Guest guest Posted April 15, 1999 Report Share Posted April 15, 1999 Thank you for taking the time to think of things for me to try.I have made so many things for e.I have even taken her with me to feel material( we have to let it touch her bottom) I have been making underpants for 2yrs.none so far have worked.The next pair I make will have a big hole in the back.Thank you again you are precious! Love Beth to Beth >From: " W. Birk " <wb4@...> > >Beth, > > I am thinking of ways that might help with your 'free spirit'! > > I am not a fan of polyester, but its very light on the skin - >maybe if she chose a long shirt or dress it would feel cool on her >body and not sticky. Perhaps something really flashy that looks like >dress up clothes would appeal to her imagination? > My youngest loves to dress up, today at 9yo, she'll pretend she's >going to work or a wedding or hiking or worse - that's she's her >sister!!! hehehe > > Another material is gauze. Perhaps you can fashion light summer >dresses that barely cover her, but allow her to go outside. I know >its a time consuming, but it looks like your going to have to do some >sewing for underwear! Use a draw string on boxer style rather than >elastic, its much less confining!! > > I'll ask around for other fashion ideas - in the mean time, take >care and do the best that you can, that's all any of us can do!! > > wendy > >------------------------------------------------------------------------ >Has ONElist changed your life? >http://www.ONElist.com >Visit our homepage and share with us your experiences at ONElist of the Week! >------------------------------------------------------------------------ >The is sponsored by the OCSDA. You may visit their web site at http://www.ocdhelp.org/ and view schedules for chatroom support at http://www.ocdhelp.org/chat.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 1999 Report Share Posted April 17, 1999 Hi Beth, I'm a mother of a 9 yr. old son with OCD and also a pediatric occupational therapist. The clothing sensitivity can be tactile defensiveness. If your granddaughter's compulsions seem to be centered on primarily the bath and clothing, I would suggest you consult an occupational therapist with experience with sensory integration. I have worked successfully with many children with sensory defensiveness. There is a brushing technique that is particularly helpful for children with tactile defensiveness. Unfortunately it is not something I can explain through E-mail, it must be done under the consultation of a therapist trained in this technique. We are currently in the process of having our son evaluated and he is currently taking Zoloft. There have been no changes in his OCD since the Zoloft, however he only started in 10 days ago. We want to also try CBT. How does one find a therapist trained in CBT? Best Wishes, Beth (my name is Beth also) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 1999 Report Share Posted April 17, 1999 Hi Beth we've already seen a occupational T we've done the brushing.I really think it's a brain lock thing with her.as far as the bath thing she's only done that maybe 4 times.She loved the brushing,so one day when she was laying across my lap and I was brushing , I saw a pair of her silk underpants sitting there I took them and brushed her with them.She was so mad at me she said nothing would work now and she couldn't sit on the couch.The whole thing doesn't make sense.Like sometimes she has to shake the underpants outside like you would a rug. e has been doing much better since the DR upped the ZOLFT. Thank you so much for taking the time to write. Thank you again Beth Re: to Beth >From: BPSMAS@... > >Hi Beth, >I'm a mother of a 9 yr. old son with OCD and also a pediatric occupational >therapist. The clothing sensitivity can be tactile defensiveness. If >your granddaughter's compulsions seem to be centered on primarily the bath >and clothing, I would suggest you consult an occupational therapist with >experience with sensory integration. I have worked successfully with many >children with sensory defensiveness. There is a brushing technique that is >particularly helpful for children with tactile defensiveness. Unfortunately >it is not something I can explain through E-mail, it must be done under the >consultation of a therapist trained in this technique. > >We are currently in the process of having our son evaluated and he is >currently taking Zoloft. There have been no changes in his OCD since the >Zoloft, however he only started in 10 days ago. We want to also try CBT. >How does one find a therapist trained in CBT? > >Best Wishes, >Beth (my name is Beth also) > >------------------------------------------------------------------------ >Looking to expand your world? >http://www.ONElist.com >ONElist has over 115,000 e-mail communities from which to chose! >------------------------------------------------------------------------ >The is sponsored by the OCSDA. You may visit their web site at http://www.ocdhelp.org/ and view schedules for chatroom support at http://www.ocdhelp.org/chat.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 1999 Report Share Posted April 17, 1999 , I just wanted you to know e doing allot better.She had underpants on Two times for awhile( that's good)and wore a nightgown for 2hrs.today I think the Zolft is starting to work if it does,let me see that will give me around 6 months till have to go through this again. I wonder if this OCD stuff ever killed anyone???Love Beth to Beth >From: " W. Birk " <wb4@...> > >Beth, > > I am thinking of ways that might help with your 'free spirit'! > > I am not a fan of polyester, but its very light on the skin - >maybe if she chose a long shirt or dress it would feel cool on her >body and not sticky. Perhaps something really flashy that looks like >dress up clothes would appeal to her imagination? > My youngest loves to dress up, today at 9yo, she'll pretend she's >going to work or a wedding or hiking or worse - that's she's her >sister!!! hehehe > > Another material is gauze. Perhaps you can fashion light summer >dresses that barely cover her, but allow her to go outside. I know >its a time consuming, but it looks like your going to have to do some >sewing for underwear! Use a draw string on boxer style rather than >elastic, its much less confining!! > > I'll ask around for other fashion ideas - in the mean time, take >care and do the best that you can, that's all any of us can do!! > > wendy > >------------------------------------------------------------------------ >Has ONElist changed your life? >http://www.ONElist.com >Visit our homepage and share with us your experiences at ONElist of the Week! >------------------------------------------------------------------------ >The is sponsored by the OCSDA. You may visit their web site at http://www.ocdhelp.org/ and view schedules for chatroom support at http://www.ocdhelp.org/chat.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 , I'm sorry I wasn;t clear on things .I meant the mothers.Last week was so bad for me Iwoke up all night and thought of all the kids and people with ocd. My husband thinks I'm reading to much about ocd but I can't stop.I think it helps,I just love people and sometimes I feel so close to everyone and hurt for them.And to be honest,the change of life thing isn't helping me any.I'm so happy that so many are doing better,How I thank God for that. Do you know,does anyone ever stay on the same meds. or do they always poop out after 6 months. Well have agood day and God Bless. Love Beth to Beth >From: " W. Birk " <wb4@...> > >Beth, > > I am so relieved for you!! Patience seems to work for a lot of us! > > >>>I wonder if this OCD stuff ever killed anyone???<<<< > > I dont know if you were joking or not, but to be honest, the >depression does kill. > > the ocd'ers want to die - but with help can survive. And that's >where people like you, me, and the others come in. > > take care, beth, wendy > >------------------------------------------------------------------------ >Has ONElist changed your life? >http://www.ONElist.com >Visit our homepage and share with us your experiences at ONElist of the Week! >------------------------------------------------------------------------ >The is sponsored by the OCSDA. You may visit their web site at http://www.ocdhelp.org/ and view schedules for chatroom support at http://www.ocdhelp.org/chat.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 Kay, I am not certain if it is the same idea, but my son is on Luvox (an SSRI like prozac) with Dexedrine and clonidine (the same as Catapres I believe). Perhaps it is similar enough a combination to be of help to you. He is doing fairly well but it is hard to say for certain. His father recently moved out and the behavior problems we have could be so many things. He is doing well, all things considered. noelle noelle136@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 Hi Beth, You mentioned the medicines " poop out " after 6 months. I find this very true for my 6 1/2 year old son. We, along with the doctor, have been watching this closely and it often means that he has had his medications level out or he's gained weight. Sometimes this requires a tiny boost in the dose he is receiving. We had just raised his med doses on Feb. 3 due to behavior problems. He was doing much better up to 2 weeks ago. The last two weeks we are having problems again with him becoming aggressive, impulsive and somewhat defiant. He has been at 48 pounds for quite some time but when we took him in to his doctor in Feb. he had gained 4 pounds. For a young child with his health problems it's a big gain. When we took him back to the doctors this month he had gained another 2 pounds. I'm so glad he's finally been able to put on some weight. He's had reflux for years and it seems to be doing much better. Unfortunately, 6 pounds is a big gain for someone with his lung problems and we are seeing him have more difficulty with his breathing. He is more hyper (ADHD I would assume) and once again between his breathing and activity level he is starting to be unable to keep things down. The doctor again increased his Catapres but so far it hasn't seemed to help much. With Catapres we usually see the results from the increase fairly fast. Looks like this summer we will be doing some med experiments. He will be going to the same kindergarten and learning support kindergarten again next year. His teachers have been great so far and he will have the same ones next year. They have so helpful to us by recording his daily successes and problems in a journal that comes home nightly. Has anyone ever heard of using a combo of Prozac and Dexedrine together? When he was on Prozac he just blossomed and seemed so " normal " . That was last summer, after just 2 weeks of Prozac he was dressing himself and almost potty trained. The doctor had taken him off the Dexedrine but continued the Catapres when we started Prozac. However his activity level, impulses and aggression really increased again without the dexedrine. He eventually got so impulsive and nasty (ODD type of issues) that he was taken off Prozac. We were unsure if he was truly having BSE's from Prozac or if the ADHD was causing the problems. I asked the doctor if he could add the Dexedrine again to help control the ADHD but he refused, instead he added Wellbutrin. Both these meds did a great job contolling what they were given for I can't help but think it is worth trying them as a combo. Now I'm researching Prozac and Dexedrine being used together. Do any of the doctors on this list have any suggestions for a combo that works with OCD, Trich, ADHD, Anxieties, impulse and aggression control also? You should also know that he does have quite an extensive medical history but I am more than willing to provide information on it if someone would like to add their input. I realize things could be much, much worse. I'm thankful for what he's accomplished this far. The neonatal doctors said he would be lucky to live a year and never walk or talk if he did live, ha, he showed them!! He has come so far. He didn't get this far without lots of hard work on his part and ours. I love my boy and want him to have every chance at a " normal " life that other kids his age have. If that means I drive the doctor nuts...oh well...you gotta do what you gotta do..right? I'm so thankful for this list, it has given me answers, support, laughs and hope. Bless you all and take care. Kay (ALilNutty) _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 Hi Beth: I am like you, reading about OCD and learning about it helps me a lot. Understanding really helps me feel less out of control. re: meds. Some people have to change meds but I understand that generally most people respond to the same drug for a long, long time. My son has been taking Paxil for 17 months now and it is still effective. Aloha, Kathy kathyh@... >From: " Wayt " <rwwayt@...> > >, I'm sorry I wasn;t clear on things .I meant the mothers.Last week was >so bad for me Iwoke up all night and thought of all the kids and people with >ocd. My husband thinks I'm reading to much about ocd but I can't stop.I >think it helps,I just love people and sometimes I feel so close to everyone >and hurt for them.And to be honest,the change of life thing isn't helping me >any.I'm so happy that so many are doing better,How I thank God for that. Do >you know,does anyone ever stay on the same meds. or do they always poop out >after 6 months. Well have agood day and God Bless. Love Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 1999 Report Share Posted April 18, 1999 Hi Noelle, Thanks for your quick response!! The doctor never specified why he hesitates to try the Prozac, Dexedrine, Catapres combo. I would assume if it was due to Prozac being an SSRI and used with the other two this proves it can be safely done. We have tried Zoloft without good results...however I question now if the heightened anxiety and hyperactivity would have leveled if we had tried it for a longer time or used the Dexedrine with it. I still believe that since the Dexedrine controlled the ADHD and other impulses it should have been considered and we should have at least attempted using it. I hate to sound like I doubt our doctor, truthfully he has been great. 's case has been a tough one as all doctors involved will agree. There are so many factors to consider. With him the side effects that may be mild for another child could be life threatening for him. I realize that he will always have some issues that can't be resolved with meds, I just want to get a handle on the ones that can be helped. Again thanks for your response, it was greatly appreciated! Take care, Kay (ALilNutty) Remember me this way, my adult children thought I was A Lil Nutty when Bill and I decided to adopt more children. Figured if the shoe fits wear it! LOL alilnutty@... _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 1999 Report Share Posted April 20, 1999 I am sorry to be skimming the posts, life is just so crazy and depressing here right now. My 7 year old daughter is being switched from Zoloft, which worked really well for a year, to Luvox and Buspar. I am curious if any kids are on Klonadine. I understand it comes in a patch that is changed weekly. Anyway, my daughter has the clothing thing as well and what has worked for us is to not push it. She doesn't wear underwear unless she is wearing a dress. She doesn't wear socks unless she is going to school etc. I can't force her OCD, hopefully through Behavior Therapy this will be an issue she works on but for me to push it and make it a " bad " thing hasn't helped. Good Luck! Knod mailto:kelly@... Wayt wrote: > From: " Wayt " <rwwayt@...> > > Hi Beth, e didn't go to p-k today .I get her to school( drives to school > naked) and today it was her sandals that didn't work,she couldn't get them > on.She tries everyday to put underpants on ,now she wetting them with water > so they will work.I think we are going to go back to a OT What I don't > understand is, if it in her head why does it seem to bother her in her > sleep? When she is sleeping (she sleeps naked) she doesn;t like the blanked > on her bottom.This clothing sensitivity thing is making me so nerves. It > follows no rules, one day OK the next bad .Maybe I better get the brush out > and start brushing again. How's your son doing? Beth in IN. > Re: to Beth > > >From: BPSMAS@... > > > >Hi Beth, > >I'm a mother of a 9 yr. old son with OCD and also a pediatric occupational > >therapist. The clothing sensitivity can be tactile defensiveness. If > >your granddaughter's compulsions seem to be centered on primarily the bath > >and clothing, I would suggest you consult an occupational therapist with > >experience with sensory integration. I have worked successfully with many > >children with sensory defensiveness. There is a brushing technique that is > >particularly helpful for children with tactile defensiveness. > Unfortunately > >it is not something I can explain through E-mail, it must be done under the > >consultation of a therapist trained in this technique. > > > >We are currently in the process of having our son evaluated and he is > >currently taking Zoloft. There have been no changes in his OCD since the > >Zoloft, however he only started in 10 days ago. We want to also try CBT. > >How does one find a therapist trained in CBT? > > > >Best Wishes, > >Beth (my name is Beth also) > > > >------------------------------------------------------------------------ > >Looking to expand your world? > >http://www.ONElist.com > >ONElist has over 115,000 e-mail communities from which to chose! > >------------------------------------------------------------------------ > >The is sponsored by the OCSDA. You may visit their > web site at http://www.ocdhelp.org/ and view schedules for chatroom support > at http://www.ocdhelp.org/chat.html > > ------------------------------------------------------------------------ > iVillage.com: The #1 Women's Network has the answers you need > /ad/iVillage0. We've got experts and over a > million members to help you with stuff from daycare to dieting. > ------------------------------------------------------------------------ > The is sponsored by the OCSDA. You may visit their web site at http://www.ocdhelp.org/ and view schedules for chatroom support at http://www.ocdhelp.org/chat.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 1999 Report Share Posted April 20, 1999 Hi Beth, e didn't go to p-k today .I get her to school( drives to school naked) and today it was her sandals that didn't work,she couldn't get them on.She tries everyday to put underpants on ,now she wetting them with water so they will work.I think we are going to go back to a OT What I don't understand is, if it in her head why does it seem to bother her in her sleep? When she is sleeping (she sleeps naked) she doesn;t like the blanked on her bottom.This clothing sensitivity thing is making me so nerves. It follows no rules, one day OK the next bad .Maybe I better get the brush out and start brushing again. How's your son doing? Beth in IN. Re: to Beth >From: BPSMAS@... > >Hi Beth, >I'm a mother of a 9 yr. old son with OCD and also a pediatric occupational >therapist. The clothing sensitivity can be tactile defensiveness. If >your granddaughter's compulsions seem to be centered on primarily the bath >and clothing, I would suggest you consult an occupational therapist with >experience with sensory integration. I have worked successfully with many >children with sensory defensiveness. There is a brushing technique that is >particularly helpful for children with tactile defensiveness. Unfortunately >it is not something I can explain through E-mail, it must be done under the >consultation of a therapist trained in this technique. > >We are currently in the process of having our son evaluated and he is >currently taking Zoloft. There have been no changes in his OCD since the >Zoloft, however he only started in 10 days ago. We want to also try CBT. >How does one find a therapist trained in CBT? > >Best Wishes, >Beth (my name is Beth also) > >------------------------------------------------------------------------ >Looking to expand your world? >http://www.ONElist.com >ONElist has over 115,000 e-mail communities from which to chose! >------------------------------------------------------------------------ >The is sponsored by the OCSDA. You may visit their web site at http://www.ocdhelp.org/ and view schedules for chatroom support at http://www.ocdhelp.org/chat.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 1999 Report Share Posted April 20, 1999 Hi Beth, My daughter is 7, her name is and just today she came home and stripped naked. It is a RARE occasion when she is dressed at home. One thing we have done is to buy roomy dresses, with summer coming, sundress are good. It is so hard to know what to do. We need to teach them that clothes are important for many reasons and maybe through some type of behavior therapy she can get over this obstacle and move onto the next one. =-) However, it is a fine line, do you discipline somebody for something they can't control? Especially a 6 year old? We have been up and down on this one and being sent to your room is a punishment...I wouldn't stress over the underwear and the socks but make it clear that it just isn't appropriate to be naked and maybe yes have her stay in her room because of this but explain that it isn't a punishment, rather you are protecting her from dangers. One thing we tell our daughter that with her bottom open and not protected by clothing she could get injured...we don't use germs as a reason for obvious reasons. I tend to wander in my writing, I apologize. Hang in there! Definitely work on getting some type of clothes on her, something she feels comfortable in. Finding a therapist has been the best thing that has happened to us and it only took us 5 years. It has helped a lot! Good luck! Knod Wayt wrote: > From: " Wayt " <rwwayt@...> > > Hi ,e doesn't wear underpants at all ,well maybe 1-2 hrs a week.She > doesn't wear sock at all. When she's home she is NAKED ALL THE TIME. You > know some people come home and take off their shoes,well she takes off > everything . She doesn't wear slacks at all.This is for everyone, do you > think I should make her stay in her room?? I don't want to but she thinks > nothing about being naked, She is almost 6 From Beth in IN. > Re: to Beth > >> > >> >From: BPSMAS@... > >> > > >> >Hi Beth, > >> >I'm a mother of a 9 yr. old son with OCD and also a pediatric > occupational > >> >therapist. The clothing sensitivity can be tactile defensiveness. > If > >> >your granddaughter's compulsions seem to be centered on primarily the > bath > >> >and clothing, I would suggest you consult an occupational therapist with > >> >experience with sensory integration. I have worked successfully with > many > >> >children with sensory defensiveness. There is a brushing technique that > is > >> >particularly helpful for children with tactile defensiveness. > >> Unfortunately > >> >it is not something I can explain through E-mail, it must be done under > the > >> >consultation of a therapist trained in this technique. > >> > > >> >We are currently in the process of having our son evaluated and he is > >> >currently taking Zoloft. There have been no changes in his OCD since > the > >> >Zoloft, however he only started in 10 days ago. We want to also try > CBT. > >> >How does one find a therapist trained in CBT? > >> > > >> >Best Wishes, > >> >Beth (my name is Beth also) > >> > > >> >------------------------------------------------------------------------ > >> >Looking to expand your world? > >> >http://www.ONElist.com > >> >ONElist has over 115,000 e-mail communities from which to chose! > >> >------------------------------------------------------------------------ > >> >The is sponsored by the OCSDA. You may visit > their > >> web site at http://www.ocdhelp.org/ and view schedules for chatroom > support > >> at http://www.ocdhelp.org/chat.html > >> > >> ------------------------------------------------------------------------ > > >> iVillage.com: The #1 Women's Network has the answers you need > >> /ad/iVillage0. We've got experts and over a > >> million members to help you with stuff from daycare to dieting. > >> ------------------------------------------------------------------------ > >> The is sponsored by the OCSDA. You may visit > their web site at http://www.ocdhelp.org/ and view schedules for chatroom > support at http://www.ocdhelp.org/chat.html > > > > > >------------------------------------------------------------------------ > >Looking to expand your world? > >http://www.ONElist.com > >ONElist has over 115,000 e-mail communities from which to chose! > >------------------------------------------------------------------------ > >The is sponsored by the OCSDA. You may visit their > web site at http://www.ocdhelp.org/ and view schedules for chatroom support > at http://www.ocdhelp.org/chat.html > > ------------------------------------------------------------------------ > Looking for the perfect gift for a friend? > http://www.ONElist.com > Tell them about ONElist's 115,000 free e-mail communities! > ------------------------------------------------------------------------ > The is sponsored by the OCSDA. You may visit their web site at http://www.ocdhelp.org/ and view schedules for chatroom support at http://www.ocdhelp.org/chat.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 1999 Report Share Posted April 20, 1999 Hi ,e doesn't wear underpants at all ,well maybe 1-2 hrs a week.She doesn't wear sock at all. When she's home she is NAKED ALL THE TIME. You know some people come home and take off their shoes,well she takes off everything . She doesn't wear slacks at all.This is for everyone, do you think I should make her stay in her room?? I don't want to but she thinks nothing about being naked, She is almost 6 From Beth in IN. Re: to Beth >> >> >From: BPSMAS@... >> > >> >Hi Beth, >> >I'm a mother of a 9 yr. old son with OCD and also a pediatric occupational >> >therapist. The clothing sensitivity can be tactile defensiveness. If >> >your granddaughter's compulsions seem to be centered on primarily the bath >> >and clothing, I would suggest you consult an occupational therapist with >> >experience with sensory integration. I have worked successfully with many >> >children with sensory defensiveness. There is a brushing technique that is >> >particularly helpful for children with tactile defensiveness. >> Unfortunately >> >it is not something I can explain through E-mail, it must be done under the >> >consultation of a therapist trained in this technique. >> > >> >We are currently in the process of having our son evaluated and he is >> >currently taking Zoloft. There have been no changes in his OCD since the >> >Zoloft, however he only started in 10 days ago. We want to also try CBT. >> >How does one find a therapist trained in CBT? >> > >> >Best Wishes, >> >Beth (my name is Beth also) >> > >> >------------------------------------------------------------------------ >> >Looking to expand your world? >> >http://www.ONElist.com >> >ONElist has over 115,000 e-mail communities from which to chose! >> >------------------------------------------------------------------------ >> >The is sponsored by the OCSDA. You may visit their >> web site at http://www.ocdhelp.org/ and view schedules for chatroom support >> at http://www.ocdhelp.org/chat.html >> >> ------------------------------------------------------------------------ >> iVillage.com: The #1 Women's Network has the answers you need >> /ad/iVillage0. We've got experts and over a >> million members to help you with stuff from daycare to dieting. >> ------------------------------------------------------------------------ >> The is sponsored by the OCSDA. You may visit their web site at http://www.ocdhelp.org/ and view schedules for chatroom support at http://www.ocdhelp.org/chat.html > > >------------------------------------------------------------------------ >Looking to expand your world? >http://www.ONElist.com >ONElist has over 115,000 e-mail communities from which to chose! >------------------------------------------------------------------------ >The is sponsored by the OCSDA. You may visit their web site at http://www.ocdhelp.org/ and view schedules for chatroom support at http://www.ocdhelp.org/chat.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 1999 Report Share Posted April 20, 1999 Hi Beth, I read your post about confining e to her bedroom when she is naked. I have been told repeatedly by several doctors and counselors that clothing problems are compulsions and punishing compulsions (which the person with ocd doesn't want to have and wishes would go away) is counterproductive. e thinks nothing of being naked because the alternative, wearing clothes, causes her intolerable anxiety feelings. When my daughter was having such problems with clothes I was sooo tempted to just force her, but the times I tried, it increased her stress and anxiety to unbelievable levels--it truly made things worse. I was just fortunate that during the worst of this our area had a blizzard, ice storms, etc. and there wasn't really anywhere to go anyway. I also read another of your posts where you said the doctor had recently increased e's meds, in a couple of weeks you may find the clothing problem easing. With my daughter it seemed to disappear overnight--well, almost--but what remains is very low-level and easy to live with. I really do know what a nightmare it is when a child refuses to wear clothes, and judging from posts to this list over the last few months, I think most of the parents with small children know what it's like. Hang in there. Kathy R. in Indiana Re: to Beth > >> > >> >From: BPSMAS@... > >> > > >> >Hi Beth, > >> >I'm a mother of a 9 yr. old son with OCD and also a pediatric > occupational > >> >therapist. The clothing sensitivity can be tactile defensiveness. > If > >> >your granddaughter's compulsions seem to be centered on primarily the > bath > >> >and clothing, I would suggest you consult an occupational therapist with > >> >experience with sensory integration. I have worked successfully with > many > >> >children with sensory defensiveness. There is a brushing technique that > is > >> >particularly helpful for children with tactile defensiveness. > >> Unfortunately > >> >it is not something I can explain through E-mail, it must be done under > the > >> >consultation of a therapist trained in this technique. > >> > > >> >We are currently in the process of having our son evaluated and he is > >> >currently taking Zoloft. There have been no changes in his OCD since > the > >> >Zoloft, however he only started in 10 days ago. We want to also try > CBT. > >> >How does one find a therapist trained in CBT? > >> > > >> >Best Wishes, > >> >Beth (my name is Beth also) > >> > > >> >------------------------------------------------------------------------ > >> >Looking to expand your world? > >> >http://www.ONElist.com > >> >ONElist has over 115,000 e-mail communities from which to chose! > >> >------------------------------------------------------------------------ > >> >The is sponsored by the OCSDA. You may visit > their > >> web site at http://www.ocdhelp.org/ and view schedules for chatroom > support > >> at http://www.ocdhelp.org/chat.html > >> > >> ------------------------------------------------------------------------ > > >> iVillage.com: The #1 Women's Network has the answers you need > >> /ad/iVillage0. We've got experts and over a > >> million members to help you with stuff from daycare to dieting. > >> ------------------------------------------------------------------------ > >> The is sponsored by the OCSDA. You may visit > their web site at http://www.ocdhelp.org/ and view schedules for chatroom > support at http://www.ocdhelp.org/chat.html > > > > > >------------------------------------------------------------------------ > >Looking to expand your world? > >http://www.ONElist.com > >ONElist has over 115,000 e-mail communities from which to chose! > >------------------------------------------------------------------------ > >The is sponsored by the OCSDA. You may visit their > web site at http://www.ocdhelp.org/ and view schedules for chatroom support > at http://www.ocdhelp.org/chat.html > > > ------------------------------------------------------------------------ > Looking for the perfect gift for a friend? > http://www.ONElist.com > Tell them about ONElist's 115,000 free e-mail communities! > ------------------------------------------------------------------------ > The is sponsored by the OCSDA. You may visit their web site at http://www.ocdhelp.org/ and view schedules for chatroom support at http://www.ocdhelp.org/chat.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 1999 Report Share Posted April 20, 1999 > From: " Wayt " <rwwayt@...> > if it in her head why does it seem to bother her in her > sleep? When she is sleeping (she sleeps naked) she doesn;t like the blanked > on her bottom. Hi Beth and everyone, I notice my daughter performs many compulsions in her sleep too, though this seemed more pronounced once she started on an SSRI. She has told me she has " ocd in her dreams. " Also since starting on Prozac, now Luvox, a gate on her bed is an absolute necessity again. She moves with such sudden, " big " motions that it's hard to believe she's asleep. She also talks clearly, loudly and a lot in her sleep, often about ocd obsessions. I hate that this disorder plagues her sleep as well as her waking hours. :-( Kathy R. in Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 1999 Report Share Posted April 20, 1999 Hi , My son is on Catapres, the patch form of Clonidine. Originally he started on a .2mg patch then moved up to a .3mg patch and we changed the patch every 4 days, on the fourth day I applied a new patch in a different area and 18 to 24 hours later removed the oldest patch. With we only leave the new one on 10 to 18 hours or he becomes to medicated. His body doesn't process the medications properly, one of the biggest problems we have is with oral meds. They overload him then phase out very quickly. The patches are usually on his back since he would pick and rub them if he could reach them. Right now we are trying something new and it is driving me bonkers! His doctor wants me to apply two of the .2mg patches at one time. He will always have 2 patches on but the oldest ones will be changed every 2 days. This means for 10 to 18 hours he will have on 3 patches. For some reason I'm having a tough time getting this straight in my head. It seems like I'm constantly changing a patch, I have finally given up and started writing the date place and date to remove on the patch itself. If anyone can think of a better system please let me know, I would greatly appreciate it. has his clothing quirks too. The only time he will go without socks is when he is in the bathtub. He also has to change them as soon as he thinks they are dirty. This usually means at least 3 pairs a day. He has gotten much better about clothes in the last few weeks. I actually can get him to put on jeans now. This is something totally new. They were always to " hard " before. We still need to cut tags out of all his clothing and buy his special kind of socks...with a red seam in the front. Sometimes I think my little stinker just likes being different. The doctors joke about him being the exception to every rule. I have never heard another parent say their child likes socks with a seam, usually it's that the seam bothers them. Tonight he found a new obsession. He got his new glasses....and is he ever a cutie in them I might add! LOL As soon as they were on his face he started obsessing on " when can they come off? " We finally agreed that he would wear them for 2 hours and then he could take them off and put them in his case when we picked him up after our meeting. He did great!! This is also something new. He did go on about it for awhile but was able to hold out for the entire 2 hours without driving the people at childcare to crazy. A great accomplishment for him!! It was so nice to be able to praise him for being successful and making it the 2 hours. Even the kids and workers at the child care center he stayed at noticed how well he did compared to usual. The new dose of Catapres seems to have helped him have more control. I'm hoping it helps curb his aggression a little also. Sometimes I wonder if the doctors take into account the fact that our children are growing when a med stops working. I've heard so many people say that they change the med as soon as it stops working versus adjusting the dose. Take care, Kay (ALilNutty) --- Knod <kellyYM_M4I5S3S_10 (DOT) net> wrote: > From: YM_M4I5S3S_11 <kellyYM_M4I5S3S_12 (DOT) net> > > I am sorry to be skimming the posts, life is > just so crazy and depressing here right now. > My 7 year old daughter is being switched from > YM_M4I5S3S_13, which worked really well for a year, to > YM_M4I5S3S_14 > and YM_M4I5S3S_15. I am curious if any kids are on > YM_M4I5S3S_16. I understand it comes in a patch > that is changed weekly. > > Anyway, my daughter has the clothing thing as > well and what has worked for us is to not push > it. She doesn't wear underwear unless she is > wearing a dress. She doesn't wear socks unless > she > is going to school etc. I can't force her YM_M4I5S3S_17, > hopefully through Behavior Therapy this will be > an issue she works on but for me to push it and > make it a " bad " thing hasn't helped. > > Good Luck! > > YM_M4I5S3S_18 > YM_M4I5S3S_19:kellyYM_M4I5S3S_20 (DOT) net > > YM_M4I5S3S_21 wrote: > > > From: " YM_M4I5S3S_22 " <YM_M4I5S3S_23YM_M4I5S3S_24 (DOT) net> > > > > Hi Beth, YM_M4I5S3S_25 didn't go to p-k today ..I get > her to school( drives to school > > naked) and today it was her sandals that > didn't work,she couldn't get them > > on.She tries everyday to put underpants on > ,now she wetting them with water > > so they will work.I think we are going to go > back to a OT What I don't > > understand is, if it in her head why does it > seem to bother her in her > > sleep? When she is sleeping (she sleeps > naked) she doesn;t like the blanked > > on her bottom.This clothing sensitivity thing > is making me so nerves. It > > follows no rules, one day OK the next bad > .Maybe I better get the brush out > > and start brushing again. How's your son > doing? Beth in IN. > > Re: to Beth > > > > >From: BPSMAS@... > > > > > >Hi Beth, > > >I'm a mother of a 9 yr. old son with YM_M4I5S3S_26 > and also a pediatric occupational > > >therapist. The clothing sensitivity can be > tactile defensiveness. If > > >your granddaughter's compulsions seem to be > centered on primarily the bath > > >and clothing, I would suggest you consult an > occupational therapist with > > >experience with sensory integration. I have > worked successfully with many > > >children with sensory defensiveness. There > is a brushing technique that is > > >particularly helpful for children with > tactile defensiveness. > > Unfortunately > > >it is not something I can explain through > E-mail, it must be done under the > > >consultation of a therapist trained in this > technique. > > > > > >We are currently in the process of having > our son evaluated and he is > > >currently taking YM_M4I5S3S_27. There have been no > changes in his YM_M4I5S3S_28 since the > > >YM_M4I5S3S_29, however he only started in 10 days > ago. We want to also try CBT. > > >How does one find a therapist trained in > CBT? > > > > > >Best Wishes, > > >Beth (my name is Beth also) > > > > > > >------------------------------------------------------------------------ > > >Looking to expand your world? > > >http://www.ONElist.com > > >ONElist has over 115,000 e-mail communities > from which to chose! > > > >------------------------------------------------------------------------ > > >The YM_M4I5S3S_30 and Parenting List is sponsored by > the OCSDA. You may visit their > > web site at http://www.ocdhelp.org/ and view > schedules for chatroom support > > at http://www.ocdhelp.org/chat.html > > > > > ------------------------------------------------------------------------ > > iVillage.com: The #1 Women's Network has the > answers you need > > /ad/iVillage0. We've > got experts and over a > > million members to help you with stuff from > daycare to dieting. > > > ------------------------------------------------------------------------ > > The YM_M4I5S3S_31 and Parenting List is sponsored by > the OCSDA. You may visit their web site at > http://www.ocdhelp.org/ and view schedules for > chatroom support at > http://www.ocdhelp.org/chat.html > > > ------------------------------------------------------------------------ > Looking to expand your world? > http://www.ONElist.com > ONElist has over 115,000 e-mail communities > from which to chose! > ------------------------------------------------------------------------ > The YM_M4I5S3S_32 and Parenting List is sponsored by the > OCSDA. You may visit their web site at > http://www.ocdhelp.org/ and view schedules for > chatroom support at > http://www.ocdhelp.org/chat.html > _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 1999 Report Share Posted June 9, 1999 To Beth, Be gentle with yourself, Beth. Sometimes you do what you have to do to get by. It's a lot easier to begin to withdraw your support for compulsions when your child is marshalling their own resources in the same direction, as with CBT. But when you're struggling and still trying to find your way out, I'm sure it's much more complex...especially with children. It's so inate for a loving parent or grandparent to want to soothe an upset child. And consequently, nearly impossible for us to let a small child we love suffer alone in acute anxiety! We'll all be thinking of you while you're in St. Louis and hoping you get a road map to help e. I wish my kids had a grandma as devoted as you You are somebody special, Beth. e is so lucky to have you. Hugs, in San Diego Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 1999 Report Share Posted September 1, 1999 Beth in Indiana, I have been thinking about your reaction to e telling the other kids that she wasnt wearing underpants. Actually, I'm surprised the teacher is allowing it due to health guidelines. :o/ I guess that the best thing for you to do is explain to e that you were upset that she might get hurt by some mean child who doesnt understand what ocd means. You werent angry at her, just at the situation. A little bit of explanation can go a long way. I think that she's sensitive enough to know that you didnt mean to get angry at her. She knows that your her biggest fan, no matter what!! Don't wear yourself out with guilt, you'll both be fine! Kids react to death in different ways. Tom has lost a few aquaintances over the past few years, as well as close friends, and my mom. He tends to be very sensative or angery around the news. Perhaps a little worried about his own future. There are lots of childrens books which can help her talk about how she feels about loosing her friend. take care, ok? wendy in canada (How about shorts instead of a dress??) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 1999 Report Share Posted September 1, 1999 Hi Beth, I was so glad to hear e made it school and has been wearing clothes. I think any kid who lost a close friend as a young child would be frightened and a little bit " obsessed " about death. Hopefully, her preoccupation with death will recede as time goes by. Take care, in San Diego Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2000 Report Share Posted January 15, 2000 Thanks Louis,You are so sweet to say that.I wish I could type better,I'll be writing more.Love Beth in IN. To Beth From: " Louis Harkins " <harkins@...> Hi Beth, It is so good to read posts from you once again. I missed you and I'm glad you're back. Take care. Louis harkins@... ------------------------------------------------------------------------------ Please click above to support our sponsor ------------------------------------------------------------------------------ You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. The archives for the OCD and Parenting List may be accessed by going to . Enter your email address and password. Click on the highlighted list name and then click on index. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2000 Report Share Posted August 24, 2000 HURRAY! THREE CHEERS FOR YOU TWO!! GREAT GOING KYLEE! beth, I have waited for so long to read this kind of post from you! Sounds like things are making a turn around in your lives! Stay focused on the positive! You know that you are a terrific grandma and dont forget it! Did you ever move? How are YOU? hugs, wendy, in canada wb4@... ============================================== >Hi all, I'm still here reading all of your letters.I just have to share my >joy!! This has been a long hard summer for everyone,with the med >change.e is now on 20mg of Prozac and 1/4 mg.resperdol in the morning >and at night.Three weeks ago e got sheets back on her bed,last week she >got jeans on ,and today are you READY---she got underpants on!!!!! She goes >to school Monday. I know this may not last forever,but I'm so happy today >and just pray it stays. Love Beth in IN. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2000 Report Share Posted August 25, 2000 Thanks ,I'm still here.The Dr. has giving my dad 4months to live,so I'm very busy these days.I want to keep him home with me as long as I can, is still coming home on week-ends.Love Beth Re: to beth > HURRAY! THREE CHEERS FOR YOU TWO!! GREAT GOING KYLEE! > > beth, I have waited for so long to read this kind of post from you! Sounds > like things are making a turn around in your lives! Stay focused on the > positive! You know that you are a terrific grandma and dont forget it! > > Did you ever move? How are YOU? > > hugs, wendy, in canada wb4@... > ============================================== > >Hi all, I'm still here reading all of your letters.I just have to share my > >joy!! This has been a long hard summer for everyone,with the med > >change.e is now on 20mg of Prozac and 1/4 mg.resperdol in the morning > >and at night.Three weeks ago e got sheets back on her bed,last week she > >got jeans on ,and today are you READY---she got underpants on!!!!! She goes > >to school Monday. I know this may not last forever,but I'm so happy today > >and just pray it stays. Love Beth in IN. > > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. The Archives, Files, and Features List for the may be accessed by going to , enter your email address and password, then point and click. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 Dear Beth, I am sorry to hear about your Dad's passing. I know you were a faithful daughter and must have been such a comfort to him. I am delighted to hear about e. Feet AND bottom covered, that's terrific! Keep up the good work but remember to take care of yourself. I'll look forward to hearing from you again when you get settled in Michigan. Happy Holidays, Lesli (SFBay) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2001 Report Share Posted July 2, 2001 Woooo hooo... Congrats to Beth ! Now maybe she'll stop ignoring me and answer any one of my SEVERAL phone messages ! brat ! *smile* Call me ! in Florida >From: " Beth " <MGBethie@...> >Reply- > >Subject: I'm a Loooooooser!!!! >Date: Mon, 02 Jul 2001 13:49:20 -0000 > >Yeah for me!!!! >I weighed at the gym today and I have dropped the 3-4 pounds I >gained AND lost 2 more! >I broke the 260 mark! Ahhhhhh I feel much better! > >Thanks for putting up with me! > >BethBNGrateful > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 You are right because that is exactly what happened to me,I did occasional colinics,just because of constipation, the biggest reason I went full bore with the colinics is I'm, 47 and out of no where I gained 20 lbs over the course of a year and started getting loads of cellulite, I just wanted to look good . I have allways been a healthly person, I get the flu once every few years,but beyond that I was o.k. I was taking very expensive enzymes while I was doing these treatments,so I thought I was O.K..Then about 4 months into the treatment I noticed every time I went there,within a few hours after I left I felt ill. It got worse and worse and I was sick all the time.Finally Duh, I made the connection and stoped going. I don't believe I had enough good flora to break down my food ,everything that came out was green,I ate enzymes like candy for at least six months before I could go a week with out feeling ill. I think any one doing this should have some sort of test kit to find out what is going on with the intestional track,so you don't get so far out of balance but I don't know if one is available. Quote Link to comment Share on other sites More sharing options...
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