HAVE YOU BEEN TESTED FOR CMT?

[Guest guest]

I am a 58yo woman who was diagnosed with Charcot-Marie-Tooth Disease on

January 15, 2008. It was inherited from my father. I've had it since

I was at least 14yo when I was diagnosed with scoliosis. CMT causes

spine and other bone deformities. The delay in the diagnosis has

resulted in a severe case of CMT (and scloliosis, for which I had

surgery in 2002), whereby I have total numbness in my feet, with

numbness having progressed gradually up into my thighs. It is also now

in my arms and hands. I can hardly walk or open a jar or a box of

macaroni. If it had been diagnosed and treated even a few years ago,

some of my disability might have been slowed or avoided. If you have

ideopathic scoliosis (no known reason for it, as I did) AND/OR have

never been tested for CMT, now is the time!

It is a neurological, progressive, debilitating, painful disease

inherited from one or both parents who are carriers. Scoliosis is only

part of it!