > > > > > >> I am 26 years old and just got married and was planning >on > > > > starting > > > > > > a > > > > > > > > family > > > > > > > > >> when just one month ago I was diagnosed with autoimmune > > > > hepatitis. > > > > > > My > > > > > > > > biopsy > > > > > > > > >> came back very good the doctor said and started me on > > Predisone > > > > and > > > > > > Imuran. > > > > > > > > >> > > > > > > > > >> I wanted to know if there is anyone out there who has >been > > able > > > > to > > > > > > have a > > > > > > > > >> child with this disease. I asked the doctor and he said >it > > > > wouldn't > > > > > > be a > > > > > > > > >> problem, but when looking up Imuran it indicates that you > > should > > > > not > > > > > > take > > > > > > > > >> this medication while being pregnant. I was wondering if > > you > > > > could > > > > > > be on > > > > > > > > >> Predisone alone while being pregnant and still control >the > > > > disease. > > > > > > > > >> > > > > > > > > >> This is all so new to me and frightening. There are so >many > > > > > > unanswered > > > > > > > > >> questions that I have. If anybody has any information to > > offer, > > > > I > > > > > > would > > > > > > > > >> greatly appreciate it. > > > > > > > > >> > > > > > > > > >> Audra Dillingham > > > > > > > > >> adilli5783@... > > > > > > > > >> > > > > > > > > >> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 1999 Report Share Posted August 22, 1999 Lynn, does your hubby get enough calcium in his diet or with supplements? Lack of enough calcium causes leg cramps. J >From: Lynn <CEN32195@...> >Reply- onelist > onelist >Subject: Re: [ ]my hubby >Date: Sun, 22 Aug 1999 18:19:23 -0700 >MIME-Version: 1.0 >From errors-165537-5551-shireen42 Sun Aug 22 18:29:32 1999 >Received: from [209.207.164.207] by hotmail.com (2.1) with ESMTP id >MHotMailB989EEFA0199D82197E0D1CFA4CF69EE0; Sun Aug 22 18:29:32 1999 >Received: (qmail 3289 invoked by alias); 23 Aug 1999 01:27:17 -0000 >Received: (qmail 3282 invoked from network); 23 Aug 1999 01:27:16 -0000 >Received: from unknown (HELO mail.ptinet.net) (208.157.241.5) by >pop.onelist.com with SMTP; 23 Aug 1999 01:27:16 -0000 >Received: from ptinet.net (ppp027.mon.centuryinter.net [209.206.163.58]) by >mail.ptinet.net (8.8.8/8.8.8) with ESMTP id SAA24333 for >< onelist>; Sun, 22 Aug 1999 18:29:12 -0700 (PDT) >Message-ID: <37C0A19B.2E15C52@...> >X-Mailer: Mozilla 4.05 [en] (Win95; I) >References: <19990822210339.3448.qmail@...> >Mailing-List: list onelist; contact > -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: Lynn <CEN32195@...> > >Hi, cramping in his legs at night. It is a common remedy I guess. But >darn >near killed him, because of the mislabeling. Lynn > >susan johnson wrote: > > > From: " susan johnson " <shireen42@...> > > > > Hi Lynn > > > > Glad your hubby's heart is ok. I have fatty tissue also, please let me >know > > what you find out about it. > > > > Quinine for cramps? Never heard of it. Thought it was only for >malaria. > > What kind of cramps? > > > > J > > > > >From: Lynn <CEN32195@...> > > >Reply- onelist > > > onelist > > >Subject: Re: [ ]my hubby > > >Date: Sun, 22 Aug 1999 00:17:26 -0700 > > >MIME-Version: 1.0 > > >From errors-165537-5529-shireen42 Sun Aug 22 00:27:51 1999 > > >Received: from [209.207.164.235] by hotmail.com (2.1) with ESMTP id > > >MHotMailB988F1770197D82197D9D1CFA4EB117B0; Sun Aug 22 00:27:51 1999 > > >Received: (qmail 1219 invoked by alias); 22 Aug 1999 07:27:26 -0000 > > >Received: (qmail 1172 invoked from network); 22 Aug 1999 07:27:24 -0000 > > >Received: from unknown (HELO mail.ptinet.net) (208.157.241.5) by > > >pop1.onelist.com with SMTP; 22 Aug 1999 07:27:24 -0000 > > >Received: from ptinet.net (ppp059.mon.centuryinter.net >[209.206.163.90]) by > > >mail.ptinet.net (8.8.8/8.8.8) with ESMTP id AAA00959 for > > >< onelist>; Sun, 22 Aug 1999 00:27:18 -0700 (PDT) > > >Message-ID: <37BFA406.4A8A9D0E@...> > > >X-Mailer: Mozilla 4.05 [en] (Win95; I) > > >References: <199908201125.VAA10511@...> > > >Mailing-List: list onelist; contact > > > -owneronelist > > >Delivered-mailing list onelist > > >Precedence: bulk > > >List-Unsubscribe: <mailto: -unsubscribeONElist> > > > > > >From: Lynn <CEN32195@...> > > > > > >Hi Sue B, thanks for the note. I have got my hubby home now. He has >fatty > > >liver tissue, and has to call the Dr. for the test results and more >tests. > > >He > > >went in because he had theought he was having a heart attack, which >after a > > >day > > >in the hospital, they decided he had not had one (this is good). But >they > > >found this liver thing. What started all this, he had been taking some > > >quinine > > >for cramps, and it was labeled wrong so he actually got too much of it, > > >which > > >put him in a really bad situation. He was so ill and then got >dehydrated > > >and > > >was in the hospital for that, and took another week for it to get out >of > > >his > > >system, then he had the pains in his chest and the rest happened. At >least > > >now > > >we know his heart is in great shape. I still have another 90 emails to >go > > >through, I had planned to delete all, but don't want to miss what is >going > > >on, > > >so I am still at it. Today we took my daughter who is due in October >into > > >the > > >hosp. for a stress test on the baby, because it had been still for >quite a > > >while, which is unusual for him (we think), but turns out the baby is >doing > > >fine and her shower is tomorrow, I am exhausted, but happy things are > > >working > > >out okay. I have been too tired to look up the fatty liver issue, and >I > > >need > > >to get the tests from the Dr. to see if it is something else or what. > > >Thanks a > > >bunch and will report back later. Lynn AIH > > > > > >milko wrote: > > > > > > > From: " milko " <milko@...> > > > > > > > > Lynn, > > > > Hard when you miss a couple of days isn't it, posts really mount up. > > > > What are your hubbies symptoms. Which of his liver tests were >elevated? > > >I > > > > hope he is feeling better. What other tests will they do? Please let >me > > > > know, I'll be thinking about you. > > > > SueB. > > > > > > > > ---------- > > > > > From: Lynn <CEN32195@...> > > > > > onelist > > > > > Subject: Re: [ ]pregnancy > > > > > Date: Friday, 20 August 1999 16:58 > > > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > > > Sue, I forgot to tell you, my 16 year old daughter is on her way!! > > >I've > > > > been > > > > > gone a few days and am reading the back email. My husband has >been in > > > > and out > > > > > of the hospital for the last week and they can't figure out what >is > > >going > > > > on. > > > > > He had elevated liver tests, then he had a ultra sound today and >they > > > > couldn't > > > > > see anything so they say, so he is having more tests tomorrow. We > > >really > > > > wish > > > > > that they would find or not something and get this all over with! >Bye > > > > for now, > > > > > am on the way to read more email. Lynn in Wa. aih > > > > > > > > > > milko wrote: > > > > > > > > > > > From: " milko " <milko@...> > > > > > > > > > > > > Lyn, > > > > > > Send her over, the more the merrier. > > > > > > SueB. > > > > > > > > > > > > ---------- > > > > > > > From: Lynn <CEN32195@...> > > > > > > > onelist > > > > > > > Subject: Re: [ ]pregnancy > > > > > > > Date: Friday, 13 August 1999 6:49 > > > > > > > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > > > > > > > She is 16 and come to think of it, I would pay someone to take > > >her!!! > > > > > > Lynn > > > > > > > > > > > > > > milko wrote: > > > > > > > > > > > > > > > From: " milko " <milko@...> > > > > > > > > > > > > > > > > Lynn, > > > > > > > > How old? I have one also, 17. Does she come with a dowry? Ha > > >Ha!! > > > > > > > > SueB. > > > > > > > > > > > > > > > > ---------- > > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > > onelist > > > > > > > > > Subject: Re: [ ]pregnancy > > > > > > > > > Date: Thursday, 12 August 1999 16:34 > > > > > > > > > > > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > > > > > > > > > > > Hi, I just must stick this in right here. For years i had > > >been > > > > > > telling > > > > > > > > everyone > > > > > > > > > that would listen to me that the only time in my life that >I > > > > could > > > > > > say > > > > > > > > that I felt > > > > > > > > > well, just felt good and all, was when I was pregnant 3 >times. > > > I > > > > am > > > > > > > > thinking that > > > > > > > > > if I had had this AIH for so many years, maybe that is >why. > > > > Wouldn't > > > > > > > > that be > > > > > > > > > amazing? You can ask anyone that knows me, and they had >heard > > >it > > > > > > many > > > > > > > > many > > > > > > > > > times. I thought that maybe my hormones were good at that > > >time > > > > or > > > > > > > > something. I > > > > > > > > > also had no desire to overeat or anything, I felt good. >So > > >for > > > > about > > > > > > 27 > > > > > > > > months of > > > > > > > > > my life that I can remember, I have felt good. And that >is > > >not > > > > a > > > > > > lie > > > > > > > > either! My > > > > > > > > > husband and I had been talking about this only yesterday! >The > > > > Dr.s I > > > > > > had > > > > > > > > told in > > > > > > > > > the past would just look at me and shrug a shoulder, it >took > > >all > > > > > > these > > > > > > > > years for > > > > > > > > > someone to listen enough to take tests--what can I say, I > > >don't > > > > feel > > > > > > too > > > > > > > > well > > > > > > > > > about Drs anymore either! But apparently pregnancy is > > >possible, > > > > and > > > > > > all > > > > > > > > my babies > > > > > > > > > were healthy, but I have a teenage girl I want to loan >someone > > > > for a > > > > > > > > couple of > > > > > > > > > years, any takers????? Lynn aih > > > > > > > > > > > > > > > > > > Albert J. Bentley wrote: > > > > > > > > > > > > > > > > > > > From: " Albert J. Bentley " <jordent@...> > > > > > > > > > > > > > > > > > > > > Dear & Bob, > > > > > > > > > > Along these lines , I did read- but I can't recall the > > > > source-that > > > > > > > > during > > > > > > > > > > pregnancy the body activates a natural immunosupressive > > >process > > > > to > > > > > > > > protect > > > > > > > > > > the fetus from it's own immune system. I don't recall > > >details > > > > for I > > > > > > am > > > > > > > > not > > > > > > > > > > likely to become " big with child " . During that time >drugs > > >may > > > > not > > > > > > be > > > > > > > > required. > > > > > > > > > > Pardon the expression but your " doctor " sounds like the > > >perfect > > > > > > > > asshole. > > > > > > > > > > You should > > > > > > > > > > tell him so. It is only your life that he is fiddling >with. > > >For > > > > > > > > heaven's sake > > > > > > > > > > find yourself a hepatology expert. > > > > > > > > > > Regards, Albert > > > > > > > > > > > > > > > > > > > > >From: & Hain <romi@...> > > > > > > > > > > > > > > > > > > > > > >ADilli5783@... wrote: > > > > > > > > > > >> > > > > > > > > > > >> From: ADilli5783@... > > > > > > > > > > >> > > > > > > > > > > >> I am 26 years old and just got married and was >planning > > >on > > > > > > starting > > > > > > > > a > > > > > > > > > > family > > > > > > > > > > >> when just one month ago I was diagnosed with >autoimmune > > > > > > hepatitis. > > > > > > > > My > > > > > > > > > > biopsy > > > > > > > > > > >> came back very good the doctor said and started me on > > > > Predisone > > > > > > and > > > > > > > > Imuran. > > > > > > > > > > >> > > > > > > > > > > >> I wanted to know if there is anyone out there who has > > >been > > > > able > > > > > > to > > > > > > > > have a > > > > > > > > > > >> child with this disease. I asked the doctor and he >said > > >it > > > > > > wouldn't > > > > > > > > be a > > > > > > > > > > >> problem, but when looking up Imuran it indicates that >you > > > > should > > > > > > not > > > > > > > > take > > > > > > > > > > >> this medication while being pregnant. I was >wondering if > > > > you > > > > > > could > > > > > > > > be on > > > > > > > > > > >> Predisone alone while being pregnant and still >control > > >the > > > > > > disease. > > > > > > > > > > >> > > > > > > > > > > >> This is all so new to me and frightening. There are >so > > >many > > > > > > > > unanswered > > > > > > > > > > >> questions that I have. If anybody has any >information to > > > > offer, > > > > > > I > > > > > > > > would > > > > > > > > > > >> greatly appreciate it. > > > > > > > > > > >> > > > > > > > > > > >> Audra Dillingham > > > > > > > > > > >> adilli5783@... > > > > > > > > > > >> > > > > > > > > > > >> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 1999 Report Share Posted August 22, 1999 Lynn, I've pasted some info on fatty liver that might give you some insight. It mostly addresses fatty liver in the more usual sense, but I've had it show up in ultrasounds and CT scans since before my AIH diagnosis and I've never been overweight (before Prednisone) or a heavy drinker. Most of us with AIH seem to have fatty liver and I think that it's an indication of some degree of liver damage either in formative stage or already existing. You can have fatty liver without cirrhosis but I don't know if you can have cirrhosis without fatty liver. It's a good question to ask the doctor. Sounds like you've had some stressful things going on recently. I hope your lives are beginning to feel more normal and safe. Take care of yourself and that new baby! Who was responsible for the mislabel quinine anyhow? Sounds to me like some heads need to roll over that one. Quinine is potent stuff. I hope there was no permanent damage done to your husband directly caused by the quinine. Geri **************************************************************************** ******* Fatty Liver By J. Worman, M. D. Some individuals can develop fatty liver. Most people who do not abuse alcohol and have fatty liver are obese. Fatty liver is called steatosis, and fatty liver with liver inflammation is called or steatohepatitis. Steatosis and steatohepatitis can be caused by alcohol and other drugs and an also sometimes occur in patients with diabetes mellitus. steatohepatitis not caused by alcohol is sometimes referred to as on-alcoholic steatohepatitis or " NASH. " The factors that determine who will develop fatty liver are not known. Some mildly obese and occasional on-obese patients will develop fatty liver while some who are severely obese will not. Patients with fatty liver or steatohepatitis usually present to a physician with unexplained elevations in the serum aminotransferase activities. Serum alkaline phosphatase and gamma-glutamyltranspeptidase activities are usually normal. The patient is usually 10% or more above his/her ideal body eight. The diagnosis is usually suspected after other causes of hepatitis are excluded. A careful drug and alcohol history should be taken and serological testing for HBsAg and antibodies against the hepatitis C virus should be performed. Metabolic diseases should be excluded by a careful family history and appropriate testing if they are suspected. Serum protein electrophoresis and testing for autoantibodies should be performed if autoimmune hepatitis is suspected. Sometimes, patients with fatty liver or steatohepatitis will have elevated serum triglyceride concentrations, however, this is not always the case. If a patient has elevations in serum aminotransferase activities for longer than six months, he/she should have a liver biopsy to make the diagnosis the fatty liver or steatohepatitis. Steatohepatitis can progress to cirrhosis. Treatment (diet and exercise) may stop this progression. Steatosis and steatohepatitis will often improve with weight loss, preferably to near the patient's ideal body weight. Avoidance of alcohol and potentially hepatotoxic drugs may also be beneficial. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 1999 Report Share Posted August 22, 1999 Hi, cramping in his legs at night. It is a common remedy I guess. But darn near killed him, because of the mislabeling. Lynn susan johnson wrote: > From: " susan johnson " <shireen42@...> > > Hi Lynn > > Glad your hubby's heart is ok. I have fatty tissue also, please let me know > what you find out about it. > > Quinine for cramps? Never heard of it. Thought it was only for malaria. > What kind of cramps? > > J > > >From: Lynn <CEN32195@...> > >Reply- onelist > > onelist > >Subject: Re: [ ]my hubby > >Date: Sun, 22 Aug 1999 00:17:26 -0700 > >MIME-Version: 1.0 > >From errors-165537-5529-shireen42 Sun Aug 22 00:27:51 1999 > >Received: from [209.207.164.235] by hotmail.com (2.1) with ESMTP id > >MHotMailB988F1770197D82197D9D1CFA4EB117B0; Sun Aug 22 00:27:51 1999 > >Received: (qmail 1219 invoked by alias); 22 Aug 1999 07:27:26 -0000 > >Received: (qmail 1172 invoked from network); 22 Aug 1999 07:27:24 -0000 > >Received: from unknown (HELO mail.ptinet.net) (208.157.241.5) by > >pop1.onelist.com with SMTP; 22 Aug 1999 07:27:24 -0000 > >Received: from ptinet.net (ppp059.mon.centuryinter.net [209.206.163.90]) by > >mail.ptinet.net (8.8.8/8.8.8) with ESMTP id AAA00959 for > >< onelist>; Sun, 22 Aug 1999 00:27:18 -0700 (PDT) > >Message-ID: <37BFA406.4A8A9D0E@...> > >X-Mailer: Mozilla 4.05 [en] (Win95; I) > >References: <199908201125.VAA10511@...> > >Mailing-List: list onelist; contact > > -owneronelist > >Delivered-mailing list onelist > >Precedence: bulk > >List-Unsubscribe: <mailto: -unsubscribeONElist> > > > >From: Lynn <CEN32195@...> > > > >Hi Sue B, thanks for the note. I have got my hubby home now. He has fatty > >liver tissue, and has to call the Dr. for the test results and more tests. > >He > >went in because he had theought he was having a heart attack, which after a > >day > >in the hospital, they decided he had not had one (this is good). But they > >found this liver thing. What started all this, he had been taking some > >quinine > >for cramps, and it was labeled wrong so he actually got too much of it, > >which > >put him in a really bad situation. He was so ill and then got dehydrated > >and > >was in the hospital for that, and took another week for it to get out of > >his > >system, then he had the pains in his chest and the rest happened. At least > >now > >we know his heart is in great shape. I still have another 90 emails to go > >through, I had planned to delete all, but don't want to miss what is going > >on, > >so I am still at it. Today we took my daughter who is due in October into > >the > >hosp. for a stress test on the baby, because it had been still for quite a > >while, which is unusual for him (we think), but turns out the baby is doing > >fine and her shower is tomorrow, I am exhausted, but happy things are > >working > >out okay. I have been too tired to look up the fatty liver issue, and I > >need > >to get the tests from the Dr. to see if it is something else or what. > >Thanks a > >bunch and will report back later. Lynn AIH > > > >milko wrote: > > > > > From: " milko " <milko@...> > > > > > > Lynn, > > > Hard when you miss a couple of days isn't it, posts really mount up. > > > What are your hubbies symptoms. Which of his liver tests were elevated? > >I > > > hope he is feeling better. What other tests will they do? Please let me > > > know, I'll be thinking about you. > > > SueB. > > > > > > ---------- > > > > From: Lynn <CEN32195@...> > > > > onelist > > > > Subject: Re: [ ]pregnancy > > > > Date: Friday, 20 August 1999 16:58 > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > Sue, I forgot to tell you, my 16 year old daughter is on her way!! > >I've > > > been > > > > gone a few days and am reading the back email. My husband has been in > > > and out > > > > of the hospital for the last week and they can't figure out what is > >going > > > on. > > > > He had elevated liver tests, then he had a ultra sound today and they > > > couldn't > > > > see anything so they say, so he is having more tests tomorrow. We > >really > > > wish > > > > that they would find or not something and get this all over with! Bye > > > for now, > > > > am on the way to read more email. Lynn in Wa. aih > > > > > > > > milko wrote: > > > > > > > > > From: " milko " <milko@...> > > > > > > > > > > Lyn, > > > > > Send her over, the more the merrier. > > > > > SueB. > > > > > > > > > > ---------- > > > > > > From: Lynn <CEN32195@...> > > > > > > onelist > > > > > > Subject: Re: [ ]pregnancy > > > > > > Date: Friday, 13 August 1999 6:49 > > > > > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > > > > > She is 16 and come to think of it, I would pay someone to take > >her!!! > > > > > Lynn > > > > > > > > > > > > milko wrote: > > > > > > > > > > > > > From: " milko " <milko@...> > > > > > > > > > > > > > > Lynn, > > > > > > > How old? I have one also, 17. Does she come with a dowry? Ha > >Ha!! > > > > > > > SueB. > > > > > > > > > > > > > > ---------- > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > onelist > > > > > > > > Subject: Re: [ ]pregnancy > > > > > > > > Date: Thursday, 12 August 1999 16:34 > > > > > > > > > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > > > > > > > > > Hi, I just must stick this in right here. For years i had > >been > > > > > telling > > > > > > > everyone > > > > > > > > that would listen to me that the only time in my life that I > > > could > > > > > say > > > > > > > that I felt > > > > > > > > well, just felt good and all, was when I was pregnant 3 times. > > I > > > am > > > > > > > thinking that > > > > > > > > if I had had this AIH for so many years, maybe that is why. > > > Wouldn't > > > > > > > that be > > > > > > > > amazing? You can ask anyone that knows me, and they had heard > >it > > > > > many > > > > > > > many > > > > > > > > times. I thought that maybe my hormones were good at that > >time > > > or > > > > > > > something. I > > > > > > > > also had no desire to overeat or anything, I felt good. So > >for > > > about > > > > > 27 > > > > > > > months of > > > > > > > > my life that I can remember, I have felt good. And that is > >not > > > a > > > > > lie > > > > > > > either! My > > > > > > > > husband and I had been talking about this only yesterday! The > > > Dr.s I > > > > > had > > > > > > > told in > > > > > > > > the past would just look at me and shrug a shoulder, it took > >all > > > > > these > > > > > > > years for > > > > > > > > someone to listen enough to take tests--what can I say, I > >don't > > > feel > > > > > too > > > > > > > well > > > > > > > > about Drs anymore either! But apparently pregnancy is > >possible, > > > and > > > > > all > > > > > > > my babies > > > > > > > > were healthy, but I have a teenage girl I want to loan someone > > > for a > > > > > > > couple of > > > > > > > > years, any takers????? Lynn aih > > > > > > > > > > > > > > > > Albert J. Bentley wrote: > > > > > > > > > > > > > > > > > From: " Albert J. Bentley " <jordent@...> > > > > > > > > > > > > > > > > > > Dear & Bob, > > > > > > > > > Along these lines , I did read- but I can't recall the > > > source-that > > > > > > > during > > > > > > > > > pregnancy the body activates a natural immunosupressive > >process > > > to > > > > > > > protect > > > > > > > > > the fetus from it's own immune system. I don't recall > >details > > > for I > > > > > am > > > > > > > not > > > > > > > > > likely to become " big with child " . During that time drugs > >may > > > not > > > > > be > > > > > > > required. > > > > > > > > > Pardon the expression but your " doctor " sounds like the > >perfect > > > > > > > asshole. > > > > > > > > > You should > > > > > > > > > tell him so. It is only your life that he is fiddling with. > >For > > > > > > > heaven's sake > > > > > > > > > find yourself a hepatology expert. > > > > > > > > > Regards, Albert > > > > > > > > > > > > > > > > > > >From: & Hain <romi@...> > > > > > > > > > > > > > > > > > > > >ADilli5783@... wrote: > > > > > > > > > >> > > > > > > > > > >> From: ADilli5783@... > > > > > > > > > >> > > > > > > > > > >> I am 26 years old and just got married and was planning > >on > > > > > starting > > > > > > > a > > > > > > > > > family > > > > > > > > > >> when just one month ago I was diagnosed with autoimmune > > > > > hepatitis. > > > > > > > My > > > > > > > > > biopsy > > > > > > > > > >> came back very good the doctor said and started me on > > > Predisone > > > > > and > > > > > > > Imuran. > > > > > > > > > >> > > > > > > > > > >> I wanted to know if there is anyone out there who has > >been > > > able > > > > > to > > > > > > > have a > > > > > > > > > >> child with this disease. I asked the doctor and he said > >it > > > > > wouldn't > > > > > > > be a > > > > > > > > > >> problem, but when looking up Imuran it indicates that you > > > should > > > > > not > > > > > > > take > > > > > > > > > >> this medication while being pregnant. I was wondering if > > > you > > > > > could > > > > > > > be on > > > > > > > > > >> Predisone alone while being pregnant and still control > >the > > > > > disease. > > > > > > > > > >> > > > > > > > > > >> This is all so new to me and frightening. There are so > >many > > > > > > > unanswered > > > > > > > > > >> questions that I have. If anybody has any information to > > > offer, > > > > > I > > > > > > > would > > > > > > > > > >> greatly appreciate it. > > > > > > > > > >> > > > > > > > > > >> Audra Dillingham > > > > > > > > > >> adilli5783@... > > > > > > > > > >> > > > > > > > > > >> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 1999 Report Share Posted August 22, 1999 Thanks Geri for the info. I thought hubby was a gonner for a while, it was really scarry and hard to figure out what was going on. Yes thanks everyone, he is much better now. He will still have the liver things to go through I guess. We find out this week. Gosh, I may have a companion for the poop patrol!!! I don't know about the labeling, but will check it out. Thanks everyone, Lynn aih Geri Spang wrote: > From: Geri Spang <spangs@...> > > Lynn, > I've pasted some info on fatty liver that might give you some insight. It > mostly addresses fatty liver in the more usual sense, but I've had it show up > in ultrasounds and CT scans since before my AIH diagnosis and I've never been > overweight (before Prednisone) or a heavy drinker. Most of us with AIH seem to > have fatty liver and I think that it's an indication of some degree of liver > damage either in formative stage or already existing. You can have fatty liver > without cirrhosis but I don't know if you can have cirrhosis without fatty > liver. It's a good question to ask the doctor. > > Sounds like you've had some stressful things going on recently. I hope your > lives are beginning to feel more normal and safe. Take care of yourself and > that new baby! Who was responsible for the mislabel quinine anyhow? Sounds to > me like some heads need to roll over that one. Quinine is potent stuff. I > hope there was no permanent damage done to your husband directly caused by the > quinine. > Geri > **************************************************************************** > ******* > Fatty Liver > > By J. Worman, M. D. > Some individuals can develop fatty liver. Most people who do not abuse alcohol > and have fatty liver are obese. Fatty liver is called steatosis, and fatty > liver with liver inflammation is called or steatohepatitis. Steatosis and > steatohepatitis can be caused by alcohol and other drugs and an also sometimes > occur in patients with diabetes mellitus. steatohepatitis not caused by alcohol > is sometimes referred to as on-alcoholic steatohepatitis or " NASH. " The factors > that determine who will develop fatty liver are not known. Some mildly obese > and occasional on-obese patients will develop fatty liver while some who are > severely obese will not. > > Patients with fatty liver or steatohepatitis usually present to a physician > with unexplained elevations in the serum aminotransferase activities. Serum > alkaline phosphatase and gamma-glutamyltranspeptidase activities are usually > normal. The patient is usually 10% or more above his/her ideal body eight. > > The diagnosis is usually suspected after other causes of hepatitis are > excluded. A careful drug and alcohol history should be taken and serological > testing for HBsAg and antibodies against the hepatitis C virus should be > performed. Metabolic diseases should be excluded by a careful family history > and appropriate testing if they are suspected. Serum protein electrophoresis > and testing for autoantibodies should be performed if autoimmune hepatitis is > suspected. Sometimes, patients with fatty liver or steatohepatitis will have > elevated serum triglyceride concentrations, however, this is not always the > case. If a patient has elevations in serum aminotransferase activities for > longer than six months, he/she should have a liver biopsy to make the diagnosis > the fatty liver or steatohepatitis. > > Steatohepatitis can progress to cirrhosis. Treatment (diet and exercise) may > stop this progression. Steatosis and steatohepatitis will often improve with > weight loss, preferably to near the patient's ideal body weight. Avoidance of > alcohol and potentially hepatotoxic drugs may also be beneficial. > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 1999 Report Share Posted August 22, 1999 Hi, after investigating the leg cramp thing, we have just about tried everything. That is when the Dr. came up with the quinine, which works if used properly. Thanks, Lynn susan johnson wrote: > From: " susan johnson " <shireen42@...> > > Lynn, > > does your hubby get enough calcium in his diet or with supplements? Lack of > enough calcium causes leg cramps. > > J > > >From: Lynn <CEN32195@...> > >Reply- onelist > > onelist > >Subject: Re: [ ]my hubby > >Date: Sun, 22 Aug 1999 18:19:23 -0700 > >MIME-Version: 1.0 > >From errors-165537-5551-shireen42 Sun Aug 22 18:29:32 1999 > >Received: from [209.207.164.207] by hotmail.com (2.1) with ESMTP id > >MHotMailB989EEFA0199D82197E0D1CFA4CF69EE0; Sun Aug 22 18:29:32 1999 > >Received: (qmail 3289 invoked by alias); 23 Aug 1999 01:27:17 -0000 > >Received: (qmail 3282 invoked from network); 23 Aug 1999 01:27:16 -0000 > >Received: from unknown (HELO mail.ptinet.net) (208.157.241.5) by > >pop.onelist.com with SMTP; 23 Aug 1999 01:27:16 -0000 > >Received: from ptinet.net (ppp027.mon.centuryinter.net [209.206.163.58]) by > >mail.ptinet.net (8.8.8/8.8.8) with ESMTP id SAA24333 for > >< onelist>; Sun, 22 Aug 1999 18:29:12 -0700 (PDT) > >Message-ID: <37C0A19B.2E15C52@...> > >X-Mailer: Mozilla 4.05 [en] (Win95; I) > >References: <19990822210339.3448.qmail@...> > >Mailing-List: list onelist; contact > > -owneronelist > >Delivered-mailing list onelist > >Precedence: bulk > >List-Unsubscribe: <mailto: -unsubscribeONElist> > > > >From: Lynn <CEN32195@...> > > > >Hi, cramping in his legs at night. It is a common remedy I guess. But > >darn > >near killed him, because of the mislabeling. Lynn > > > >susan johnson wrote: > > > > > From: " susan johnson " <shireen42@...> > > > > > > Hi Lynn > > > > > > Glad your hubby's heart is ok. I have fatty tissue also, please let me > >know > > > what you find out about it. > > > > > > Quinine for cramps? Never heard of it. Thought it was only for > >malaria. > > > What kind of cramps? > > > > > > J > > > > > > >From: Lynn <CEN32195@...> > > > >Reply- onelist > > > > onelist > > > >Subject: Re: [ ]my hubby > > > >Date: Sun, 22 Aug 1999 00:17:26 -0700 > > > >MIME-Version: 1.0 > > > >From errors-165537-5529-shireen42 Sun Aug 22 00:27:51 1999 > > > >Received: from [209.207.164.235] by hotmail.com (2.1) with ESMTP id > > > >MHotMailB988F1770197D82197D9D1CFA4EB117B0; Sun Aug 22 00:27:51 1999 > > > >Received: (qmail 1219 invoked by alias); 22 Aug 1999 07:27:26 -0000 > > > >Received: (qmail 1172 invoked from network); 22 Aug 1999 07:27:24 -0000 > > > >Received: from unknown (HELO mail.ptinet.net) (208.157.241.5) by > > > >pop1.onelist.com with SMTP; 22 Aug 1999 07:27:24 -0000 > > > >Received: from ptinet.net (ppp059.mon.centuryinter.net > >[209.206.163.90]) by > > > >mail.ptinet.net (8.8.8/8.8.8) with ESMTP id AAA00959 for > > > >< onelist>; Sun, 22 Aug 1999 00:27:18 -0700 (PDT) > > > >Message-ID: <37BFA406.4A8A9D0E@...> > > > >X-Mailer: Mozilla 4.05 [en] (Win95; I) > > > >References: <199908201125.VAA10511@...> > > > >Mailing-List: list onelist; contact > > > > -owneronelist > > > >Delivered-mailing list onelist > > > >Precedence: bulk > > > >List-Unsubscribe: <mailto: -unsubscribeONElist> > > > > > > > >From: Lynn <CEN32195@...> > > > > > > > >Hi Sue B, thanks for the note. I have got my hubby home now. He has > >fatty > > > >liver tissue, and has to call the Dr. for the test results and more > >tests. > > > >He > > > >went in because he had theought he was having a heart attack, which > >after a > > > >day > > > >in the hospital, they decided he had not had one (this is good). But > >they > > > >found this liver thing. What started all this, he had been taking some > > > >quinine > > > >for cramps, and it was labeled wrong so he actually got too much of it, > > > >which > > > >put him in a really bad situation. He was so ill and then got > >dehydrated > > > >and > > > >was in the hospital for that, and took another week for it to get out > >of > > > >his > > > >system, then he had the pains in his chest and the rest happened. At > >least > > > >now > > > >we know his heart is in great shape. I still have another 90 emails to > >go > > > >through, I had planned to delete all, but don't want to miss what is > >going > > > >on, > > > >so I am still at it. Today we took my daughter who is due in October > >into > > > >the > > > >hosp. for a stress test on the baby, because it had been still for > >quite a > > > >while, which is unusual for him (we think), but turns out the baby is > >doing > > > >fine and her shower is tomorrow, I am exhausted, but happy things are > > > >working > > > >out okay. I have been too tired to look up the fatty liver issue, and > >I > > > >need > > > >to get the tests from the Dr. to see if it is something else or what. > > > >Thanks a > > > >bunch and will report back later. Lynn AIH > > > > > > > >milko wrote: > > > > > > > > > From: " milko " <milko@...> > > > > > > > > > > Lynn, > > > > > Hard when you miss a couple of days isn't it, posts really mount up. > > > > > What are your hubbies symptoms. Which of his liver tests were > >elevated? > > > >I > > > > > hope he is feeling better. What other tests will they do? Please let > >me > > > > > know, I'll be thinking about you. > > > > > SueB. > > > > > > > > > > ---------- > > > > > > From: Lynn <CEN32195@...> > > > > > > onelist > > > > > > Subject: Re: [ ]pregnancy > > > > > > Date: Friday, 20 August 1999 16:58 > > > > > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > > > > > Sue, I forgot to tell you, my 16 year old daughter is on her way!! > > > >I've > > > > > been > > > > > > gone a few days and am reading the back email. My husband has > >been in > > > > > and out > > > > > > of the hospital for the last week and they can't figure out what > >is > > > >going > > > > > on. > > > > > > He had elevated liver tests, then he had a ultra sound today and > >they > > > > > couldn't > > > > > > see anything so they say, so he is having more tests tomorrow. We > > > >really > > > > > wish > > > > > > that they would find or not something and get this all over with! > >Bye > > > > > for now, > > > > > > am on the way to read more email. Lynn in Wa. aih > > > > > > > > > > > > milko wrote: > > > > > > > > > > > > > From: " milko " <milko@...> > > > > > > > > > > > > > > Lyn, > > > > > > > Send her over, the more the merrier. > > > > > > > SueB. > > > > > > > > > > > > > > ---------- > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > onelist > > > > > > > > Subject: Re: [ ]pregnancy > > > > > > > > Date: Friday, 13 August 1999 6:49 > > > > > > > > > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > > > > > > > > > She is 16 and come to think of it, I would pay someone to take > > > >her!!! > > > > > > > Lynn > > > > > > > > > > > > > > > > milko wrote: > > > > > > > > > > > > > > > > > From: " milko " <milko@...> > > > > > > > > > > > > > > > > > > Lynn, > > > > > > > > > How old? I have one also, 17. Does she come with a dowry? Ha > > > >Ha!! > > > > > > > > > SueB. > > > > > > > > > > > > > > > > > > ---------- > > > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > > > onelist > > > > > > > > > > Subject: Re: [ ]pregnancy > > > > > > > > > > Date: Thursday, 12 August 1999 16:34 > > > > > > > > > > > > > > > > > > > > From: Lynn <CEN32195@...> > > > > > > > > > > > > > > > > > > > > Hi, I just must stick this in right here. For years i had > > > >been > > > > > > > telling > > > > > > > > > everyone > > > > > > > > > > that would listen to me that the only time in my life that > >I > > > > > could > > > > > > > say > > > > > > > > > that I felt > > > > > > > > > > well, just felt good and all, was when I was pregnant 3 > >times. > > > > I > > > > > am > > > > > > > > > thinking that > > > > > > > > > > if I had had this AIH for so many years, maybe that is > >why. > > > > > Wouldn't > > > > > > > > > that be > > > > > > > > > > amazing? You can ask anyone that knows me, and they had > >heard > > > >it > > > > > > > many > > > > > > > > > many > > > > > > > > > > times. I thought that maybe my hormones were good at that > > > >time > > > > > or > > > > > > > > > something. I > > > > > > > > > > also had no desire to overeat or anything, I felt good. > >So > > > >for > > > > > about > > > > > > > 27 > > > > > > > > > months of > > > > > > > > > > my life that I can remember, I have felt good. And that > >is > > > >not > > > > > a > > > > > > > lie > > > > > > > > > either! My > > > > > > > > > > husband and I had been talking about this only yesterday! > >The > > > > > Dr.s I > > > > > > > had > > > > > > > > > told in > > > > > > > > > > the past would just look at me and shrug a shoulder, it > >took > > > >all > > > > > > > these > > > > > > > > > years for > > > > > > > > > > someone to listen enough to take tests--what can I say, I > > > >don't > > > > > feel > > > > > > > too > > > > > > > > > well > > > > > > > > > > about Drs anymore either! But apparently pregnancy is > > > >possible, > > > > > and > > > > > > > all > > > > > > > > > my babies > > > > > > > > > > were healthy, but I have a teenage girl I want to loan > >someone > > > > > for a > > > > > > > > > couple of > > > > > > > > > > years, any takers????? Lynn aih > > > > > > > > > > > > > > > > > > > > Albert J. Bentley wrote: > > > > > > > > > > > > > > > > > > > > > From: " Albert J. Bentley " <jordent@...> > > > > > > > > > > > > > > > > > > > > > > Dear & Bob, > > > > > > > > > > > Along these lines , I did read- but I can't recall the > > > > > source-that > > > > > > > > > during > > > > > > > > > > > pregnancy the body activates a natural immunosupressive > > > >process > > > > > to > > > > > > > > > protect > > > > > > > > > > > the fetus from it's own immune system. I don't recall > > > >details > > > > > for I > > > > > > > am > > > > > > > > > not > > > > > > > > > > > likely to become " big with child " . During that time > >drugs > > > >may > > > > > not > > > > > > > be > > > > > > > > > required. > > > > > > > > > > > Pardon the expression but your " doctor " sounds like the > > > >perfect > > > > > > > > > asshole. > > > > > > > > > > > You should > > > > > > > > > > > tell him so. It is only your life that he is fiddling > >with. > > > >For > > > > > > > > > heaven's sake > > > > > > > > > > > find yourself a hepatology expert. > > > > > > > > > > > Regards, Albert > > > > > > > > > > > > > > > > > > > > > > >From: & Hain <romi@...> > > > > > > > > > > > > > > > > > > > > > > > >ADilli5783@... wrote: > > > > > > > > > > > >> > > > > > > > > > > > >> From: ADilli5783@... > > > > > > > > > > > >> > > > > > > > > > > > >> I am 26 years old and just got married and was > >planning > > > >on > > > > > > > starting > > > > > > > > > a > > > > > > > > > > > family > > > > > > > > > > > >> when just one month ago I was diagnosed with > >autoimmune > > > > > > > hepatitis. > > > > > > > > > My > > > > > > > > > > > biopsy > > > > > > > > > > > >> came back very good the doctor said and started me on > > > > > Predisone > > > > > > > and > > > > > > > > > Imuran. > > > > > > > > > > > >> > > > > > > > > > > > >> I wanted to know if there is anyone out there who has > > > >been > > > > > able > > > > > > > to > > > > > > > > > have a > > > > > > > > > > > >> child with this disease. I asked the doctor and he > >said > > > >it > > > > > > > wouldn't > > > > > > > > > be a > > > > > > > > > > > >> problem, but when looking up Imuran it indicates that > >you > > > > > should > > > > > > > not > > > > > > > > > take > > > > > > > > > > > >> this medication while being pregnant. I was > >wondering if > > > > > you > > > > > > > could > > > > > > > > > be on > > > > > > > > > > > >> Predisone alone while being pregnant and still > >control > > > >the > > > > > > > disease. > > > > > > > > > > > >> > > > > > > > > > > > >> This is all so new to me and frightening. There are > >so > > > >many > > > > > > > > > unanswered > > > > > > > > > > > >> questions that I have. If anybody has any > >information to > > > > > offer, > > > > > > > I > > > > > > > > > would > > > > > > > > > > > >> greatly appreciate it. > > > > > > > > > > > >> > > > > > > > > > > > >> Audra Dillingham > > > > > > > > > > > >> adilli5783@... > > > > > > > > > > > >> > > > > > > > > > > > >> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 Lynn, I'm horrified to see how often serious illness seems to hit multiple members of one family. It's like something is cockeyed in the overall scheme of things. You are both so young to have to deal with all of this and you have so many reasons to need your health right now, especially for your baby and always for each other. I can tell you, it's incredibly frightening and depressing when it seems that the bottom of your world is falling away. We've been through it but we're so much older, it's part of the logical process of life for people to begin to get sick. But here's the amazing thing. After the initial shock and fear, you adapt and I do believe that frame of mind and fundamental optimism about life and the future make an amazing difference in how well you deal with these things. What you need to find out is whether the pharmacy made the mistake in the labeling or the doctor made a mistake in the dosage or if the quinine was mislabeled by the manufacturer. I mention this because someone has some liability here. Your husband could have died because of someone's carelessness and/or negligence. If it has cost you in added medical expenses and missed work, that cost should be borne by whoever is responsible for the mistake. Don't worry, they're insured, but if someone doesn't take them to task for this kind of negligence, it can happen again to someone else, with even worse consequences. Something else to consider: Has this caused serious damage to your husband's liver and perhaps other organs too? Then the liability to the negligent parties is even higher. Don't assume that because your husband is better now, you've seen the end of the problem. I would try very hard to get another opinion from an objective third party. Find out as much as you can about how this happened, then contact a top level medical malpractice attorney. (Whatever you do, don't go to one of those hole-in-the-wall attorneys who get all their clients through the Yellow Pages.) Bear in mind that whoever is responsible is highly unlikely to admit that they are responsible for anything and might even try to reassure you that the problem is now eliminated and there will be no future complications as a result. Please, until you've talked to an attorney, don't sign any kind of release or anything else. I don't believe in running to an attorney to sue someone every time things don't go the way we want them to. However, what has happened to your husband as you've described it is very serious. I don't remember the details well, but according to my Mom, during WWII she somehow got malaria - probably from a mosquito that came into the US with returning troops. She was deathly ill and they gave her quinine. Instead of that making her better, she became even more sick and someplace along the line they gave her sulfa, which almost killed her. Whether it was the quinine or the sulfa (maybe neither or maybe both) one of her kidneys atrophied and " died " . Recently a doctor told me that she may have had some kind of autoimmune disease, but since her kidney problems started shortly after all of this happened, I'm wondering if the drugs were the culprits. Point being, the quinine has apparently already caused liver damage, so what about his kidneys? You really do need to have him see a different doctor. Hope I'm not saying anything scary. No reason to believe there even is a problem anymore, but if there is, better to find out now when it's early enough to do something about it than to find out when it's too late because damage has been allowed to progress unchecked. The pharmacy we go to made two serious mistakes within a few months, when they gave us (me one time, my husband another time) the wrong drugs that, in each case, could have made us very sick or worse. We stopped going there and we didn't file a complaint though we probably should have. What worries me is that if one of those drugs would have killed us, even an autopsy probably wouldn't have shown that it was due to the wrong medications because that's not what they would have looked for! Fortunately, we spotted the meds for being the wrong ones before we took them. If they'd been new drugs to us, we wouldn't have known the difference. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 Thanks Geri, you have given me a place to start looking. Gives me something to think about too. Sometimes I do get where I think this all is just too much, but I have 3 kids and my grandkids to look forward too, so I just keep plugging along. My husband doesn't know what to think, and all my kids are upset, what a mess. Thanks again Geri, and I will start tomorrow. Lynn Geri Spang wrote: > From: Geri Spang <spangs@...> > > Lynn, > I'm horrified to see how often serious illness seems to hit multiple members of > one family. It's like something is cockeyed in the overall scheme of things. > You are both so young to have to deal with all of this and you have so many > reasons to need your health right now, especially for your baby and always for > each other. > > I can tell you, it's incredibly frightening and depressing when it seems that > the bottom of your world is falling away. We've been through it but we're so > much older, it's part of the logical process of life for people to begin to get > sick. But here's the amazing thing. After the initial shock and fear, you > adapt and I do believe that frame of mind and fundamental optimism about life > and the future make an amazing difference in how well you deal with these > things. > > What you need to find out is whether the pharmacy made the mistake in the > labeling or the doctor made a mistake in the dosage or if the quinine was > mislabeled by the manufacturer. I mention this because someone has some > liability here. Your husband could have died because of someone's carelessness > and/or negligence. If it has cost you in added medical expenses and missed > work, that cost should be borne by whoever is responsible for the mistake. > Don't worry, they're insured, but if someone doesn't take them to task for > this kind of negligence, it can happen again to someone else, with even worse > consequences. Something else to consider: Has this caused serious damage to > your husband's liver and perhaps other organs too? Then the liability to the > negligent parties is even higher. Don't assume that because your husband is > better now, you've seen the end of the problem. I would try very hard to get > another opinion from an objective third party. Find out as much as you can > about how this happened, then contact a top level medical malpractice > attorney. (Whatever you do, don't go to one of those hole-in-the-wall > attorneys who get all their clients through the Yellow Pages.) > > Bear in mind that whoever is responsible is highly unlikely to admit that they > are responsible for anything and might even try to reassure you that the > problem is now eliminated and there will be no future complications as a > result. Please, until you've talked to an attorney, don't sign any kind of > release or anything else. I don't believe in running to an attorney to sue > someone every time things don't go the way we want them to. However, what has > happened to your husband as you've described it is very serious. > > I don't remember the details well, but according to my Mom, during WWII she > somehow got malaria - probably from a mosquito that came into the US with > returning troops. She was deathly ill and they gave her quinine. Instead of > that making her better, she became even more sick and someplace along the line > they gave her sulfa, which almost killed her. Whether it was the quinine or > the sulfa (maybe neither or maybe both) one of her kidneys atrophied and > " died " . Recently a doctor told me that she may have had some kind of > autoimmune disease, but since her kidney problems started shortly after all of > this happened, I'm wondering if the drugs were the culprits. Point being, the > quinine has apparently already caused liver damage, so what about his kidneys? > You really do need to have him see a different doctor. > > Hope I'm not saying anything scary. No reason to believe there even is a > problem anymore, but if there is, better to find out now when it's early enough > to do something about it than to find out when it's too late because damage has > been allowed to progress unchecked. > > The pharmacy we go to made two serious mistakes within a few months, when they > gave us (me one time, my husband another time) the wrong drugs that, in each > case, could have made us very sick or worse. We stopped going there and we > didn't file a complaint though we probably should have. What worries me is > that if one of those drugs would have killed us, even an autopsy probably > wouldn't have shown that it was due to the wrong medications because that's not > what they would have looked for! Fortunately, we spotted the meds for being > the wrong ones before we took them. If they'd been new drugs to us, we > wouldn't have known the difference. > > Take care, > Geri > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 Lynn, hope your hubby is doing better now. October 9th is a good date to have a baby (my son's birthday) Keep me informed, I'll be pulling for you to have everything go well. SueB. ---------- @onelist.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 Thanks SueB, she is due on the 13th, so who knows, can't wait, and dear hubby went to work today and feels a lot better, just tired. Thanks all, Lynn milko wrote: > From: " milko " <milko@...> > > Lynn, hope your hubby is doing better now. > October 9th is a good date to have a baby (my son's birthday) > Keep me informed, I'll be pulling for you to have everything go well. > SueB. > ---------- > @onelist.com > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 Hi everyone..IN regards to the leg cramps..I dont know if you already heard this from the others inthe group but Low potassium causes leg cramps. I read that he was dehydrated. thats classic for dehydration. Eating some bananas or gateraid will help.. sorry if this is a repeat Jody --- Lynn <CEN32195@...> wrote: > From: Lynn <CEN32195@...> > > Hi, after investigating the leg cramp thing, we have > just about tried > everything. That is when the Dr. came up with the > quinine, which works if used > properly. Thanks, Lynn > > susan johnson wrote: > > > From: " susan johnson " <shireen42@...> > > > > Lynn, > > > > does your hubby get enough calcium in his diet or > with supplements? Lack of > > enough calcium causes leg cramps. > > > > J > > > > >From: Lynn <CEN32195@...> > > >Reply- onelist > > > onelist > > >Subject: Re: [ ]my hubby > > >Date: Sun, 22 Aug 1999 18:19:23 -0700 > > >MIME-Version: 1.0 > > >From errors-165537-5551-shireen42 Sun Aug 22 > 18:29:32 1999 > > >Received: from [209.207.164.207] by hotmail.com > (2.1) with ESMTP id > > >MHotMailB989EEFA0199D82197E0D1CFA4CF69EE0; Sun > Aug 22 18:29:32 1999 > > >Received: (qmail 3289 invoked by alias); 23 Aug > 1999 01:27:17 -0000 > > >Received: (qmail 3282 invoked from network); 23 > Aug 1999 01:27:16 -0000 > > >Received: from unknown (HELO mail.ptinet.net) > (208.157.241.5) by > > >pop.onelist.com with SMTP; 23 Aug 1999 01:27:16 > -0000 > > >Received: from ptinet.net > (ppp027.mon.centuryinter.net [209.206.163.58]) by > > >mail.ptinet.net (8.8.8/8.8.8) with ESMTP id > SAA24333 for > > >< onelist>; Sun, 22 Aug 1999 > 18:29:12 -0700 (PDT) > > >Message-ID: <37C0A19B.2E15C52@...> > > >X-Mailer: Mozilla 4.05 [en] (Win95; I) > > >References: > <19990822210339.3448.qmail@...> > > >Mailing-List: list onelist; > contact > > > -owneronelist > > >Delivered-mailing list > onelist > > >Precedence: bulk > > >List-Unsubscribe: > <mailto: -unsubscribeONElist> > > > > > >From: Lynn <CEN32195@...> > > > > > >Hi, cramping in his legs at night. It is a > common remedy I guess. But > > >darn > > >near killed him, because of the mislabeling. > Lynn > > > > > >susan johnson wrote: > > > > > > > From: " susan johnson " <shireen42@...> > > > > > > > > Hi Lynn > > > > > > > > Glad your hubby's heart is ok. I have fatty > tissue also, please let me > > >know > > > > what you find out about it. > > > > > > > > Quinine for cramps? Never heard of it. > Thought it was only for > > >malaria. > > > > What kind of cramps? > > > > > > > > J > > > > > > > > >From: Lynn <CEN32195@...> > > > > >Reply- onelist > > > > > onelist > > > > >Subject: Re: [ ]my hubby > > > > >Date: Sun, 22 Aug 1999 00:17:26 -0700 > > > > >MIME-Version: 1.0 > > > > >From errors-165537-5529-shireen42 Sun Aug 22 > 00:27:51 1999 > > > > >Received: from [209.207.164.235] by > hotmail.com (2.1) with ESMTP id > > > > >MHotMailB988F1770197D82197D9D1CFA4EB117B0; > Sun Aug 22 00:27:51 1999 > > > > >Received: (qmail 1219 invoked by alias); 22 > Aug 1999 07:27:26 -0000 > > > > >Received: (qmail 1172 invoked from network); > 22 Aug 1999 07:27:24 -0000 > > > > >Received: from unknown (HELO mail.ptinet.net) > (208.157.241.5) by > > > > >pop1.onelist.com with SMTP; 22 Aug 1999 > 07:27:24 -0000 > > > > >Received: from ptinet.net > (ppp059.mon.centuryinter.net > > >[209.206.163.90]) by > > > > >mail.ptinet.net (8.8.8/8.8.8) with ESMTP id > AAA00959 for > > > > >< onelist>; Sun, 22 Aug > 1999 00:27:18 -0700 (PDT) > > > > >Message-ID: <37BFA406.4A8A9D0E@...> > > > > >X-Mailer: Mozilla 4.05 [en] (Win95; I) > > > > >References: > <199908201125.VAA10511@...> > > > > >Mailing-List: list > onelist; contact > > > > > -owneronelist > > > > >Delivered-mailing list > onelist > > > > >Precedence: bulk > > > > >List-Unsubscribe: > <mailto: -unsubscribeONElist> > > > > > > > > > >From: Lynn <CEN32195@...> > > > > > > > > > >Hi Sue B, thanks for the note. I have got my > hubby home now. He has > > >fatty > > > > >liver tissue, and has to call the Dr. for the > test results and more > > >tests. > > > > >He > > > > >went in because he had theought he was having > a heart attack, which > > >after a > > > > >day > > > > >in the hospital, they decided he had not had > one (this is good). But > > >they > > > > >found this liver thing. What started all > this, he had been taking some > > > > >quinine > > > > >for cramps, and it was labeled wrong so he > actually got too much of it, > > > > >which > > > > >put him in a really bad situation. He was so > ill and then got > > >dehydrated > > > > >and > > > > >was in the hospital for that, and took > another week for it to get out > > >of > > > > >his > > > > >system, then he had the pains in his chest > and the rest happened. At > > >least > > > > >now > > > > >we know his heart is in great shape. I still > have another 90 emails to > > >go > > > > >through, I had planned to delete all, but > don't want to miss what is > > >going > > > > >on, > > > > >so I am still at it. Today we took my > daughter who is due in October > > >into > > > > >the > > > > >hosp. for a stress test on the baby, because > it had been still for > > >quite a > > > > >while, which is unusual for him (we think), > but turns out the baby is > > >doing > > > > >fine and her shower is tomorrow, I am > exhausted, but happy things are > > > > >working > > > > >out okay. I have been too tired to look up > the fatty liver issue, and > > >I > > > > >need > > > > >to get the tests from the Dr. to see if it is > something else or what. > > > > >Thanks a > > > > >bunch and will report back later. Lynn AIH > > > > > > > > > >milko wrote: > > > > > > > > > > > From: " milko " <milko@...> > > > > > > > > > > > > Lynn, > > > > > > Hard when you miss a couple of days isn't > it, posts really mount up. > > > > > > What are your hubbies symptoms. Which of > his liver tests were > > >elevated? > > > > >I > > > > > > hope he is feeling better. What other > tests will they do? Please let > === message truncated === === Jody Compton Dance like no one is watching. Love like it will never end. In search of answers.. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 1999 Report Share Posted August 24, 1999 Lynn...October babies are the best..Tyler will be 17 on October 12....and even he says they are the best people...very easy going and loving...Congrats a little early... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 1999 Report Share Posted August 24, 1999 Thanks Luanne, I have one October baby, who is really sweet when she is not 16, and an October husband! One November Baby and myself and my other daughter is in April. So we are a mixed bag. The april baby always felt left out because hers was so far away, then when it was her time she felt special because she was the only one! Such are kids! Love em all, thanks a bunch, Lynn aih BBNLU@... wrote: > From: BBNLU@... > > Lynn...October babies are the best..Tyler will be 17 on October 12....and > even he says they are the best people...very easy going and loving...Congrats > a little early... > Luanne Ty's mom > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 1999 Report Share Posted August 26, 1999 ---------- >Lyn, You will let us know when the baby is born won't you. Is this your first grandchild? That would be such a thrill. Keep well, SueB. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 1999 Report Share Posted August 26, 1999 Hi Sue B, I sure will, and it will be my second grandchild and probably the last. The two oldest decided to have only one baby, and my 16 yr old swears she is not having any! My 16 yr. old, was tested for liver disease about a year ago and showed absolutely no problems. Found that out for sure yesterday, and I am very happy about that. My other daughters have to wait untill they get good insurance before they get tested. Lynn AIH milko wrote: > From: " milko " <milko@...> > > ---------- > >Lyn, > You will let us know when the baby is born won't you. > Is this your first grandchild? > That would be such a thrill. > Keep well, > SueB. > > --------------------------- Quote Link to comment Share on other sites More sharing options...
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