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Hammer /Claw Toes?

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CMT link led to another which talks about toes that look like claws.

Just a few months ago,my 4 smaller toes on each foot started to look

like claws only when I try to 'point my toes' Big toe seems same as

ever.

When 'pointed' I can straighten out my 4 toes with my hands, and they

stay 'straight' for a few seconds, and then go back to the abnormal

contraction.

I have assumed that it's from the flatback loss of sensation and

therefore control of tendons/muscles that control the toes.

Does anyone else have this problem?... asked a doc about it?... I

feel stupid now that I didn't ask Dr.T about it. Neither doc nor

resident nor nurse asked to see me point my toes. Have any of you

had D, R, or N ask you to point your toes?

Obviously I need the spinal reconstruction surgery, but I'm wondering

if I have something else going on.

One of the related conditions listed for hammer/claw toes is

abnormally high arches. I've always had high arches, but nothing

compared to my mother's. At my pre-surg workup, N noticed my

unusually high arches.

hmmmmm. Now, I'm wondering what else might be going on.

I've rambled long enough.

Bottom line:

Has anyone had 4 smaller toes contract too far when " pointing your

toes " ?

If so, did spinal reconstruction surgery correct it?

Thanks for reading all this!

Jeri

>

> I am a 58yo woman who was diagnosed with Charcot-Marie-Tooth

Disease on

> January 15, 2008. It was inherited from my father. I've had it

since

> I was at least 14yo when I was diagnosed with scoliosis. CMT

causes

> spine and other bone deformities. The delay in the diagnosis has

> resulted in a severe case of CMT (and scloliosis, for which I had

> surgery in 2002), whereby I have total numbness in my feet, with

> numbness having progressed gradually up into my thighs. It is also

now

> in my arms and hands. I can hardly walk or open a jar or a box of

> macaroni. If it had been diagnosed and treated even a few years

ago,

> some of my disability might have been slowed or avoided. If you

have

> ideopathic scoliosis (no known reason for it, as I did) AND/OR have

> never been tested for CMT, now is the time!

>

> It is a neurological, progressive, debilitating, painful disease

> inherited from one or both parents who are carriers. Scoliosis is

only

> part of it!

>

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