Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 , welcome to the group. Wow! Five children! Sounds like you have had a lot of trying times since the car accident. I am sure that you will find a lot of support from the most compassionate support group online. Esther has arthritis and Carol is Esther's Mom. Again welcome ~Esther & Carol~ ''To get out of a difficulty, one usually must go through it.'' " Never look down on anybody unless you are helping them up. " ----- Original Message ----- From: Temple <dat2352@...> < egroups> Sent: Sunday, October 29, 2000 7:17 PM Subject: [ ] intro > Don't know what is customary on this list but thought that I would > introduce myself. I am Temple,48 year old homemaker, husband- > Steve and 5 children-10-23-3 girls and 2 boys. I love crafts, > friend, animals and lots of volunteering before my physical life took > a turn. > OK-now I guess medical history-starting on Jan 25,1994 when myself > and 3 of my children were involved in a headon collision with a drunk > driver. Until that time life was fine. Well I needed abdominal > surgery along with lots of other stuff. In March of 95 and then Jan > 96 had hernias repaired. Then Sept of 96 again a more major repair-6 > hours and a drug induced coma following. Then after a week in the > coma, woke up and had a brain hemmorage followed by emergency > craniotomy and then the year from hell-but I survived and got back > 98% of abilities. Then in late summer of 98 developed carpal tunnel > symdrome. Then in December developed severe sudden onset rheumatoid > arthritis. Went through a year of various meds- NSAI, prednisone > (only thing-no pain), arave, metatrexate, A-sulfadine. Then in April > of 98 developed an abcess at the gortex repair site. My surgeon felt > that I had had a lowgrade infection that the body handled until I > started on all the immune suppressants. At that point she cleared up > the abcess and put me on IV antibiotics. Then in Spring of 2000, it > happened again, this time she removed the gortex repair and abcess. > Now the sutures are not holding and I will have another surgery in > Jan. Bacl to arthritis, In Dec of 99 I started on Enbrel-it was like > a miracle-I felt great. Well as my infection got worse the enbrel > became less effective. My rheumetologist swore that when the > infection was gone, the enbrel would work again. I went off it 6 > weeks around the surgery. Well it does work in that I am not as > sleepy as I was before and my swelling is down but the pain is still > extreme. Has anyone else had this experience? Haven't tried > remecade because I am afraid of methatrexate immune suppressant > properties. > Really I'm a medical disaster but a functioning one. I also have > asthma, hypothyroid, acid reflux, blood clotting disorder (on > coumadin)and anemia. > I need info on lots of stuff but mainly how you cope. I guess I take > a grin and bear it approach but can't do alot of what I used to think > of as routine. Nice to meet you all. > > > > Our websites: http://rheumatoid.arthritis.freehosting.net/ > http://www.rasupport.webprovider.com/ > Change subscription options: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 - What a story! Some of us have had some nightmare stories but nothing like yours. Hang in there - this was the place to come. Its amazing the residual problems caused by not only the actual injuries but the immune issues from the stress and trauma. I have a close friend whose husband had quintuple bypass- and six months later - at 52 developed Rheumatoid arthritis - he is in many of the same meds as me and says he doesn't know which was worse - the surgery or RA. Hang in there. Use us a sounding board. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 I welcome everyone also. I am just a little more stand in back than most. I guess. Carol and Esther. I must tell you this. For some strange reason, you Esther, were on my mind off and on all day yesterday. And I don't even " know you " ! Strange how we get into each others lives and minds and hearts here on this list. You have a good happy day! Susie " What lies behind us And what lies before us Are tiny matters compared To what lies within Us. " ~Ralph Waldo Emerson~ Esther & Carol wrote: > , welcome to the group. Wow! Five children! Sounds like you > have had a lot of trying times since the car accident. I am sure that > > you will find a lot of support from the most compassionate support > group online. > > Esther has arthritis and Carol is Esther's Mom. > Again welcome > > ~Esther & Carol~ > > ''To get out of a difficulty, one > usually must go through it.'' > > " Never look down on anybody > unless you are helping them up. " > > > Our websites: http://rheumatoid.arthritis.freehosting.net/ > > http://www.rasupport.webprovider.com/ > > Change subscription options: > > > > eGroups Sponsor > > Our websites: http://rheumatoid.arthritis.freehosting.net/ > http://www.rasupport.webprovider.com/ > Change subscription options: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Hi Hollie, I am Kim also from Hillsboro, Oregon! Small world. Please feel free to email me. Welcome! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Welcome to Holly and our other new members!! Thanks for introducing yourself. We have many vegans among our members. Please acquaint yourself with our files which are jam packed with info. To answer some of our other new members: Splenda/sucralose is perfectly safe and is the sweetner of choice here. Xylitol and stevia are also good. See our files. We've had long discussions about fortified cereals. The best way to get your nutrients is naturally, not through fortified foods. Cocao has also been discussed here. It is a good anti-oxidant. Search the archives for " cocoa for past discussions on the subject. on 12/30/2003 1:30 AM, Hollie at cheesepuppet@... wrote: > Hey folks, > > I'm just introducing myself. I'm new to the group and to CR. I joined > because I find the research so fascinating. I'm not ready to try CR yet > for several reasons; some health concerns I'm dealing with, and the > possibility of getting pregnant in the next year. However I'm > desperately trying to move my diet in a more healthful direction, > starting with a huge reduction in meat consumption and, probably soon, > an elimination of dairy. I'm finding that dairy isn't working for me > anymore, I seem to react badly to it almost every time. Eventually I'd > like to go completely vegan, and see how that works for me. That's > probably a long ways off though. > > I found out about CR a couple years ago through an episode of > Scientific American. I got online right after that and found Roy's > site. I forgot about it for awhile, and then saw it popping up in news > reports and magazine articles lately, and my interest was rekindled. > > Anyway, that's enough about me. I look forward to reading the posts! > > - Hollie > > -=-=-=-=-=-=-=-=-=- > http://www.cheesepuppet.net/ > hillsboro, oregon > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2005 Report Share Posted May 16, 2005 My 3rd dose of Xolair made me dizzy and light headed. When I talked to my Dr. about it he said that it is just a big dose of medicine like any other big dose and I need to drink lots of water to clear it properly. I started making sure I get my 8-10 cups of water a day in the days before and after my dose and have had no more problems. Best, --- In , " rissaaaa " <rissaaaa@y...> wrote: > Hi all > I thought I should post an intro since I joined a lil bit ago. I am > 22 and have had asthma since I was 10. I have spent many nights in > the ER begging to go home. I was recently put on the Xolair shots and > go again tomorrow for my next set. 3 shots every 2 weeks. My doctor > says this is the last step for me. After that he isnt sure where to > go from here if there isnt improvement. Currently I am on advair 500 > and singulair,. I finally got off the pred 3 days ago and so far so > good. Not crying as much so that is a plus. > > The Xolair so far has been making me sick for about 3 days after I get > it. Starting that night I feel sick to my stomach not really wanting > to eat or move. I just want to lay down and sleep. Last time I was > dizzy for a few hours, but when I am am b4reathing poorly I generally > get dizzy so I am not sure what caused the dizziness. I was wondering > if anyone else has had any of these symptoms? Or am I just crazy? LOL > > *Hugs* > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 In a message dated 8/27/2008 11:16:53 P.M. Pacific Daylight Time, joe@... writes: Hello everyone,My 16-yo daughter was just diagnosed with Celiac a couple weeks ago,and we are just getting started learning about the gluten-freelifestyle. I've been waiting for close to a week to get approved onthe SillyYaks group, and got tired of waiting, and found this one. I'm glad to find a local group as well.We live in San , and so am very interested in hearing about anygluten-free-friendly restaurants in San . I guess that's all for now.-Joe It's only a deal if it's where you want to go. Find your travel deal here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Hello everyone, My 16-yo daughter was just diagnosed with Celiac a couple weeks ago, and we are just getting started learning about the gluten-free lifestyle. I've been waiting for close to a week to get approved on the SillyYaks group, and got tired of waiting, and found this one. I'm glad to find a local group as well. We live in San , and so am very interested in hearing about any gluten-free-friendly restaurants in San . I guess that's all for now. -Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Welcome Mike, I have heard of people who have been exposed to chemicals like that before, and then they became chemically sensitive. It is possible to have both asthma and chemical sensitivities. I hope things get better with the xolair. Just a thought, you might want to check out information on chemical sensitivity reactions. From: Mike <mike.dmcbride@...> Subject: [ ] Intro Date: Tuesday, December 16, 2008, 7:07 PM Hi all, I posted earlier today, but probably should have introduced myself as well. I am 50 and live in Kenai, Alaska. I originally come from El Paso, and have lived in Denver and near Greenville (SC) as well. According to National Jewish, I've probably had asthma all my life. As a kid, I can think of only 2 times it bothered me. so it was not really an issue. In 1992 I inhaled de-icing fluid (ethylene glycol) when another person de-icing an aircraft accidentally shot me in the face. At that point my asthma began to escalate. For the past 3 years I've been symptomatic nearly 7 days per week. I moved from AK to SC in the hopes of finding relief but it only increased my problems. I've moved back to AK, but to no avail. My physician here referred me to a pulmonologist in Anchorage who is to start me on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO NOT want to go onto disability. I am much to young to have to quit work because I cannot walk from one end of the treatment unit to the other without getting winded. Anyway, I appreciate the information I've been reading. As a 'newbie' to Xolair, I will probably sit back and read. Best wishes to all, Mike Quote Link to comment Share on other sites More sharing options...
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