Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 I've not heard that there is a particular length of time for healing. Also, that business about "sticking it out" sounds unlikely, or at least very odd. This doesn't fit anything I've run into. You say you're feeling terrible. Do you mean that you're having GI symptoms? You may have become more sensitive to gluten and be still getting some accidental exposure, perhaps through medications or cross contamination. Do you have a particular nutritional deficiency caused by CD, such as anemia or lack of potassium or vitamins? If so, you could be given supplements to make that problem go away faster. Or, you could have some other medical problem. It IS possible to have two illnesses at once! To "stick it out" until you feel better just doesn't seem right. Keep in mind that CD is an autoimmune disorder. Those of us with one AD have an increased risk of developing another. What does your GP have to say about all this? H. Hello I recently got diagnosed with Celiac back in June of this year. I was feeling much better, but now am feeling terrible! I am sticking to my gluten free diet, but even then am feeling sick still. My gastro DR. says it takes 6 months to heal and there is not much to do but stick it out. is this true? Any help/suggestions/advise? Thanks in advance!! -----Original Message----- From: socorrogonzalez24 <cutiess56@...> Sent: Fri, 19 Sep 2008 11:16 pm Subject: [ ] New Celiac needs help Hello I recently got diagnosed with Celiac back in June of this year. I was feeling much better, but now am feeling terrible! I am sticking to my gluten free diet, but even then am feeling sick still. My gastro DR. says it takes 6 months to heal and there is not much to do but stick it out. is this true? Any help/suggestions/advise? Thanks in advance!! Find phone numbers fast with the New AOL Yellow Pages! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 I wrote to someone else recently on this. I had a similar experience. I felt better, much much better within weeks. Then about six months later started to feel bad again. I thought I had mastered the GF diet but I didn't realize that some people can become hyper-sensitized and that cross-contamination and hidden gluten was affecting me. So, I researched more, cut gluten out of my house and voila got better again, quickly. Six months later, the same thing happened again - I have found that I have to be ultra-vigilant - my non-celiac 4.5 year old now doesn't eat gluten outside the house, because he kisses me on the lips and that makes me sick. I don't eat out very often, as that also makes me sick. The GI dr that I saw when I was diagnosed said that some people become really hyper-sensitized and that the hyper-sensitivity might or might not diminish. The same thing has happened to one of my sons, tho even then I would say he is not as sensitive as me. I really thought I had cracked the GF diet, so please don't be insulted when I suggest you question all of your diet - every single thing - are the plates washed with plates that used gluten, are you using a non-stick frying pan and did you know that non-stick frying pans are particularly hard to get free of gluten and so on and so on. I am super-disicplined and I still have some errors - a latte from Starbucks which is labeled as my drink, but is a flavored drink when I taste it. Just my two cents. b -----Original Message----- From: [mailto: ] On Behalf Of socorrogonzalez24 Sent: Friday, September 19, 2008 11:17 PM Subject: [ ] New Celiac needs help Hello I recently got diagnosed with Celiac back in June of this year. I was feeling much better, but now am feeling terrible! I am sticking to my gluten free diet, but even then am feeling sick still. My gastro DR. says it takes 6 months to heal and there is not much to do but stick it out. is this true? Any help/suggestions/advise? Thanks in advance!! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 I feel your pain!! I had the same experience. Ialmost wept with joy when I felt better immediatelyafter going gf then I got so sick a few months later. After a year, I just now feel like I've got a handleon it. But if I get the smallest amount of gluten,even from crumbs in a toaster or on a plateI'm sick for days and it's much worse thanI've ever felt. Hopefully this will subside for you!On Sep 19, 2008, at 11:16 PM, "socorrogonzalez24" <cutiess56@...> wrote: Hello I recently got diagnosed with Celiac back in June of this year. I was feeling much better, but now am feeling terrible! I am sticking to my gluten free diet, but even then am feeling sick still. My gastro DR. says it takes 6 months to heal and there is not much to do but stick it out. is this true? Any help/suggestions/advise? Thanks in advance!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2008 Report Share Posted September 23, 2008 Those are all very helpful tips! I'm glad you mentioned them. I was pretty sure that most Starbucks flavorings and beverages are gluten-free... with the exception of any containing malt powder, java chips, or vanilla bean powder. A few frappucinos can contain gluten, so I just avoid those. However, the sugar syrups usually added to lattes etc. should be gluten-free... - I am > super-disicplined and I still have some errors - a latte from Starbucks > which is labeled as my drink, but is a flavored drink when I taste it. > > Just my two cents. > > b Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2008 Report Share Posted September 23, 2008 I had a similar thing happen to me. I found it was not all food that was my issue but also my beauty products. Alot of shampoo, conditiner, hair styling products (like hairspray), hair dye, lipstick, chapstick, etc.. have wheat or wheat germ oil in them. Once I got rid of thoose that helped. But also alot of celiacs have more than one food allergy/sensativity and sometimes it takes a little detective work to figure out what else can be making you sick. I was tested (ige/igg and elimination diet)and found nuts, brown rice,eggs,flax,diary, Also made me really sick to. I felt better going of the gluten free and my body would recover and then because I was eating more rice to replace it I would get sick. Good Luck KC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 Based on the labels, most regular (not sugar-free) syrups at Starbucks are GF - mint, almond, raspberry I know I've checked on and found by label to be safe. No reactions from this household to those flavors. Maureen > From: seamaiden399 <seamaiden399@...> > Subject: [ ] Re: New Celiac needs help > > Date: Monday, September 22, 2008, 6:06 PM > Those are all very helpful tips! I'm glad you mentioned > them. I was > pretty sure that most Starbucks flavorings and beverages > are > gluten-free... with the exception of any containing malt > powder, java > chips, or vanilla bean powder. A few frappucinos can > contain gluten, > so I just avoid those. However, the sugar syrups usually > added to > lattes etc. should be gluten-free... > > - > > > I am > > super-disicplined and I still have some errors - a > latte from Starbucks > > which is labeled as my drink, but is a flavored drink > when I taste it. > > > > Just my two cents. > > > > b Quote Link to comment Share on other sites More sharing options...
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