Connective tissue disease?

[Guest guest]

I just got the results of some tests (my doc ordered like a million

she didn't tell me she ordered, but so far she's been the best doc

I've had, wish she'd TOLD me she ordered this test cause I mentioned

fatigued, but every other doctor has just completely written off my

fatigue, so this is better!) Anyway, it is positive for ANA and RHB

Antibody.... My doc emailed to say that this means I might have a

" connective tissue disease " (Like arthritis I guess) and she made me

an appointment with rhumatology. Anyone know anything about this kind

of thing???? Lupus also gets thrown around in the stuff i've googled

online, I know thats kind of bad, but have no idea what..... anyway,

anyone else have this or know if its any relation to celiac or the

like? I've never had the official celiac diagnosis, and dont know if

I'm just GI or what (just htat I have a strong and obvious reaction to

gluten), but I've heard that its an autoimmune and once you have one,

its common to have more.

Cory

[Guest guest]

Yes, I have had it, almost my whole family has it and we have celiac. My eldest sister and I have gone off all trace gluten and the problem went away for both of us...BeaFrom: corykatt <cory66katt@...>Subject: [ ] Connective tissue disease? Date: Friday, February 20, 2009, 6:56 PM

I just got the results of some tests (my doc ordered like a million

she didn't tell me she ordered, but so far she's been the best doc

I've had, wish she'd TOLD me she ordered this test cause I mentioned

fatigued, but every other doctor has just completely written off my

fatigue, so this is better!) Anyway, it is positive for ANA and RHB

Antibody.... My doc emailed to say that this means I might have a

"connective tissue disease" (Like arthritis I guess) and she made me

an appointment with rhumatology. Anyone know anything about this kind

of thing???? Lupus also gets thrown around in the stuff i've googled

online, I know thats kind of bad, but have no idea what..... anyway,

anyone else have this or know if its any relation to celiac or the

like? I've never had the official celiac diagnosis, and dont know if

I'm just GI or what (just htat I have a strong and obvious reaction to

gluten), but I've heard that its an autoimmune and once you have one,

its common to have more.

Cory

[Guest guest]

In the first round of figuring out what was wrong with me, before I was diagnosed with celiac, I tested high on the ANA and was sent to a rheumotologist, as well. I spent the days before the appointment convincing myself I had lupus. The physician said that many people get "caught" in this test but it is not diagnostic and I didn't have any of the other signs or symptoms. I didn't have to go through further testing. Maybe that's news you will get, as well.

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[Guest guest]

Hello Bea,

What type of connective tissue diseases were you diagnosed with? I already knew

that autoimmune diseases tend to run in families, in fact my family is a perfect

example. My mother has scleroderma,I have celiac disease and my 14 year-old

daughter has type I diabetes. My mother was diagnosed almost 10 years ago, but

my daughter and I were diagnosed just last year....in fact only 12 days apart! I

would love to hear from others who have the same experiences in their family, as

I spent the last year in a terrible depression. Finally I am starting to realize

that 'normal' life is not over, everyone has their own challenges to face and

that there are many positive things to gain from this experience. For instance,

I have FINALLY learned to cook, not from packages, but from scratch. My family

now eats whole, healthy foods, with ingredients we can actually pronounce. And

I'm happy to say that I get rave reviews from the hubby and kids!

in Hill

>

> Yes, I have had it, almost my whole family has it and we have celiac. My

eldest sister and I have gone off all trace gluten and the problem went away for

both of us...

>

> Bea

>

[Guest guest]

, good approach. I look around at just my near neighbors -- I know two very active women who are completely blind. They do more than I do. One was a notable artist; she produced a film about losing her sight, and she continued to do good art by memory and touch. I have two others who have lost large parts of their jawbones and facial skin to cancer; they don't stay at home.

You've turned a negative into something of a positive by learning cooking skills you might otherwise have ignored.

As an analogy, I know that having less money than I expected to have, pre 2008 will change my fuiture quite a lot. I may find ways to make that a change for the better -- it's possible.

Best wishes.

H.

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