Re: Help? Tips on making good food choices during vacation

[Guest guest]

Don't anybody laugh at me, but there are meds that work to control symptoms? This is the first I've heard of this. What are they?Thanks,LynnOn Jun 8, 2009, at 2:22 PM, Jasmine wrote:Hi,I'm newly diagnosed gluten intolerant (11/08), very sensitive, and the meds aren't working anymore to control symptoms when I do get glutened.Next month I plan to take a vacation to Mexico. I haven't decided exactly where yet but I'm leaning towards Cabo or Cancun. I'm going to make a little card for myself in Spanish explaining my issue, but I'm curious how other travelers have dealt with the food the issue while away. Any tips? Any foods that I should stay away from there, that happen to be safe here? Has anyone has success with all inclusive resorts?Thanks in advance for any information! Jasmine

[Guest guest]

Lynn, I'm not laughing... you said exactly what I was thinking too!

Jasmine, please do enlighten us.

ps. I have not yet gained the courage to trust a food card when traveling in a foreign country. Too many bad experiences with the language barrier here in the USA. I'd be happy to hear about others' experiences.

From: Galliano Gang <galliano.gang@...> Sent: Monday, June 8, 2009 6:17:45 PMSubject: Re: [ ] Help? Tips on making good food choices during vacation

Don't anybody laugh at me, but there are meds that work to control symptoms? This is the first I've heard of this. What are they?

Thanks,

Lynn

On Jun 8, 2009, at 2:22 PM, Jasmine wrote:

Hi,I'm newly diagnosed gluten intolerant (11/08), very sensitive, and the meds aren't working anymore to control symptoms when I do get glutened.Next month I plan to take a vacation to Mexico. I haven't decided exactly where yet but I'm leaning towards Cabo or Cancun. I'm going to make a little card for myself in Spanish explaining my issue, but I'm curious how other travelers have dealt with the food the issue while away. Any tips? Any foods that I should stay away from there, that happen to be safe here? Has anyone has success with all inclusive resorts?Thanks in advance for any information! Jasmine

[Guest guest]

I have the "no gluten" app on my iPhone but have only used it here in California. It's pretty handy for language barriers, but I know about the cards as they are advertised in the Gluten free guide to restaurants. I take RevitalX to soothe my distress when I get "contaminated" but what meds is she referring to?Thanks!Sent from my iPhoneOn Jun 8, 2009, at 7:46 PM, <kristin_boston@...> wrote:

Lynn, I'm not laughing... you said exactly what I was thinking too! 

Jasmine, please do enlighten us.

 

 

ps.  I have not yet gained the courage to trust a food card when traveling in a foreign country.  Too many bad experiences with the language barrier here in the USA.  I'd be happy to hear about others' experiences.

From: Galliano Gang <galliano.gang@...> Sent: Monday, June 8, 2009 6:17:45 PMSubject: Re: [ ] Help? Tips on making good food choices during vacation

Don't anybody laugh at me, but there are meds that work to control symptoms? This is the first I've heard of this. What are they?

Thanks,

Lynn

On Jun 8, 2009, at 2:22 PM, Jasmine wrote:

Hi,I'm newly diagnosed gluten intolerant (11/08), very sensitive, and the meds aren't working anymore to control symptoms when I do get glutened.Next month I plan to take a vacation to Mexico. I haven't decided exactly where yet but I'm leaning towards Cabo or Cancun. I'm going to make a little card for myself in Spanish explaining my issue, but I'm curious how other travelers have dealt with the food the issue while away. Any tips? Any foods that I should stay away from there, that happen to be safe here? Has anyone has success with all inclusive resorts?Thanks in advance for any information! Jasmine

[Guest guest]

>

> Hi,

>

> I'm newly diagnosed gluten intolerant (11/08), very sensitive, and the meds

aren't working anymore to control symptoms when I do get glutened.

>

> Next month I plan to take a vacation to Mexico. I haven't decided exactly

where yet but I'm leaning towards Cabo or Cancun. I'm going to make a little

card for myself in Spanish explaining my issue, but I'm curious how other

travelers have dealt with the food the issue while away. Any tips? Any foods

that I should stay away from there, that happen to be safe here? Has anyone has

success with all inclusive resorts?

>

> Thanks in advance for any information!

>

> Jasmine

We stated at the Riu Palace in Cabo last year and did not get glutened once. I

printed out the Spanish card and showed it tonthe head waiter and chefs and

asked then about specific dishes on the buffets and on menus on the specialty

restaurants. I'm curious about these magic pills too - I don't get glutened

often (now maybe once every 4-6 months, knock on wood..) and just suffer the

consequences. Btw I am writing this from Denali Nat Park in Alaska. We have

eaten safely. It it isnhard work - the head chefs at the 2 restaurants we dined

at thought they knew what gluten is yet did not knownsoy sauce has wheat in it-

so you really have to screen their knowledge to make sure they understand.

Good luck!

[Guest guest]

There are no reputable meds for controlling symptoms of Celiac Disease as far as

I know. Some people take digestive enzymes, but these enzymes are not able to

keep Celiac in remission, prevent harmful Celiac Antibody reaction, or prevent

malnutrition from ingesting gluten so they are not something I am interested in.

Keeping a strict gluten-free diet is still the only way to manage Celiac.

-

>

> >

> >

> > Hi,

> >

> > I'm newly diagnosed gluten intolerant (11/08), very sensitive, and

> > the meds aren't working anymore to control symptoms when I do get

> > glutened.

> >

> > Next month I plan to take a vacation to Mexico. I haven't decided

> > exactly where yet but I'm leaning towards Cabo or Cancun. I'm going

> > to make a little card for myself in Spanish explaining my issue,

> > but I'm curious how other travelers have dealt with the food the

> > issue while away. Any tips? Any foods that I should stay away from

> > there, that happen to be safe here? Has anyone has success with all

> > inclusive resorts?

> >

> > Thanks in advance for any information!

> >

> > Jasmine

> >

> >

> >

>

[Guest guest]

> >

> > Hi,

> >

> > I'm newly diagnosed gluten intolerant (11/08), very sensitive, and the meds

aren't working anymore to control symptoms when I do get glutened.

> >

> > Next month I plan to take a vacation to Mexico. I haven't decided exactly

where yet but I'm leaning towards Cabo or Cancun. I'm going to make a little

card for myself in Spanish explaining my issue, but I'm curious how other

travelers have dealt with the food the issue while away. Any tips? Any foods

that I should stay away from there, that happen to be safe here? Has anyone has

success with all inclusive resorts?

> >

> > Thanks in advance for any information!

> >

> > Jasmine

>

> We stated at the Riu Palace in Cabo last year and did not get glutened once. I

printed out the Spanish card and showed it tonthe head waiter and chefs and

asked then about specific dishes on the buffets and on menus on the specialty

restaurants. I'm curious about these magic pills too - I don't get glutened

often (now maybe once every 4-6 months, knock on wood..) and just suffer the

consequences. Btw I am writing this from Denali Nat Park in Alaska. We have

eaten safely. It it isnhard work - the head chefs at the 2 restaurants we dined

at thought they knew what gluten is yet did not knownsoy sauce has wheat in it-

so you really have to screen their knowledge to make sure they understand.

>

> Good luck!

>

Thanks for the hotel recommendation. I looked it up, huge & beautiful. That one

is definitely going on my list. That's a good point about confirming the chefs

understanding of gluten.

I certainly wouldn't call the pills I used to take " magic " lol, especially since

they are no longer effective. However, it was Lomotil that I was taking for the

diarrhea, that's my main symptom.

Thanks again,

Jasmine

[Guest guest]

Hi ,

Is the app you're using actually called No Gluten? I did a search for that one

and can't find it. I just found one called the Sensible Celiac, is that it?

The drug I was referring to is Lomotil.

Thanks,

Jasmine

>

>

>

> Hi,

>

> I'm newly diagnosed gluten intolerant (11/08), very sensitive, and the meds

aren't working anymore to control symptoms when I do get glutened.

>

> Next month I plan to take a vacation to Mexico. I haven't decided exactly

where yet but I'm leaning towards Cabo or Cancun. I'm going to make a little

card for myself in Spanish explaining my issue, but I'm curious how other

travelers have dealt with the food the issue while away. Any tips? Any foods

that I should stay away from there, that happen to be safe here? Has anyone has

success with all inclusive resorts?

>

> Thanks in advance for any information!

>

> Jasmine

>

[Guest guest]

Hi ,

I think you misunderstood me, perfectly understandable since this is a celiac

disease forum, but I've haven't been dx'ed with celiac, just gluten intolerance.

My main symptom is diarrhea and Lomotil did control it. I certainly did not mean

to insinuate that there are any drugs that actually relieve the life threatening

effects of gluten when one has CD.

Anyhoo, just looking for travel tips.

Jasmine

> >

> > >

> > >

> > > Hi,

> > >

> > > I'm newly diagnosed gluten intolerant (11/08), very sensitive, and

> > > the meds aren't working anymore to control symptoms when I do get

> > > glutened.

> > >

> > > Next month I plan to take a vacation to Mexico. I haven't decided

> > > exactly where yet but I'm leaning towards Cabo or Cancun. I'm going

> > > to make a little card for myself in Spanish explaining my issue,

> > > but I'm curious how other travelers have dealt with the food the

> > > issue while away. Any tips? Any foods that I should stay away from

> > > there, that happen to be safe here? Has anyone has success with all

> > > inclusive resorts?

> > >

> > > Thanks in advance for any information!

> > >

> > > Jasmine

> > >

> > >

> > >

> >

>

[Guest guest]

Jasmine,

I didn't misunderstand you, but was just sharing for those who might think

there was a medication for Celiac that there was not. I am especially cautious

about an enzyme product called " gluten-ease " that is rather irresponsibly

marketed for gluten intolerance/Celiac symptoms. However, I would definitely be

wary of a diagnosis of gluten intolerance as sometimes doctors do miss Celiac-

did you have the full antibody panel and biopsy (while on gluten) to make sure

it wasn't Celiac? It can manifest in many different ways- some people don't have

obvious symptoms at all, and if one is eating small amounts of gluten (even

accidentally) it is quite possible that the outward symptoms could increase with

intestinal damage so that symptoms that were controlled with an over-the-counter

(or prescription, not familiar with the product you mentioned) are beginning to

manifest themselves. The distinction between gluten intolerance and Celiac

sometimes seem rather fuzzy and I don't think many people (even doctors) always

understand the difference between the two... Not trying to scare you at all, or

even to say that Celiac is that bad of a thing... I've lived with it for all of

my life and it's normal to me.

As for your travel plans- I've traveled in Mexico on a gluten-free diet

briefly (stop from a cruise ship) but also stayed at all-inclusive resorts on a

gluten-free diet (not in Mexico). Both worked out okay. You might check Triumph

Dining Cards. They are very good and available in many different languages (even

Japanese, Chinese, Korean) and definitely available in Spanish. I like them

because the explanation of problematic ingredients is well elaborated and clear,

but they do cost a bit whereas you can find some online for free. I do think the

ones you pay for are nice because they look very official, are nicely laminated

and don't have the problems with misinformation or typos that the free ones can

have. Have a good time on your trip!

-

> >

> > There are no reputable meds for controlling symptoms of Celiac Disease as

far as I know. Some people take digestive enzymes, but these enzymes are not

able to keep Celiac in remission, prevent harmful Celiac Antibody reaction, or

prevent malnutrition from ingesting gluten so they are not something I am

interested in. Keeping a strict gluten-free diet is still the only way to manage

Celiac.

> >

> > -

[Guest guest]

Hey ,

I'm definitely getting the Triumph dining cards. I didn't realize it was whole

pack w/ different languages, perfect!

I actually did have the antibody panel and it was negative. However I had

already been off gluten for a few weeks, and only ate it for a couple days the

week of the test. I'd love to have a definitive answer as to whether or not I do

have CD vs. simple intolerance, but not enough to go back on gluten to get an

accurate test.

I'm glad that I'm getting positive feedback about the all-inclusives, I really

prefer to go that route but I was a little afraid.

Thanks!

Jasmine

> > >

> > > There are no reputable meds for controlling symptoms of Celiac Disease as

far as I know. Some people take digestive enzymes, but these enzymes are not

able to keep Celiac in remission, prevent harmful Celiac Antibody reaction, or

prevent malnutrition from ingesting gluten so they are not something I am

interested in. Keeping a strict gluten-free diet is still the only way to manage

Celiac.

> > >

> > > -

>