Guest guest Posted August 18, 1999 Report Share Posted August 18, 1999 Hi all -- I'm new to this group, and new to the world of AIH. I would really appreciate your feedback on what may lie ahead with this disease. I have a decision coming up as to whether or how much to cut back on work, which is high-stress, deadline-driven and involves quite a bit of travel. I have read up extensively on the disease and treatments, but now I need to hear from the people who have been living with this condition so I might get a better idea of what to expect over the long-term. I was really pleased to find this group. (FYI, I was diagnosed with AIH less than 3 months ago. My ALT/AST were about 1800/900 and biopsy was Grade 4, stage 2 with fibrosis but not cirrhosis. I have been on Prednisone (40/30/20) and am now reducing that to 10mg and have started Imuran; I am also taking Fosamax. The ALT/AST numbers have come down and are now about double normal.) I have always been the driven type that " pushes through " regardless of how tired or crummy I might feel. I have always been fairly healthy and very active. However, I dragged home from a recent trip with mono and a flare-up of shingles that I had several years ago. This has forced me to rethink working and traveling at the same level as in the past, especially with a compromised immune system thanks to the meds. I know everyone's situation is different with AIH, but I would greatly appreciate hearing from any of you with feedback on how AIH - and dealing with the meds and their consequences - has affected your life and what adjustments you have had to make. I have to make some important decisions about my future and really need some input as to what may lie ahead in living with this disease. Thanks so much! Quote Link to comment Share on other sites More sharing options...
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