(unknown)

September 2, 2006

There is an Older Plagio website that you should check out:

OlderPlag/

The parents on that site should be able to give you some good insight

regarding having an older child with plagio.

Molly

California

Nicolas, 10.5 months, tort & plagio, STARband 4/25/06

, 3.5

, 6.5

(unknown)

My son was diagnosed with plagiocephaly and torticollis at around 7 months.

I had repeatedly complained to his pediatrician that something was not right

with his skull shape, and he always held his head tilted to the right. When

they did the CT scan, they were pretty sure it was craniosynostosis. Well,

thankfully, after visits to 3 neurosurgeons, they ruled that out and said he

would need to be fitted for a helmet, and receive PT for the torticollis. We

tried for 7 months to get our insurance to cover the expense of having the

helmet made, but it was always no. They wouldn't even cover the PT! I was

told by one of the neurosurgeons that after 12 months or so, the helmet sort

of loses its effectiveness... so we gave up. I had called so many nonprofit

organizations and even tried fundraising...but nothing worked. His head is

still significantly deformed, and I really just want to know what

implications this could have on his development later on... He seems to be

developing fine (he is 23 months now) but I did see something on Discovery

Health Channel that caused me to start worrying all over- these twin boys (4

yrs old) were undergoing plastic surgery to fix their skull deformities

because they were suffering from extreme headaches, poor vision, etc... is

there anyone out there who can tell me if there are significant problems

that could develop? And if so, what can I do about them? I would really like

Josiah to have surgery to correct the deformity... but how?

For more plagio info

November 9, 2006

I think that it is based on parent's income. You

could call the SS office and ask what that level is.

--- Jacki Palumbo <jackeee1002@...> wrote:

> Hello!! Has anyone had any luck filing and

> receiving social security disability for their

> autistic child? Most people I have talked with

> about this have been denied. I am just looking for

> a little help somewhere. Our insurance does not

> have the best coverage concerning autism, so we pay

> everything out of pocket. Thanks for your help.

>

> jacki

>

November 9, 2006

You are right it is based on parents income. And it's generally the

same guidelines financially you would have to meet to qualify for any

type of state/county support, or at least that is what we have found.

From Social Security's website:

Supplemental Security Income (SSI) payments for children with

disabilities

SSI makes monthly payments to people with low income and limited

resources who are 65 or older, or blind or disabled. Your child under

age 18 can qualify if he or she meets Social Security's definition of

disability for children, and if his or her income and resources fall

within the eligibility limits. The amount of the SSI payment is

different from one state to another because some states add to the

SSI payment. Your local Social Security office can tell you more

about your state's total SSI payment.

SSI rules about income and resources

When we decide if your child can get SSI, we consider your child's

income and resources. We also consider the income and resources of

family members living in the child's household. These rules apply if

your child lives at home. They also apply if he or she is away at

school but returns home from time to time and is subject to your

control.

If your child's income and resources, or the income and resources of

family members living in the child's household, are more than the

amount allowed, we will deny the child's application for SSI

payments.

We limit the monthly SSI payment to $30 when a child is in a medical

facility where health insurance pays for his or her care.

SSI rules about disability

Your child must meet all of the following requirements to be

considered disabled and therefore eligible for SSI:

The child must not be working and earning more than $860 a month in

2006. (This earnings amount changes every year.) If he or she is

working and earning that much money, we will find that your child is

not disabled.

The child must have a physical or mental condition, or a combination

of conditions, that results in " marked and severe functional

limitations. " This means that the condition(s) must very seriously

limit your child's activities.

The child's condition(s) must have lasted, or be expected to last, at

least 12 months; or must be expected to result in death.

If your child's condition(s) results in " marked and severe functional

limitations " for at least 12 continuous months, we will find that

your child is disabled. But if it does not result in those

limitations, or does not last for at least 12 months, we will find

that your child is not disabled.

Providing information about your child's condition

When you apply for benefits for your child, we will ask you for

detailed information about the child's medical condition and how it

affects his or her ability to function on a daily basis. We also will

ask you to give permission for the doctors, teachers, therapists and

other professionals who have information about your child's condition

to send the information to us.

If you have any of your child's medical or school records, please

bring them with you. This will help speed up the decision on your

application.

What happens next?

We send all of the information you give us to the Disability

Determination Services in your state. Doctors and other trained staff

in that state agency will review the information, and will request

your child's medical and school records, and any other information

needed to decide if your child is disabled.

If the state agency cannot make a disability decision using only the

medical information, school records and other facts they have, they

may ask you to take your child for a medical examination or test. We

will pay for the exam or test.

We may make immediate SSI payments to your child

It can take three to five months for the state agency to decide if

your child is disabled. However, we consider certain medical

conditions so limiting that we expect any one of them to disable a

child. In these cases, we make SSI payments right away and for up to

six months while the state agency decides if your child is disabled.

Following are some of those conditions:

HIV infection

Total blindness

Total deafness

Cerebral palsy

Down syndrome

Muscular dystrophy

Severe mental retardation (child age 7 or older)

Birth weight below two pounds, 10 ounces

If your child has one of the limiting conditions that is expected to

disable a child, he or she will get SSI payments right away. However,

the state agency may finally decide that your child's disability is

not severe enough for SSI. If that happens, you will not have to pay

back the SSI payments that your child got.

SSI disability reviews

Once your child starts receiving SSI, the law requires that we review

your child's medical condition from time to time to verify that he or

she is still disabled. This review must be done:

At least every three years for children younger than age 18 whose

conditions are expected to improve; and

By age 1 for babies who are getting SSI payments because of their low

birth weight, unless we determine their medical condition is not

expected to improve by their first birthday and we schedule the

review for a later date.

We may perform disability reviews for other children, even if their

conditions are not expected to improve. When we do a review, you must

present evidence that your child is and has been receiving treatment

that is considered medically necessary for your child's medical

condition.

What happens when your child turns age 18

For disability purposes in the SSI program, a child becomes an adult

at age 18, and we use different medical and nonmedical rules when

deciding if an adult can get SSI disability payments. For example, we

do not count the income and resources of family members when deciding

whether an adult meets the financial limits for SSI. We count only

the adult's income and resources. We also use the disability rules

for adults when deciding whether an adult is disabled.

If your child is already receiving SSI payments, we must review the

child's medical condition when he or she turns age 18. We usually do

this review during the one-year period that begins on your child's

18th birthday. We will use the adult disability rules to decide

whether your 18-year-old is disabled.

If your child was not eligible for SSI before his or her 18th

birthday because you and your spouse had too much income or

resources, he or she may become eligible for SSI at age 18.

For more information, ask for Supplemental Security Income (SSI)

(Publication No. 05-11000).

>

> > Hello!! Has anyone had any luck filing and

> > receiving social security disability for their

> > autistic child? Most people I have talked with

> > about this have been denied. I am just looking for

> > a little help somewhere. Our insurance does not

> > have the best coverage concerning autism, so we pay

> > everything out of pocket. Thanks for your help.

> >

> > jacki

> >

>

March 17, 2007

Hi

Have ya had you levels checked for the following:

B 12 and Thiamine

Potassium

Magnesium

Iron ( anemic)

When ever the husbands levels are low he "Falls into a black hole"

He now gets monthly shots of B12 and Thiamine and takes Potassium

Seems to help

Karolyn

-------Original Message-------

From: jeanne

Date: 3/16/2007 9:14:50 AM

Rheumatoid Arthritis

Subject: (unknown)

how is eveyones energy level-i have none - all i want to do is sleep -

is anyone taking anything for energy - i hate being like this -the meds

help with the pain but i just cant get motivated to do anything

March 17, 2007

Karolyn,

I really love your spirit!!! I have recently renewed my faith, and rededicated my life to our Lord and it is so refreshing to find someone who is proud of letting everyone know that our God is Great!!! It really makes me feel good to know that there are still Christians out there, after all, I think that is the best medicine for this horrible disease that we all have.

Thanks again and May God bless you,

Gloria in Ok.>> Hi > Have ya had you levels checked for the following: > B 12 and Thiamine > Potassium > Magnesium > Iron ( anemic) > > When ever the husbands levels are low he "Falls into a black hole" > He now gets monthly shots of B12 and Thiamine and takes Potassium > Seems to help > Karolyn > > -------Original Message------- > > From: jeanne > Date: 3/16/2007 9:14:50 AM > Rheumatoid Arthritis > Subject: (unknown) > > how is eveyones energy level-i have none - all i want to do is sleep - > is anyone taking anything for energy - i hate being like this -the meds > help with the pain but i just cant get motivated to do anything > > > >

March 17, 2007

I don't have any energy either. I would like to know if anyone has solved this problem.

Vicki

----- Original Message ----From: jeanne <jeanneteter@...>Rheumatoid Arthritis Sent: Friday, March 16, 2007 10:08:25 AMSubject: (unknown)

how is eveyones energy level-i have none - all i want to do is sleep - is anyone taking anything for energy - i hate being like this -the meds help with the pain but i just cant get motivated to do anything

Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Autos' Green Center.

March 17, 2007

I have days like that. But not all the time though. Susie Vicki Hoyt <dvhoyt@...> wrote: I don't have any energy either. I would like to know if anyone has solved this problem. Vicki ----- Original Message ----From: jeanne <jeannetetersbcglobal (DOT) net>Rheumatoid Arthritis Sent: Friday, March 16, 2007 10:08:25 AMSubject: (unknown) how

is eveyones energy level-i have none - all i want to do is sleep - is anyone taking anything for energy - i hate being like this -the meds help with the pain but i just cant get motivated to do anything Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Autos' Green Center.

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March 17, 2007

I have found that since I started taking Humira injections, I have a serious lack of energy. But, at the same time I can't sleep....its weird though. I started taking an extra vitamin B complex pill every day and it seems like it is helping. in WV suzette ridgeway <cat_lady20042003@...> wrote: I have days like that. But not

all the time though. Susie Vicki Hoyt <dvhoyt > wrote: I don't have any

energy either. I would like to know if anyone has solved this problem. Vicki ----- Original Message ----From: jeanne <jeannetetersbcglobal (DOT) net>Rheumatoid Arthritis Sent: Friday, March 16, 2007 10:08:25 AMSubject: (unknown) how is eveyones energy level-i have none - all i want to do is sleep - is anyone taking anything for energy - i hate being like this -the meds help with the pain but i just cant get motivated to do anything Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Autos' Green Center. We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list.

Bored stiff? Loosen up...Download and play hundreds of games for free on Games.

March 18, 2007

I had the same exact thing when I first started taking Humira injections. It lasted for several months. Then one day it felt like it lifted. Now if I do too much I feel it - like I've hit a wall - exhausted but not sleepy. So I try to marshal my energy - if I know we're going out at night I try to build in some rest time in the afternoon. It's not always possible. But the " fatigue " is what finally convinced my rheumy to approve a temporary handicapped parking placard. He also sent me to a sleep doctor who determined it was not sleep related.

It was very frustrating - I had several months where all I could do was go to work and come home. I couldn't shop, cook, go out with friends, go to the movies, anything. I do have some energy back but it does still hit me. I can't enjoy whatever it is we're doing. I don't feel like I can safely drive. I always think about logistics with whatever's happening in case it hits.

susanOn 3/17/07, Gleason <gleasongirl76@...> wrote:

I have found that since I started taking Humira injections, I have a serious lack of energy. But, at the same time I can't sleep....its weird though. I started taking an extra vitamin B complex pill every day and it seems like it is helping. in WV suzette ridgeway <cat_lady20042003@

> wrote: I have days like that. But not

all the time though. Susie

Vicki Hoyt <dvhoyt@...> wrote:

I don't have any

energy either. I would like to know if anyone has solved this problem. Vicki

----- Original Message ----From: jeanne <jeanneteter@...>Rheumatoid Arthritis

Sent: Friday, March 16, 2007 10:08:25 AMSubject: (unknown) how is eveyones energy level-i have none - all i want to do is sleep - is anyone taking anything for energy - i hate being like this -the meds help with the pain but i just cant get motivated to do anything Looking for earth-friendly autos? Browse Top Cars by " Green Rating "

at Autos' Green Center. We won't tell. Get more on

shows you hate to love(and love to hate): TV's Guilty Pleasures list.

Bored stiff? Loosen up...

Download and play hundreds of games for free on Games.

March 18, 2007

Just chiming in here. I am listless and tired all the time. Since I take steriod, I find I am most energenic after taking that and having something to eat. I have a three or four hour energy window and then I hit a wall. I take a mega multi vitamin which seems to help a little. My RD says its the disease itself. The day I take MTX is a lost day for me completely. You are not alone here. Hugs, Deborah

On 3/17/07, Gleason <gleasongirl76@...> wrote:

I have found that since I started taking Humira injections, I have a serious lack of energy. But, at the same time I can't sleep....its weird though. I started taking an extra vitamin B complex pill every day and it seems like it is helping.

in WV

suzette ridgeway <cat_lady20042003 > wrote:

I have days like that. But not all the time though.

Susie

Vicki Hoyt <dvhoyt@...> wrote:

I don't have any energy either. I would like to know if anyone has solved this problem.

Vicki

----- Original Message ----From: jeanne <jeanneteter@...

>Rheumatoid Arthritis Sent: Friday, March 16, 2007 10:08:25 AMSubject: (unknown)

how is eveyones energy level-i have none - all i want to do is sleep - is anyone taking anything for energy - i hate being like this -the meds help with the pain but i just cant get motivated to do anything

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Autos' Green Center.

We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list.

Bored stiff? Loosen up...

Download and play hundreds of games for free on Games.

May 2, 2007

HI , My baby is 7 months old ( girl) with brach. and plagio. She was 8 weeks preemie. She JUST starting grabbing at things, and when it started, st was full force! :) Every baby has their own timing. If you feel concerned, talk to your Ped. They will let you know if she is too far behind. She sounds great to me. Plus, I am sure the tort has something to do with it. She'll get there. count your blessings, they grow up to fast:( llcoler@... wrote: HI - this is again - were any of your kids not grabbing things at 5.75 mos. My friend's daughter is the same age as my baby - the only diff is my girl's plagio/tort - and her daughter is grabbing things a bunch, transfering from hand to hand and totally into play - my baby is not!!!!!!

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May 2, 2007

I don't recall when my son started grabbing things but I don't think

it was as early as 5-6 months. If you are concerned, ask your ped.

My son was born the day before his due date. He just had plagio, no

tort.

HI - this is

again - were any of your kids not grabbing things at 5.75 mos.

My friend's daughter is the same age as my baby - the only diff is

my girl's plagio/tort - and her daughter is grabbing things a bunch,

transfering from hand to hand and totally into play - my baby is

not!!!!!!

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Autos.

>

June 17, 2008

Dear Marcia- As long as you have doctors records, especially your RD and have been steadily treated for RA and if your surgery is from erosion due to RA then you should call your local disability specialist for a consult when you are feeling better. Scar tissue is one of the leading causes of disability after a surgery. 11 weeks is not nearly enough time to heal. Give your body time to heal, at least four months. Its only been two months. You can go back to work if and when you are not in pain. Let the surgeon be in your body for a day and then tell him to go to work. Bone fusion is a serious thing. Just give yourself time. If your RD says you have degenerative disease which from the spinal fusion I would say YES, then you do have a case and can sue for disability. Try looking up naltrexone. Its a beta endorphin and might ease the pain and anxiety enough to help you sleep. Email me anytime. Yours, Deborah

On Tue, Jun 17, 2008 at 8:40 AM, Marcia Stoyle <marciastoyle@...> wrote:

Hi, Deborah! You mentioned filing for Disability to . Can you do so, even if none of your doctors have actually said, " No more working for you. " ??? I am home recovering from spinal fusion, and I am not doing well. Eleven weeks post-op, and in daily pain; living on neurontin and hydrocodone; can't sleep more than four hours a night. The surgeon wants me to go back to work as of the four month mark. I don't see how I am going to do this....thanks! gentle hugs! Marcia

June 26, 2008

,

I got both your messages and you are

posting quite well. I’m an 80 year old man in Washington State.

I’ve got another suggestion for getting a support group. Maybe you need

to start your own and that way you can help shape what it does. Perhaps a

letter to the editor of your local paper or maybe a phone call to the paper

would let people know you want to start a group. I have no idea how a support

group functions because I’ve never belonged to one but maybe someone here

can suggest how to go about forming one. My guess is that it is mostly a

social group that just meets to talk for an hour or two every week or so. Also

if you want to talk more here, feel free to post whatever you want to and it is

likely that someone will respond. You are important to us and we would like to

help if we can. God bless.

Harold

From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of Elliott

Sent: Wednesday, June 25, 2008

10:32 PM

Rheumatoid Arthritis

Subject:

(unknown)

Hello Herald

thank you for caring , i was sending you a note, but do not know if i

pushed the right butten, as i am new at this , you have no idea, what it means

to me , knowing i am not all alone , and have some support from you guys, that

is the only support i have in this world

,_._,___

June 26, 2008

Dear harold I dont know why I keep getting your mesages I belong to an arthrits forum in the UK arthritiscare.org.uk you are welcome to post on there but not privately to me thanks you Ivor

----- Original Message ----From: Harold Van Tuyl <hvantuyl@...>Rheumatoid Arthritis Sent: Thursday, 26 June, 2008 7:15:49 AMSubject: RE: (unknown)

,

I got both your messages and you are posting quite well. Iâ€™m an 80 year old man in Washington State . Iâ€™ve got another suggestion for getting a support group. Maybe you need to start your own and that way you can help shape what it does. Perhaps a letter to the editor of your local paper or maybe a phone call to the paper would let people know you want to start a group. I have no idea how a support group functions because Iâ€™ve never belonged to one but maybe someone here can suggest how to go about forming one. My guess is that it is mostly a social group that just meets to talk for an hour or two every week or so. Also if you want to talk more here, feel free to post whatever you want to and it is likely that someone will respond. You are important to us and we would like to help if we

can. God bless.

Harold

From: rheumatoid_arthriti sgroups (DOT) com [mailto: rheumatoid_arthriti sgroups (DOT) com ] On Behalf Of ElliottSent: Wednesday, June 25, 2008 10:32 PMrheumatoid_arthriti sgroups (DOT) comSubject:[rheumatoid_ arthritis] (unknown)

Hello Herald

thank you for caring , i was sending you a note, but do not know if i pushed the right butten, as i am new at this , you have no idea, what it means to me , knowing i am not all alone , and have some support from you guys, that is the only support i have in this world

,_._,___

Not happy with your email address?

Get the one you really want - millions of new email addresses available now at

June 26, 2008

Just wanted to note, there are TWO 's here now. I will therefore start posting as S. Thanks.----- Original Message -----From: Elliott <tobytoby99350@...>Date: Thursday, June 26, 2008 1:31Subject: (unknown)Rheumatoid Arthritis > Hello Herald > thank you for caring , i was sending you a note, but do not know > if i pushed the right butten, as i am new at this , you have no > idea, what it means to me , knowing i am not all alone , and > have some support from you guys, that is the only support i have > in this world> > > > > > , many churches or faith-based groups have support groups > that would welcome you. Also your local hospital may have a > social services department that could put you in contact with an > appropriate local support group. Your city, county, or state > social services agencies may be able to suggest support groups. > Please don’t give up. Meeting in person would be better than a > support group but you can get what support we can give by coming > here. I hope you start feeling better. God bless.> > > ________________________________> > From:rheumatoid_arthriti sgroups (DOT) com [mailto: > rheumatoid_arthriti sgroups (DOT) com ] On Behalf Of Marika> Sent: Wednesday, June 25, 2008 3:49 PM> rheumatoid_arthriti sgroups (DOT) com> Subject:[rheumatoid_ arthritis] Dear Elizbeth> > >Dear Elizbeth> Thank you for your kind words, my biggest problem is my > lonelynessi > have to koop with i have a little dog, and he is still keeping > me > going, otherwise who knows what would become of me. we dont have > any > support groups here whatsoever, so i just have to struggle all > aloneas best as i can.> Thank you for caring> > _,_._,___ > > >

June 26, 2008

I noticed that too LOL I had to look at the email address to see which marie was writing.

From: and Schulz <snooksmama@...>Subject: Re: (unknown)Rheumatoid Arthritis Date: Thursday, June 26, 2008, 7:12 AM

Just wanted to note, there are TWO 's here now. I will therefore start posting as S. Thanks.----- Original Message -----From: Elliott <tobytoby99350>Date: Thursday, June 26, 2008 1:31Subject: [rheumatoid_ arthritis] (unknown)rheumatoid_arthriti sgroups (DOT) com> Hello Herald > thank you for caring , i was sending you a note, but do not know > if i pushed the right butten, as i am new at this , you have no > idea, what it means to me , knowing i am not all alone , and > have some support from you guys, that is the only support i have > in this world> > > > > > , many churches or faith-based groups have support groups > that would welcome you. Also your local hospital may have a > social services department that could put you in contact with an > appropriate local

support group. Your city, county, or state > social services agencies may be able to suggest support groups. > Please don¢t give up. Meeting in person would be better than a > support group but you can get what support we can give by coming > here. I hope you start feeling better. God bless.> > > ____________ _________ _________ __> > From:rheumatoid_ arthriti sgroups (DOT) com [mailto: > rheumatoid_arthriti sgroups (DOT) com ] On Behalf Of Marika> Sent: Wednesday, June 25, 2008 3:49 PM> rheumatoid_arthriti sgroups (DOT) com> Subject:[rheumatoid _ arthritis] Dear Elizbeth> > >Dear Elizbeth> Thank you for your kind words, my biggest problem is my > lonelynessi > have to koop with i have a little dog, and he is still keeping > me > going, otherwise who knows what

would become of me. we dont have > any > support groups here whatsoever, so i just have to struggle all > aloneas best as i can.> Thank you for caring> > _,_._,___ > > >

July 30, 2008

http://www.aginghealthier.com/blog/category/product-reviewsupdates/

I have seen a lot of testimonials about

this and have seen references to clinical trials. However, I haven’t

found links to where the actual medication has been tested at all. They do

refer to clinical trials involving some components of the medication but there

is no information about the dose in the clinical trials compared to the dose in

the medicine. Many of the testimonials are published by people trying to sell

the product and I don’t trust this kind of testimonial. Many of the

components are generally thought of as being good for osteoarthritis but not

for rheumatoid arthritis. I would like to know a lot more about this product

before spending my money on it. God bless.

Harold

From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of yurdagul sozener

Sent: Sunday, July 27, 2008 7:39

AM

Rheumatoid Arthritis

Subject:

(unknown)

Hi all friends,

I would like to know what Regenicare is.

I have RA., I don't take any medicine. I

use only painkiller. Sometimes ý can't stand the pain and than go to

somewhere which is no humid.

In my opinion this ilness is up to the

wheather. Ýf wheather is dry and sunny ý am okey if not I am bad.

I went many times to the doctors. They gave me lots

of medicines but it didn't work. Medicines made my stomace killed. For that

reason I refused all the medicine and doctors.

In this ilness very importing where you live.

Yurdagül

___

July 30, 2008

Dear Yurdagul- Regenicare is an Osteo Arthritis Supplement. This is not a recognized medication for RA. It is a blend of Glucosamine, Chondroitin and MSM. This helps mobility in people with stiff joints that have degenerated due to age. RA is a biological process where your own immune system attacks your joints. Your body sees itself as an infection and causes overactive white blood cells to flood your system causing inflammation, pain and over a short period of time left untreated causes damage to your joints leading to disability. I have been on a biologic which is given via I.V. infusion and does not effect the stomach. A biologic interferes with the inflammation process of the disease thereby reducing the pain and disability associated with it. For me, having RA means I have to be on a biologic all the time. My pain causes severe disability, fever and robs me of all quality of life. Without it, I would be unable to move at all. If your disease is mild and or moderate and not severe, then you may only be affected when there is a low pressure system. Yours, Deborah

On Sun, Jul 27, 2008 at 11:38 AM, yurdagul sozener <yursozener@...> wrote:

Hi all friends,

I would like to know what Regenicare is.

I have RA., I don't take any medicine. I use only painkiller. Sometimes ý can't stand the pain and than go to somewhere which is no humid.

In my opinion this ilness is up to the wheather. Ýf wheather is dry and sunny ý am okey if not I am bad.

I went many times to the doctors. They gave me lots of medicines but it didn't work. Medicines made my stomace killed. For that reason I refused all the medicine and doctors.

In this ilness very importing where you live.

Yurdagül

kullaniyor musunuz?

Istenmeyen postadan biktiniz mi? Istenmeyen postadan en iyi korunma Posta'dahttp://tr.mail.

February 13, 2009

I have suffer from progressive RA, I asked my rheumy about yoga he said not to try it so I asked about Tai' chi he has no problem with this one, so I went out an bought it used it maybe 3 times since I got it but when I was using it I did find that my wrists an shoulders didn't hurt as much, I also asked about crafts like cross stitch he told me I could that cause it keeps the hands moving. Just thought I would put my 2 cents in.

From: kimandnoel <kimandnoel@...>Rheumatoid Arthritis Sent: Thursday, February 12, 2009 2:15:14 PMSubject: (unknown)

i agree that warming up is a necessity but we also cant take that too far. i had always done yoga and suddenly it makes me flare. i went to a physical therapist for a slipped disc (not ra related) and he told me any over stretching or over use can start the inflammation process. i can no longer do yoga or run but i can lift weights...when my wrists and hands are feeling good, and do light stretching> >> > hit two points I want to address. First, we seem to be really > good at, getting overuse injuries, pushing, pushing just to get > through the day. > > My husband says soccer great, Mia Hamm told an interviewer she > needs to stretch out about 15 minutes before playing now. "I used to > warm up just by tying my shoe laces!" This is important: WE NEED > TO WARM UP and condition for any activity, and cool down.> > Flexibility and strength

are our friends. This year I added > balance to my friends list!> > Ice packs after over use are also our friends. I forget the > notation, but biochemically, the ice changes the muscle fluids to a > more soluble liquid, which means it goes away sooner. ICE first, > then use the heat. Pop Ice sticks make great small muscle/area cold > packs, and they also make tasty treats. > > Second, tools on steroids, whether we are talking clippers, > knitting/crochet needles or screwdrivers, can all be bulked up to be > better handled with rubberband balls and/or tape. I agree, to > purchase, some are too pricey for me also, at least now.> > Finally , how much Folic Acid do people find they need to keep the > mouth sores and guts at bay when taking methotrexate? > > Have a great day! God loves you.> >

Helen> >>

February 16, 2009

generally people who move do better for about 2 years and then the body becomes

allergic to the new environment. i live in texas and my area sits on several

allergy belts so i never get a rest because mountain cedar is still out and

grass and weeds are coming in along with other trees, then grass will be here

all summer and ragweed starts in august just in time for mountain cedar in

september....couple this with the fact that it seldom rains and there is lots of

ozone in the summer....my advice...run....

From: instdesgn1 <instdesgn1@...>

Subject: [ ] (unknown)

Date: Sunday, February 15, 2009, 1:17 PM

I just traveled overnight to central Texas which is sort've semi-arrid

and found less asthma trouble than living on the edge of the Gulf Coast

where it's always moldy and full of bugs and pollen and stuff. When I

go to Michigan I find I have somewhat less trouble depending on the

time of year, with asthma and allergies than along the Gulf Coast. The

fall is bad in Michigan - ragweed - and people are less likely to use

air conditioning. Going without air conditioning or some sort of air

cleaning system sets up excruciating sinusitis in me and can also make

asthma worse. Of couse, the rest of my family doesn't have my severe

respiratory diseases and act like it's all in my head. Some of it is -

very literally - buried in the sinuses! When I fly the air pressure

seems to prevent sinuses from draining and again really sets me up for

a sick headache. I pretreat heavily with pseudoephedrine although we

have to sign our lives away right now for it! Probably there's some

sharing of viruses and " contaminants " from other people in such close

proximity to each other too.

>

> To answer question about cruises-I do great on a cruise. Â Getting

there is another story. Â I have to fly from Michigan & every time I

fly my asthma acts up. Â I really get sick & now if I do fly my doctor

said I would have to increase my prednisone before the trip. Â I am on

10 mg but every time I get an attack I have to have an enormous amount

& an very unhappy about the side effects. Â Does any one else get sick

every time they fly?Â

>

February 16, 2009

sounds like you must live in the hill country! I live in south central Texas

and we go from mountain cedar, to ash, to grasses, ragweed, then mountain

cedar....and so the cycle starts all over and if we have any rain or fog or

mist, we have high mold counts. However, the xolair has really helped me make

it through my two worst seasons--mountain cedar and ragweed.

But you are right. Years ago my allergist told me that moving will help only

for about two years, but if you have an allergy " bent " then in about two years

you will have developed an allergy to something.

another Texas gal--I've lived here all my life....

From: instdesgn1 <instdesgn1 (DOT) com>