Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 CMT link led to another which talks about toes that look like claws. Just a few months ago,my 4 smaller toes on each foot started to look like claws only when I try to 'point my toes' Big toe seems same as ever. When 'pointed' I can straighten out my 4 toes with my hands, and they stay 'straight' for a few seconds, and then go back to the abnormal contraction. I have assumed that it's from the flatback loss of sensation and therefore control of tendons/muscles that control the toes. Does anyone else have this problem?... asked a doc about it?... I feel stupid now that I didn't ask Dr.T about it. Neither doc nor resident nor nurse asked to see me point my toes. Have any of you had D, R, or N ask you to point your toes? Obviously I need the spinal reconstruction surgery, but I'm wondering if I have something else going on. One of the related conditions listed for hammer/claw toes is abnormally high arches. I've always had high arches, but nothing compared to my mother's. At my pre-surg workup, N noticed my unusually high arches. hmmmmm. Now, I'm wondering what else might be going on. I've rambled long enough. Bottom line: Has anyone had 4 smaller toes contract too far when " pointing your toes " ? If so, did spinal reconstruction surgery correct it? Thanks for reading all this! Jeri > > I am a 58yo woman who was diagnosed with Charcot-Marie-Tooth Disease on > January 15, 2008. It was inherited from my father. I've had it since > I was at least 14yo when I was diagnosed with scoliosis. CMT causes > spine and other bone deformities. The delay in the diagnosis has > resulted in a severe case of CMT (and scloliosis, for which I had > surgery in 2002), whereby I have total numbness in my feet, with > numbness having progressed gradually up into my thighs. It is also now > in my arms and hands. I can hardly walk or open a jar or a box of > macaroni. If it had been diagnosed and treated even a few years ago, > some of my disability might have been slowed or avoided. If you have > ideopathic scoliosis (no known reason for it, as I did) AND/OR have > never been tested for CMT, now is the time! > > It is a neurological, progressive, debilitating, painful disease > inherited from one or both parents who are carriers. Scoliosis is only > part of it! > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.