Re: To All - Who performed your first fusion and when?

[Guest guest]

Hi, Andy!

Kamil s did my surgery in Anaheim, CA, in 1989. I believe he

is still practicing at Kaiser Permanente in Anaheim, last I heard.

Deb M.

>

> Hi Everyone,

>

> I'm trying to figure out how many of us had Harrington Rod surgery

> during the years between 1960 and 1990, for a possible book.

>

> Can you please tell me the name of the surgeon who performed your

H-

> Rod surgery, in what city he/she performed the surgery, and in

what

> year you had the surgery?

>

> Do you know if your surgeon is still alive and where he/she now

lives?

>

> THANKS!!!!

>

> Andy

> Concord MA

> Revision - Boachie - NY - 2003

> Original - Hugo Keim - Columbia Presbyterian Hosp, NY - 1973

>

[Guest guest]

HI ANDY,I WAS OPERATED ON AT THE CHILDREN'S HOSPITAL IN BOSTON AROUND

1968 THAT WAS THE 1ST ONE THEN I HAD ANOTHER IN 1969 CAUSE I HAD 3

CURVATURES.THEN IN 2003 AND 2004 I HAD 2 MORE SURGERY'S AT THE MASS

GENERAL HOSPITAL IN BOSTON AND THEY TRIED TO DO A QUICK FIX BY

DR.MANSFIELD BUT THEY DIDN'T WORK I NEEDED THE REVISION AND HE NEVER

TOLD ME THAT'S WHAT I NEEDED TILL AFTER THE SURGERY'S HE TOLD ME I

MIGHT NEED A REVISION THAT'S WHEN I WENT TO SEE DR. RAND AND HE DID

THE REVISION IN APRIL OF 2006..

VONNIE >

>

> My 1sy surgery was in September 1977 by Dr. Brown with Dr.

> Dale Rowe at Rancho Los Amigos Hospital. Dr. Brown is still

> practicing in Newport Beach, CA (also lives there) and Dr. Rowe is

> in practice somewhere in Missouri I believe.

> ~CA ~

> (a postscript for 's post.......De. Bonnet is

retired

> and living in Palm Springs, CA)

>

>

> > >

> > > Hi Everyone,

> > >

> > > I'm trying to figure out how many of us had Harrington Rod

> surgery

> > > during the years between 1960 and 1990, for a possible book.

> > >

> > > Can you please tell me the name of the surgeon who performed

> your H-

> > > Rod surgery, in what city he/she performed the surgery, and in

> what

> > > year you had the surgery?

> > >

> > > Do you know if your surgeon is still alive and where he/she now

> > lives?

> > >

> > > THANKS!!!!

> > >

> > > Andy

> > > Concord MA

> > > Revision - Boachie - NY - 2003

> > > Original - Hugo Keim - Columbia Presbyterian Hosp, NY - 1973

> > >

> >

>

[Guest guest]

HI ANDY I FORGOT TO TELL YOU THE DR.'S NAME THAT OPERATED ON ME IN

THE 60'S IT WAS DR. ROBERT KELLER FROM THE CHILDREN'S HOSPITAL AND I

HEARD HE RETIRED IN MAINE AND WAS WORKING IN MAINE BEFORE HE RETIRED.

VONNIE

> > > >

> > > > Hi Everyone,

> > > >

> > > > I'm trying to figure out how many of us had Harrington Rod

> > surgery

> > > > during the years between 1960 and 1990, for a possible book.

> > > >

> > > > Can you please tell me the name of the surgeon who performed

> > your H-

> > > > Rod surgery, in what city he/she performed the surgery, and

in

> > what

> > > > year you had the surgery?

> > > >

> > > > Do you know if your surgeon is still alive and where he/she

now

> > > lives?

> > > >

> > > > THANKS!!!!

> > > >

> > > > Andy

> > > > Concord MA

> > > > Revision - Boachie - NY - 2003

> > > > Original - Hugo Keim - Columbia Presbyterian Hosp, NY - 1973

> > > >

> > >

> >

>

[Guest guest]

Hi Andy~ ( Ekenstierna) HR Surgery done in June 1981 by Dr Hugo Keim in NYC at Columbia Presby. Revision surgery done March 2005 By Dr Errico and his fellow Dr Awad at Joint Diseases in NYC. I think it is so neat that you are gathering this information and will look forward to reading your book one day!! Best of luck! Suzieafstanton1 <andystanton@...> wrote: Hi Everyone,I'm trying to figure out how many of us had Harrington Rod surgery during the

years between 1960 and 1990, for a possible book. Can you please tell me the name of the surgeon who performed your H-Rod surgery, in what city he/she performed the surgery, and in what year you had the surgery? Do you know if your surgeon is still alive and where he/she now lives?THANKS!!!!AndyConcord MARevision - Boachie - NY - 2003Original - Hugo Keim - Columbia Presbyterian Hosp, NY - 1973

Sneak preview the all-new .com. It's not radically different. Just radically better.

[Guest guest]

....year? 1968, I am guessing, not 1998. smiles, Marty

... Original Fusion October 1998, age 13, 3 HR. Dr. Eugene

Bleck did the surgery at San Mateo, CA... After 37 years I'm still

pleased with his work...

[Guest guest]

...

Was it really a screw and not a hook?

--

In

> 1974 Dr. Bleck, then at Stanford, took out the long HR because I had a

> loose screw - true story. I still have the HR hardware and bring it

> out for show-and-tell on occasion to watch the reactions. After 37

[Guest guest]

>

> Hi Everyone,

>

> I'm trying to figure out how many of us had Harrington Rod surgery

> during the years between 1960 and 1990, for a possible book.

>

> Can you please tell me the name of the surgeon who performed your

H-

> Rod surgery, in what city he/she performed the surgery, and in

what

> year you had the surgery?

>

> Do you know if your surgeon is still alive and where he/she now

lives?

>

> THANKS!!!!

>

> Andy

> Concord MA

> Revision - Boachie - NY - 2003

> Original - Hugo Keim - Columbia Presbyterian Hosp, NY - 1973

>

Andy

I had my original scoliosis surgery in 1969 by Dr. Doherty at

Hospital for Special Surgery in New York. I do not know if he is

still alive or where he lives. I tried to find out a few months ago

when I tried to get my operative reports from HSS.

Thanks,

Nan

[Guest guest]

My Info-love what you are doing

5 cottrell Dubose' Rods

Posterior and anterior fusion and surgeries

Abbott Northwestern Hospital

Miniapolis Mn

W Boob <wikifay13@...> wrote:

Good luck with your research. Here is my information.

Harrington Rod Surgery

October 1970

Dr. Tupper

Children's Hospital, Seattle, WA

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[Guest guest]

HI Andy,

I already responded to your first inquiry about history of surgery, but I just had a thought:

When I realized I would need further surgery, in 1997ish, I called Dr. Keim who did my original H-Rod surgery, for a referral. He was already retired but I found him somehow. We had a nice conversation and he referred me to Dr. Errico, in NYC. I don't remember Dr. Keim actually saying this, but I seem to remember that he told me he was referring all his H-Rod patients to Dr. Errico.

I am grateful for everything Dr. Keim did for me in 1997, and for my son in 1981, but I wonder how he and his colleagues feel about so many of us needing this difficult revision surgery. I would think they'd be disappointed (if nothing else) that they didn't actually cure us for life. I'm sure Dr. Keim's ego took a big hit. Do you have any thoughts about contacting some of the old-timer surgeons for your book?

Bonnie

RE: [ ] To All - Who performed your first fusion and when?

Hi Andy,

I had my Harrington Rod surgery in March 1973 by Dr. Gillespie at the Toronto's Sick Children's Hospital in Ontario. I recently found out that he moved to the States and died there (I don't know exactly when). He was one of the few that had his patients walking 2 weeks after surgery by using a Milwaukee neckpiece on the cast for the next 3 months before putting them in a brace (sorry I don't know the name of the brace but it had a plastic back with a canvas front that went from under the arms to the hips).

I was 15 when I had my surgery though I started treatment at age 9, with a body cast for 8 months (that was changed every 6-8 weeks) and then a Milwaukee brace until surgery (23 hours/7days a week).

Hope this is the type of information you want.

Llweyn

From: [mailto: ] On Behalf Of afstanton1Sent: June 20, 2006 6:25 PM Subject: [ ] To All - Who performed your first fusion and when?

Hi Everyone,I'm trying to figure out how many of us had Harrington Rod surgery during the years between 1960 and 1990, for a possible book. Can you please tell me the name of the surgeon who performed your H-Rod surgery, in what city he/she performed the surgery, and in what year you had the surgery? Do you know if your surgeon is still alive and where he/she now lives?THANKS!!!!AndyConcord MARevision - Boachie - NY - 2003Original - Hugo Keim - Columbia Presbyterian Hosp, NY - 1973

[Guest guest]

What kind of book are you writing? I always thought a book of interviews and

about the people who had surgery in those old ish Rite and Masonic

Hospitals would be a great idea. Those places aren't in existence any more

and patients spent months over a number of years of their lives in them. Not

just for scoliosis but for hip surgery and other orthopedic problems. I think I

was in one at the tail end of that type of treatment -- I've learned other parts

of

the country, like at Rush, did not use that type of treatment at that time.

I had my fusion, T6 to L3, with Harrington rod, when I was 14 in 1971 at Texas

ish Rite Hospital for Crippled Children in Dallas, TX. Dr Renning

was the chief resident who did it; I think he was at San Opisbo (?) in

California afterwards. Dr Lawson was the attending. This was in their

old building, with the old long wards with beds down the walls, when nurses'

aides took care of us, before they upgraded their standard of care (in the

1980s, I guess, I don't know when). I had halo femoral traction for several

weeks, and a Risser body cast. I was there for 2 months. I had DIC, a severe

post op infection, and other complications.

Grace

[Guest guest]

>

>Hi,

MY surgery was performed by Dr. Heilbrommer in 1984. This was

done at the University of Virginia Medical Center in Charlottesville

VA. To my knowledge, he has a private practice in Charlottesville

now. I am currently being treating by Dr. Arlet at UVA, he

specializes in spinal deformitiies.

>

> I'm trying to figure out how many of us had Harrington Rod surgery

> during the years between 1960 and 1990.

>

> Can you please tell me the name of the surgeon who performed your

H-

> Rod surgery, in what city he/she performed the surgery, and in

what

> year you had the surgery?

>

> Do you know if your surgeon is still alive and where he/she now

lives?

>

> THANKS!!!!

>

> Andy

> Concord MA

> Revision - Boachie - NY - 2003

> Original - Hugo Keim - Columbia Presbyterian Hosp, NY - 1973

(alive

> and in Florida)

>

[Guest guest]

Hi Andy,

I tried to answer this online yesterday and got interrupted and had to cancel. Guess it posted a non-answer - sorry about that!

My first corrective surgery for scoliosis was in 1985 at the Naval Hospital in Bethesda, land and was performed by Lt. Cmd. W. Esposito, USN. Dr. Esposito is now Professor of Orthopaedic Surgery and Pediatrics at the University of Nebraska College of Medicine.

Kelley

>> Hi Everyone,> > I'm trying to figure out how many of us had Harrington Rod surgery > during the years between 1960 and 1990, for a possible book. > > Can you please tell me the name of the surgeon who performed your H-> Rod surgery, in what city he/she performed the surgery, and in what > year you had the surgery? > > Do you know if your surgeon is still alive and where he/she now lives?> > THANKS!!!!> > Andy> Concord MA> Revision - Boachie - NY - 2003> Original - Hugo Keim - Columbia Presbyterian Hosp, NY - 1973>

[Guest guest]

maybe I should also mention that Dr Maier was the first doctor my

mom took me to see since he had done my cousin's surgery.

He looked at my x-ray and said " I've never seen anything quite like

this " and then proceeded to discuss how he thought he could do

surgery to fix it.

He said that most of the patients he saw had their curves higher

up. Mine was down much lower.

We never went back to him. I remember thinking that if he had never

seen something like that, then how could he possibly be qualified to

try to fix it? Apparently, my mother agreed.

I seem to remember that she thought Dr Tompkins would be good

because he had trained at the Mayo Clinic with experts.

>

> I just realized that as long as we are collecting data, I should

> mention my cousin who had Harrington Rod surgery in the 1960s with

Dr

> Maier in OKC. She was still in high school when she had the

surgery,

> and went to school in her cast. She had her rod removed sometime

> later, and showed it to me a few years after I had surgery.

>

> I should really call her mom and see how she is doing.

>

[Guest guest]

Andy,

I had my original HR surgeries in Oklahoma City at Baptist Hospital

with Dr. S. Fulton Tompkins in 1981 and 1983. There are at least four

of us on the board that were operated on by him. Someone has likely

already posted this, but he is retired and still lives in the OKC metro.

Hope this helps!

kam

[Guest guest]

>

>

> Hi Andy,

>

> Here are my facts:

>

> Dr. Albert - My original Harrington rod surgeon

> 1976

> San , Texas

> Dr. is alive and still in San , and is near

retirement

> apparently...he is no longer performing surgery of any kind.

>

> I have not had any revision surgery, although I have had surgery

for a

> herniated disk (same one each time...L/5 - S/1) by Dr.

Hilton in San

> - Oct. 2004 and Jan. 2006. Dr. Hilton did a great job of

getting me from a

> deformed, horizontal position to a standing one again each

time...although he

> doesn't seem to know much about center-of-balance issues related

to H-rods.

>

> ~Carolyn

>

>

>

> In a message dated 6/20/06 8:29:13 P.M. Central Daylight Time,

> andystanton@... writes:

>

>

>

> Hi Everyone,

>

> I'm trying to figure out how many of us had Harrington Rod

surgery

> during the years between 1960 and 1990.

>

> Can you please tell me the name of the surgeon who performed your

H-

> Rod surgery, in what city he/she performed the surgery, and in

what

> year you had the surgery?

>

> Do you know if your surgeon is still alive and where he/she now

lives?

>

> THANKS!!!!

>

> Andy

> Concord MA

> Revision - Boachie - NY - 2003

> Original - Hugo Keim - Columbia Presbyterian Hosp, NY - 1973

(alive

> and in Florida)

>Hi Andy Had my surgery in April 1970 Columbia Pres. in NY W/ Dr.

Hugo Keim (alive in Florida, retired) & my revision Sept. 2004 in

NYU w/ Dr. Errico. Still not sure if I'll need a 2nd revision.

Good luck with your survey.

[Guest guest]

I think I am one of the four Kam is talking about. I'm Elaine and I

had surgery with Dr. S. Fulton Tompkins in 1965 and again in 1967 at

Presbyterian Hospital in Oklahoma City.--

- In , " advokam " <advokam@...> wrote:

>

> Andy,

>

> I had my original HR surgeries in Oklahoma City at Baptist Hospital

> with Dr. S. Fulton Tompkins in 1981 and 1983. There are at least

four

> of us on the board that were operated on by him. Someone has likely

> already posted this, but he is retired and still lives in the OKC

metro.

>

> Hope this helps!

>

> kam

>

[Guest guest]

I had my Harrington Rod surgery in August 12, 1981 (I was 16). The

surgeon was Dr. Hopper - performed in Gulfport, MS. He is

still alive but is retired due to arthritis in his neck and still

lives in Biloxi, MS.

Terri Zbysinski

Biloxi, MS

[Guest guest]

Thanks!

That’s a new one for the list!

Andy

Re: To All

- Who performed your first fusion and when?

I had my Harrington Rod

surgery in August 12, 1981 (I was 16). The

surgeon was Dr. Hopper - performed in Gulfport, MS. He is

still alive but is retired due to arthritis in his neck and still

lives in Biloxi, MS.

Terri Zbysinski

Biloxi, MS

[Guest guest]

Hey, Andy.

My info is already listed in the database but here goes. I had 2

harrington rods put in just before age 12 by Dr Levine at Hosp

for Special Surgery in NY, NY. My curves were approx 40 and 20

degrees and I got about a 50% correction. He said I was one of the

least severe cases to be operated on - lucky me.

If you find the information for your book, I'd be interested to know

what you find out about the aftermath. How many of us hav had

revisions, with and without rod removal? What has been the

subjective success rate? Like the original surgeries, there has

been little long term outlook for revision patients. How many have

been able to avoid revision, for how long, and with what degrees of

complications?

I hope you are able to find information beyond the . I

was shocked/upset by 's post on how we are being covered

up. Good luck with this.

Jane

>

> Hi Everyone,

>

> I'm trying to figure out how many of us had Harrington Rod surgery

> during the years between 1960 and 1990.

>

> Can you please tell me the name of the surgeon who performed your

H-

> Rod surgery, in what city he/she performed the surgery, and in

what

> year you had the surgery?

>

> Do you know if your surgeon is still alive and where he/she now

lives?

>

> THANKS!!!!

>

> Andy

> Concord MA

> Revision - Boachie - NY - 2003

> Original - Hugo Keim - Columbia Presbyterian Hosp, NY - 1973

(alive

> and in Florida)

>

[Guest guest]

Elaine,

I am counting you! The fourth is Kathy G., who now lives in Florida. I

can't remember when she had her surgery, but I think it was between me

and Suzanne.

When you have a minute, I am sure others on the board would be

interested in hearing more about your story. You were one of the first

to have the original surgery and your experiences may benefit others

who are where you are.

It's nice to see you posting. Please ask questions as you think of

them - these folks know a heck of a lot more than me!

kam

>

> I think I am one of the four Kam is talking about. I'm Elaine and I

> had surgery with Dr. S. Fulton Tompkins in 1965 and again in 1967 at

> Presbyterian Hospital in Oklahoma City.--

[Guest guest]

Andy,

I forgot to mention. It as 1972.

Jane

> >

> > Hi Everyone,

> >

> > I'm trying to figure out how many of us had Harrington Rod

surgery

> > during the years between 1960 and 1990.

> >

> > Can you please tell me the name of the surgeon who performed

your

> H-

> > Rod surgery, in what city he/she performed the surgery, and in

> what

> > year you had the surgery?

> >

> > Do you know if your surgeon is still alive and where he/she now

> lives?

> >

> > THANKS!!!!

> >

> > Andy

> > Concord MA

> > Revision - Boachie - NY - 2003

> > Original - Hugo Keim - Columbia Presbyterian Hosp, NY - 1973

> (alive

> > and in Florida)

> >

>

[Guest guest]

My biggest question is there anyone who has experience with Dr.

Ondra? -

-- In , " advokam " <advokam@...>

wrote:

>

> Elaine,

>

> I am counting you! The fourth is Kathy G., who now lives in

Florida. I

> can't remember when she had her surgery, but I think it was

between me

> and Suzanne.

>

> When you have a minute, I am sure others on the board would be

> interested in hearing more about your story. You were one of the

first

> to have the original surgery and your experiences may benefit

others

> who are where you are.

>

> It's nice to see you posting. Please ask questions as you think of

> them - these folks know a heck of a lot more than me!

>

> kam

>

>

>

>

> >

> > I think I am one of the four Kam is talking about. I'm Elaine

and I

> > had surgery with Dr. S. Fulton Tompkins in 1965 and again in

1967 at

> > Presbyterian Hospital in Oklahoma City.--

>

[Guest guest]

My biggest question is there anyone who has experience with Dr.

Ondra? -

-- In , " advokam " <advokam@...>

wrote:

>

> Elaine,

>

> I am counting you! The fourth is Kathy G., who now lives in

Florida. I

> can't remember when she had her surgery, but I think it was

between me

> and Suzanne.

>

> When you have a minute, I am sure others on the board would be

> interested in hearing more about your story. You were one of the

first

> to have the original surgery and your experiences may benefit

others

> who are where you are.

>

> It's nice to see you posting. Please ask questions as you think of

> them - these folks know a heck of a lot more than me!

>

> kam

>

>

>

>

> >

> > I think I am one of the four Kam is talking about. I'm Elaine

and I

> > had surgery with Dr. S. Fulton Tompkins in 1965 and again in

1967 at

> > Presbyterian Hospital in Oklahoma City.--

>

[Guest guest]

Elaine, I know one person, , who has had surgery with Dr. Ondra.

Try posting at:

/messages

and address the question to her.

There could be a patient or two of Dr. Ondra's lurking here, but I am not aware of them.

Good luck.

Sharon

[ ] Re: To All - Who performed your first fusion and when?

My biggest question is there anyone who has experience with Dr. Ondra? > >> > I think I am one of the four Kam is talking about. I'm Elaine and I > > had surgery with Dr. S. Fulton Tompkins in 1965 and again in 1967 at > > Presbyterian Hospital in Oklahoma City.-->

[Guest guest]

Hi all,

I haven't posted before, but thought I'd add my stuff:

My name is . I had my surgery at age 13 in 1989 at UW-Madison

by Dr. Mann. He's still there, and is very personable, even has

answered emails from me when I've had questions over the years.

I had harrington-luque rods (is this drastically diff from regular

harrington??) and was fused t4-l4. Was told I'd need to have a 2nd

surgery to the sacrum at some point in my life, but now have been told

they like to avoid that if possible. My original curves were in the

low 70s and got corrected to about 50-55 each. I have a lot of lower

back pain, especially the side with the lower curve.

I am 30 yrs old, have a 1yr old and a 2.5 yr old. I currently use a

walker & a wheelchair because I have secondary progressive multiple

sclerosis. When I am walking, I am bent way forward. Docs seem to

like to shuffle me back & forth when I have problems - neuros say it's

orthopedic, orthos say is neurological. I have a good neuro now, but

would like to still get my fusion checked by someone good. I have a

personal assistant provided by the state who helps with cooking,

cleaning, shopping, driving, etc for 25hr/wk. That has been a

lifesaver for me! My family & my hubby's family are also incredibly

supportive.

Anyone know how possible flatback-types of problems are in someone who

had an extensive harrington/luque surgery in the late 80s? When I

checked into it several years ago, most people seemed to think it only

affected those fusions from the 60s and 70s.

Thanks for listening!