Re: to JERI/Edie's 9 month update

[Guest guest]

You will be fine, Jeri! I am also 9 months post-op tomorrow. I have been off all pain meds since 4 months post-op. I can now stand for long periods of time and walk through malls, etc. However, the longer I walk the more my left leg acts up as the iliotibial band tightens up. I really need to get a regular massage on that area but just can't afford it right now. While I was in PT it got better as the therapist would massage it at each visit. I also do some low-impact aerobics, yoga and Pilates with avoidance of bending and twisting until I reach the 1-year mark.

I do medical transcription at home and went back to work about a week after I came home. Now I only sat at the computer for 5 minutes at a time but I would eventually get a note done in 4-5 hours. After 4 weeks I went back to work at my church as the secretary which was only 6 hours a week. Just after Thanksgiving I started another secretary's job at another church for 12 hours a week. I just got increased from 6 to 16 hours a week at my church so starting next week I'll be working 28 hours per week out of the house with three 8-hour days per week.

I've been reading the posts but haven't participated much in the past few weeks. My mother passed away and I had to go to NY for the funeral. Somehow with all the stops we made and

traffic accidents on the interstate, it took us 22 hours to get there (normally takes 14 hours). We traveled in a Suburban but I was able to stand being cooped up in the front seat for 22 hours with no back pain. My legs got pretty restless but my back was fine. They had lots of snow and my brothers and my husband would get all around me when we had to be outside to keep me from falling on the ice and ruining my revision surgery! I'm so glad I didn't fall!

Peggy

[ ] Re: Edie's 9 month update

Thanks Edie. I hope to follow in your footsteps. I am about 3 weeks pre-surgery, and it's terrific to hear your story. After reading your story I'm feeling just a little bit less jittery. I need all the encouragement I can get!Jeri>> Hi all,> > Edie here with my 9 months post-op report, as promised. For those of you who don't > know me, a quick recap (and you can read my story in the member's files). I am a 47 year > old woman (original Harrington rod surgery in 1982) who had posterior-anterior-posterior > surgery in one 10-1/2 hour operation by Dr. Bendo at the York University Hospital > for Joint Diseases in NYC. My surgery truly corrected my flatback, and left me with virtually > perfect sagittal balance. I had been suffering from severe flatback for about 10 years, and > for the most part through those years, handled it through water therapy and denial!> > I will be going back to work full time after the New Year's break. I've been back at work > part time since October 1st, originally 3 days per week for about 6 weeks, then 4 days per > week since then. At first it was scary and difficult, but not because of the work itself (I > work in an office), but the commute. I live in Brooklyn, NY and commute to Manhattan > every day, which involves a 1/2 mile or so walk to the subway, an elevated subway station > with close to 50 stairs to climb, a 40 minute bumpy subway ride, and a short walk from > the subway to my office in one of the busiest part of the city (I work at Madison Square > Garden, above Penn Station).> > For the first week or so, I was using "Access-a-Ride" which is the MTA's answer for > handicapped/disabled passengers. But the service was so wretched that I decided to tough > it up, and do the subway instead. Even though it was scary and a challenge, I was glad I > did it. It forced me to get some land-based exercise (walking/climbing stairs), and I end > up taking the subway to my gym every morning before work where I am back to swimming > about 20 laps (a little more than 1/2 mile). I leave for work from the gym, which is another > subway ride away, but it's a very short one. My days are long, but do-able. At night I am > tired, but not completely wiped out anymore.> > At 9 months post op, I can walk as long as I need to without a cane (although I use one on > the commute so people will stand a little farther away) and I can also stand for long > periods of time without fatigue. > > I am still on one pain killer per day when muscle fatigue sets in in the late afternoon. I > have just renewed the prescription with a lower dose, and intend to see how this works > out for me. If I can wean myself off them completely, great, but if not, I have NO intention > of spending any more of my life in pain. I've been told time and time again that the > amount I'm taking is negligible, and I refuse to feel guilt over using necessary medication. > I spent years using nothing for my pain, and I now realize what a disservice I was doing to > myself at that time. > > My biggest annoyance at this stage is that I can feel hardware in the lower left-hand side > of my spine, probably where the pelvic bolt is inserted, so I am keeping an eye on that. It > is not debilitating, but it is uncomfortable. I want to give my body plenty of time to adjust > to all the new hardware, so I am in no rush to get it removed.> > I also am still adjusting to moving in a new way, I no longer use my grabbers much, but do > a lot of squats, leaning on furniture around me to help me up and down. I also rely on > using my knees a lot (getting down and up from the floor using one knee/leg for > propulsion). I try not to lean forward from my hips too much, but find that I do this > without thinking and it causes me little or no discomfort. > > I gained almost 2 additional inches after my surgery. I walk like a ballerina now....got the > added plus of a boob lift and bootylicious back waist curve from my surgery! > > In short, I feel like I am doing absolutely great. I took 6 months off post-op to do nothing > but concentrate on healing, and I'll never ever regret that decision. If I have any words of > advice to those of you facing this challenge, it's the following:> > 1. Get in the water....before surgery, and after surgery, as much as possible. Make sure > you have someone who can help you with movement in the water if it is an element you > are unfamiliar with. I believe water workouts saved my life, and abetted my recovery (and > preoperative condition) more than almost anything else. It's still my primary form of > exercise, and land-based impact (Running, even walking on concrete) is something that I > personally will avoid because I feel that the impact is not good for my bones.> > 2. Take all the time you need to heal, but stay positive and pragmatic about the process. > Healing takes a long time...that's all there is to it. You do yourself more harm than good > by rushing it. You will have good days and bad days which will feel like a real setback, but > try to keep perspective on the entire picture, not just the moment.> > 3. Ask for help when you need it. Don't do foolish things, even if you think you are able. > You are NOT the same as before surgery, so don't be down on yourself if you are not able > to do many things you were able to do. A lot of that will come back in time and you will > find new and better ways to achieve your physical goals.> > 4. Keep your sense of humor--before, during and after the whole process. You will never > regret it, nor will those around you. > > In the meantime, I'm pretty much back into my life full time, so I don't get to post often. > But I am very committed to continuing updates for those of you who may be facing > surgery. Please know there is a lot to look forward to. As I've said before and I'll say it 'til > I'm blue in the face, Your revision surgery is a gift certificate that you can't cash in for > about a year, so know that in the end, it will certainly be worth it. Plus you'll have an > amazing story to tell to people who tell you they have a "bad back". HAH!!!!!!! Did I > mention that I keep pictures of my post-surgery XRays on my cubicle wall at work?> > I'm a scuba diver, and hope to be able to get back into diving when my 1 year mark has > passed in April. At the rate I'm going, there is no reason I can't resume it....I never carried > my own heavy equipment anyway, so weight-bearing was never an issue.> > I plan on visiting Donna T. in the hospital when she goes in at the end of January, so with > her permission, I'll be posting an update on her when I see her. And of course (AKA > my hero!), who I have been in touch with since her 7/8th surgery with Dr. Cunningham > (Dr. Boachie's associate) stage 2 which was only about 6 weeks ago. She is doing > phenomenally well, and feels as though she is truly on the road to recovery...NANFASH: > Post if you get a chance, girl! Your story is an inspiration and a real lesson in > perseverance.> > If you have any individual questions, you can email me at my address...edie_scratch.> I may not be back on the board for a while, but I'll post again at the one year mark if I > don't get a chance to before. > > Thinking of you all, those who have had surgery and those facing it. As my doc said: You'll > get through it. People do.> > Hugs to you all and a happy, healthy New Year,> > Edie>

[Guest guest]

Peggy,

I didn’t know what the

iliotibial band was so I googled it. The exercises recommended according to

this site: www.howtostretch.com/iliotibi.htm

are yoga stretches.

Could you do those before your 1 year is up? Your update inspired me. Thanks.

From:

[mailto: ] On

Behalf Of Peggy Greene

Sent: Wednesday, January 02, 2008

8:44 PM

To:

Subject: Re: [ ]

Re: to JERI/Edie's 9 month update

You

will be fine, Jeri! I am also 9 months post-op tomorrow. I have

been off all pain meds since 4 months post-op. I can now stand for long

periods of time and walk through malls, etc. However, the longer I walk

the more my left leg acts up as the iliotibial band tightens up. I really

need to get a regular massage on that area but just can't afford it right

now. While I was in PT it got better as the therapist would massage it at

each visit. I also do some low-impact aerobics, yoga and Pilates with avoidance

of bending and twisting until I reach the 1-year mark.

I do

medical transcription at home and went back to work about a week after I came

home. Now I only sat at the computer for 5 minutes at a time but I would

eventually get a note done in 4-5 hours. After 4 weeks I went back to

work at my church as the secretary which was only 6 hours a week. Just

after Thanksgiving I started another secretary's job at another church for 12

hours a week. I just got increased from 6 to 16 hours a week at my church

so starting next week I'll be working 28 hours per week out of the house with

three 8-hour days per week.

I've

been reading the posts but haven't participated much in the past few

weeks. My mother passed away and I had to go to NY for the funeral.

Somehow with all the stops we made and

traffic

accidents on the interstate, it took us 22 hours to get there (normally takes

14 hours). We traveled in a Suburban but I was able to stand being cooped

up in the front seat for 22 hours with no back pain. My legs got pretty

restless but my back was fine. They had lots of snow and my brothers and

my husband would get all around me when we had to be outside to keep me

from falling on the ice and ruining my revision surgery! I'm so glad I

didn't fall!

Peggy

[ ]

Re: Edie's 9 month update

Thanks Edie. I hope to follow in your footsteps. I am

about 3 weeks

pre-surgery, and it's terrific to hear your story. After reading your

story I'm feeling just a little bit less jittery. I need all the

encouragement I can get!

Jeri

>

> Hi all,

>

> Edie here with my 9 months post-op report, as promised. For those

of you who don't

> know me, a quick recap (and you can read my story in the member's

files). I am a 47 year

> old woman (original Harrington rod surgery in 1982) who had

posterior-anterior-posterior

> surgery in one 10-1/2 hour operation by Dr. Bendo at the York

University Hospital

> for Joint Diseases in NYC. My surgery truly corrected my flatback,

and left me with virtually

> perfect sagittal balance. I had been suffering from severe flatback

for about 10 years, and

> for the most part through those years, handled it through water

therapy and denial!

>

> I will be going back to work full time after the New Year's break.

I've been back at work

> part time since October 1st, originally 3 days per week for about 6

weeks, then 4 days per

> week since then. At first it was scary and difficult, but not

because of the work itself (I

> work in an office), but the commute. I live in Brooklyn, NY and

commute to Manhattan

> every day, which involves a 1/2 mile or so walk to the subway, an

elevated subway station

> with close to 50 stairs to climb, a 40 minute bumpy subway ride,

and a short walk from

> the subway to my office in one of the busiest part of the city (I

work at Madison Square

> Garden, above Penn Station).

>

> For the first week or so, I was using " Access-a-Ride " which is

the

MTA's answer for

> handicapped/disabled passengers. But the service was so wretched

that I decided to tough

> it up, and do the subway instead. Even though it was scary and a

challenge, I was glad I

> did it. It forced me to get some land-based exercise

(walking/climbing stairs), and I end

> up taking the subway to my gym every morning before work where I am

back to swimming

> about 20 laps (a little more than 1/2 mile). I leave for work from

the gym, which is another

> subway ride away, but it's a very short one. My days are long, but

do-able. At night I am

> tired, but not completely wiped out anymore.

>

> At 9 months post op, I can walk as long as I need to without a cane

(although I use one on

> the commute so people will stand a little farther away) and I can

also stand for long

> periods of time without fatigue.

>

> I am still on one pain killer per day when muscle fatigue sets in

in the late afternoon. I

> have just renewed the prescription with a lower dose, and intend to

see how this works

> out for me. If I can wean myself off them completely, great, but if

not, I have NO intention

> of spending any more of my life in pain. I've been told time and

time again that the

> amount I'm taking is negligible, and I refuse to feel guilt over

using necessary medication.

> I spent years using nothing for my pain, and I now realize what a

disservice I was doing to

> myself at that time.

>

> My biggest annoyance at this stage is that I can feel hardware in

the lower left-hand side

> of my spine, probably where the pelvic bolt is inserted, so I am

keeping an eye on that. It

> is not debilitating, but it is uncomfortable. I want to give my

body plenty of time to adjust

> to all the new hardware, so I am in no rush to get it removed.

>

> I also am still adjusting to moving in a new way, I no longer use

my grabbers much, but do

> a lot of squats, leaning on furniture around me to help me up and

down. I also rely on

> using my knees a lot (getting down and up from the floor using one

knee/leg for

> propulsion). I try not to lean forward from my hips too much, but

find that I do this

> without thinking and it causes me little or no discomfort.

>

> I gained almost 2 additional inches after my surgery. I walk like a

ballerina now....got the

> added plus of a boob lift and bootylicious back waist curve from my

surgery!

>

> In short, I feel like I am doing absolutely great. I took 6 months

off post-op to do nothing

> but concentrate on healing, and I'll never ever regret that

decision. If I have any words of

> advice to those of you facing this challenge, it's the following:

>

> 1. Get in the water....before surgery, and after surgery, as much

as possible. Make sure

> you have someone who can help you with movement in the water if it

is an element you

> are unfamiliar with. I believe water workouts saved my life, and

abetted my recovery (and

> preoperative condition) more than almost anything else. It's still

my primary form of

> exercise, and land-based impact (Running, even walking on concrete)

is something that I

> personally will avoid because I feel that the impact is not good

for my bones.

>

> 2. Take all the time you need to heal, but stay positive and

pragmatic about the process.

> Healing takes a long time...that's all there is to it. You do

yourself more harm than good

> by rushing it. You will have good days and bad days which will feel

like a real setback, but

> try to keep perspective on the entire picture, not just the moment.

>

> 3. Ask for help when you need it. Don't do foolish things, even if

you think you are able.

> You are NOT the same as before surgery, so don't be down on

yourself if you are not able

> to do many things you were able to do. A lot of that will come back

in time and you will

> find new and better ways to achieve your physical goals.

>

> 4. Keep your sense of humor--before, during and after the whole

process. You will never

> regret it, nor will those around you.

>

> In the meantime, I'm pretty much back into my life full time, so I

don't get to post often.

> But I am very committed to continuing updates for those of you who

may be facing

> surgery. Please know there is a lot to look forward to. As I've

said before and I'll say it 'til

> I'm blue in the face, Your revision surgery is a gift certificate

that you can't cash in for

> about a year, so know that in the end, it will certainly be worth

it. Plus you'll have an

> amazing story to tell to people who tell you they have a " bad

back " . HAH!!!!!!! Did I

> mention that I keep pictures of my post-surgery XRays on my cubicle

wall at work?

>

> I'm a scuba diver, and hope to be able to get back into diving when

my 1 year mark has

> passed in April. At the rate I'm going, there is no reason I can't

resume it....I never carried

> my own heavy equipment anyway, so weight-bearing was never an issue.

>

> I plan on visiting Donna T. in the hospital when she goes in at the

end of January, so with

> her permission, I'll be posting an update on her when I see her.

And of course

(AKA

> my hero!), who I have been in touch with since her 7/8th surgery

with Dr. Cunningham

> (Dr. Boachie's associate) stage 2 which was only about 6 weeks ago.

She is doing

> phenomenally well, and feels as though she is truly on the road to

recovery...NANFASH:

> Post if you get a chance, girl! Your story is an inspiration and a

real lesson in

> perseverance.

>

> If you have any individual questions, you can email me at my

address...edie_scratch.

> I may not be back on the board for a while, but I'll post again at

the one year mark if I

> don't get a chance to before.

>

> Thinking of you all, those who have had surgery and those facing

it. As my doc said: You'll

> get through it. People do.

>

> Hugs to you all and a happy, healthy New Year,

>

> Edie

>

[Guest guest]

Thank you for your encouragement, Peggy.

I'm so sorry about your mom. I lost mine about 7 years ago, and I

often find myself thinking, ok, now I get it. I'm pretty sure she

had osteoporosis, and must have had many of the same symptoms we have

or have had.

We all find ourselves becoming our parents in some sorts of ways. I

feel that those moments help keep us close to them in life and after.

Your encouragement means a lot. Jeri

> >

> > Hi all,

> >

> > Edie here with my 9 months post-op report, as promised. For

those

> of you who don't

> > know me, a quick recap (and you can read my story in the

member's

> files). I am a 47 year

> > old woman (original Harrington rod surgery in 1982) who had

> posterior-anterior-posterior

> > surgery in one 10-1/2 hour operation by Dr. Bendo at the

York

> University Hospital

> > for Joint Diseases in NYC. My surgery truly corrected my

flatback,

> and left me with virtually

> > perfect sagittal balance. I had been suffering from severe

flatback

> for about 10 years, and

> > for the most part through those years, handled it through water

> therapy and denial!

> >

> > I will be going back to work full time after the New Year's

break.

> I've been back at work

> > part time since October 1st, originally 3 days per week for

about 6

> weeks, then 4 days per

> > week since then. At first it was scary and difficult, but not

> because of the work itself (I

> > work in an office), but the commute. I live in Brooklyn, NY and

> commute to Manhattan

> > every day, which involves a 1/2 mile or so walk to the subway,

an

> elevated subway station

> > with close to 50 stairs to climb, a 40 minute bumpy subway

ride,

> and a short walk from

> > the subway to my office in one of the busiest part of the city

(I

> work at Madison Square

> > Garden, above Penn Station).

> >

> > For the first week or so, I was using " Access-a-Ride " which is

the

> MTA's answer for

> > handicapped/disabled passengers. But the service was so

wretched

> that I decided to tough

> > it up, and do the subway instead. Even though it was scary and

a

> challenge, I was glad I

> > did it. It forced me to get some land-based exercise

> (walking/climbing stairs), and I end

> > up taking the subway to my gym every morning before work where

I am

> back to swimming

> > about 20 laps (a little more than 1/2 mile). I leave for work

from

> the gym, which is another

> > subway ride away, but it's a very short one. My days are long,

but

> do-able. At night I am

> > tired, but not completely wiped out anymore.

> >

> > At 9 months post op, I can walk as long as I need to without a

cane

> (although I use one on

> > the commute so people will stand a little farther away) and I

can

> also stand for long

> > periods of time without fatigue.

> >

> > I am still on one pain killer per day when muscle fatigue sets

in

> in the late afternoon. I

> > have just renewed the prescription with a lower dose, and

intend to

> see how this works

> > out for me. If I can wean myself off them completely, great,

but if

> not, I have NO intention

> > of spending any more of my life in pain. I've been told time

and

> time again that the

> > amount I'm taking is negligible, and I refuse to feel guilt

over

> using necessary medication.

> > I spent years using nothing for my pain, and I now realize what

a

> disservice I was doing to

> > myself at that time.

> >

> > My biggest annoyance at this stage is that I can feel hardware

in

> the lower left-hand side

> > of my spine, probably where the pelvic bolt is inserted, so I

am

> keeping an eye on that. It

> > is not debilitating, but it is uncomfortable. I want to give my

> body plenty of time to adjust

> > to all the new hardware, so I am in no rush to get it removed.

> >

> > I also am still adjusting to moving in a new way, I no longer

use

> my grabbers much, but do

> > a lot of squats, leaning on furniture around me to help me up

and

> down. I also rely on

> > using my knees a lot (getting down and up from the floor using

one

> knee/leg for

> > propulsion). I try not to lean forward from my hips too much,

but

> find that I do this

> > without thinking and it causes me little or no discomfort.

> >

> > I gained almost 2 additional inches after my surgery. I walk

like a

> ballerina now....got the

> > added plus of a boob lift and bootylicious back waist curve

from my

> surgery!

> >

> > In short, I feel like I am doing absolutely great. I took 6

months

> off post-op to do nothing

> > but concentrate on healing, and I'll never ever regret that

> decision. If I have any words of

> > advice to those of you facing this challenge, it's the

following:

> >

> > 1. Get in the water....before surgery, and after surgery, as

much

> as possible. Make sure

> > you have someone who can help you with movement in the water if

it

> is an element you

> > are unfamiliar with. I believe water workouts saved my life,

and

> abetted my recovery (and

> > preoperative condition) more than almost anything else. It's

still

> my primary form of

> > exercise, and land-based impact (Running, even walking on

concrete)

> is something that I

> > personally will avoid because I feel that the impact is not

good

> for my bones.

> >

> > 2. Take all the time you need to heal, but stay positive and

> pragmatic about the process.

> > Healing takes a long time...that's all there is to it. You do

> yourself more harm than good

> > by rushing it. You will have good days and bad days which will

feel

> like a real setback, but

> > try to keep perspective on the entire picture, not just the

moment.

> >

> > 3. Ask for help when you need it. Don't do foolish things, even

if

> you think you are able.

> > You are NOT the same as before surgery, so don't be down on

> yourself if you are not able

> > to do many things you were able to do. A lot of that will come

back

> in time and you will

> > find new and better ways to achieve your physical goals.

> >

> > 4. Keep your sense of humor--before, during and after the whole

> process. You will never

> > regret it, nor will those around you.

> >

> > In the meantime, I'm pretty much back into my life full time,

so I

> don't get to post often.

> > But I am very committed to continuing updates for those of you

who

> may be facing

> > surgery. Please know there is a lot to look forward to. As I've

> said before and I'll say it 'til

> > I'm blue in the face, Your revision surgery is a gift

certificate

> that you can't cash in for

> > about a year, so know that in the end, it will certainly be

worth

> it. Plus you'll have an

> > amazing story to tell to people who tell you they have a " bad

> back " . HAH!!!!!!! Did I

> > mention that I keep pictures of my post-surgery XRays on my

cubicle

> wall at work?

> >

> > I'm a scuba diver, and hope to be able to get back into diving

when

> my 1 year mark has

> > passed in April. At the rate I'm going, there is no reason I

can't

> resume it....I never carried

> > my own heavy equipment anyway, so weight-bearing was never an

issue.

> >

> > I plan on visiting Donna T. in the hospital when she goes in at

the

> end of January, so with

> > her permission, I'll be posting an update on her when I see

her.

> And of course (AKA

> > my hero!), who I have been in touch with since her 7/8th

surgery

> with Dr. Cunningham

> > (Dr. Boachie's associate) stage 2 which was only about 6 weeks

ago.

> She is doing

> > phenomenally well, and feels as though she is truly on the road

to

> recovery...NANFASH:

> > Post if you get a chance, girl! Your story is an inspiration

and a

> real lesson in

> > perseverance.

> >

> > If you have any individual questions, you can email me at my

> address...edie_scratch.

> > I may not be back on the board for a while, but I'll post again

at

> the one year mark if I

> > don't get a chance to before.

> >

> > Thinking of you all, those who have had surgery and those

facing

> it. As my doc said: You'll

> > get through it. People do.

> >

> > Hugs to you all and a happy, healthy New Year,

> >

> > Edie

> >

>