Guest guest Posted July 12, 2009 Report Share Posted July 12, 2009 Our son has celiac and behavioral issues; I have autoimmune disease. Our son is not autistic, though some of his pre-GF diet behaviors were similar to autistic behaviors. I'm curious, if you don't mind my asking, what meds your son is on. We're considering medicating our son. Thanks...this line of inquiry is very interesting.MarciSent from my iPhoneOn Jul 12, 2009, at 10:11 AM, Thorne <stephielane@...> wrote: I also found this article very intersting, as my son has had pretty severe behavioral problems since he was about 1 1/2 years old. The medication that he was put on at age 7 is given to kids with autistic spectrum disorders, although he wasn't diagnosed with autism.. I didn't find out until quite recently that they are now using it for that. Despite his not having celiac disease, we recently put him on a g-f diet and are seeing a difference in his behavior. We hope to be able to take him off of medication soon. I just wish we had known sooner that this could help, I hated putting him on meds (I felt like a bad mom!). I'd love to hear what other parents think, this could help a lot of people. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2009 Report Share Posted July 13, 2009 This is very interesting and a little scary. My son was recently diagnosed with Asperger's, (high functioning autism) and has celiac, as I do. Our son has celiac and behavioral issues; I have autoimmune disease. Our son is not autistic, though some of his pre-GF diet behaviors were similar to autistic behaviors. I'm curious, if you don't mind my asking, what meds your son is on. We're considering medicating our son. Thanks...this line of inquiry is very interesting. Marci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2009 Report Share Posted July 13, 2009 For anyone who has a child with Asperger's (my son has both Aspeerger and Celiac), I run an email list serve for Parents Helping Parents for parents of Asperger kids. If you want to subscribe, send me an email to dlaurent@.... This is very interesting and a little scary. My son was recently diagnosed with Asperger's, (high functioning autism) and has celiac, as I do. Our son has celiac and behavioral issues; I have autoimmune disease. Our son is not autistic, though some of his pre-GF diet behaviors were similar to autistic behaviors. I'm curious, if you don't mind my asking, what meds your son is on. We're considering medicating our son. Thanks...this line of inquiry is very interesting. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2009 Report Share Posted July 13, 2009 Me too, I have an Aspie kid! I wonder how many of us do? From: [mailto: ] On Behalf Of Dean Sent: Sunday, July 12, 2009 7:56 PM Subject: Re: [ ] (unknown) For anyone who has a child with Asperger's (my son has both Aspeerger and Celiac), I run an email list serve for Parents Helping Parents for parents of Asperger kids. If you want to subscribe, send me an email to dlaurentstanford (DOT) edu. This is very interesting and a little scary. My son was recently diagnosed with Asperger's, (high functioning autism) and has celiac, as I do. Our son has celiac and behavioral issues; I have autoimmune disease. Our son is not autistic, though some of his pre-GF diet behaviors were similar to autistic behaviors. I'm curious, if you don't mind my asking, what meds your son is on. We're considering medicating our son. Thanks...this line of inquiry is very interesting. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2009 Report Share Posted July 13, 2009 He has been taking a medication called Risperdal (generic is Risperdone)since the summer between 1st and 2nd grade. I had really resisted putting him on medication, but finally I had to admit that it was really affecting his social development. His outbursts -though never violent towards others, thank goodness- were very disruptive and caused him to have a lot of social issues at home and in school. The medication took the 'edge' off of his outbursts, and made it possible for him to begin making friends and function better in school. He is a very intelligent kid, and they were actually talking about putting him in a special ed class! He was diagnosed with OCD, but I don't think the diagnosis is correct. I suspect it is actually high-functioning autism. I would love to hear from other celiac moms who have children who may also be autistic. FYI, the medication does have one serious side effect; it causes my son to overheat more easily, so he has to be careful in hot weather. He takes PE classes in the morning and always carries water to help combat this, but it is something to concerned about. If a change in diet helps enough, I hope to be able to take him off of the medication. > > > > I also found this article very intersting, as my son has had pretty severe behavioral problems since he was about 1 1/2 years old. The medication that he was put on at age 7 is given to kids with autistic spectrum disorders, although he wasn't diagnosed with autism.. I didn't find out until quite recently that they are now using it for that. Despite his not having celiac disease, we recently put him on a g-f diet and are seeing a difference in his behavior. We hope to be able to take him off of medication soon. I just wish we had known sooner that this could help, I hated putting him on meds (I felt like a bad mom!). > > I'd love to hear what other parents think, this could help a lot of people. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2009 Report Share Posted July 13, 2009 Marci, if you haven’t already, you should try taking him off dairy. I found that dairy, especially whole milk products, caused behavioral problems with my son when he was little. We do fine with cheese, butter, and ice cream, but avoid milk itself. From: [mailto: ] On Behalf Of Marci Riseman Sent: Sunday, July 12, 2009 2:52 PM Subject: Re: [ ] (unknown) Our son has celiac and behavioral issues; I have autoimmune disease. Our son is not autistic, though some of his pre-GF diet behaviors were similar to autistic behaviors. I'm curious, if you don't mind my asking, what meds your son is on. We're considering medicating our son. Thanks...this line of inquiry is very interesting. Marci .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2009 Report Share Posted July 14, 2009 Hi , When my celiac daughter was accidentally given gluten at school (a cracker with barley in it), she went ballistic--hitting and biting other kids. The change in her behavior was amazing. The good result was that her teachers saw and experienced how much even a small amount of gluten affected her. It will be really interesting (and positive, I bet) to see how much better your son feels and acts once the gluten is out of his system. Please keep us posted --lp palmer@... ________________________________________ From: [ ] On Behalf Of [stephielane@...] Sent: Monday, July 13, 2009 11:02 AM Subject: [ ] Re: (unknown) He has been taking a medication called Risperdal (generic is Risperdone)since the summer between 1st and 2nd grade. I had really resisted putting him on medication, but finally I had to admit that it was really affecting his social development. His outbursts -though never violent towards others, thank goodness- were very disruptive and caused him to have a lot of social issues at home and in school. The medication took the 'edge' off of his outbursts, and made it possible for him to begin making friends and function better in school. He is a very intelligent kid, and they were actually talking about putting him in a special ed class! He was diagnosed with OCD, but I don't think the diagnosis is correct. I suspect it is actually high-functioning autism. I would love to hear from other celiac moms who have children who may also be autistic. FYI, the medication does have one serious side effect; it causes my son to overheat more easily, so he has to be careful in hot weather. He takes PE classes in the morning and always carries water to help combat this, but it is something to concerned about. If a change in diet helps enough, I hope to be able to take him off of the medication. > > > > I also found this article very intersting, as my son has had pretty severe behavioral problems since he was about 1 1/2 years old. The medication that he was put on at age 7 is given to kids with autistic spectrum disorders, although he wasn't diagnosed with autism.. I didn't find out until quite recently that they are now using it for that. Despite his not having celiac disease, we recently put him on a g-f diet and are seeing a difference in his behavior. We hope to be able to take him off of medication soon. I just wish we had known sooner that this could help, I hated putting him on meds (I felt like a bad mom!). > > I'd love to hear what other parents think, this could help a lot of people. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2009 Report Share Posted July 14, 2009 Pam, thanks for this suggestion. I dreaded the idea of having to try convincing my 13 year old to try going casein free in addition to going gluten free, if just the gluten free diet doesn't help. Just cutting out milk sounds pretty simple and worth a try. > > Marci, if you haven't already, you should try taking him off dairy. I found > that dairy, especially whole milk products, caused behavioral problems with > my son when he was little. We do fine with cheese, butter, and ice cream, > but avoid milk itself. > > > > From: [mailto: ] > On Behalf Of Marci Riseman > Sent: Sunday, July 12, 2009 2:52 PM > > Subject: Re: [ ] (unknown) > > > > > > Our son has celiac and behavioral issues; I have autoimmune disease. Our son > is not autistic, though some of his pre-GF diet behaviors were similar to > autistic behaviors. I'm curious, if you don't mind my asking, what meds your > son is on. We're considering medicating our son. Thanks...this line of > inquiry is very interesting. > > Marci > > > > > . > > Image removed by sender. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2009 Report Share Posted July 14, 2009 Not sure about the credibility entirely, but the diet mentioned below, cheese, butter, ice cream (I can eat too but not milk) and gluten free is the Blood Type 0 diet from the "Eat Right For Your Type" book. I have read the book and it makes total sense to me, personally.LynnOn Jul 14, 2009, at 12:32 AM, wrote: Pam, thanks for this suggestion. I dreaded the idea of having to try convincing my 13 year old to try going casein free in addition to going gluten free, if just the gluten free diet doesn't help. Just cutting out milk sounds pretty simple and worth a try. > > Marci, if you haven't already, you should try taking him off dairy. I found > that dairy, especially whole milk products, caused behavioral problems with > my son when he was little. We do fine with cheese, butter, and ice cream, > but avoid milk itself. > > > > From: [mailto: ] > On Behalf Of Marci Riseman > Sent: Sunday, July 12, 2009 2:52 PM > > Subject: Re: [ ] (unknown) > > > > > > Our son has celiac and behavioral issues; I have autoimmune disease. Our son > is not autistic, though some of his pre-GF diet behaviors were similar to > autistic behaviors. I'm curious, if you don't mind my asking, what meds your > son is on. We're considering medicating our son. Thanks...this line of > inquiry is very interesting. > > Marci > > > > > . > > Image removed by sender. > Quote Link to comment Share on other sites More sharing options...
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