Re: Re: Requesting opinions on business announcements

[Guest guest]

And in this case, the posting contained valid information related to Celiac. The key is that the counselor is a member of the community and has Celiac herself and can help those adjusting to the lifestyle. This was not a spam from an outside group trying to sell mortgages or phones.

This list is not just about food but also about living with Celiac and coping with the changes in lifestyle. I would appreciate this information. And as one previous poster said, if you are not interested you can delete it. Just as I delete all these messages about Starbucks! Personally I do not drink coffer or go to Starbucks, so all these posts are irrelevant to me. I just delete them.

From: seamaiden399 <seamaiden399@...> Sent: Thursday, April 23, 2009 7:15:24 AMSubject: [ ] Re: Requesting opinions on business announcements

There is a difference, though, between valid information that is relevant to Celiac and the diet and information that is not. With all of the information available online and through these groups that IS relevant to the disease and diet, I don't see why we should have to be marketed to for non-related products and services. I'd rather have a little screening and not have to wade through posts about psychological counseling services and other unrelated businesses. I get enough marketing thrown at me from web pages and advertising services- I don't need to get it through my social forum that is supposed to be about sharing personal experiences and tips on the gluten-free lifestyle. A business listing service in the links might be a decent compromise where those who have the time and interest can wade through promotional listings and those who have negative interest (like myself) can avoid it. ->> Remember when we just couldn't get enough information on this disease when we were first diagnosed? I even remember giving all the info I collected and shared it with the dietician because she had no clue of what to tell me. My point being I had to glean out what was good and bad and make my own decisions. What ever is put on these posts I still do my own research. I have no problem with this request. It will just add to the variety we already read hear and I don't think anyone will get hurt in the process. Thank you.

[Guest guest]

> From: <kristin_boston@...>

>

>

> And in this case, the posting contained valid information related to

Celiac.   The key is that the counselor is a member of the community and has

Celiac herself and can help those adjusting to the lifestyle.   This was not a

spam from an outside group trying to sell mortgages or phones.

>

> This list is not just about food but also about living with Celiac and coping

with the changes in lifestyle.  I would appreciate this information.  And as

one previous poster said, if you are not interested you can delete it.  Just as

I delete all these messages about Starbucks!  Personally I do not drink coffer

or go to Starbucks, so all these posts are irrelevant to me.  I just delete

them. 

>

>

I could not disagree with you more. I do not believe that the counselor's ad

constitutes " valid information related to Celiac " at all. Perhaps a few member

of this want or need mental health services, but that is not inherently related

to celiac: persons with celiac disease can heal and do just fine without such

services, and frankly I believe mental health issues should be handled by

personal referral from someone you know and can trust, not internet ads.

You are also trying to redefine this group according to what you want, which is

not necessarily its original mission, or what others want. Changing the group

after people have joined and entrusted their email addresses to it is unfair. If

I wanted to receive spam, I'd have signed up for a group that encourages

commercial posts.

Maureen

[Guest guest]

AND.... you can still just have a file in the Group Files Section with listings from people on the list, for goodness sake, and no one gets spammed, bothered or mislead by mal-intentioned therapists (sigh). If you don't need a Celiac Counselor, don't open the Celiac Counseling file. In all honesty, this silly debate is a lot more spam than someone posting their business ad in the files section.

Lynn

From: <kristin_boston@...>Subject: Re: [ ] Re: Requesting opinions on business announcements Date: Thursday, April 23, 2009, 11:35 AM

And in this case, the posting contained valid information related to Celiac. The key is that the counselor is a member of the community and has Celiac herself and can help those adjusting to the lifestyle. This was not a spam from an outside group trying to sell mortgages or phones.

..

[Guest guest]

Quoted from the Celiacbayarea page:

"Our group is based in Santa Cruz,CA and Bay Area. We are here to support one another in our journey to better health in living with Celiac Disease. In this forum we will offer each other information, recipes, tips/hints, ideas, up-coming events, information and of course support for each other. "

I do not see how I am redefining the group. Again, the poster is a member of the community and is offering help and information related to Celiac to others in the community. Pam, as moderator, has graciously asked for input on how the community feels about this issue - seems quite fair to me.

I'm sure you realize that health includes both physical and mental health. Any chronic disease, especially one that requires drastic changes in lifestyle will have mental health repercussions for those new to it. I'm also sure that you would not want to block useful information from those that would benefit from it.

If we block this particular poster, might we then have to block restaurant owners from posting if they offer a new g-f menu item? How is this different?

As for the files page, I don't know how many people actually look at it. Personally, if it was only posted on the files page, I would never have seen it.

-

From: Marciana R <marcianar@...> Sent: Thursday, April 23, 2009 11:50:24 AMSubject: Re: [ ] Re: Requesting opinions on business announcements

> From: <kristin_boston>> > > And in this case, the posting contained valid information related to Celiac. The key is that the counselor is a member of the community and has Celiac herself and can help those adjusting to the lifestyle. This was not a spam from an outside group trying to sell mortgages or phones. > > This list is not just about food but also about living with Celiac and coping with the changes in lifestyle. I would appreciate this information. And as one previous poster said, if you are not interested you can delete it.

Just as I delete all these messages about Starbucks! Personally I do not drink coffer or go to Starbucks, so all these posts are irrelevant to me. I just delete them. > > I could not disagree with you more. I do not believe that the counselor's ad constitutes "valid information related to Celiac" at all. Perhaps a few member of this want or need mental health services, but that is not inherently related to celiac: persons with celiac disease can heal and do just fine without such services, and frankly I believe mental health issues should be handled by personal referral from someone you know and can trust, not internet ads. You are also trying to redefine this group according to what you want, which is not necessarily its original mission, or what others want. Changing the group after people have joined and entrusted their email addresses to it is unfair. If I wanted to receive spam, I'd have signed

up for a group that encourages commercial posts. Maureen

[Guest guest]

> From: <kristin_boston@...>

> Quoted from the Celiacbayarea page: 

> " Our group is based in Santa Cruz,CA and Bay Area. We are here to support one

another in our journey to better health in living with Celiac Disease. In this

forum we will offer each other information, recipes, tips/hints, ideas,

up-coming events, information and of course support for each other. "

>

> I do not see how I am redefining the group.  (snip)

I don't see advertising on that list, do you?

> I'm sure you realize that health includes both physical and mental

health.  Any chronic

> disease, especially one that requires drastic changes in lifestyle will have

mental health

> repercussions for those new to it.  I'm also sure that you would not want to

block useful

> information from those that would benefit from it.

You're of a lot of things about me, aren't you?

Well, I'm sure that I do not consider therapist ads appropriate for this group.

I'm also sure that there is a right and wrong place for every type of

information, and I don't see this group as a mental health forum.

>

> If we block this particular poster, might we then have to block restaurant

owners from posting if they offer a new g-f menu item?  How is this different?

> (snip)

> -

Gluten-free food is inherent part of the treatment for celiac disease, therapy

is not. What about that don't you understand?

Maureen

[Guest guest]

If anyone knows who the gluten free therapist is, I feel sorry for him / her with all this banter and no opportunity to defend what it is they even want to offer. As a counselor for kids with Autism (who are often on GF diets for various reasons) I would love to connect with this person, for reasons *other* than therapy.  "Support for each other" is included on the list description, and I'd love to exercise my right to chat with this person about their experiences, for support and information.  Feel free, SF therapist, to contact me offlist.LynnOn Apr 23, 2009, at 1:09 PM, Marciana R wrote:> From: <kristin_boston >> Quoted from the Celiacbayarea page:  > "Our group is based in Santa Cruz,CA and Bay Area. We are here to support one another in our journey to better health in living with Celiac Disease. In this forum we will offer each other information, recipes, tips/hints, ideas, up-coming events, information and of course support for each other. "> > I do not see how I am redefining the group.  (snip)I don't see advertising on that list, do you?> I'm sure you realize that health includes both physical and mental health.  Any chronic > disease, especially one that requires drastic changes in lifestyle will have mental health > repercussions for those new to it.  I'm also sure that you would not want to block useful > information from those that would benefit from it. You're of a lot of things about me, aren't you?Well, I'm sure that I do not consider therapist ads appropriate for this group. I'm also sure that there is a right and wrong place for every type of information, and I don't see this group as a mental health forum.> > If we block this particular poster, might we then have to block restaurant owners from posting if they offer a new g-f menu item?  How is this different?> (snip) > -Gluten-free food is inherent part of the treatment for celiac disease, therapy is not. What about that don't you understand? Maureen

[Guest guest]

Sounds like someone could use some of that therapy! From: marcianar@...Date: Thu, 23 Apr 2009 13:09:28 -0700Subject: Re: [ ] Re: Requesting opinions on business announcements

> From: <kristin_boston >

> Quoted from the Celiacbayarea page:

> "Our group is based in Santa Cruz,CA and Bay Area. We are here to support one another in our journey to better health in living with Celiac Disease. In this forum we will offer each other information, recipes, tips/hints, ideas, up-coming events, information and of course support for each other. "

>

> I do not see how I am redefining the group. (snip)

I don't see advertising on that list, do you?

> I'm sure you realize that health includes both physical and mental health. Any chronic

> disease, especially one that requires drastic changes in lifestyle will have mental health

> repercussions for those new to it. I'm also sure that you would not want to block useful

> information from those that would benefit from it.

You're of a lot of things about me, aren't you?

Well, I'm sure that I do not consider therapist ads appropriate for this group. I'm also sure that there is a right and wrong place for every type of information, and I don't see this group as a mental health forum.

>

> If we block this particular poster, might we then have to block restaurant owners from posting if they offer a new g-f menu item? How is this different?

> (snip)

> -

Gluten-free food is inherent part of the treatment for celiac disease, therapy is not. What about that don't you understand?

Maureen