Denial is over, advice please!

[Guest guest]

Fellow celiacs

After 3 months with no gluten I had some cake to make sure it was

really the issue and not some medication I was taking. It's painfully

clear I have celiacs now after the symptoms I'm still having a week

later. As much as I may want to throw a temper tantrum in the grocery

store passing those innocent looking delights, I guess I've got to get

down to business. I do not want to experience these symptoms again!!

I need some advice as I buckle down and be a good sport.

1. Do I really need to get new pans? I live alone, so no cross

contamination issues--just residual. (They are old)

2. What is your favorite recipe resource? Cookbook, website, other

people?

3. What was the most sneaky, surprising source of gluten that you

learned the hard way to watch out for and do things " processed in

facilities, blah, blah, " ever make you sick?

4. How many " episodes " do you average by accidental exposure?

I'm trying to figure out how strict I need to be without being afraid

of food or feeling like the world is full of poison. At the same

time, I want the optimum for my health. I just wanna feel better!

Sincerely, " sick of rice crackers "

PS Can a programmer out there make a dashboard widget for GF

foods, please!!!!

[Guest guest]

What a great idea!

> PS Can a programmer out there make a dashboard widget for

> GF

> foods, please!!!!

[Guest guest]

**My** personal answers to your questions:

1. new baking pans: sorry, but yes, I would. or you can use parchment every

single time you bake, which had the advantage of keeping foods from sticking

2. recipe sources: friends, support groups, Bette Hagman books when you first

start out

3. constant problem with gluten: processed foods from Trader Joe's. I don't give

a d@mn if their labels say " gluten free " we both still get sick from them. most

of their outsourced products are made on shared - as in " contaminated " -

equipment and I know many celiacs who no longer trust that company at all.

4. accidental exposures: very few. For my celiac kid, 3 in 2008, for me, 4.

we've been at this 5 years, cook mainly at home, and double-check everything.

Two of my son's exposures were caused by someone who made serious " goofs " in

their home, the 3rd was the last, and I do mean, last time we went to Chili's.

Maureen

> From: berkeleymonarch <berkeleymonarch@...>

> Subject: [ ] Denial is over, advice please!

>

> Date: Thursday, January 22, 2009, 10:09 PM

> Fellow celiacs

> After 3 months with no gluten I had some cake to make sure it was

> really the issue and not some medication I was taking. It's painfully

> clear I have celiacs now after the symptoms I'm still having a week

> later. As much as I may want to throw a temper tantrum in the grocery

> store passing those innocent looking delights, I guess I've got to get

> down to business. I do not want to experience these symptoms again!!

> I need some advice as I buckle down and be a good sport.

>

> 1. Do I really need to get new pans? I live alone, so no cross

> contamination issues--just residual. (They are old)

>

> 2. What is your favorite recipe resource? Cookbook, website, other

> people?

>

> 3. What was the most sneaky, surprising source of gluten that you

> learned the hard way to watch out for and do things " processed in

> facilities, blah, blah, " ever make you sick?

>

> 4. How many " episodes " do you average by accidental exposure?

>

> I'm trying to figure out how strict I need to be without being afraid

> of food or feeling like the world is full of poison. At the same

> time, I want the optimum for my health. I just wanna feel better!

>

> Sincerely, " sick of rice crackers "

[Guest guest]

On Jan 22, 2009, at 10:09 PM, berkeleymonarch wrote:Fellow celiacsAfter 3 months with no gluten I had some cake to make sure it wasreally the issue and not some medication I was taking. It's painfullyclear I have celiacs now after the symptoms I'm still having a weeklater. As much as I may want to throw a temper tantrum in the grocerystore passing those innocent looking delights, I guess I've got to getdown to business. I do not want to experience these symptoms again!!I need some advice as I buckle down and be a good sport. 1. Do I really need to get new pans? I live alone, so no crosscontamination issues--just residual. (They are old). GIVEN THE FACT I CLEAN MY PANS, AND I HAVE NO SIGNS OF RESIDUAL FOOD, I DO NOT HAVE SEPARATE PANS.2. What is your favorite recipe resource? Cookbook, website, otherpeople? SIMPLE COOKING MAGAZINES! YOU'D BE SURPRISED HOW MANY RECIPES ARE SIMPLY GF. SUB GF SOY, USE GF FLOUR, ETC.3. What was the most sneaky, surprising source of gluten that youlearned the hard way to watch out for and do things "processed infacilities, blah, blah," ever make you sick? ONLY BEEN DIAGNOSED FOR 3 MONTHS, HAVE BEEN GLUTENED ONLY ONCE AND I BELIEVE IT IS A HERSHEY'S PEANUT BUTTER CUP, MINI SIZE (NO GLUTEN IN INGREDIENTS BUT I AM CONVINCED CC)4. How many "episodes" do you average by accidental exposure? I'm trying to figure out how strict I need to be without being afraidof food or feeling like the world is full of poison. At the sametime, I want the optimum for my health. I just wanna feel better!GLUTENED ONCE IN THREE MONTHS. YOU NEED TO BE 100% STRICT, CAREFUL, EDUCATING AND QUESTIONING CHEFS AND RESTAURANT MANAGERS FOR YOUR OWN HEALTH, YET YOU GOTTA TRUST AND ENJOY FOOD. IT'S AN EASY DISEASE TO LIVE WITH AND TRUST ME, I AM NOT FINDING IT TOO DIFFICULT! Sincerely, "sick of rice crackers" PS Can a programmer out there make a dashboard widget for GFfoods, please!!!!

[Guest guest]

On Jan 22, 2009, at 10:09 PM, berkeleymonarch wrote:PS Can a programmer out there make a dashboard widget for GFfoods, please!!!!There are a number of software items out there, including the Clan set:http://www.clanthompson.com/celiacstore/index.php?main_page=index & cPath=1They even seem to have created an iPhone app. No dashboard widgets yet, but there are desktop apps.-Joe

[Guest guest]

Hi Joe! I am a bit hesitant to say anything, I am severely gluten

intolerant and really value the advice of this forum, it has really

helped me in the past. So I really don't want to self-promote. But I

am very passionate about spreading awareness about gluten

sensitivities--in hopes to help people to be diagnosed before having

to go through some of the awful symptoms and wrong diagnoses that we

did, so my boyfriend and I created a gluten-free search engine,

GlutenFreeFox.com. Which actually does have a toolbar widget, you

just type in your search terms and it handles the gluten-free part.

We hand key every one of the hundreds of sites that are in there. If

you have any suggestions for sites to add, or improvements that can

make it a better tool, I would love to hear them. And again, I am so

sorry I am not trying to self promote, but it well, you did ask for a

widget, is this what you mean? ;-)

Take care,

>

> > PS Can a programmer out there make a dashboard widget for GF

> > foods, please!!!!

>

> There are a number of software items out there, including the Clan

> set:

>

>

http://www.clanthompson.com/celiacstore/index.php?main_page=index & cPath=1

>

> They even seem to have created an iPhone app. No dashboard widgets

> yet, but there are desktop apps.

>

> -Joe

>

[Guest guest]

Wow! I'm so glad to learn of your site and widget!

In the few minutes I spent looking at your site, it seems to be very professional, very well-organized.

I hope the site and widget become much better known. They are a great resource.

H.

In a message dated 1/24/09 12:09:52 AM, kristenevelyncampbell@... writes:

Hi Joe! I am a bit hesitant to say anything, I am severely gluten

intolerant and really value the advice of this forum, it has really

helped me in the past. So I really don't want to self-promote. But I

am very passionate about spreading awareness about gluten

sensitivities- sensitivities-<wbr>-in hopes to help people to be dia

to go through some of the awful symptoms and wrong diagnoses that we

did, so my boyfriend and I created a gluten-free search engine,

GlutenFreeFox. GlutenFreeFox.<wbr>com. Which actually does have a

just type in your search terms and it handles the gluten-free part.

We hand key every one of the hundreds of sites that are in there. If

you have any suggestions for sites to add, or improvements that can

make it a better tool, I would love to hear them. And again, I am so

sorry I am not trying to self promote, but it well, you did ask for a

widget, is this what you mean? ;-)

Take care,

**************Know Your Numbers: Get tips and tools to help you improve your credit score. (http://www.walletpop.com/credit/credit-reports?ncid=emlcntuswall00000002)

[Guest guest]

Thank you so much, that is so sweet!! It is still a work in progress, so I really appreciate your feedback!!!From: flatcat9@... <flatcat9@...>Subject: Re: [ ] Re: Denial is over, advice please! Date: Saturday, January 24, 2009, 9:50 AM

Wow! I'm so glad to learn of your site and widget!

In the few minutes I spent looking at your site, it seems to be very professional, very well-organized.

I hope the site and widget become much better known. They are a great resource.

H.

In a message dated 1/24/09 12:09:52 AM, kristenevelyncampbell@... writes:

Hi Joe! I am a bit hesitant to say anything, I am severely gluten

intolerant and really value the advice of this forum, it has really

helped me in the past. So I really don't want to self-promote. But I

am very passionate about spreading awareness about gluten

sensitivities- sensitivities-<wbr>-in hopes to help people to be dia

to go through some of the awful symptoms and wrong diagnoses that we

did, so my boyfriend and I created a gluten-free search engine,

GlutenFreeFox. GlutenFreeFox.<wbr>com. Which actually does have a

just type in your search terms and it handles the gluten-free part.

We hand key every one of the hundreds of sites that are in there. If

you have any suggestions for sites to add, or improvements that can

make it a better tool, I would love to hear them. And again, I am so

sorry I am not trying to self promote, but it well, you did ask for a

widget, is this what you mean? ;-)

Take care,

**************Know Your Numbers: Get tips and tools to help you improve your credit score. (http://www.walletpop.com/credit/credit-reports?ncid=emlcntuswall00000002)

[Guest guest]

this is so funny and timely. Carla S and I were just talking about how great a

search engine for GF would be. And, here you've already done it. Thanks.

L. Hamilton, RN BSN MFT MS Public Health Registered Nurse, Solano

County   " From Road to Recovery " Cycling First Aid Support & Health

Education  http://www.specializedriders.com/profile/view/26258   Quote:  " Let

the universe tell you no,  not your fears or your peers. "

> From: flatcat9@... <flatcat9@...>

> Subject: Re: [ ] Re: Denial is over, advice

> please!

>

> Date: Saturday, January 24, 2009, 9:50 AM

>

>

>

>

>

>

>

> Wow! I'm so glad to learn of your site and widget!

>

>

>

> In the few minutes I spent looking at your site, it seems

> to be very professional, very well-organized.

>

>

>

> I hope the site and widget become much better known. They

> are a great resource.

>

>

>

> H.

>

>

>

> In a message dated 1/24/09 12:09:52 AM,

> kristenevelyncampbell@... writes:

>

>

>

>

>

>

>

> Hi Joe! I am a bit hesitant to say anything, I am severely

> gluten

>

> intolerant and really value the advice of this forum, it

> has really

>

> helped me in the past. So I really don't want to

> self-promote. But I

>

> am very passionate about spreading awareness about gluten

>

> sensitivities- sensitivities-<wbr>-in hopes to help

> people to be dia

>

> to go through some of the awful symptoms and wrong

> diagnoses that we

>

> did, so my boyfriend and I created a gluten-free search

> engine,

>

> GlutenFreeFox. GlutenFreeFox.<wbr>com. Which actually

> does have a

>

> just type in your search terms and it handles the

> gluten-free part.

>

> We hand key every one of the hundreds of sites that are in

> there. If

>

> you have any suggestions for sites to add, or improvements

> that can

>

> make it a better tool, I would love to hear them. And

> again, I am so

>

> sorry I am not trying to self promote, but it well, you did

> ask for a

>

> widget, is this what you mean? ;-)

>

>

>

> Take care,

>

>

>

>

>

>

>

>

>

>

>

>

> **************

> Know Your Numbers: Get tips and tools to help you improve

> your credit score.

> (http://www.walletpop.com/credit/credit-reports?ncid=emlcntuswall00000002)

[Guest guest]

All excellent questions!

.....here are my thoughts after 15 years....

First, let me just express this... there is SOOOO-MUCH-YUMMY and satisfing food

that is

easy and safe to eat and prepare!

Our family of four even traveled for one month (to Vietnam and Cambodia) and

only saw

ONE city that had bread. It was practically a gluten free-land...lol...

We do a lot of cooking and the best rice pot (and quinoa) pot I have ever used

is a small

LeCruset. Twenty five years new...and going strong.

(Lots of reasons to use a pot that does not leach metals ....www.Mercola.com has

good

explaination of this. LeCruset has an outlet/seconds sale every year. I bought

a piece a

year.

Second. Favorite new cookbook...Cafe Gratitude and the new one for

desserts...Sweet

Gratitude. For some more unusual stuff and excellent desserts.

Highlights in book

Fresh nutmilk is a snap and very, very delicious.

USE RAW NUTS. Cooked nuts are hard on the digestion. Soak almonds to remove

toxins on

the skin....

How to make coconut milk and desserts with coconut. (very, very good for you)

A new and very nutritious way to make things solid...like puddings and faux

'cheesecake'

and such.

Best raw nut and date crust I've ever made.

Great dressing and sauce ideas.

Note: The raw foodies have some very inventive new ideas.

FRESH FOOD FAVE

Fresh PESTO with cilantro and parsely and walnuts. Very mild yet super green and

walnuts

for brainfood. Can use Spinach and Arugula and of course basil...

Pesto HINT

If you are dairy free....Miso paste adds that salty depth that cheese would have

added. You

won't miss it.

It freezes. Serve it on rice or quinoa with carmelized onions and other veges...

FAVORITE SITE!

Donna Gates Body Ecology. She is brilliant. Her info on pro-biotics is VERY

INFORMATIVE

for those with any digestive challenges.

IMPORTANT!

last but NOT least...the fear, sadness, guilt, anger and other emotional stuff

....

This was a huge challenge when my daughter was small. Making a mistake and the

aftermath affected us all.

I've co-created an Energy Psychology protocal that is a dynamic way to upshift

the fear

response. Many years in the making...it is being used by practioners for

anxiety, stress,

fear and other responses. It is also helpful for allergy and trauma. WOW can be

learned in

five minutes and was created to be be fast, effective, easy, safe and fun....

(www.thewowprocess.com)

FINAL thoughts...

1. Gluten free pre-made goods are still filled with SUGAR, salt and can be

overly

processed. Keep an eye out for loads of sugar and less -than-fresh ingredients.

Food that is more alive will make you feel more lively.

2. remove the hidden emotional stressors with Energy Psychology, and it will be

easier to

make healthy choices and naturally choose and be satisfied with foods that

promote your

vitality.

3. Think of this as possiblity to express your creativity....to explore and

experiment. I

choose to do this with the emotional aspects... other do it with the physical

part...growing

gardens, creating new recipes, starting groups that support...and on.

Warmly

--- In , " berkeleymonarch " <berkeleymonarch@...>

wrote:

>

> Fellow celiacs

> After 3 months with no gluten I had some cake to make sure it was

> really the issue and not some medication I was taking. It's painfully

> clear I have celiacs now after the symptoms I'm still having a week

> later. As much as I may want to throw a temper tantrum in the grocery

> store passing those innocent looking delights, I guess I've got to get

> down to business. I do not want to experience these symptoms again!!

> I need some advice as I buckle down and be a good sport.

>

> 1. Do I really need to get new pans? I live alone, so no cross

> contamination issues--just residual. (They are old)

>

> 2. What is your favorite recipe resource? Cookbook, website, other

> people?

>

> 3. What was the most sneaky, surprising source of gluten that you

> learned the hard way to watch out for and do things " processed in

> facilities, blah, blah, " ever make you sick?

>

> 4. How many " episodes " do you average by accidental exposure?

>

> I'm trying to figure out how strict I need to be without being afraid

> of food or feeling like the world is full of poison. At the same

> time, I want the optimum for my health. I just wanna feel better!

>

> Sincerely, " sick of rice crackers "

>

> PS Can a programmer out there make a dashboard widget for GF

> foods, please!!!!

>