Re: No typical symptoms & chest pains

[Guest guest]

I don't have chest pains but I also don't have any "typical" gi-type reaction to gluten. However, I understand the physiological/medical implications of eating gluten, and so don't. I am sure that if I did keep eating gluten I would eventually have the "typical" reactions, and I know I would increase my risk of intestinal cancer. Maybe joining a support group or talking this over with your doctor or a nutritionist would help you stay on the gf diet. Or send an email to the listserv when you feel compelled to cheat - I bet a number of people would respond to cheer you on to keeping to the gf diet.

Has your doctor had you tested for vitamin deficiencies and bone calcium levels? Might help to explain chest pains...

Best of luck. It isn't easy to stay on a gf diet but it does gets easier.

T

-----Original Message-----

From: le Niland <niland.danielle@...>

Sent: Mon, Sep 21, 2009 1:24 pm

Subject: [ ] No typical symptoms & chest pains

Hello all,

I was diagnosed with Celiac a few months ago however I have no typical symptoms at all. I only found out I had Celiac after a random blood test when I went to see my doctor for chest pains. I am an otherwise healthy, active, 29 year old woman so it seemed weird that I was having these chest pains and my doctor had another patient complain of chest pains who ended up testing positive for Celiac- so on a whim, she decided to test me. Besides these chest pains, my body does not react to gluten in anyway (which makes it hard to stay diligent with the diet). Does anyone else have a lack of symptoms OR anything resembling chest pains?

Thanks for any input in advance,

Best,

le

[Guest guest]

le-

I’ve never had chest pains as a reaction. However,

to help you stay diligent on your diet, silent damage can be the worst

kind. There are fellow Celiac stories where people who were never

diagnosed, totally “fine” as in never felt bad but one day broke a

leg from walking or another simple everyday task. Well, b/c they were damaging

their small intestines (unbeknownst to themselves) their body was not absorbing

nutrients, i.e. calcium in this case (each part of the intestine is responsible

for absorbing different nutrients, and pending the area of damage, you

could be lacking something) anyway, the patient developed Osteoporosis, that

had gotten so bad their bones started to break. It was then they figured

out they had Celiac Disease.

I’m not trying to use the scare tactic on you…im

just trying to help you realize how lucky you are that you know. It is

really, really, really, very important to stick with the GF diet and be aware

of all that is tied to it (cross contamination, eating out, future health

effects of Osteo, Infertility or Cancer…3 huge things im sure you do not

want to ever deal with). If you’re having issues and need a better

understanding of the repercussions, please reach out to any of us. And

based on where you live if you need support when eating out or talking to

restaurants, im sure someone can help. One of the best things that helped

me was going out to eat with a “veteran” celiac and learning all

the right questions to ask, etc. What also helped was participating in a

physical support group where we brought a potluck dish, recipe card and shared

stories about living with CD.

I hope your chest pains go away…maybe after truly becoming

GF they will.

-

From:

[mailto: ] On Behalf Of le Niland

Sent: Monday, September 21, 2009 1:25 PM

Subject: [ ] No typical symptoms & chest pains

Hello all,

I was diagnosed with Celiac a few months ago however I have no typical symptoms

at all. I only found out I had Celiac after a random blood test when I went to

see my doctor for chest pains. I am an otherwise healthy, active, 29 year old

woman so it seemed weird that I was having these chest pains and my doctor had

another patient complain of chest pains who ended up testing positive for

Celiac- so on a whim, she decided to test me. Besides these chest pains, my

body does not react to gluten in anyway (which makes it hard to stay diligent

with the diet). Does anyone else have a lack of symptoms OR anything resembling

chest pains?

Thanks for any input in advance,

Best,

le

ers.

..

[Guest guest]

I had cardic symptoms (mostly tachicardia--a pounding heart, and the feeling of skipping a beat--not pain) that went away when I stopped eating gluten. I don't have celiac, just some sort of gluten intolerance, although I have the gene and my son has celiac.Marci From: le Niland <niland.danielle@...>Subject: [ ] No typical symptoms & chest pains Date: Monday, September 21, 2009, 1:24 PM

Hello all, I was diagnosed with Celiac a few months ago however I have no typical symptoms at all. I only found out I had Celiac after a random blood test when I went to see my doctor for chest pains. I am an otherwise healthy, active, 29 year old woman so it seemed weird that I was having these chest pains and my doctor had another patient complain of chest pains who ended up testing positive for Celiac- so on a whim, she decided to test me. Besides these chest pains, my body does not react to gluten in anyway (which makes it hard to stay diligent with the diet). Does anyone else have a lack of symptoms OR anything resembling chest pains?

Thanks for any input in advance, Best, le

[Guest guest]

I had similar symptoms to Marci beginning in my mid-twenties; along with a lot of other non-typical symptoms.  At 38 I was diagnosed with rheumatoid arthritis and sjogren's syndrome.  The more typical intestinal symptoms didn't start until later.  I went gluten-lite 2 years ago, then gluten free about 6 months ago.  I am now 44.  Heart symptoms and many of the others have resolved, and arthritis and sjogren's symptoms have improved.  I never had celiac testing done before going gluten free, but I am DQ2 gene positive.  I would recommend sticking with the diet, knowing that you are protecting yourself from many significant issues in the future.

Best of luck,On Mon, Sep 21, 2009 at 2:03 PM, Marci Riseman <mriseman@...> wrote:

 

I had cardic symptoms (mostly tachicardia--a pounding heart, and the feeling of skipping a beat--not pain) that went away when I stopped eating gluten. I don't have celiac, just some sort of gluten intolerance, although I have the gene and my son has celiac.

Marci 

From: le Niland <niland.danielle@...>Subject: [ ] No typical symptoms & chest pains

Date: Monday, September 21, 2009, 1:24 PM

Hello all, I was diagnosed with Celiac a few months ago however I have no typical symptoms at all. I only found out I had Celiac after a random blood test when I went to see my doctor for chest pains. I am an otherwise healthy, active, 29 year old woman so it seemed weird that I was having these chest pains and my doctor had another patient complain of chest pains who ended up testing positive for Celiac- so on a whim, she decided to test me. Besides these chest pains, my body does not react to gluten in anyway (which makes it hard to stay diligent with the diet). Does anyone else have a lack of symptoms OR anything resembling chest pains?

Thanks for any input in advance, Best, le

[Guest guest]

--that reminds me, I was also diagnosed with arthritis, Sjogren's syndrome, and Hashimoto's thyroiditis. And we know that autoimmune diseases are tied to celiac.Marci

From: le Niland <niland.danielle@...>Subject: [ ] No typical symptoms & chest pains

Date: Monday, September 21, 2009, 1:24 PM

Hello all, I was diagnosed with Celiac a few months ago however I have no typical symptoms at all. I only found out I had Celiac after a random blood test when I went to see my doctor for chest pains. I am an otherwise healthy, active, 29 year old woman so it seemed weird that I was having these chest pains and my doctor had another patient complain of chest pains who ended up testing positive for Celiac- so on a whim, she decided to test me. Besides these chest pains, my body does not react to gluten in anyway (which makes it hard to stay diligent with the diet). Does anyone else have a lack of symptoms OR anything resembling chest pains?

Thanks for any input in advance, Best, le

[Guest guest]

Hi Marci

Definitely stick with your gluten free diet!! As mentioned, it is VERY

very common to have a cluster of auto immune disorders. Also, I hope you're on a

good anti-inflammatory protocol to calm down your gut which is currently " on

fire " . The recommended basic protocol includes probiotics, Vitamin D, glutamine,

EPA/DHA and curcumin (turmeric). Let me know if you need guidance regarding

therapeutic dosages of any of these.

best of luck, Bonnie

>

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> From: le Niland <niland.danielle@...>

> Subject: [ ] No typical symptoms & chest pains

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> Date: Monday, September 21, 2009, 1:24 PM

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> Hello all,

>

> I was diagnosed with Celiac a few months ago however I have no typical

symptoms at all. I only found out I had Celiac after a random blood test when I

went to see my doctor for chest pains. I am an otherwise healthy, active, 29

year old woman so it seemed weird that I was having these chest pains and my

doctor had another patient complain of chest pains who ended up testing positive

for Celiac- so on a whim, she decided to test me. Besides these chest pains, my

body does not react to gluten in anyway (which makes it hard to stay diligent

with the diet). Does anyone else have a lack of symptoms OR anything resembling

chest pains?

>

>

>

> Thanks for any input in advance,

> Best,

> le

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[Guest guest]

Hi le,

I would encourage you to get an endoscopy/biopsy. Blood tests are NOT

diagnostic.

J.

--- In , le Niland <niland.danielle@...>

wrote:

>

> Hello all,

>

> I was diagnosed with Celiac a few months ago however I have no typical

> symptoms at all. I only found out I had Celiac after a random blood test

> when I went to see my doctor for chest pains. I am an otherwise healthy,

> active, 29 year old woman so it seemed weird that I was having these chest

> pains and my doctor had another patient complain of chest pains who ended up

> testing positive for Celiac- so on a whim, she decided to test me. Besides

> these chest pains, my body does not react to gluten in anyway (which makes

> it hard to stay diligent with the diet). Does anyone else have a lack of

> symptoms OR anything resembling chest pains?

>

> Thanks for any input in advance,

> Best,

> le

>

[Guest guest]

Yes, I have had cardiac symptoms that seem to have resolved after 1 1/2 years on

the GF diet. I was diagnosed with Mitral Valve Prolapse (basically a valve

problem which results in the feeling of you heart 'skipping' a beat) 10 years

ago. I hardly notice the skipped beats at all anymore.

I also had a lot of problems with chest pain, and the feeling of pressure and

tightness in my chest. My cardiologist ran a bunch of tests and found nothing --

he even tested me for ulcers because he said that ulcers can cause chest pain.

Same goes for acid reflex (which a lot of Celiacs have).

Again, these problems seem to have resolved after 1 1/2 years GF. I can't

exactly say what the connection is, but it could be because of acid relux -- or

I have also heard that iron deficiency can cause chest pain. A lot of Celiacs

have vit/mineral deficiencies because of malabsorption.

You are really lucky that your doctor was smart enough to test for Celiac! You

should probably confirm it with a biopsy though before you embark on a life-long

GF diet. And for the biopsy to show accurate results you can't yet be GF. Talk

to your doctor about this.

Hope this helps...

>

> --- In , le Niland <niland.danielle@>

wrote:

> >

> > Hello all,

> >

> > I was diagnosed with Celiac a few months ago however I have no typical

> > symptoms at all. I only found out I had Celiac after a random blood test

> > when I went to see my doctor for chest pains. I am an otherwise healthy,

> > active, 29 year old woman so it seemed weird that I was having these chest

> > pains and my doctor had another patient complain of chest pains who ended up

> > testing positive for Celiac- so on a whim, she decided to test me. Besides

> > these chest pains, my body does not react to gluten in anyway (which makes

> > it hard to stay diligent with the diet). Does anyone else have a lack of

> > symptoms OR anything resembling chest pains?

> >

> > Thanks for any input in advance,

> > Best,

> > le

> >

>

[Guest guest]

I have had chest pains off and on my whole life. I had heart sugery in 81' and

would say its not worth the heath side effects to dabble in Gluten ever. I am 32

and had no CD symptoms until I turned 29, I had started to feel more intense

chest pais then dizy spells then extreme fatigue.

My DR said it was stress. It did not stop until I had serious IBS problems crop

up that had been happening off and on for nearly 10 years, but the fact the DR

assured me always that I was fit as a fiddle and so on ..well I look back and

yes I was active and busy but I was not healthy at all...

It was just a matter of time before my system caved. And then it did. =/

I am now picking up the pieces. I feel better than I have in a long time but it

also takes time to rebuild so I am happy to have so many educated people help

me. =)

I hope you feel amazing and dont have any problems and just get better.

gem=)