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Hi Everyone,

It's been a while since I have posted and I have not kept up with the

website as often as I would like. First of all, best wishes and

prayers to everyone who recently had surgery or is scheduled to have

surgery.

here's a quick update from me. I had posterior surgery to remove the

lower half of my old harrington rod, had two disks removed, two cages

inserted, lordosis restored and some additional fusion. I have not

experienced that old back pain since I woke up from surgery. For that,

I am very grateful. However, I did experience nerve damage at L4/L5

during surgery and now have a dropped foot and less overall strength in

my left leg. Dr. Boachie was hoping to see more progress with the

partial paralysis in my left foot at the 4 month mark, but he said it

takes a lot of time for bruised/streched nerves to heal. I am now 7

months post-op and doing pretty well. My foot is stronger and I no

longer wear the AFO brace on my foot. I now wear something called a

maelolock brace which stabalizes my weak ankle, but allows the foot

more mobility. I have been in PT since ~ the 6 week mark and continue

to do 4 session/week - 2 in the gym & 2 in the pool. My PT is now

focused on strengthening the muscles in my left hip so I can walk 100%

of the time without a cane. While this may all sound daunting, please

note that I went back to work part-time in November and have travelled

via Amtrak and airplane to meetings around the country. I am an HR

director in Manhattan and am still on 60% long-term disability and work

40%. I do much of my work remotely, but do travel into Manhattan once

or twice a week. I'll keep this posting (kind of) short, but am happy

to answer any travel-related (or other) questions! Switching gears

between physical therapy and work is very difficult and I am struggling

with it, but I'm plugging along. Fatigue is a big issue, but I'm doing

OK. I've been off meds since October, so my hair has finally stopped

thinning! That's all for now. Positive thoughts to all of you....

Kind regards,

Ann Marie

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Dear Ann Marie,

What a wonderful update , so full of good info for those coming behind you. I'm glad there has been improvement with you foot, hopefully with time it will continue to improve. I'm glad you are able to be off pain med's. Do you plan to go back to work fulltime after your PT is less daunting? Would love to hear any coping skills you have learned with traveling, not that I do a lot of it, but I do find head rests in planes very uncomfortable, especially airbus planes. I also after trucking around my carry on bag thru three airports going to and thro from the retreat very hard on me, especially all the walking dragging a bag in Chicago airport, to where I'll check my bags if I fly again with so many connections.

The fatigue part just takes time, I really didn't feel like I got my full energy back till about 18 months after surgery. Recovery is hard work. I'm 5 years out from my revision and still find things are getting easier, I'm coping better, and things don't seem as stiff as they once were. Keep the faith, tons of good has come from the surgery already, some challenges too, while I didn't have drop foot I had real issues with my shoulders( which in no way compares) but do take some hope that things that are challenges do with time come around and are much better. PT really helped me, as it sounds like it is for you too. You have come so far, I'm proud of all your hard work, just look at all you accomplished, and back to work part time, way to go girl! Thanks for updating us all, and know I'm pulling for you!

Colorado Springs

[ ] Update from Ann Marie

Hi Everyone,It's been a while since I have posted and I have not kept up with the website as often as I would like. First of all, best wishes and prayers to everyone who recently had surgery or is scheduled to have surgery. here's a quick update from me. I had posterior surgery to remove the lower half of my old harrington rod, had two disks removed, two cages inserted, lordosis restored and some additional fusion. I have not experienced that old back pain since I woke up from surgery. For that, I am very grateful. However, I did experience nerve damage at L4/L5 during surgery and now have a dropped foot and less overall strength in my left leg. Dr. Boachie was hoping to see more progress with the partial paralysis in my left foot at the 4 month mark, but he said it takes a lot of time for bruised/streched nerves to heal. I am now 7 months post-op and doing pretty well. My foot is stronger and I no longer wear the AFO brace on my foot. I now wear something called a maelolock brace which stabalizes my weak ankle, but allows the foot more mobility. I have been in PT since ~ the 6 week mark and continue to do 4 session/week - 2 in the gym & 2 in the pool. My PT is now focused on strengthening the muscles in my left hip so I can walk 100% of the time without a cane. While this may all sound daunting, please note that I went back to work part-time in November and have travelled via Amtrak and airplane to meetings around the country. I am an HR director in Manhattan and am still on 60% long-term disability and work 40%. I do much of my work remotely, but do travel into Manhattan once or twice a week. I'll keep this posting (kind of) short, but am happy to answer any travel-related (or other) questions! Switching gears between physical therapy and work is very difficult and I am struggling with it, but I'm plugging along. Fatigue is a big issue, but I'm doing OK. I've been off meds since October, so my hair has finally stopped thinning! That's all for now. Positive thoughts to all of you....Kind regards,Ann Marie

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Ann,

          Can you add this to your file

under Member Stories?

From: [mailto: ] On Behalf Of amtl1110

Sent: Tuesday, January 08, 2008

4:55 PM

Subject: [ ] Update

from Ann Marie

Hi Everyone,

It's been a while since I have posted and I have not kept up with the

website as often as I would like. First of all, best wishes and

prayers to everyone who recently had surgery or is scheduled to have

surgery.

here's a quick update from me. I had posterior surgery to remove the

lower half of my old harrington rod, had two disks removed, two cages

inserted, lordosis restored and some additional fusion. I have not

experienced that old back pain since I woke up from surgery. For that,

I am very grateful. However, I did experience nerve damage at L4/L5

during surgery and now have a dropped foot and less overall strength in

my left leg. Dr. Boachie was hoping to see more progress with the

partial paralysis in my left foot at the 4 month mark, but he said it

takes a lot of time for bruised/streched nerves to heal. I am now 7

months post-op and doing pretty well. My foot is stronger and I no

longer wear the AFO brace on my foot. I now wear something called a

maelolock brace which stabalizes my weak ankle, but allows the foot

more mobility. I have been in PT since ~ the 6 week mark and continue

to do 4 session/week - 2 in the gym & 2 in the pool. My PT is now

focused on strengthening the muscles in my left hip so I can walk 100%

of the time without a cane. While this may all sound daunting, please

note that I went back to work part-time in November and have travelled

via Amtrak and airplane to meetings around the country. I am an HR

director in Manhattan

and am still on 60% long-term disability and work

40%. I do much of my work remotely, but do travel into Manhattan once

or twice a week. I'll keep this posting (kind of) short, but am happy

to answer any travel-related (or other) questions! Switching gears

between physical therapy and work is very difficult and I am struggling

with it, but I'm plugging along. Fatigue is a big issue, but I'm doing

OK. I've been off meds since October, so my hair has finally stopped

thinning! That's all for now. Positive thoughts to all of you....

Kind regards,

Ann Marie

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Hi Ann Marie,

My hair has become totally impossible to manage and I never thought it might be because of the pain meds. I went from having long hair to shoulder length to short after my fusion surgery, trying to find a cut that would allow me to wash and go. When I wake in the morning my hair looks like I have been spinning on the top of my head, and this is with me sitting up to sleep! I have tried all kinds of shampoos, conditioners, gels and moose as my hair is getting thin too. I used to have a light natural curl and could do just about anything with my hair, that it is very upsetting that I look like a wild woman most of the time. I just figured it was from getting older and grayer. Right now I have a pain pump implanted and take Actiq for break thru pain, plus lots of aspirin. I would give my right arm to get off the pain meds, but now is not the time. Maybe if I can find a revision surgeon and he does his magic I will be able to.

Thanks for sharing..

Pat E. from Texas

Hi Everyone,It's been a while since I have posted and I have not kept up with the website as often as I would like. First of all, best wishes and prayers to everyone who recently had surgery or is scheduled to have surgery. here's a quick update from me. I had posterior surgery to remove the lower half of my old harrington rod, had two disks removed, two cages inserted, lordosis restored and some additional fusion. I have not experienced that old back pain since I woke up from surgery. For that, I am very grateful. However, I did experience nerve damage at L4/L5 during surgery and now have a dropped foot and less overall strength in my left leg. Dr. Boachie was hoping to see more progress with the partial paralysis in my left foot at the 4 month mark, but he said it takes a lot of time for bruised/streched nerves to heal. I am now 7 months post-op and doing pretty well. My foot is stronger and I no longer wear the AFO brace on my foot. I now wear something called a maelolock brace which stabalizes my weak ankle, but allows the foot more mobility. I have been in PT since ~ the 6 week mark and continue to do 4 session/week - 2 in the gym & 2 in the pool. My PT is now focused on strengthening the muscles in my left hip so I can walk 100% of the time without a cane. While this may all sound daunting, please note that I went back to work part-time in November and have travelled via Amtrak and airplane to meetings around the country. I am an HR director in Manhattan and am still on 60% long-term disability and work 40%. I do much of my work remotely, but do travel into Manhattan once or twice a week. I'll keep this posting (kind of) short, but am happy to answer any travel-related (or other) questions! Switching gears between physical therapy and work is very difficult and I am struggling with it, but I'm plugging along. Fatigue is a big issue, but I'm doing OK. I've been off meds since October, so my hair has finally stopped thinning! That's all for now. Positive thoughts to all of you....Kind regards,Ann Marie

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Hi Pat,

I normally have fine, wavy hair and not much of it. Post-op it was

really thinning out and was like straw. I always wore it in a

ponytail. While I can't be 100% sure the meds were to blame, Dr.

Boachie felt once I was off them it would get better. I stopped the

oxicodone & valium in October and it seemed like my hair & skin very

quickly got better. Certainly time played a part, too. Right after

surgery your body is so focused on healing the important stuff, that

it ignores the less important things like hair.

Ann Marie

>

>

> Hi Ann Marie,

>

> My hair has become totally impossible to manage and I never thought

it might be because of the pain meds. I went from having long hair

to shoulder length to short after my fusion surgery, trying to find a

cut that would allow me to wash and go. When I wake in the morning

my hair looks like I have been spinning on the top of my head, and

this is with me sitting up to sleep! I have tried all kinds of

shampoos, conditioners, gels and moose as my hair is getting thin

too. I used to have a light natural curl and could do just about

anything with my hair, that it is very upsetting that I look like a

wild woman most of the time. I just figured it was from getting

older and grayer. Right now I have a pain pump implanted and take

Actiq for break thru pain, plus lots of aspirin. I would give my

right arm to get off the pain meds, but now is not the time. Maybe

if I can find a revision surgeon and he does his magic I will be able

to.

> Thanks for sharing..

> Pat E. from Texas

>

> --------------------------------------------------------------------

------------

>

>

> Hi Everyone,

>

> It's been a while since I have posted and I have not kept up with

the

> website as often as I would like. First of all, best wishes and

> prayers to everyone who recently had surgery or is scheduled to

have

> surgery.

>

> here's a quick update from me. I had posterior surgery to remove

the

> lower half of my old harrington rod, had two disks removed, two

cages

> inserted, lordosis restored and some additional fusion. I have

not

> experienced that old back pain since I woke up from surgery. For

that,

> I am very grateful. However, I did experience nerve damage at

L4/L5

> during surgery and now have a dropped foot and less overall

strength in

> my left leg. Dr. Boachie was hoping to see more progress with the

> partial paralysis in my left foot at the 4 month mark, but he

said it

> takes a lot of time for bruised/streched nerves to heal. I am now

7

> months post-op and doing pretty well. My foot is stronger and I

no

> longer wear the AFO brace on my foot. I now wear something called

a

> maelolock brace which stabalizes my weak ankle, but allows the

foot

> more mobility. I have been in PT since ~ the 6 week mark and

continue

> to do 4 session/week - 2 in the gym & 2 in the pool. My PT is now

> focused on strengthening the muscles in my left hip so I can walk

100%

> of the time without a cane. While this may all sound daunting,

please

> note that I went back to work part-time in November and have

travelled

> via Amtrak and airplane to meetings around the country. I am an

HR

> director in Manhattan and am still on 60% long-term disability

and work

> 40%. I do much of my work remotely, but do travel into Manhattan

once

> or twice a week. I'll keep this posting (kind of) short, but am

happy

> to answer any travel-related (or other) questions! Switching

gears

> between physical therapy and work is very difficult and I am

struggling

> with it, but I'm plugging along. Fatigue is a big issue, but I'm

doing

> OK. I've been off meds since October, so my hair has finally

stopped

> thinning! That's all for now. Positive thoughts to all of you....

>

> Kind regards,

>

> Ann Marie

>

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I would definitely like some travel tips! The biggest problem I have

had with travelling in the past has been the lack of assistance with

luggage. I always request assistance (usually a wheelchair), but

then have some problems with getting the wheeled carry-on bag on the

conveyor belt or in the overhead bin. I am flying to chicago in a

couple of weeks, and I am also wondering how to put my shoes back on

after going through the security!

I sometimes have problems getting my checked suitcase into the

airport, but I believe my husband is going to get up early and drive

me to the airport to deal with that.

My carry-on bag is generally full of camera equipment and my laptop.

>

> Hi Everyone,

>

> It's been a while since I have posted and I have not kept up with

the

> website as often as I would like. First of all, best wishes and

> prayers to everyone who recently had surgery or is scheduled to

have

> surgery.

>

> here's a quick update from me. I had posterior surgery to remove

the

> lower half of my old harrington rod, had two disks removed, two

cages

> inserted, lordosis restored and some additional fusion. I have not

> experienced that old back pain since I woke up from surgery. For

that,

> I am very grateful. However, I did experience nerve damage at L4/L5

> during surgery and now have a dropped foot and less overall

strength in

> my left leg. Dr. Boachie was hoping to see more progress with the

> partial paralysis in my left foot at the 4 month mark, but he said

it

> takes a lot of time for bruised/streched nerves to heal. I am now 7

> months post-op and doing pretty well. My foot is stronger and I no

> longer wear the AFO brace on my foot. I now wear something called

a

> maelolock brace which stabalizes my weak ankle, but allows the foot

> more mobility. I have been in PT since ~ the 6 week mark and

continue

> to do 4 session/week - 2 in the gym & 2 in the pool. My PT is now

> focused on strengthening the muscles in my left hip so I can walk

100%

> of the time without a cane. While this may all sound daunting,

please

> note that I went back to work part-time in November and have

travelled

> via Amtrak and airplane to meetings around the country. I am an HR

> director in Manhattan and am still on 60% long-term disability and

work

> 40%. I do much of my work remotely, but do travel into Manhattan

once

> or twice a week. I'll keep this posting (kind of) short, but am

happy

> to answer any travel-related (or other) questions! Switching gears

> between physical therapy and work is very difficult and I am

struggling

> with it, but I'm plugging along. Fatigue is a big issue, but I'm

doing

> OK. I've been off meds since October, so my hair has finally

stopped

> thinning! That's all for now. Positive thoughts to all of you....

>

> Kind regards,

>

> Ann Marie

>

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While I've avoided having checked luggage since I don't won't to lift

it on/off the baggage carousel, what I used to do before surgery was

to do curbside check-in. When it was time to retrieve my luggage, I

usually asked a fellow passenger to lift it off for me. My carry-on

fits under my seat, so I have not had to use the overhead bin much,

but again, have found passengers or flight attendants willing to

help. I think because I use a cane, people offer assistance without

me asking. As for the shoes, I don't take mine off because of the

foot brace I wear. I tell the security agents ahead of time and they

have been extremely understanding and helpful. They just hand-scan

me which takes a few minutes more, but it's a lot easier than dealing

with my shoes. Perhaps if you tell the agent ahead of time that you

cannot easily get your shoes back on, they may accomodate you. My

hardware does not set the alarm off, but I do carry a note from the

doctor's office just in case. That may be helpful to explain why

taking your shoes off is difficult if you don't otherise appear like

you need assistance. Right now it is clear that I need assistance

since I wear the back brace, foot brace & walk with a cane! I make

sure I go through security nice and early so that I don't get

stressed over being late. I have not encountered very long security

lines, but if I do, I will not hesitate asking for a wheel chair to

zip me through. I hope this helps. Happy travels!

> >

> > Hi Everyone,

> >

> > It's been a while since I have posted and I have not kept up with

> the

> > website as often as I would like. First of all, best wishes and

> > prayers to everyone who recently had surgery or is scheduled to

> have

> > surgery.

> >

> > here's a quick update from me. I had posterior surgery to remove

> the

> > lower half of my old harrington rod, had two disks removed, two

> cages

> > inserted, lordosis restored and some additional fusion. I have

not

> > experienced that old back pain since I woke up from surgery. For

> that,

> > I am very grateful. However, I did experience nerve damage at

L4/L5

> > during surgery and now have a dropped foot and less overall

> strength in

> > my left leg. Dr. Boachie was hoping to see more progress with the

> > partial paralysis in my left foot at the 4 month mark, but he

said

> it

> > takes a lot of time for bruised/streched nerves to heal. I am now

7

> > months post-op and doing pretty well. My foot is stronger and I

no

> > longer wear the AFO brace on my foot. I now wear something

called

> a

> > maelolock brace which stabalizes my weak ankle, but allows the

foot

> > more mobility. I have been in PT since ~ the 6 week mark and

> continue

> > to do 4 session/week - 2 in the gym & 2 in the pool. My PT is

now

> > focused on strengthening the muscles in my left hip so I can walk

> 100%

> > of the time without a cane. While this may all sound daunting,

> please

> > note that I went back to work part-time in November and have

> travelled

> > via Amtrak and airplane to meetings around the country. I am an

HR

> > director in Manhattan and am still on 60% long-term disability

and

> work

> > 40%. I do much of my work remotely, but do travel into Manhattan

> once

> > or twice a week. I'll keep this posting (kind of) short, but am

> happy

> > to answer any travel-related (or other) questions! Switching

gears

> > between physical therapy and work is very difficult and I am

> struggling

> > with it, but I'm plugging along. Fatigue is a big issue, but I'm

> doing

> > OK. I've been off meds since October, so my hair has finally

> stopped

> > thinning! That's all for now. Positive thoughts to all of

you....

> >

> > Kind regards,

> >

> > Ann Marie

> >

>

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