Re: Child - CD?

[Guest guest]

I think that celiac (with the biopsied gut lesions) is just

one endpoint of gluten intolerance and that the whole list of reactions to

gluten can be classified as gluten intolerance. It does not matter to me that

I have not been biopsied and I refuse to go back on the poison just so that I

can ruin my gut enough for some doctor to look for a lesion. I feel bad enough

when I am accidentally poisoned by a fraction of a teaspoon of soy sauce

marinade. The point is to be aware of what could happen and watch out for it

while staying as far from gluten as possible – 100% GF intake.

Connie

P please consider the environment before printing this e-mail

[Guest guest]

Thanks everyone for your feedback. I guess the next step is to talk

with a specialist. It's helpful to hear the different opinions from

this group!

Kristy

>

> In a message dated 11/18/08 9:44:04 AM, connie@... writes:

> > I think that celiac (with the biopsied gut lesions) is just one

endpoint of

> > gluten intolerance and that the whole list of reactions to gluten

can be

> > classified as gluten intolerance. 

> >

> I think it is incredibly harmful to lump celiac in with general

gluten

> intolerance. Celiac disease is not an " endpoint " of intolerance --

being intolerant

> or sensitive to gluten will never lead to celiac disease (though of

course

> intolerance can be a symptom of cd). Celiac disease is an

autoimmune disease --

> gluten provokes a reaction in the body that cannot be compared to

any reaction

> intolerance might provoke -- and cd has a host of serious problems

not

> associated with " intolerance. " Perhaps the diet is the same (though

it seems that for

> many who don't actually have the disease, they can afford to be

less careful

> about trace gluten and probably are able to eat foods processed in

plants

> where there is wheat, etc...), but having an upset stomach or other

acute reaction

> cannot and should not be compared to the serious effects of celiac

disease,

> including dangerous vitamin deficiencies and an increased risk of

intestinal

> cancer.

>

> In terms of whether to get a diagnosis or not, there are studies

that show

> people stick to the diet much better if they have a medical

diagnosis and that

> really seems to uphold common sense. In my own experience, I know a

lot of

> people who are intolerant of gluten, yet break the diet when it

suits them. And

> for a child, I think if you are going to put them on a gf diet for

the rest of

> their lives, it behooves a parent to make sure the child truly has

cd.

> Intolerances, allergies, and sensitivities can come and go, but cd

is forever.

>

> Tristan

>

>

>

>

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