Guest guest Posted January 1, 2008 Report Share Posted January 1, 2008 Hi all, Edie here with my 9 months post-op report, as promised. For those of you who don't know me, a quick recap (and you can read my story in the member's files). I am a 47 year old woman (original Harrington rod surgery in 1982) who had posterior-anterior-posterior surgery in one 10-1/2 hour operation by Dr. Bendo at the York University Hospital for Joint Diseases in NYC. My surgery truly corrected my flatback, and left me with virtually perfect sagittal balance. I had been suffering from severe flatback for about 10 years, and for the most part through those years, handled it through water therapy and denial! I will be going back to work full time after the New Year's break. I've been back at work part time since October 1st, originally 3 days per week for about 6 weeks, then 4 days per week since then. At first it was scary and difficult, but not because of the work itself (I work in an office), but the commute. I live in Brooklyn, NY and commute to Manhattan every day, which involves a 1/2 mile or so walk to the subway, an elevated subway station with close to 50 stairs to climb, a 40 minute bumpy subway ride, and a short walk from the subway to my office in one of the busiest part of the city (I work at Madison Square Garden, above Penn Station). For the first week or so, I was using " Access-a-Ride " which is the MTA's answer for handicapped/disabled passengers. But the service was so wretched that I decided to tough it up, and do the subway instead. Even though it was scary and a challenge, I was glad I did it. It forced me to get some land-based exercise (walking/climbing stairs), and I end up taking the subway to my gym every morning before work where I am back to swimming about 20 laps (a little more than 1/2 mile). I leave for work from the gym, which is another subway ride away, but it's a very short one. My days are long, but do-able. At night I am tired, but not completely wiped out anymore. At 9 months post op, I can walk as long as I need to without a cane (although I use one on the commute so people will stand a little farther away) and I can also stand for long periods of time without fatigue. I am still on one pain killer per day when muscle fatigue sets in in the late afternoon. I have just renewed the prescription with a lower dose, and intend to see how this works out for me. If I can wean myself off them completely, great, but if not, I have NO intention of spending any more of my life in pain. I've been told time and time again that the amount I'm taking is negligible, and I refuse to feel guilt over using necessary medication. I spent years using nothing for my pain, and I now realize what a disservice I was doing to myself at that time. My biggest annoyance at this stage is that I can feel hardware in the lower left-hand side of my spine, probably where the pelvic bolt is inserted, so I am keeping an eye on that. It is not debilitating, but it is uncomfortable. I want to give my body plenty of time to adjust to all the new hardware, so I am in no rush to get it removed. I also am still adjusting to moving in a new way, I no longer use my grabbers much, but do a lot of squats, leaning on furniture around me to help me up and down. I also rely on using my knees a lot (getting down and up from the floor using one knee/leg for propulsion). I try not to lean forward from my hips too much, but find that I do this without thinking and it causes me little or no discomfort. I gained almost 2 additional inches after my surgery. I walk like a ballerina now....got the added plus of a boob lift and bootylicious back waist curve from my surgery! In short, I feel like I am doing absolutely great. I took 6 months off post-op to do nothing but concentrate on healing, and I'll never ever regret that decision. If I have any words of advice to those of you facing this challenge, it's the following: 1. Get in the water....before surgery, and after surgery, as much as possible. Make sure you have someone who can help you with movement in the water if it is an element you are unfamiliar with. I believe water workouts saved my life, and abetted my recovery (and preoperative condition) more than almost anything else. It's still my primary form of exercise, and land-based impact (Running, even walking on concrete) is something that I personally will avoid because I feel that the impact is not good for my bones. 2. Take all the time you need to heal, but stay positive and pragmatic about the process. Healing takes a long time...that's all there is to it. You do yourself more harm than good by rushing it. You will have good days and bad days which will feel like a real setback, but try to keep perspective on the entire picture, not just the moment. 3. Ask for help when you need it. Don't do foolish things, even if you think you are able. You are NOT the same as before surgery, so don't be down on yourself if you are not able to do many things you were able to do. A lot of that will come back in time and you will find new and better ways to achieve your physical goals. 4. Keep your sense of humor--before, during and after the whole process. You will never regret it, nor will those around you. In the meantime, I'm pretty much back into my life full time, so I don't get to post often. But I am very committed to continuing updates for those of you who may be facing surgery. Please know there is a lot to look forward to. As I've said before and I'll say it 'til I'm blue in the face, Your revision surgery is a gift certificate that you can't cash in for about a year, so know that in the end, it will certainly be worth it. Plus you'll have an amazing story to tell to people who tell you they have a " bad back " . HAH!!!!!!! Did I mention that I keep pictures of my post-surgery XRays on my cubicle wall at work? I'm a scuba diver, and hope to be able to get back into diving when my 1 year mark has passed in April. At the rate I'm going, there is no reason I can't resume it....I never carried my own heavy equipment anyway, so weight-bearing was never an issue. I plan on visiting Donna T. in the hospital when she goes in at the end of January, so with her permission, I'll be posting an update on her when I see her. And of course (AKA my hero!), who I have been in touch with since her 7/8th surgery with Dr. Cunningham (Dr. Boachie's associate) stage 2 which was only about 6 weeks ago. She is doing phenomenally well, and feels as though she is truly on the road to recovery...NANFASH: Post if you get a chance, girl! Your story is an inspiration and a real lesson in perseverance. If you have any individual questions, you can email me at my address...edie_scratch. I may not be back on the board for a while, but I'll post again at the one year mark if I don't get a chance to before. Thinking of you all, those who have had surgery and those facing it. As my doc said: You'll get through it. People do. Hugs to you all and a happy, healthy New Year, Edie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Edie, You are ALWAYS such an inspiration - I can't wait to meet you in a few weeks - although I would prefer to meet you for a drink and dinner as opposed to post-op! Maybe we can do that too sometime. You have my permission to post here about my hospital journey particularly since my husband is not that computer friendly. Happy new year to all! Donna T. > > Hi all, > > Edie here with my 9 months post-op report, as promised. For those of you who don't > know me, a quick recap (and you can read my story in the member's files). I am a 47 year > old woman (original Harrington rod surgery in 1982) who had posterior-anterior-posterior > surgery in one 10-1/2 hour operation by Dr. Bendo at the York University Hospital > for Joint Diseases in NYC. My surgery truly corrected my flatback, and left me with virtually > perfect sagittal balance. I had been suffering from severe flatback for about 10 years, and > for the most part through those years, handled it through water therapy and denial! > > I will be going back to work full time after the New Year's break. I've been back at work > part time since October 1st, originally 3 days per week for about 6 weeks, then 4 days per > week since then. At first it was scary and difficult, but not because of the work itself (I > work in an office), but the commute. I live in Brooklyn, NY and commute to Manhattan > every day, which involves a 1/2 mile or so walk to the subway, an elevated subway station > with close to 50 stairs to climb, a 40 minute bumpy subway ride, and a short walk from > the subway to my office in one of the busiest part of the city (I work at Madison Square > Garden, above Penn Station). > > For the first week or so, I was using " Access-a-Ride " which is the MTA's answer for > handicapped/disabled passengers. But the service was so wretched that I decided to tough > it up, and do the subway instead. Even though it was scary and a challenge, I was glad I > did it. It forced me to get some land-based exercise (walking/climbing stairs), and I end > up taking the subway to my gym every morning before work where I am back to swimming > about 20 laps (a little more than 1/2 mile). I leave for work from the gym, which is another > subway ride away, but it's a very short one. My days are long, but do-able. At night I am > tired, but not completely wiped out anymore. > > At 9 months post op, I can walk as long as I need to without a cane (although I use one on > the commute so people will stand a little farther away) and I can also stand for long > periods of time without fatigue. > > I am still on one pain killer per day when muscle fatigue sets in in the late afternoon. I > have just renewed the prescription with a lower dose, and intend to see how this works > out for me. If I can wean myself off them completely, great, but if not, I have NO intention > of spending any more of my life in pain. I've been told time and time again that the > amount I'm taking is negligible, and I refuse to feel guilt over using necessary medication. > I spent years using nothing for my pain, and I now realize what a disservice I was doing to > myself at that time. > > My biggest annoyance at this stage is that I can feel hardware in the lower left-hand side > of my spine, probably where the pelvic bolt is inserted, so I am keeping an eye on that. It > is not debilitating, but it is uncomfortable. I want to give my body plenty of time to adjust > to all the new hardware, so I am in no rush to get it removed. > > I also am still adjusting to moving in a new way, I no longer use my grabbers much, but do > a lot of squats, leaning on furniture around me to help me up and down. I also rely on > using my knees a lot (getting down and up from the floor using one knee/leg for > propulsion). I try not to lean forward from my hips too much, but find that I do this > without thinking and it causes me little or no discomfort. > > I gained almost 2 additional inches after my surgery. I walk like a ballerina now....got the > added plus of a boob lift and bootylicious back waist curve from my surgery! > > In short, I feel like I am doing absolutely great. I took 6 months off post-op to do nothing > but concentrate on healing, and I'll never ever regret that decision. If I have any words of > advice to those of you facing this challenge, it's the following: > > 1. Get in the water....before surgery, and after surgery, as much as possible. Make sure > you have someone who can help you with movement in the water if it is an element you > are unfamiliar with. I believe water workouts saved my life, and abetted my recovery (and > preoperative condition) more than almost anything else. It's still my primary form of > exercise, and land-based impact (Running, even walking on concrete) is something that I > personally will avoid because I feel that the impact is not good for my bones. > > 2. Take all the time you need to heal, but stay positive and pragmatic about the process. > Healing takes a long time...that's all there is to it. You do yourself more harm than good > by rushing it. You will have good days and bad days which will feel like a real setback, but > try to keep perspective on the entire picture, not just the moment. > > 3. Ask for help when you need it. Don't do foolish things, even if you think you are able. > You are NOT the same as before surgery, so don't be down on yourself if you are not able > to do many things you were able to do. A lot of that will come back in time and you will > find new and better ways to achieve your physical goals. > > 4. Keep your sense of humor--before, during and after the whole process. You will never > regret it, nor will those around you. > > In the meantime, I'm pretty much back into my life full time, so I don't get to post often. > But I am very committed to continuing updates for those of you who may be facing > surgery. Please know there is a lot to look forward to. As I've said before and I'll say it 'til > I'm blue in the face, Your revision surgery is a gift certificate that you can't cash in for > about a year, so know that in the end, it will certainly be worth it. Plus you'll have an > amazing story to tell to people who tell you they have a " bad back " . HAH!!!!!!! Did I > mention that I keep pictures of my post-surgery XRays on my cubicle wall at work? > > I'm a scuba diver, and hope to be able to get back into diving when my 1 year mark has > passed in April. At the rate I'm going, there is no reason I can't resume it....I never carried > my own heavy equipment anyway, so weight-bearing was never an issue. > > I plan on visiting Donna T. in the hospital when she goes in at the end of January, so with > her permission, I'll be posting an update on her when I see her. And of course (AKA > my hero!), who I have been in touch with since her 7/8th surgery with Dr. Cunningham > (Dr. Boachie's associate) stage 2 which was only about 6 weeks ago. She is doing > phenomenally well, and feels as though she is truly on the road to recovery...NANFASH: > Post if you get a chance, girl! Your story is an inspiration and a real lesson in > perseverance. > > If you have any individual questions, you can email me at my address...edie_scratch. > I may not be back on the board for a while, but I'll post again at the one year mark if I > don't get a chance to before. > > Thinking of you all, those who have had surgery and those facing it. As my doc said: You'll > get through it. People do. > > Hugs to you all and a happy, healthy New Year, > > Edie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Hi Edie, What a pleasure it was to read your update! I am thrilled to know that you are doing so well. I would advise anyone to handle recovery exactly as you have. You really are an inspiration. I look forward to your 1 year update. And please send my best to . Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Thanks Edie. I hope to follow in your footsteps. I am about 3 weeks pre-surgery, and it's terrific to hear your story. After reading your story I'm feeling just a little bit less jittery. I need all the encouragement I can get! Jeri > > Hi all, > > Edie here with my 9 months post-op report, as promised. For those of you who don't > know me, a quick recap (and you can read my story in the member's files). I am a 47 year > old woman (original Harrington rod surgery in 1982) who had posterior-anterior-posterior > surgery in one 10-1/2 hour operation by Dr. Bendo at the York University Hospital > for Joint Diseases in NYC. My surgery truly corrected my flatback, and left me with virtually > perfect sagittal balance. I had been suffering from severe flatback for about 10 years, and > for the most part through those years, handled it through water therapy and denial! > > I will be going back to work full time after the New Year's break. I've been back at work > part time since October 1st, originally 3 days per week for about 6 weeks, then 4 days per > week since then. At first it was scary and difficult, but not because of the work itself (I > work in an office), but the commute. I live in Brooklyn, NY and commute to Manhattan > every day, which involves a 1/2 mile or so walk to the subway, an elevated subway station > with close to 50 stairs to climb, a 40 minute bumpy subway ride, and a short walk from > the subway to my office in one of the busiest part of the city (I work at Madison Square > Garden, above Penn Station). > > For the first week or so, I was using " Access-a-Ride " which is the MTA's answer for > handicapped/disabled passengers. But the service was so wretched that I decided to tough > it up, and do the subway instead. Even though it was scary and a challenge, I was glad I > did it. It forced me to get some land-based exercise (walking/climbing stairs), and I end > up taking the subway to my gym every morning before work where I am back to swimming > about 20 laps (a little more than 1/2 mile). I leave for work from the gym, which is another > subway ride away, but it's a very short one. My days are long, but do-able. At night I am > tired, but not completely wiped out anymore. > > At 9 months post op, I can walk as long as I need to without a cane (although I use one on > the commute so people will stand a little farther away) and I can also stand for long > periods of time without fatigue. > > I am still on one pain killer per day when muscle fatigue sets in in the late afternoon. I > have just renewed the prescription with a lower dose, and intend to see how this works > out for me. If I can wean myself off them completely, great, but if not, I have NO intention > of spending any more of my life in pain. I've been told time and time again that the > amount I'm taking is negligible, and I refuse to feel guilt over using necessary medication. > I spent years using nothing for my pain, and I now realize what a disservice I was doing to > myself at that time. > > My biggest annoyance at this stage is that I can feel hardware in the lower left-hand side > of my spine, probably where the pelvic bolt is inserted, so I am keeping an eye on that. It > is not debilitating, but it is uncomfortable. I want to give my body plenty of time to adjust > to all the new hardware, so I am in no rush to get it removed. > > I also am still adjusting to moving in a new way, I no longer use my grabbers much, but do > a lot of squats, leaning on furniture around me to help me up and down. I also rely on > using my knees a lot (getting down and up from the floor using one knee/leg for > propulsion). I try not to lean forward from my hips too much, but find that I do this > without thinking and it causes me little or no discomfort. > > I gained almost 2 additional inches after my surgery. I walk like a ballerina now....got the > added plus of a boob lift and bootylicious back waist curve from my surgery! > > In short, I feel like I am doing absolutely great. I took 6 months off post-op to do nothing > but concentrate on healing, and I'll never ever regret that decision. If I have any words of > advice to those of you facing this challenge, it's the following: > > 1. Get in the water....before surgery, and after surgery, as much as possible. Make sure > you have someone who can help you with movement in the water if it is an element you > are unfamiliar with. I believe water workouts saved my life, and abetted my recovery (and > preoperative condition) more than almost anything else. It's still my primary form of > exercise, and land-based impact (Running, even walking on concrete) is something that I > personally will avoid because I feel that the impact is not good for my bones. > > 2. Take all the time you need to heal, but stay positive and pragmatic about the process. > Healing takes a long time...that's all there is to it. You do yourself more harm than good > by rushing it. You will have good days and bad days which will feel like a real setback, but > try to keep perspective on the entire picture, not just the moment. > > 3. Ask for help when you need it. Don't do foolish things, even if you think you are able. > You are NOT the same as before surgery, so don't be down on yourself if you are not able > to do many things you were able to do. A lot of that will come back in time and you will > find new and better ways to achieve your physical goals. > > 4. Keep your sense of humor--before, during and after the whole process. You will never > regret it, nor will those around you. > > In the meantime, I'm pretty much back into my life full time, so I don't get to post often. > But I am very committed to continuing updates for those of you who may be facing > surgery. Please know there is a lot to look forward to. As I've said before and I'll say it 'til > I'm blue in the face, Your revision surgery is a gift certificate that you can't cash in for > about a year, so know that in the end, it will certainly be worth it. Plus you'll have an > amazing story to tell to people who tell you they have a " bad back " . HAH!!!!!!! Did I > mention that I keep pictures of my post-surgery XRays on my cubicle wall at work? > > I'm a scuba diver, and hope to be able to get back into diving when my 1 year mark has > passed in April. At the rate I'm going, there is no reason I can't resume it....I never carried > my own heavy equipment anyway, so weight-bearing was never an issue. > > I plan on visiting Donna T. in the hospital when she goes in at the end of January, so with > her permission, I'll be posting an update on her when I see her. And of course (AKA > my hero!), who I have been in touch with since her 7/8th surgery with Dr. Cunningham > (Dr. Boachie's associate) stage 2 which was only about 6 weeks ago. She is doing > phenomenally well, and feels as though she is truly on the road to recovery...NANFASH: > Post if you get a chance, girl! Your story is an inspiration and a real lesson in > perseverance. > > If you have any individual questions, you can email me at my address...edie_scratch. > I may not be back on the board for a while, but I'll post again at the one year mark if I > don't get a chance to before. > > Thinking of you all, those who have had surgery and those facing it. As my doc said: You'll > get through it. People do. > > Hugs to you all and a happy, healthy New Year, > > Edie > Quote Link to comment Share on other sites More sharing options...
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