Guest guest Posted November 8, 2008 Report Share Posted November 8, 2008 Friends: Does anyone have experience with coffee (sans any dairy or substitute products, but rice or soy milk on occasion ), tea and dark chocolate? I'm recently diagnosed with CD (although blood test was negative). I am still learning what I can consume with safety. I find that I don't seem to tolerate these food items (stomach basic feels like it's exploding, and I become very gassy and flushed). Is there any reason, in anyone's experience, to associate this reaction with CD? Thanks in advance for any insights. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 I'm just curious how you got diagnosed without the blood test showing antibodies. I'd like this information for a friend who thinks she has it but her blood test comes back negative, so her doctor tells her it can't be cd and won't ok the biopsy. Thanks for any info. In a message dated 11/11/08 5:02:43 PM, seamaiden399@... writes: I'm recently diagnosed with CD (although blood test was negative) **************AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. (http://pr.atwola.com/promoclk/100000075x1212792382x1200798498/aol?redir=http://searchblog.aol.com/2008/11/04/happy-holidays-from-aol-search/?ncid=emlcntussear00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 I'm sorry to hear that your friend's doctor isn't completely helpful. Was she eating gluten when she had the CD blood test? One must be eating a considerable amount of gluten to avoid a false negative. Even for those eating gluten, false negatives in blood tests are pretty common. My CD blood test was negative, and I had no GI symptoms at the time, but my doctor believed I had CD because other blood tests showed nutritional deficiencies. He did a biopsy and a later biopsy for confirmation. They showed I definitely have CD. She may want to get a second opinion, if she's willing to eat gluten while waiting for a CD test and biopsy. H. In a message dated 11/11/08 5:05:37 PM, TrVerb@... writes: I'm just curious how you got diagnosed without the blood test showing antibodies. I'd like this information for a friend who thinks she has it but her blood test comes back negative, so her doctor tells her it can't be cd and won't ok the biopsy. Thanks for any info. **************AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. (http://pr.atwola.com/promoclk/100000075x1212792382x1200798498/aol?redir=http://searchblog.aol.com/2008/11/04/happy-holidays-from-aol-search/?ncid=emlcntussear00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 It sounds like you may be having a reaction to the caffeine. Also, coffee, tea, and chocolate can be tough on your stomach, especially if you still have damage from your recently diagnosed Celiac. I like coffee (especially espresso) AFTER I eat, and find that alleviates most stomach distress that coffee might otherwise cause. You might also make sure that the coffee, tea, or chocolate isn't contaminated with gluten. Flavored coffee can sometimes have gluten issues, also although it is fairly rare for caffeinated tea to contain gluten it is possible. Chocolate sometimes contains barley malt or is cross contaminated in production, so you might try the safest brand possible. Enjoy Life's new chocolate bar (with no allergens) may be a good " test " chocolate for you to try. I also have trouble with the Rice Dream brand- I found that it did NOT work well for me to have it in my coffee, and milk had happier results. You might consider giving these things up for a time and then try them again once your system has a chance to heal and the gluten is truly out of your system. Hope you feel better! - > > Friends: > > Does anyone have experience with coffee (sans any dairy or substitute > products, but rice or soy milk on occasion ), tea and dark chocolate? > > I'm recently diagnosed with CD (although blood test was negative). I am > still learning what I can consume with safety. I find that I don't seem > to tolerate these food items (stomach basic feels like it's exploding, > and I become very gassy and flushed). Is there any reason, in anyone's > experience, to associate this reaction with CD? > > Thanks in advance for any insights. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 It would be extremely rare for real tea, camellia sinensis, to contain gluten. Some flavored teas might contain barley in the flavoring, so they could cause a reaction, as could some flavored " herbal teas. " Chocolate: again, plain chocolate should be GF, but malt or a variety of other additives may contain gluten. I drink gallons of tea without a reaction, and definitely indulge in chocolate, so the problems you are experiencing not every celiac has. You could be intolerant of caffeine, or your body may just be highly reactive to anything at this stage of healing. I definitely find non-gluten items that cause major digestive problems for me. Maureen > From: benicia236 <benicia236@...> > Subject: [ ] Coffee, tea, chocolate > > Date: Saturday, November 8, 2008, 9:13 AM > Friends: > > Does anyone have experience with coffee (sans any dairy or substitute > products, but rice or soy milk on occasion ), tea and dark chocolate? > > I'm recently diagnosed with CD (although blood test was negative). I am > still learning what I can consume with safety. I find that I don't seem > to tolerate these food items (stomach basic feels like it's exploding, > and I become very gassy and flushed). Is there any reason, in anyone's > experience, to associate this reaction with CD? > > Thanks in advance for any insights. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 When I was first diagnosed with CD my blood tests were also negative. It actual is only about 85% accurate and some of us like you and me do not show the disease in the tests but it is confirmed by the biopsy. When I first went on the diet I was also diagnosed with GERD. The intestines are so sensitive that anything that is acidic will still cause you problems. Coffee, tea, chocolate, tomatoes, citrus and many other foods still cause distress. Also I was told to avoid lactose. Milk, cheese and other dairy products caused me to bloat like a balloon. I felt like there was very little I could eat. But after my intestines started to heal I was able to start adding some of these foods back into my diet. It sounds like you are in the same place I was when I was first diagnosed. Take the foods out of your diet that bother you and after a while you should be able to add them back in. I still have very bad GERD but it is controlled by medications and still watching what I eat, how much and when I eat. Mark Quote Link to comment Share on other sites More sharing options...
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