Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Hello all,I haven't posted in a while but I really appreciate being able to read everyone's thoughts and great advice -- it has been so helpful to me. I have spent the last year getting my mind around the fact that I need revision surgery, and trying to find the right surgeon. I liked Dr. Boachie but just could not do it because he doesn't take insurance (which I still find appalling). I have now settled on Dr. Bridwell in St. Louis and I feel comfortable with his plan. I'm going to have surgery on January 27. (I would love to hear from anyone who had surgery at and can tell me what to expect.)My problem is that I live over 1,000 miles from St. Louis. I know no one there and don't have a place to stay or someone to care for me there. I have 3 small children and my husband will be busy taking care of them and trying to keep them going in their regular routines. I have to have my old rods removed because they broke badly (T4-L4), a bunch of osteotomies, and then a new fusion from T3-S1. Dr. Bridwell doesn't send people to any form of rehab. He said I would be in the hospital about 7-10 days and then released. He would see me a week after that and if I'm healing fine, then I could go home.How long after surgery have you been able to travel? I would have either an 18-hour drive or a 4-hour plane ride with a stop in Chicago (no direct flights). I know that after my last surgery I could not sit up straight for many weeks, not for more than 30 minutes anyway. I'm terrified about getting in a car or a plane before I'm ready, but I have to think about childcare plans and my own care, which would be much, much easier at home. I would love to hear any advice or experiences with traveling soon after the surgery.Thanks so much for your help and for being so generous with your time talking things through with scared patients like me!Eve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 I had surgery with Dr Bridwell in March, 2007. My husband took a month off work and we got a one month rental of a furnished apartment just a couple of blocks from the hospital. He ended up spending most of the time I was in the hospital in the room with me, though. We stayed in St Louis for two weeks after surgery because part of my incision was bleeding the day we were planning to go home. We had an 8 hour drive to get home and we made a point to stop and let me get out and walk around about once every hour or two. The most painful thing was that I was very badly constipated and needed to go to the bathroom badly, but couldn't get anything out. I think I would have chosen to fly if I had been facing an 18 hour drive. I love Dr Bridwell and am very happy with my outcome. > > Hello all, > > I haven't posted in a while but I really appreciate being able to read everyone's thoughts and great advice -- it has been so helpful to me. I have spent the last year getting my mind around the fact that I need revision surgery, and trying to find the right surgeon. I liked Dr. Boachie but just could not do it because he doesn't take insurance (which I still find appalling). I have now settled on Dr. Bridwell in St. Louis and I feel comfortable with his plan. I'm going to have surgery on January 27. (I would love to hear from anyone who had surgery at and can tell me what to expect.) > > My problem is that I live over 1,000 miles from St. Louis. I know no one there and don't have a place to stay or someone to care for me there. I have 3 small children and my husband will be busy taking care of them and trying to keep them going in their regular routines. > > I have to have my old rods removed because they broke badly (T4- L4), a bunch of osteotomies, and then a new fusion from T3-S1. Dr. Bridwell doesn't send people to any form of rehab. He said I would be in the hospital about 7-10 days and then released. He would see me a week after that and if I'm healing fine, then I could go home. > > How long after surgery have you been able to travel? I would have either an 18-hour drive or a 4-hour plane ride with a stop in Chicago (no direct flights). I know that after my last surgery I could not sit up straight for many weeks, not for more than 30 minutes anyway. I'm terrified about getting in a car or a plane before I'm ready, but I have to think about childcare plans and my own care, which would be much, much easier at home. I would love to hear any advice or experiences with traveling soon after the surgery. > > Thanks so much for your help and for being so generous with your time talking things through with scared patients like me! > Eve > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Hi Eve, I had revision surgery with Dr. Bridwell on April 8th of this year. I can't begin to tell you how happy I am that he did my surgery and that I am feeling so well. He and his staff are top notch, and I think you made a great decision by chosisng him to do your surgery. He told me to just walk for physical therapy, and that's exactly what I have done. I'm now back at work, and I can walk at least 2 miles a day with no problem. My pain is so minimal that I hardly ever notice it now...sometimes at bedtime, my muscles go into spasms because they have been working hard during the day, but it I never thought I would be free of that horrible pain that I lived with for so long...no pain meds needed, either!! I know that I am very blessed to have such a good outcome, but I have talked with other patients of his, and he seems to have really good success. I was very lucky because my daughter and her husband live in a suburb of St. Louis. My husband and I live in Springfield, MO which is about a 3 hour drive. I was in for a week, and then I stayed at 's house for a week. She was able to work from home and take care of me....what a role reversal!! Dr. Bridwell gives you plenty of pain medication to keep you quite comfortable, and I slept quite a bit the first few weeks. I did get up and walk, also. He wants you to be walking a mile a day by the end of one month, and two miles a day at the end of 2 months, etc!!! I was in such agony before the surgery that I didn't dream that it would be possible, but it truly is! I am walking about 2 miles most days after work, or else I do water walking. I am jumping around a lot here in my message, but I want to encourage you. We don't all have the same outcomes, of course, but I think you have made a wise choice. The drive home at about 2 1/2 weeks post revision was painful, but not as bad as I thought it would be. I certainly remember EVERY bump in the road! I was also concerned about getting in and out of the car, but it wasn't a problem, really. A good tip is to put a plastic trash bag on the car seat, then just back up to the seat, sit down, and then move your body in as you move your legs in. Dr. Bridwell has you take stool softeners from the first day after surgery, and I didn't have any food for almost a week (they give you nutrition through an IV, so you aren't hungry) and I didn't have a problem with constipation, but I kept taking the stool softeners and finally had my first movement at about 12 days post surgery. Drinking lots of water helps, also. I think that would be able to help you find a place to stay post op. We were very pleased with the care that I received there. I was in a private room, so my husband was able to stay with me all night, and then he and my daughter took turns until I was released. I think it is a good idea to have someone stay with you, at least for the first few days and nights. The nurses are short staffed, and it really helps to have an advocate there with you. Dr. Bridwell expects his patients to be treated well, and the staff really jumps to attention when he is on the floor. Please feel free to email me....I will be glad to give you my phone number and talk with you any time. I found this site to be so helpful with wonderful information. I actually made a notebook with lots of the tips from others that are listed in the files, and also some of the positive experiences that really made me feel encouraged. I think I would plan on flying instead of the long drive, also, but you can discuss that with Dr. Bridwell's nurse, Bernie. She is wonderful and can really guide you in your decisions. You can always call her, leave a message, and she will call you back. I was just in their office on August 18th for my 4 month check-up...it's amazing to see how far I've come in my recovery, but I know that this is only the beginning, and that it will get better and better. My email is cemrie@.... Don't hesitate to get in touch if I can help you with more information. We were all at the point where you are now......there is so much knowledge here on this site....it was a lifesaver for me! The best to you! > > Hello all, > > I haven't posted in a while but I really appreciate being able to read everyone's thoughts and great advice -- it has been so helpful to me. I have spent the last year getting my mind around the fact that I need revision surgery, and trying to find the right surgeon. I liked Dr. Boachie but just could not do it because he doesn't take insurance (which I still find appalling). I have now settled on Dr. Bridwell in St. Louis and I feel comfortable with his plan. I'm going to have surgery on January 27. (I would love to hear from anyone who had surgery at and can tell me what to expect.) > > My problem is that I live over 1,000 miles from St. Louis. I know no one there and don't have a place to stay or someone to care for me there. I have 3 small children and my husband will be busy taking care of them and trying to keep them going in their regular routines. > > I have to have my old rods removed because they broke badly (T4-L4), a bunch of osteotomies, and then a new fusion from T3-S1. Dr. Bridwell doesn't send people to any form of rehab. He said I would be in the hospital about 7-10 days and then released. He would see me a week after that and if I'm healing fine, then I could go home. > > How long after surgery have you been able to travel? I would have either an 18-hour drive or a 4-hour plane ride with a stop in Chicago (no direct flights). I know that after my last surgery I could not sit up straight for many weeks, not for more than 30 minutes anyway. I'm terrified about getting in a car or a plane before I'm ready, but I have to think about childcare plans and my own care, which would be much, much easier at home. I would love to hear any advice or experiences with traveling soon after the surgery. > > Thanks so much for your help and for being so generous with your time talking things through with scared patients like me! > Eve > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Eve, I would have to advise the plane ride if you can afford first class. If you have to drive, I would think it would be very uncomfortable and you would have to stop often. I don't mean to pry, but where do you live that you cannot find a revision surgeon closer to home? You mentioned you went to Dr Boachie - are you in the east coast? I''m sure you are comfortable with Dr. Bridwell, but January is a long way off and maybe you should investigate someone closer. You will also need post-op visits so keep that in mind. I live in NJ and has surgery in NYC (not with Dr. Boachie) and my ride home was about one hour and that was about all I could tolerate at that time. I took a train ride to Boston three months post-op for my daughter's graduation and that was tolerable because I was able to get up and walk around and I had a first-class seat which was very comfortable (a four hour ride). My first airplane ride was at four months and it was first-class for four hours and I tolerated that well. Hope this helps! Donna T. > > Hello all, > > I haven't posted in a while but I really appreciate being able to read everyone's thoughts and great advice -- it has been so helpful to me. I have spent the last year getting my mind around the fact that I need revision surgery, and trying to find the right surgeon. I liked Dr. Boachie but just could not do it because he doesn't take insurance (which I still find appalling). I have now settled on Dr. Bridwell in St. Louis and I feel comfortable with his plan. I'm going to have surgery on January 27. (I would love to hear from anyone who had surgery at and can tell me what to expect.) > > My problem is that I live over 1,000 miles from St. Louis. I know no one there and don't have a place to stay or someone to care for me there. I have 3 small children and my husband will be busy taking care of them and trying to keep them going in their regular routines. > > I have to have my old rods removed because they broke badly (T4- L4), a bunch of osteotomies, and then a new fusion from T3-S1. Dr. Bridwell doesn't send people to any form of rehab. He said I would be in the hospital about 7-10 days and then released. He would see me a week after that and if I'm healing fine, then I could go home. > > How long after surgery have you been able to travel? I would have either an 18-hour drive or a 4-hour plane ride with a stop in Chicago (no direct flights). I know that after my last surgery I could not sit up straight for many weeks, not for more than 30 minutes anyway. I'm terrified about getting in a car or a plane before I'm ready, but I have to think about childcare plans and my own care, which would be much, much easier at home. I would love to hear any advice or experiences with traveling soon after the surgery. > > Thanks so much for your help and for being so generous with your time talking things through with scared patients like me! > Eve > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Hi Eve, I know that you have sepnt a lot of time and energy mulling all the possibilities for your surgery and I hope you have found some relief now that you have selected a surgeon. I found that after that decision was made it was much easier to put all the pieces in place. Geographically I was not far from my surgeon, but travelling home from Boston entailed a 2 hours drive and a 2 hour ferry ride...and I managed it okay...although I was glad to finally see my home! I had also considered DrBoachie in NYC and had I done surgery there I would have wanted to fly home because I don't think I could have handled all the " pre-flying " activity all that well. You know: arrive at the airport an hour ahead, security screening, chances of delay. Also, the aircraft that services this market is smallish and required a bit in leaning...which as you know is a " no'no " ...so if you consider flying be sure to try to find out what aircraft you will be on. Smaller markets tend to have smaller aircraft. Another thought I had, although I know it would be pricey, would be to charter a flight. You haven't said exactly where you live, but if it is an affordable option, then point to point travel might be worth a look. No matter what you figure out, I am sure you will want to be sure that your planning includes someone coming with you to be at the hospital and during the week following discharge, as well as travelling hoe with you. I know you need to plan for your children....but perhaps you can work it out so that you have another family member with the kids and your husband with you. My husbands parents came and stayed at our house to be with my son throughout my 2 weeks away, and thus he and could travel up to be with me for the days around each surgery (he went home for 5 days between)and then to bring me home. If I needed him more than we anticipated, we knew he would be free to come to the hospital without worrying about who was going to be with our son. The bottom line is that probably as uncomfortable as travel home might be, it is unlikely that you would do any lasting harm to your " work " , or DrBridwell probably won't permit you to travel. If it was me, I think I would opt to fly....but if that was not possible I would plan for at least 1 and probably 2 nights hotels on the way home so that the drive doesn't completly wipe you out. I know a lot of members have travelled great distances to their surgeries and hopefully they will share their experiences. We will be here for you in the lead up to this huge event in your life. Take Care, Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2008 Report Share Posted August 30, 2008 Many thanks to Cam, SB, Donna, , and anyone else who takes the time to answer my questions about travelling after surgery. I'm still dreading it! But it was very helpful to hear your experiences and expert advice. I'm thinking I should figure out how to stay in St. Louis a couple of weeks longer and then fly home. I will be chiming in with more questions...thank you so much for the support and help.Eve_ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2008 Report Share Posted August 30, 2008 I finally remembered the name of the apartments where we stayed -- it was the Ellsworth apartments. http://www.apartmentguide.com/apartments/Missouri/St+++- Louis/Ellsworth+Apartments/PropertyOverview.aspx?listingid=18614 one month rental was less expensive than one week in a hotel. > > Many thanks to Cam, SB, Donna, , and anyone else who takes the time to answer my questions about travelling after surgery. I'm still dreading it! But it was very helpful to hear your experiences and expert advice. I'm thinking I should figure out how to stay in St. Louis a couple of weeks longer and then fly home. I will be chiming in with more questions...thank you so much for the support and help. > Eve_ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 I hope I'm not repeating what someone else might have said, I'm catching up a little. I just wanted to say that my friend works at an airport and she said that if you are traveling alone you can arrange to be picked up in a wheelchair at the airport and escorted to and from your plane, you have to tell them you are disabled. I tried to find something to help with your situation but I'm afraid I'm terrible at research, I've been thinking about ie's situation too and I just keep thinking that there must be a charitable organization along the line of the Mc House that helps people and their families who have to travel for surgery, I mean this must be a common problem. The only thing I can think of is to call the hospital and ask them what people (in your situation) do in that area and what charitable services there might be. Maybe the Chamber of Commerce or maybe if you called The Mc House or the YWCA in St. Louis they would know of some such organization. It shocks me that these doctors (yours and ie's) don't have a plan for their patients that are traveling to see them. i wanted to thank you for the knowledge that Dr. Boachie does not accept insurance, I was thinking of consulting him for my New York second opinion. Robin > > Hello all, > > I haven't posted in a while but I really appreciate being able to read everyone's thoughts and great advice -- it has been so helpful to me. I have spent the last year getting my mind around the fact that I need revision surgery, and trying to find the right surgeon. I liked Dr. Boachie but just could not do it because he doesn't take insurance (which I still find appalling). I have now settled on Dr. Bridwell in St. Louis and I feel comfortable with his plan. I'm going to have surgery on January 27. (I would love to hear from anyone who had surgery at and can tell me what to expect.) > > My problem is that I live over 1,000 miles from St. Louis. I know no one there and don't have a place to stay or someone to care for me there. I have 3 small children and my husband will be busy taking care of them and trying to keep them going in their regular routines. > > I have to have my old rods removed because they broke badly (T4-L4), a bunch of osteotomies, and then a new fusion from T3-S1. Dr. Bridwell doesn't send people to any form of rehab. He said I would be in the hospital about 7-10 days and then released. He would see me a week after that and if I'm healing fine, then I could go home. > > How long after surgery have you been able to travel? I would have either an 18-hour drive or a 4-hour plane ride with a stop in Chicago (no direct flights). I know that after my last surgery I could not sit up straight for many weeks, not for more than 30 minutes anyway. I'm terrified about getting in a car or a plane before I'm ready, but I have to think about childcare plans and my own care, which would be much, much easier at home. I would love to hear any advice or experiences with traveling soon after the surgery. > > Thanks so much for your help and for being so generous with your time talking things through with scared patients like me! > Eve > Quote Link to comment Share on other sites More sharing options...
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