Re: Diagnosis-pre-existing condition for insurance

[Guest guest]

Yes. That's something to consider. Of course, under the present system some insurance companies deny coverage for nearly anything. I've heard that migrains, acne, bunions, and spousal abuse are "pre-existing conditions", keeping people from getting insurance.

H.

Making a diagnosis of celiac official has one downside --- up until then it isn't on your file as a definitive diagnosis and doesn't affect your health insurance. Once it is a firm diagnosis, it can cause problems getting health insurance. Some people have been repeatedly denied.

-----Original Message-----

From: Bronwyn Syiek <bronwyn@...>

Sent: Wed, Sep 16, 2009 9:46 pm

Subject: Re: [ ] 1st Biopsy

Making a diagnosis of celiac official has one downside --- up until then it isn't on your file as a definitive diagnosis and doesn't affect your health insurance. Once it

is a firm diagnosis, it can cause problems getting health insurance. Some people have been repeatedly denied.

From:

Sent: Wed Sep 16 21:31:56 2009

Subject: Re: [ ] 1st Biopsy

A couple of years ago I had an endoscopy done at UCSF, by a very high-ranking doctor there. He told me that the IgA tTG test would give reliable results even for people who weren't eating gluten. I asked him three times, as I thought I must be hearing wrong. He kept me assuring me that this is true. I haven't found any evidence to back this up. I do read that this test has a much higher degree of accuracy than other tests.

I found one site that stated that "some physicians require than one eat gluten for a period of 2-4 weeks before testing." This sounds rather ambiguous -- some physicians.

Everything I've read, other than that, has indicated that gluten is necessary for testing to work.

H.

Per Dr. Greene, when I asked him a

similar question a few years back, there is NO way to get an official diagnosis

through biopsy (or any other method) o

nce you have been gluten free for that

long without going back on gluten

for a period of time.

-----Original Message-----

From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net>

Sent: Wed, Sep 16, 2009 9:06 pm

Subject: RE: [ ] 1st Biopsy

Per Dr. Greene, when I asked him a

similar question a few years back, there is NO way to get an official diagnosis

through biopsy (or any other method) once you have been gluten free for that

long without going back on gluten

for a period of time.

My advice? Don’t bother.

Who really needs the diagnosis anyway?

From: [mailto: ] On Behalf Of Louise Audell

Sent: Wednesday, September 16,

2009 2:41 PM

Celiac Bay Area

Subject: [ ] 1st

Biopsy

Hi:

I'm considering having my first biopsy for an official diagnosis for Celiac. I

had the blood test done years ago, and have been living GF and somewhat diary

free, all this time, but now I'd like to make the diagnosis official.

I've never had a biopsy before...any tips 'n tricks from anyone who's done

these? Questions to ask my doctor, th

ings I should ask for before having this

procedure done (like being knocked out, hah-hah!), and how does it work? Is it

painful? How long does it last? etc-etc.

And, will I have to do this again? As in, have an "annual biopsy".

Ugh.

Please advise...I'm a bit scared/nervous.

Louise

20

[Guest guest]

Spousal abuse? Really?

From: [mailto: ] On Behalf Of Harper

Sent: Wednesday, September 16,

2009 9:51 PM

Subject: Re: [ ]

Diagnosis-pre-existing condition for insurance

Yes. That's something to consider. Of course, under the

present system some insurance companies deny coverage for nearly anything. I've

heard that migrains, acne, bunions, and spousal abuse are " pre-existing

conditions " , keeping people from getting insurance.

H.

Making a diagnosis of celiac official has one downside --- up until

then it isn't on your file as a definitive diagnosis and doesn't affect your

health insurance. Once it is a firm diagnosis, it can cause problems getting

health insurance. Some people have been repeatedly denied.

-----Original

Message-----

From: Bronwyn Syiek <bronwynquinstreet>

Sent: Wed, Sep 16, 2009 9:46 pm

Subject: Re: [ ] 1st Biopsy

Making a diagnosis of celiac official has

one downside --- up until then it isn't on your file as a definitive diagnosis

and doesn't affect your health insurance. Once it is a firm diagnosis, it can

cause problems getting health insurance. Some people have been repeatedly

denied.

From:

Sent: Wed Sep 16 21:31:56 2009

Subject: Re: [ ] 1st

Biopsy

A couple of years ago I had an

endoscopy done at UCSF, by a very high-ranking doctor there. He told me that

the IgA tTG test

would give reliable results even for people who weren't eating gluten. I asked

him three times, as I thought I must be hearing wrong. He kept me assuring me

that this is true. I haven't found any evidence to back this up. I do read that

this test has a much higher degree of accuracy than other tests.

I found one site that stated that " some physicians require than one eat

gluten for a period of 2-4 weeks before testing. " This sounds rather

ambiguous -- some physicians.

Everything I've read, other than that, has indicated that gluten is necessary

for testing to work.

H.

Per Dr. Greene, when I asked him a similar question a few years

back, there is NO way to get an official diagnosis through biopsy (or any other

method) o nce you have been gluten free for that long without going back on gluten for a period

of time.

-----Original

Message-----

From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net>

Sent: Wed, Sep 16, 2009 9:06 pm

Subject: RE: [ ] 1st Biopsy

Per Dr. Greene, when I asked him a

similar question a few years back, there is NO way to get an official diagnosis

through biopsy (or any other method) once you have been gluten free for that

long without going back on gluten

for a period of time.

My advice? Don’t bother. Who

really needs the diagnosis anyway?

From: [mailto: ]

On Behalf Of Louise Audell

Sent: Wednesday, September 16,

2009 2:41 PM

Celiac Bay Area

Subject: [ ] 1st

Biopsy

Hi:

I'm considering having my first biopsy for an official diagnosis for Celiac. I

had the blood test done years ago, and have been living GF and somewhat diary free,

all this time, but now I'd like to make the diagnosis official.

I've never had a biopsy before...any tips 'n tricks from anyone who's done

these? Questions to ask my doctor, th ings I should ask for before having this

procedure done (like being knocked out, hah-hah!), and how does it work? Is it

painful? How long does it last? etc-etc.

And, will I have to do this again? As in, have an " annual biopsy " .

Ugh.

Please advise...I'm a bit scared/nervous.

Louise

20

[Guest guest]

I have no solid evidence, although I think I could get it. I'm almost certain that it was MoveOn.org that published material on this. I can backtrack and see if their statements on the subject are verifiable, if you want me to.

H.

Spousal abuse? Really?

-----Original Message-----

From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeogh@...>

Sent: Thu, Sep 17, 2009 7:09 am

Subject: RE: [ ] Diagnosis-pre-existing condition for insurance

Spousal abuse? Really?

From: [mailto: ] On Behalf Of Harper

Sent: Wednesday, September 16,

2009 9:51 PM

Subject: Re: [ ]

Diagnosis-pre-existing condition for insurance

Yes. That's something to consider. Of course, under the

present system some insurance companies deny coverage for nearly anything. I've

heard that migrains, acne, bunions, and spousal abuse are "pre-existing

conditions", keeping people from getting insurance.

H.

Making a diagnosis of celiac official has one downside --- up until

then it isn't on your file as a definitive diagnosis and doesn't affect your

health insurance. Once it is a firm diagnosis, it can cause problems getting

health insurance. Some people have been repeatedly denied.

-----Original

Message-----

From: Bronwyn Syiek <bronwynquinstreet>

Sent: Wed, Sep 16, 2009 9:46 pm

Subject: Re: [ ] 1st Biopsy

Making a diagnosis of celiac official has

one d

ownside --- up until then it isn't on your file as a definitive diagnosis

and doesn't affect your health insurance. Once it is a firm diagnosis, it can

cause problems getting health insurance. Some people have been repeatedly

denied.

From:

Sent: Wed Sep 16 21:31:56 2009

Subject: Re: [ ] 1st

Biopsy

A couple of years ago I had an

endoscopy done at UCSF, by a very high-ranking doctor there. He told me that

the IgA tTG test

would give reliable results even for people who weren't eating gluten. I asked

him three times, as I thought I must be hearing wrong. He kept me assuring me

that this is true. I haven't found any evidence to back this up. I do read that

this test has=2

0a much higher degree of accuracy than other tests.

I found one site that stated that "some physicians require than one eat

gluten for a period of 2-4 weeks before testing." This sounds rather

ambiguous -- some physicians.

Everything I've read, other than that, has indicated that gluten is necessary

for testing to work.

H.

Per Dr. Greene, when I asked him a similar question a few years

back, there is NO way to get an official diagnosis through biopsy (or any other

method) o nce you have been gluten free for that long without going back on gluten for a period

of time.

-----Original

Message-----

From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net>

Sent: Wed, Sep=2

016, 2009 9:06 pm

Subject: RE: [ ] 1st Biopsy

Per Dr. Greene, when I asked him a

similar question a few years back, there is NO way to get an official diagnosis

through biopsy (or any other method) once you have been gluten free for that

long without going back on gluten

for a period of time.

My advice? Don’t bother. Who

really needs the diagnosis anyway?

From: [mailto: ]

On Behalf Of Louise Audell

Sent: Wednesday, September 16,

2009 2:41 PM

Celiac Bay Area

Subject: [ ] 1st

Biopsy

Hi:

I'm considering having my first biopsy for an official diagnosis for Celiac. I

had the blood test done years ago, and have been living GF and somewhat diary free,

all this time, but now I'd like to make the diagnosis official.

I've never had a biopsy before...any tips 'n tricks from anyone who's done

these? Questions to ask

my doctor, th ings I should ask for before having this

procedure done (like being knocked out, hah-hah!), and how does it work? Is it

painful? How long does it last? etc-etc.

And, will I have to do this again? As in, have an "annual biopsy".

Ugh.

Please advise...I'm a bit scared/nervous.

Louise

20

[Guest guest]

Yeah, would you? That would be something

I would be interested in following up with. Like starting a letter campaign or

something.

From: [mailto: ] On Behalf Of Harper

Sent: Thursday, September 17, 2009

7:36 AM

Subject: Re: [ ]

Diagnosis-pre-existing condition for insurance

I have no solid evidence, although I think I could get

it. I'm almost certain that it was MoveOn.org that published material on

this. I can backtrack and see if their statements on the subject are

verifiable, if you want me to.

H.

Spousal abuse? Really?

-----Original

Message-----

From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net>

Sent: Thu, Sep 17, 2009 7:09 am

Subject: RE: [ ] Diagnosis-pre-existing condition for

insurance

Spousal abuse? Really?

From: [mailto: ] On Behalf Of Harper

Sent: Wednesday, September 16,

2009 9:51 PM

Subject: Re: [ ]

Diagnosis-pre-existing condition for insurance

Yes. That's something to consider. Of course, under the

present system some insurance companies deny coverage for nearly anything. I've

heard that migrains, acne, bunions, and spousal abuse are " pre-existing

conditions " , keeping people from getting insurance.

H.

Making a diagnosis of celiac official has one downside --- up until

then it isn't on your file as a definitive diagnosis and doesn't affect your

health insurance. Once it is a firm diagnosis, it can cause problems getting

health insurance. Some people have been repeatedly denied.

-----Original Message-----

From: Bronwyn Syiek <bronwynquinstreet>

Sent: Wed, Sep 16, 2009 9:46 pm

Subject: Re: [ ] 1st Biopsy

Making a diagnosis of celiac official has

one d ownside --- up until then it isn't on your file as a definitive diagnosis

and doesn't affect your health insurance. Once it is a firm diagnosis, it can

cause problems getting health insurance. Some people have been repeatedly

denied.

From:

Sent: Wed Sep 16 21:31:56 2009

Subject: Re: [ ] 1st

Biopsy

A couple of years ago I had an endoscopy done at UCSF, by a

very high-ranking doctor there. He told me that the IgA tTG

test would give reliable

results even for people who weren't eating gluten. I asked him three times, as

I thought I must be hearing wrong. He kept me assuring me that this is true. I

haven't found any evidence to back this up. I do read that this test has=2 0a

much higher degree of accuracy than other tests.

I found one site that stated that " some physicians require than one eat

gluten for a period of 2-4 weeks before testing. " This sounds rather

ambiguous -- some physicians.

Everything I've read, other than that, has indicated that gluten is necessary

for testing to work.

H.

Per Dr. Greene, when I asked him a similar question a few years

back, there is NO way to get an official diagnosis through biopsy (or any other

method) o nce you have been gluten free for that long without going back on gluten for a period

of time.

-----Original Message-----

From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net>

Sent: Wed, Sep=2 016, 2009 9:06 pm

Subject: RE: [ ] 1st Biopsy

Per Dr. Greene, when I asked him a

similar question a few years back, there is NO way to get an official diagnosis

through biopsy (or any other method) once you have been gluten free for that

long without going back on gluten

for a period of time.

My advice? Don’t bother. Who

really needs the diagnosis anyway?

From: [mailto: ]

On Behalf Of Louise Audell

Sent: Wednesday, September 16,

2009 2:41 PM

Celiac Bay Area

Subject: [ ] 1st

Biopsy

Hi:

I'm considering having my first biopsy for an official diagnosis for Celiac. I had

the blood test done years ago, and have been living GF and somewhat diary free,

all this time, but now I'd like to make the diagnosis official.

I've never had a biopsy before...any tips 'n tricks from anyone who's done

these? Questions to ask my doctor, th ings I should ask for before having this

procedure done (like being knocked out, hah-hah!), and how does it work? Is it

painful? How long does it last? etc-etc.

And, will I have to do this again? As in, have an " annual biopsy " .

Ugh.

Please advise...I'm a bit scared/nervous.

Louise

20

[Guest guest]

I saw that in an MoveOn email too.  I didn't save the email, but MoveOn is very good about providing footnote references for all of their facts.-JoeOn Thu, Sep 17, 2009 at 7:58 AM, Lillyth Denaghy Keogh-Quillan <lillythdenaghykeogh@...> wrote:

 

Yeah, would you?  That would be something

I would be interested in following up with.  Like starting a letter campaign or

something.

 

From: [mailto: ] On Behalf Of Harper

Sent: Thursday, September 17, 2009

7:36 AM

Subject: Re: [ ]

Diagnosis-pre-existing condition for insurance

 

 

I have no solid evidence,  although I think I could get

it.  I'm almost certain that it was MoveOn.org that published material on

this. I can backtrack and see if their statements on the subject are

verifiable, if you want me to.

H.

Spousal abuse?  Really?

 

 

 

-----Original

Message-----

From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeogh@...>

Sent: Thu, Sep 17, 2009 7:09 am

Subject: RE: [ ] Diagnosis-pre-existing condition for

insurance

 

Spousal abuse?  Really?

 

From: [mailto: ] On Behalf Of Harper

Sent: Wednesday, September 16,

2009 9:51 PM

Subject: Re: [ ]

Diagnosis-pre-existing condition for insurance

 

 

Yes. That's something to consider. Of course, under the

present system some insurance companies deny coverage for nearly anything. I've

heard that migrains, acne, bunions, and spousal abuse are " pre-existing

conditions " , keeping people from getting insurance.

H.

Making a diagnosis of celiac official has one downside --- up until

then it isn't on your file as a definitive diagnosis and doesn't affect your

health insurance. Once it is a firm diagnosis, it can cause problems getting

health insurance. Some people have been repeatedly denied.

 

 

 

-----Original Message-----

From: Bronwyn Syiek <bronwyn@...>

Sent: Wed, Sep 16, 2009 9:46 pm

Subject: Re: [ ] 1st Biopsy

 

Making a diagnosis of celiac official has

one d ownside --- up until then it isn't on your file as a definitive diagnosis

and doesn't affect your health insurance. Once it is a firm diagnosis, it can

cause problems getting health insurance. Some people have been repeatedly

denied.

From:

Sent: Wed Sep 16 21:31:56 2009

Subject: Re: [ ] 1st

Biopsy

A couple of years ago I had an endoscopy done at UCSF, by a

very high-ranking doctor there. He told me that the  IgA tTG

test would give reliable

results even for people who weren't eating gluten. I asked him three times, as

I thought I must be hearing wrong. He kept me assuring me that this is true. I

haven't found any evidence to back this up. I do read that this test has=2 0a

much higher degree of accuracy than other tests.

I found one site that stated that " some physicians require than one eat

gluten for a period of 2-4 weeks before testing. " This sounds rather

ambiguous -- some physicians.

Everything I've read, other than that, has indicated that gluten is necessary

for testing to work.

H.

Per Dr. Greene, when I asked him a similar question a few years

back, there is NO way to get an official diagnosis through biopsy (or any other

method) o nce you have been gluten free for that long without going back on gluten for a period

of time.

 

 

 

-----Original Message-----

From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeogh@...>

Sent: Wed, Sep=2 016, 2009 9:06 pm

Subject: RE: [ ] 1st Biopsy

 

Per Dr. Greene, when I asked him a

similar question a few years back, there is NO way to get an official diagnosis

through biopsy (or any other method) once you have been gluten free for that

long without going back on gluten

for a period of time.

 

My advice?  Don’t bother.  Who

really needs the diagnosis anyway?

 

From: [mailto: ]

On Behalf Of Louise Audell

Sent: Wednesday, September 16,

2009 2:41 PM

Celiac Bay Area

Subject: [ ] 1st

Biopsy

 

 

Hi:

I'm considering having my first biopsy for an official diagnosis for Celiac. I had

the blood test done years ago, and have been living GF and somewhat diary free,

all this time, but now I'd like to make the diagnosis official.

I've never had a biopsy before...any tips 'n tricks from anyone who's done

these? Questions to ask my doctor, th ings I should ask for before having this

procedure done (like being knocked out, hah-hah!), and how does it work? Is it

painful? How long does it last? etc-etc.

And, will I have to do this again? As in, have an " annual biopsy " .

Ugh.

Please advise...I'm a bit scared/nervous.

Louise

 

 

20

[Guest guest]

MoveOn.org has such a campaign. They were asking people to call their representatives. I'll go back into my mail and dig it up for you. After that, if we want to correspond about it, we should do it off-group. You may use my address.

H.

Yeah, would you? That would be something

I would be interested in following up with. Like starting a letter campaign or

something.

-----Original Message-----

From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeogh@...>

Sent: Thu, Sep 17, 2009 7:58 am

Subject: RE: [ ] Diagnosis-pre-existing condition for insurance

Yeah, would you? That would be something

I would be interested in following up with. Like starting a letter campaign or

something.

From: [mailto: ] On Behalf Of Harper

Sent: Thursday, September 17, 2009

7:36 AM

Subject: Re: [ ]

Diagnosis-pre-existing condition for insurance

I have no solid evidence, although I think I could get

it. I'm almost certain that it was MoveOn.org that published ma

terial on

this. I can backtrack and see if their statements on the subject are

verifiable, if you want me to.

H.

Spousal abuse? Really?

-----Original

Message-----

From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net>

Sent: Thu, Sep 17, 2009 7:09 am

Subject: RE: [ ] Diagnosis-pre-existing condition for

insurance

Spousal abuse? Really?

From: [mailto: ] On Behalf Of Harper

Sent: Wednesday, September 16,

2009 9:51 PM

Subject: Re: [ ]

Diagnosis-pre-existing condition for insurance

Yes. That's something to consider. Of course, under the

present system some insurance companies deny coverage for nearly anything. I've

heard that migrains, acne, bunions, and spousal abuse are "pre-existing

conditions", keeping people from getting insurance.

H.

Making a diagnosis of celiac official has one downside --- up until

then it isn't on your file as a definitive diagnosis and doesn't affect your

health insurance. Once it is a firm diagnosis, it can cause problems getting

health insurance. Some people have been repeatedly denied.

-----Original Message-----

From: Bronwyn Syiek <bronwynquinstreet>

Sent: Wed, Sep 16, 2009 9:46 pm

Subject: Re: [ ] 1st Biopsy

Making a diagnosis of celiac official has

one d ownside --- up until then it isn't on your file as a definitive diagnosis

and doesn't affect your health insurance. Once it is a firm diagnosis, it can

cause problems getting health insurance. Some people have been repeatedly

denied.

From:

Sent: Wed Sep 16 21:31:56 2009

Subject: Re: [ ] 1st

Biopsy

A couple of years ago I had an endoscopy done at UCSF, by a

very high-ranking doctor there. He told me that the IgA tTG

test would give reliable

results even for people who weren't eating gluten. I asked him three times, as

I thought I must be hearing wrong. He kept me assuring me that this is true. I

haven't found any evidence to back this up. I do read that this test has=2 0a

much higher degree of accuracy than other tests.

I found one site that stated that "some physicians require than one eat

gluten for a period of 2-4 weeks before testing." This sounds rather

ambiguous -- some physicians.

Everything I've read, other than that, has indicated that gluten is necessary

for testing to work.

H.

Per Dr. Greene, when I asked him a similar question a few years

back, there is NO way to get an official diagnosis through biopsy (or any other

method) o nce you have been gluten free for that long without going back on gluten for a period

of time.

-----Original Message-----

From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net>

Sent: Wed, Sep=2 016, 2009 9:06 pm

Subject: RE: [ ] 1st Biopsy

Per Dr. Greene, when I asked him a

similar question a few years back, there is NO way to get an official diagnosis

through biopsy (or any other method) once you have been gluten free for that

long without going back on gluten

for a period of time.

=0

A

My advice? Don’t bother. Who

really needs the diagnosis anyway?

From: [mailto: ]

On Behalf Of Louise Audell

Sent: Wednesday, September 16,

2009 2:41 PM

Celiac Bay Area

Subject: [ ] 1st

Biopsy

=0

A

Hi:

I'm considering having my first biopsy for an official diagnosis for Celiac. I had

the blood test done years ago, and have been living GF and somewhat diary free,

all this time, but now I'd like to make the diagnosis official.

I've never had a biopsy before...any tips 'n tricks from anyone who's done

these? Questions to ask my doctor, th ings I should ask for before having this

procedure done (like being knocked out, hah-hah!), and how does it work? Is it

painful? How long does it last? etc-etc.

And, will I have to do this again? As in, have an "annual biopsy".

Ugh.

Please advise...I'm a bit scared/nervous.

Louise

20

[Guest guest]

Yes, I agree. I realized recently that I worked with the founder? many years ago -- not that this makes them automatically trustworthy! Still, everything I've checked on has had good references.

I'm in another AD group where the topic of insurance came up. In that group, we agreed that, although we don't discuss politics, this is a subject that affects our medical condition, our health.

Nevertheless, we probably should exercise some limitations on getting into any political areas on this. Now, I'd LOVE to jump into it, but I know it might cause some rifts and discomfort, so . . .

H.

I saw that in an MoveOn email too. I didn't save the email, but MoveOn is very good about providing footnote references for all of their facts.

-Joe

-----Original Message-----

From: Joe ez <joe@...>

Sent: Thu, Sep 17, 2009 8:01 am

Subject: Re: [ ] Diagnosis-pre-existing condition for insurance

=2

0 I saw that in an MoveOn email too. I didn't save the email, but MoveOn is very good about providing footnote references for all of their facts.

-Joe

On Thu, Sep 17, 2009 at 7:58 AM, Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net> wrote:

Yeah, would you? That would be something

I would be interested in following up with. Like starting a letter campaign or

something.

From: @gr

oups.com [mailto: ] On Behalf Of Harper

Sent: Thursday, September 17, 2009

7:36 AM

Subject: Re: [ ]

Diagnosis-pre-existing condition for insurance

I have no solid evidence, although I think I could get

it. I'm almost certain that it was MoveOn.org that published material on

this. I can backtrack and see if their statements on the subject are

verifiable, if you want me to.

H.

Spousal abuse? Really?

-----Original

Message-----

From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net>

Sent: Thu, Sep 17, 2009 7:09 am

Subject: RE: [ ] Diagnosis-pre-existing condition for

insurance

Spousal abuse? Really?

From: [mailto: ] On Behalf Of Harper

Sent: Wednesday, September 16,

2009 9:51 PM

Subject: Re: [ ]

Diagnosis-pre-existing condition for insurance

Yes. That's something to consider. Of course, under the

present system some insurance companies deny coverage for nearly anything. I've

heard that migrains, acne, bunions, and spousal abuse are "pre-existing

conditions", keeping people from getting insurance.

H.

Making a diagnosis of celiac official has one downside --- up until

then it isn't on your file as a definitive diagnosis and doesn't affect your

health insurance. Once it is a firm diagnosis, it can cause problems getting

health insurance. Some=2

0people have been repeatedly denied.

-----Original Message-----

From: Bronwyn Syiek <bronwynquinstreet>

Sent: Wed, Sep 16, 2009 9:46 pm

Subject: Re: [ ] 1st Biopsy

Making a diagnosis of celiac official has

one d ownside --- up until then it isn't on your file as a definitive diagnosis

and doesn't affect your health insurance. Once it is a firm diagnosis, it can

cause problems getting health insurance. Some people have been repeatedly

denied.

From:

Sent: Wed Sep 16 21:31:56 2009

Subject: Re: [ ] 1st

Biopsy

A couple of years ago I had an endoscopy done at UCSF, by a

very high-ranking doctor there. He told me that the IgA tTG

test would give reliable

results even for people who weren't eating gluten. I asked him three times, as

I thought I must be hearing wrong. He kept me assuring me that this is true. I

haven't found any evidence to back this up. I do read that this test has=2 0a

much higher degree of accuracy than other tests.

I found one site that stated that "some physicians require than one eat

gluten for a period of 2-4 weeks before testing." This sounds rather

ambiguous=2

0-- some physicians.

Everything I've read, other than that, has indicated that gluten is necessary

for testing to work.

H.

Per Dr. Greene, when I asked him a similar question a few years

back, there is NO way to get an official diagnosis through biopsy (or any other

method) o nce you have been gluten free for that long without going back on gluten for a period

of time.

-----Original Message-----

From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeoghcomcast (DOT) net>

Sent: Wed, Sep=2 016, 2009 9:06 pm

Subject: RE: [ ] 1st Biopsy

=0

A

Per Dr. Greene, when I asked him a

similar question a few years back, there is NO way to get an official diagnosis

through biopsy (or any other method) once you have been gluten free for that

long without going back on gluten

for a period of time.

My advice? Don’t bother. Who

really needs the diagnosis anyway?

From: [mailto: ]

On Behalf Of Louise Audell

Sent: Wednesday, September 16,

2009 2:41 PM

Celiac Bay Area

Subject: [ ] 1st

Biopsy

Hi:

I'm considering having my first biopsy for an official diagnosis for Celiac. I had

the blood test done years ago, and have been living GF and somewhat diary free,

all this time, but now I'd like to make the diagnosis official.

I've never had a biopsy before...any tips 'n tricks from anyone who's done

these? Questions to ask my doctor, th ings I should ask for before having this

procedure done (like being knocked out, hah-hah!), and how does it work? Is i

t

painful? How long does it last? etc-etc.

And, will I have to do this again? As in, have an "annual biopsy".

Ugh.

Please advise...I'm a bit scared/nervous.

Louise

20

[Guest guest]

Spousal abuse is a denial for health insurance because many times one or both parties or dependants end up in the ER at a rate much higher than non spousal abused parties. I work at a domsetic violence shelter as an advocate.

We se it all the time. People get dropped after gtting abused, and we cover them for 3 months and help with healing. It was a client who told me about CELIAC and she said I look sick, do you eat GLUTEN? I had no idea what she was talking about.

Anyways. I know this is off topic and I wont go further but I see it all the time. And its very difficult. =/

gem=)

Gemma ' Locatelli

"Be the change you want to see in the world!" -Gandhi

From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeogh@...>Subject: RE: [ ] Diagnosis-pre-existing condition for insurance Date: Thursday, September 17, 2009, 7:58 AM

Yeah, would you? That would be something I would be interested in following up with. Like starting a letter campaign or something.

From: [mailto: ] On Behalf Of HarperSent: Thursday, September 17, 2009 7:36 AM Subject: Re: [ ] Diagnosis-pre- existing condition for insurance

I have no solid evidence, although I think I could get it. I'm almost certain that it was MoveOn.org that published material on this. I can backtrack and see if their statements on the subject are verifiable, if you want me to.H.

Spousal abuse? Really?

-----Original Message-----From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeogh @comcast. net> Sent: Thu, Sep 17, 2009 7:09 amSubject: RE: [ ] Diagnosis-pre- existing condition for insurance

Spousal abuse? Really?

From: [mailto: celiacbayar ea ] On Behalf Of HarperSent: Wednesday, September 16, 2009 9:51 PM Subject: Re: [ ] Diagnosis-pre- existing condition for insurance

Yes. That's something to consider. Of course, under the present system some insurance companies deny coverage for nearly anything. I've heard that migrains, acne, bunions, and spousal abuse are "pre-existing conditions", keeping people from getting insurance.H.

Making a diagnosis of celiac official has one downside --- up until then it isn't on your file as a definitive diagnosis and doesn't affect your health insurance. Once it is a firm diagnosis, it can cause problems getting health insurance. Some people have been repeatedly denied.

-----Original Message-----From: Bronwyn Syiek <bronwynquinstreet (DOT) com> Sent: Wed, Sep 16, 2009 9:46 pmSubject: Re: [ ] 1st Biopsy

Making a diagnosis of celiac official has one d ownside --- up until then it isn't on your file as a definitive diagnosis and doesn't affect your health insurance. Once it is a firm diagnosis, it can cause problems getting health insurance. Some people have been repeatedly denied.

From: Sent: Wed Sep 16 21:31:56 2009Subject: Re: [ ] 1st Biopsy

A couple of years ago I had an endoscopy done at UCSF, by a very high-ranking doctor there. He told me that the IgA tTG test would give reliable results even for people who weren't eating gluten. I asked him three times, as I thought I must be hearing wrong. He kept me assuring me that this is true. I haven't found any evidence to back this up. I do read that this test has=2 0a much higher degree of accuracy than other tests. I found one site that stated that "some physicians require than one eat gluten for a period of 2-4 weeks before testing." This sounds rather ambiguous -- some physicians. Everything I've read, other than that, has indicated that gluten is necessary for testing to work.H.

Per Dr. Greene, when I asked him a similar question a few years back, there is NO way to get an official diagnosis through biopsy (or any other method) o nce you have been gluten free for that long without going back on gluten for a period of time.

-----Original Message-----From: Lillyth Denaghy Keogh-Quillan <lillythdenaghykeogh @comcast. net> Sent: Wed, Sep=2 016, 2009 9:06 pmSubject: RE: [ ] 1st Biopsy

Per Dr. Greene, when I asked him a similar question a few years back, there is NO way to get an official diagnosis through biopsy (or any other method) once you have been gluten free for that long without going back on gluten for a period of time.

My advice? Don’t bother. Who really needs the diagnosis anyway?

From: [mailto:celiacbayar ea] On Behalf Of Louise AudellSent: Wednesday, September 16, 2009 2:41 PMCeliac Bay AreaSubject: [ ] 1st Biopsy

Hi:I'm considering having my first biopsy for an official diagnosis for Celiac. I had the blood test done years ago, and have been living GF and somewhat diary free, all this time, but now I'd like to make the diagnosis official.I've never had a biopsy before...any tips 'n tricks from anyone who's done these? Questions to ask my doctor, th ings I should ask for before having this procedure done (like being knocked out, hah-hah!), and how does it work? Is it painful? How long does it last? etc-etc.And, will I have to do this again? As in, have an "annual biopsy". Ugh.Please advise...I'm a bit scared/nervous.Louise

20